ACT ME/Chronic Fatigue Syndrome Society | Medical and health

ACT ME/Chronic Fatigue Syndrome Society

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25.01.2022 Due to the amount of rain overnight and forecast for more today, there will be no drive through option for testing at the COVID-19 testing clinic on Garran Oval.... However, anyone presenting will still be able to get tested inside. The clinic will be open from 9.30am to 5pm. The West Belconnen COVID-19 testing clinic in Kippax will be open today from 9.30am to 5pm, corner of Luke and Stark Street, Holt (entry from Stark St only).

21.01.2022 Tired Teens September Meet Up!

21.01.2022 Eat Your Way to a Healthier Christmas! On the first day of Christmas my dietitian said to me. what you eat can make a difference. ... Is there a connection between what you eat and how you experience persistent pain? Can relief be found in certain foods? This presentation will take a look at what changes can be made to the diet and to dietary habits to help reduce pain. SPEAKER: Erica Roughton is a dietitian at Arthritis Pain Support, assisting clients in their health journey. She specialises in one-on-one consultations; focusing on goal setting, nutrition counselling and advice, disease specific intervention and education and meal plans. Erica has been practising dietetic work for over 8 years, previously working at Canberra Hospital. WHEN: 12.30 1.30pm, Tuesday 1 December 2020 WHERE: online via Zoom REGISTRATION: essential; leave your name and email CONTACT: Arthritis Pain Support on 1800 011 041 or [email protected] COST: Free all welcome

21.01.2022 The ACT ME/CFS Society will be running a 3 week online Zoom course - Making the Most of Life in Uncertain Times. Course Starts on Wednesday, 23 September 2020 Meet with each other and share how we have experienced the last year through three online Zoom sessions. These weekly one hour sessions will cover some ideas on what happens to us when we are faced with challenging situations and how as individuals we have found ways to live with the current crises. We will use gathered... objects to help express and explore these themes. This course is led by Psychotherapist and Psychodramatist Annette Fisher, and was inspired by the wonderful workshop Annette conducted earlier this year, where we found arranging objects a surprisingly gentle and powerful way to approach dealing with change. Bookings required. Please see flyer for more details.

20.01.2022 After some quick and easy meals for those days when you just don't have the energy for cooking a healthy meal? Contact Arthritis ACT office on: 6251 2055 for bookings. This activity will be with our Occupational Therapy student Ellaine. **Please note the location, it is to be held at the office in Pearce.

20.01.2022 Art Therapy Sessions available to ME/CFS Society members and Arthritis ACT Members Arthritis ACT is currently offering members Art Therapy facilitated by a final year trainee from the Master of Art Therapy at Western Sydney University. There is no need to be familiar with (or good at) artmaking to be involved. Please contact Arthritis ACT on 6251 2055 or email: [email protected] if you would like to participate.

19.01.2022 Are you a teen with ME/CFS or a parent of a tired teen? The society has a seperate Facebook pages for teens and their carers. Search Tired Teens if you would like to meet other teenagers and young adults struggling with fatigue conditions or Tired Teens parents group if you are a parent or carer of a tired teen.

19.01.2022 Interesting research opportunities are coming from the UK where a collaboration of researchers, patients and advocates have secured 3.2 million in funding for what will be the largest ever study looking at DNA changes in people with ME/CFS. For more information check out the DecodeME website https://www.meresearch.org.uk/decodeme-the-largest-ever-me/

19.01.2022 This Thursday at 10am Arthritis ACT Peer Mentors, Linden and Dave will be hosting its 2nd Men's Chat Group via Zoom. The chat is for men only, who are living with any form of Musculoskeletal Disorder or Chronic Pain to share and learn with other men. The group will be supported by Richard Costin (Physiotherapist), Blake Dean (Exercise Physiologist) and Linda Spurrier (Registered Nurse).... Once quarantine restrictions are lifted the group will aim to have face to face gatherings at the pub or other suitable venues. We look forward to seeing you all.

18.01.2022 If you are traveling to Melbourne these school holidays please avoid the 10 COVID-19 hot spots (localised areas where there is increased risk of community transmission). https://www.covid19.act.gov.au//health-advice-on-covid-19-

15.01.2022 Are you a member of the ME/CFS Society? If not and you would like to join please log onto the Society's website at https://www.mecfscanberra.org.au/join/.

15.01.2022 This Saturday 8 August is Severe ME Day, a day dedicated to raising awareness of the plight of the 25% of people with ME/CFS who are the most severely impacted by the condition. To help increase visibility of Severe ME please have a look at the Open Medicine Foundation's Severe ME Day initiative, #TheViewforME below.

15.01.2022 Catch The Calm and Mindfully Gain Power Over Chronic Pain, Stress, Anxiety and Depression Eight-week Mindfulness course - held over Zoom Begins Wednesday, 30 September for 8 weