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Australia Alopecia Areata Foundation Inc.
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25.01.2022 Today is R U OK?Day. This year has been a challenging one for many, and it's more important than ever to check in or reach out to loved ones. This years' theme is "There's more to say" and the R U OK team have a developed a range of resources to help you know what to say and how to support if someone isn't doing well. Check out the R U OK website for more. Remember AAAF have tools, resources and volunteers here for you if you're having a hard time with your alopecia. You ca...n find our support ambassadors at aaaf.org.au/support-ambassadors/ and our resources at aaaf.org.au/support-material/ Mental health matters every day of the year. Take care of yourself and your loved ones, and remember that a conversation can change a life. ... It's R U OK?Day, a reminder that every day is a day to start a conversation that could change a life. Today we're calling on Australians to learn what to say after R U OK? so they can keep the conversation going when someone says they're not OK. There's more to say after R U OK? Learn what to say when listening with an open mind Learn what to say when encouraging action Learn what to say when checking in Learn how to continue a conversation that could change a life. When we know what to say next we can help someone open up and find pathways to support long before they're in crisis. Learn what to say next and help us move closer to our vision of a world where we're all connected and are protected from suicide. Head to www.ruok.org.au/how-to-ask
24.01.2022 Check out this collection of personal stories of living with Alopecia Areata over on Youtube. Who are your favourite alopecia YouTube channels? Let us know so we can check them out. https://youtu.be/T6IyR_-W-bQ
24.01.2022 Thank you so much to the attendees of our first Alopecia Areata Awareness Week Events! A beautiful weekend across the east coast!
24.01.2022 This weeks' Supporter Sunday falls on a very special day, so we couldn't help but take this opportunity to thank a very special group of supporters! Happy Fathers Day to all the amazing dads in our community! Amazing dads with alopecia, wonderful dads of kids with alopecia, and fantastic dads parenting alongside awesome mums with alopecia - cheers to you!
24.01.2022 This Supporter Sunday, we would like to say a very special thank you to Matilda! Matilda, who has experienced alopecia herself, has donated her gorgeous locks and raised over $2600 to support other kids going through alopecia. "When I was 2 and a half years old my hair started to fall out. It was a few patches to start with, then more and more and by the time I was 4 and a half, I had been completely bald for quite a while. I even started losing one of my eyebrows! "I was ...lucky enough to find something that worked for me and my hair started to grow back but not before I was teased and bullied at school. "It's now been 7 years and my hair has grown so much that I want to cut some of it off to donate so that it might help another child not be bullied and teased." If you'd like to support Matilda by donating to her fundraiser, you can find out more at https://aaafhairdonation.gofundraise.com.au//Rachel-556263
24.01.2022 I am one of Australias most popular lookouts. I can be found on the traditional lands of the Tharawal people. I house a memorial for a pioneer who experimented in flight near me during the 1890s. Can you guess this Alopecia-themed Aussie and win $100?! First correct guess will be the winner announced on Monday at the earliest. ... Full terms and conditions can be found at https://aaaf.org.au/guess-who-giveaway/
24.01.2022 Last Saturday we announced our brand new program, the No Hair We Care Package service. The response was overwhelming. In less than two days, we were completely sold out. We're amazed by the need for this care package service, and are working hard to restock quickly. But all of this was possible thanks to the generous support of the following businesses: Ego Pharmaceuticals
24.01.2022 Did you know AAAF is on the gram? Our Instagram is home to a lot of fantastic bonus content including infographics, self-care tips, and community posts - like this amazing portrait Charlotte received recently for her 4th birthday! Head on over, hit follow, and wish Charlotte a very happy birthday.... https://www.instagram.com/p/CD2mvIigiHl/
23.01.2022 Creative practices like art, music, writing and dance have long been known to help support mental health. Did you know that AAAF has been funding research into mental health and creating support resources for ten years? Find out more via the latest article on the AAAF blog. https://lovealopecia.wordpress.com//09/25/art-and-alopecia/
23.01.2022 How amazing is this family donation from Sarah, Aliera-Kate and Zahria! "My Daughter Piper has Alopecia Areata. She got her diagnosis almost 4 years ago. Since then I have grown my hair so I can donate it so it can be turned into a wig for children like Piper. Not only am I donating, but so is my eldest daughter Aliera-kate and third eldest Zahria. ... I hope we can also raise some funds to go towards the Australia Alopecia Areata Foundation. They have been marvellous during our journey of understanding of this condition. They also offer an annual camp for Australia children suffering from alopecia to come together have some fun and realise they are not alone! This condition may not be life threatening but in a society driven by looking a certain way often the psychological effects of alopecia are very significant. Please if you can support us by donating." https://aaafhairdonation.gofundraise.com.au//Familydonation?
23.01.2022 A big thank you to Darlington Primary School for their amazing Crazy Hair Day awareness and fund raising event yesterday! A supportive school environment can make all the difference for young people with Alopecia Areata. That's why Crazy Hair Days have such a big impact, as well as being a lot of fun. To find out more about hosting a Crazy Hair Day visit: https://aaaf.org.au/alopecia-awareness-week/
23.01.2022 A very special Supporter Sunday should out to these amazing fundraisers. Thank you so much for supporting AAAF during Alopecia Areata Awareness Week. We are so grateful to every fundraiser and donor, but especially for those who know first-hand the impact alopecia can have. Aaron: https://aaafhairdonation.gofundraise.com.au//Aaron-50628844 Kevin: https://aaaf.gofundraise.com.au/page/Kevin-10577498... Tianna: https://aaafs10thbirthday.gofundraise.com.au//Tianna-57327 Summer: https://www.mycause.com.au/page/241336/bald-is-beautiful
22.01.2022 How it started vs. How it's going What a huge ten years we've had! Thank you so much to everyone who has been a part of this wonderful journey and helped us grow. We're so excited to celebrate the final weekend of Alopecia Areata Awareness Week with all of you. Did you catch our latest blog article? Check it out at http://lovealopecia.wordpress.com/
22.01.2022 Actor Anthony Carrigan from the hit show Barry talking about his journey with alopecia, and how he went from nearly quitting acting due to alopecia to finding huge success because of his look through acceptance and confidence. (Some strong language) https://youtu.be/HvuZ1bqhuiw
22.01.2022 Can you call "BINGO" on having read these resources?! In our ten years, AAAF have created a huge number of resources and support tools! Most of them live on our website at https://aaaf.org.au/support-material/ but you can also find extra content over on our blog at http://lovealopecia.wordpress.com/ Alopecia Awareness means knowing where to find the support you need. We encourage all our community to check out our support resources and subscribe to our blog this Alopecia Areata Awareness Week.
20.01.2022 A global network of alopecia specialists has coordinated to create a patient registry, called SECURE-Alopecia. This database seeks to collect information about whether some common treatments for alopecia improve outcomes for people who contract COVID-19. The registry is anonymous and does not collect identifiable information. This data will help support researchers and doctors fighting COVID-19. AAAF are proud to be one of the many organisations partnering to support this im...portant piece of research. https://www.secure-derm.com/alopecia-partner-organisations If you have alopecia and experienced a confirmed case of COVID-19, please reach out to your doctor to participate after your COVID-19 has passed. It only takes your doctor five minutes to register and complete the form. Ask your doctor to register and submit an entry here: https://www.secure-derm.com/secure-alopecia/
17.01.2022 AAAF are seeking a new Secretary, and we need you! The Secretary is a vital part of the senior leadership team at AAAF. You do not need to have a form of Alopecia Areata yourself to hold this role, but experience with the community as a friend or family member is valued. Previous experience as a charity secretary would be highly regarded but is not essential. The AAAF Secretary helps us run our meetings, manage correspondence, and meet charity regulations. This is a voluntary role within a small, supportive team of other passionate volunteers. To register your interest and find out more about this role, please contact [email protected]
17.01.2022 "About four years ago, right after I graduated college, I found a tiny bald patch on the top of my head and I thought it was nothing, Valdiserri said. Then it continued to progress that summer and I eventually lost it all. But Christie has learned to love her iconic look, and has also become a spokesperson for other women suffering hair loss.... Shes also become the first-ever bald model to land a Sports Illustrated centrefold." . . . https://7news.com.au//christie-valdiserri-makes-history-as
16.01.2022 When AAAF first began, the most common question we were asked was Am I the only person with this condition?. We consider it one of the greatest signs of success that we no longer hear this. Alopecia support looks so different now than ten years ago. We have new treatment options in active clinical trials. We have psychological research projects exploring how best to support people with this condition. Read more at: ... https://lovealopecia.wordpress.com/2020/11/20/ten-years-in/ See more
16.01.2022 Can we get three cheers for Bo, Eden, Mel and Shirley, our Hair Donation Heroes for this week? We cannot thank all our donors enough for their generous support. Donating your hair to be made into a wig for someone in need is a deeply personal gift. Thank you so much for supporting wigs for kids. To find out more, please visit https://aaaf.org.au/donate-hair/
15.01.2022 AAAF would like to say a special thank you to Hallett Cove East Primary School for their recent donation. We are so grateful for your support, which will help us to continue to support kids and families impacted by Alopecia Areata.
15.01.2022 "At last, I could let go of the idea that theres only one way to be beautiful. Id spent so much time, money and energy on trying to fit within a narrow perception of beauty, but now I could finally stop. The relief was immense. I finally saw myself properly for the first time and I realised that I liked it. Being bald suits me." https://metro.co.uk//dont-tell-brave-bald-alopecia-131240/
14.01.2022 Do you have alopecia or love someone with the condition? Do you own or work for a business who is in a position to donate items? We launched our No Hair We Care packages on August 1st. We sold out within two days. This amazing response shows how much these care packages mean to individuals and families impacted by Alopecia Areata.... We're working hard to restock and get more NHWC packages available asap. But we need your help! We're looking for businesses who care about people with alopecia and would like to donate items for the packs. We're seeking headwear, games and toys, makeup, skincare, jewellery - but are open to other ideas as well! If you or someone you know might be able to help, please get in touch at [email protected] to discuss.
13.01.2022 "With alopecia it's not the look, it's the inside that counts, that's my saying," she said. "People sometimes think it's the looks that matters but it's not really. It's the inside. It doesn't matter what other people think it matters what you think about yourself." Thank you so much Tabitha for sharing your story and raising awareness of alopecia! https://www.abc.net.au//young-adelaide-girl-livin/12514762
13.01.2022 Did you know it takes up to 20 hair donations to make a single wig? Wigs can have a huge impact for young people with Alopecia Areata, like Matilda. Share her story this Alopecia Areata Awareness Week. You can find out more about hair donation at https://aaaf.org.au/donate-hair/
12.01.2022 Very exciting news and a very exciting sale! We have completely redesigned our e-store! Head on over and check it out. While you're there, check out our wig sale. All our gorgeous synthetic wigs are over 30% off for one week only - that's only $25 each. And as always, we provide free postage Australia wide. Stock is limited, so don't miss out. https://www.freewebstore.org/AAAF-Buy-Online
11.01.2022 Our Wig Sale ends tomorrow night! Don't miss out on this chance to pick up a new wig for just $25. Free shipping Australia wide. These wigs are pre-styled, super easy to use and very light and comfortable. Perfect for a backup, exploring new styles, or a low cost hair piece for working out in. https://www.freewebstore.org/aaaf//cat1997994_3178765.aspx
11.01.2022 This Supporter Sunday we’d like to say a special thank you and farewell to Georgia, who many of you may know as the AAAF Secretary. We first met Georgia when she was 17, when she joined AAAF at Hair Expo Sydney 2010, one of our first major events. She began volunteering with us in January 2011 as a Youth Ambassador, and has been our charity Secretary for five years. Over the last 10 years, Georgia has been a passionate awareness advocate and supporter. She has loved being a...ble to travel and meet people with Alopecia Areata around Australia, and has even represented AAAF at the Miami NAAF Convention in 2017. She has helped with much of the video content on our YouTube channel, and the articles and infographics on our blog. Georgia is leaving the AAAF team to focus on study and career, but will be staying in touch and hopes to see everyone at future events.
10.01.2022 AAAF would like to share a huge thank you to Jamieson! Jamieson started a 'Personal Best' project at school, aiming to raise $350 for AAAF by making and selling lip balms. Her fundraiser has had an absolutely amazing response and has currently raised over $2700 to help kids and families with Alopecia Areata! We're so blown away! Thank you so much Jamieson!
10.01.2022 How gorgeous are these hair donation transformations from Emily and Rhianna?! We love seeing before and after pics from our amazing donors. You can submit your pictures, or find out how to donate, at https://aaaf.org.au/donate-hair/
09.01.2022 Happy Christmas in July to our ten lucky winners and everyone who took part in this giveaway! We will be contacting these lucky people next week to arrange getting the giveaway packs to you.
08.01.2022 Are you a master of riddles? A trivia wiz? Really good at googling and would like to win a $100 gift card? Get ready, because we have an awesome new giveaway coming up! Starting on Saturday, September 12th, we will be running a Guess Who competition on our Facebook page. Be the first person to name the alopecia-themed Aussie described in our clue, and win a $100 gift card! The competition will run for 10 weeks, in honour of AAAFs 10th Birthday, so you have 10 chances to win!... Person, place, plant, animal, or landmark will you guess who? Our competition clues will post on this Facebook page Australia Alopecia Areata Foundation Inc. at 12noon AEST every Saturday. Set a reminder on your phone so you dont miss out. Dont forget to adjust to your time zone thats 11.30am for Adelaide and 10am for Perth! Like and follow our Facebook page at https://facebook.com/aaafonline Australia Alopecia Areata Foundation Inc. You dont have to have a form of Alopecia Areata yourself to be involved friends and family supporting loved ones with the condition are welcome to take part. The giveaway will run over 10 weeks between September 12 and November 14, in the leadup to Alopecia Areata Awareness Week. This competition aims to generate engagement and interaction on our Facebook Page in the leadup to Alopecia Areata Awareness Week. You must be a Facebook user to take part in this particular giveaway. Terms and Important Information: -You must be over 18 or have parental permission to take part. -You must be based in Australia to take part, AAAF cannot provide gift cards outside of Australia. -You may only win one of the ten $100 gift cards, winning one precludes you from winning again. -You must submit your answer via Facebook as a comment on the clue post only. We will not be accepting submissions via email, messenger, comments on shares of the post, or other means. -Each week, winners will be announced on the following Monday at the earliest. If no correct guess has been made, the post will stay active until a correct guess has been made. -Winners must be contactable via Facebook message. Fail to reply within 72 hours of attempt to contact will result in forfeit of winnings to the next correct responder. -Winners will be required to register with AAAF to provide your details for sending the $100 gift certificates. If the winner is under 18, a parent or guardian must register on their behalf to arrange receipt of the gift card. -Gift cards will be available to a total value of $100 only, any additional fees or activation charges will be deducted. -Winners choose what business you would like your gift card to be for, from the following list: businesses in the Coles/Myer group, Woolworths group, Bunnings, JB HiFi, or wig providers who participate in AAAFs Wigs for Kids program (a list can be supplied).
08.01.2022 Brianna, Rachel, Samantha and Teagan are our amazing hair donation heroes this weekend! How wonderful to know these beautiful locks will become a wig and help kids in need. To find out how you can donate or share photos with us, visit our website at https://aaaf.org.au/donate-hair/
08.01.2022 Huge thank you to our friends at Bravery Buddies for celebrating Alopecia Areata Awareness Week with us! Bravery Buddies are one of the amazing sponsors who make our No Hair We Care package program possible. Find out more at https://www.freewebstore.org//No_H/cat1997994_4753843.aspx
08.01.2022 Living with Alopecia Areata can have challenges, but you are not alone. AAAF is here to support every person and family living with all forms of Alopecia Areata to live comfortably and with confidence. Today is International Alopecia Day. To celebrate, AAAF is launching a special new project, the No Hair We Care Program. The No Hair We Care Program (NHWC) is a care package service for people with a form of Alopecia Areata. Each care package is only $15 (+GST), and contains $...100 worth of items, including headwear, skincare, books, DVDs, makeup, jewellery, games and more. The packs also include information and resources to support you on your journey. The packs are available on our e-store and, as always, AAAF provides free shipping Australia-wide. For our first run of the program, we have several package types. Adults, teens and kids packs will be available, with different items for the guys and the girls. You can also select your preferred colour palette styles. The packs are available now on our e-store. Please note the packs are limited to one pack per person with alopecia. This first run of the program is generously supported by the following businesses: Ego Pharmaceuticals
08.01.2022 A huge thank you to Laith & George - two awesome supporters who you may recognise from Season 8 of House Rules! These wonderful blokes are helping raise awareness of Alopecia Areata in support of a close friend who has lost her hair. What stars! If you'd like to support the fundraiser, visit https://www.facebook.com/donate/717331482343202/ https://www.instagram.com/p/CDIqIhUhtNx/&
08.01.2022 Did you know that AAAF have a YouTube channel with hours of video resources all about living with a form of Alopecia Areata? Whether youre looking for a super quick animated explanation of how Alopecia Areata works, a detailed makeup tutorial, or discussion of how to tell your friends about the condition, we have great video resources that can help. Check out the latest article on our blog Love Alopecia for more. What video resources would you like to see us share next? Let... us know in the comments! https://lovealopecia.wordpress.com//alopecia-video-resour/
07.01.2022 This fantastic resource from the Australasian College of Dermatologists has great tips on keeping your skin healthy and comfortable when wearing face masks. With more states recommending masks to keep yourself and others safe, this resource has some very helpful information for people with skin conditions. Face masks are safe and comfortable for most people. However, some skin conditions like eczema, which are fairly common in people with AA, can present additional challenges. There are many things you can do to protect your skin while you protect yourself and community by wearing masks if recommended in your area. https://www.dermcoll.edu.au//COVID-19_Face-masks-and-skin-
06.01.2022 I am critically endangered and one of the rarest land mammals in the wild. I once lived across eastern Australia, but can now be found in only in one place in Queensland. Part of my scientific name means shaggy. ... Can you Guess Who? The first comment on THIS POST with the correct guess will win a $100 gift card! Winner will be announced on MONDAY morning at the earliest, so get you guesses in! Full terms at: https://aaaf.org.au/guess-who-giveaway/
05.01.2022 Thank you so much to everyone who celebrated and supported this Alopecia Areata Awareness Week! While this year looked a little different than usual, we're so grateful to everyone who took part! Now, to get started planning for 2021!
05.01.2022 Can we get three huge cheers for these hair donation heroes?? Alex, Kayla, Lily, Liz, Orionne and Sally - Thank you so much for donating your hair to be made into wigs! If you'd like to know how hair donation works, or how you could get involved, please visit https://aaaf.org.au/donate-hair/
04.01.2022 "Do your own research sounds like a reasonable suggestion to find information and make your own view. Yet, somehow, its become the catch cry of conspiracy theorists and anti-science propaganda. Many actual scientists worry that members of the public doing their own research can be dangerous, even deadly." Check out our latest blog article on assessing the information you see online. ... https://lovealopecia.wordpress.com//alopecia-areata-and-t/
04.01.2022 I am a group of Australian reptiles which includes eight species. I am very territorial and am a popular pet among reptile owners. I can form permanent burrows to be safe from extreme temperatures or predators, and I can easily climb trees. Can you guess this Alopecia-themed Aussie and win $100?! First correct guess wins and the winner will be announced on Monday at the earliest. ... Full terms and conditions can be found at https://aaaf.org.au/guess-who-giveaway/
04.01.2022 Did you know AAAF run a Wigs for Kids grant program? All people aged 17 and under with a form of Alopecia Areata may be eligible for one of these grants. School holidays can be a great time to experiment with a new style, and with school holidays coming and soon going all around Australia, consider if wig wearing is right for you with the support of a WFK grant. Find out more at http://aaaf.org.au/wigs-for-kids/
04.01.2022 Melbourne locals, did you catch AAAF President Chel speaking with 3MDR's Classically Saturday program last weekend? Thanks so much to the amazing program coordinators raising awareness of Alopecia Areata and our Hair Donation Program. If you missed it, you can find it via the link below (Skip to 1:08:00 for Chel's section!)... https://programs.3mdr.com/classically-saturday/2020-08-22
02.01.2022 "I wore hats and scarves to hide my patchy scalp, and struggled terribly with anxiety and depression. During that time, there were many lies I told myself and believed about myself and my future. Now, I am 43 years old, and my life is far different than I had expected it would be. Here are 10 of those lies and 10 of the truths that have replaced the."... Check out Michelle's moving story over on the AAAF blog!
02.01.2022 This Supporter Sunday we'd like to say a special thank you to the outstanding wig makers who work with our Hair Donation Program. Wig making is a very special profession. Wigs take a huge amount of time and skill to create. A beautiful wig can have a huge impact for someone living who has lost their own locks. If you know a wig maker who may be interested in getting involved, encourage them to get in touch at [email protected] to discuss our program.... This year has been a challenging one, and AAAF are so grateful to our amazing hair donors and our wonderful wig makers. Our Hair Donation Program Volunteers are working remotely and tirelessly to get these gorgeous locks on their way to becoming wigs for people in need.
02.01.2022 Another special announcement for International Alopecia Day, - next month we'll be starting a special alopecia-themed guessing competition, with awesome prizes for the winners! Stay tuned for more updates closer to the launch! This Guess Who competition is one of the many ways we're connecting and giving back to our community while cannot be together for group events. Don't forget that you can connect with our community remotely through our online Alopecia Support Groups (https://aaaf.org.au/support-groups/)
01.01.2022 Charlie was one of the ABC Takeover Melbourne winners and his story was about his alopecia journey. https://www.abc.net.au//takeover-melbourne-winner/12766084 Charlie is a remarkable young man. He continues to champion Aopecia in so many ways. He hope's his story helps with some advocacy, awareness and someone else sharing thier story.
01.01.2022 Happy Alopecia Areata Awareness Week! We're so honoured to be celebrating our tenth Alopecia Areata Awareness Week with our amazing community. When AAAF first began, we would often get asked "Am I the only person with this condition?". After a decade of awareness-raising, this is no longer the case. People with Alopecia Areata and their families have access to community, support and resources and no longer need to feel alone.... That's what we celebrate this week, and we hope you will join us. We have a wonderful week of events planned and are so looking forward to seeing everyone. If you can't make it to events in-person, get involved online, share content, and spread awareness in your local community. Every little bit helps.
01.01.2022 Did you see Instagram take off over this amazing artwork? So many comments and discussion! How awesome would it be if the next Disney princess could raise awareness of alopecia? Don't forget you can catch cool bonus content like this by following us at instagram.com/alopeciaaaaf/ (Art Credit to Dinotomic on Instagram. The artist always misnames one figure in their artwork to generate comments and conversation - check out their other work on instagram.com/dinotomic/)
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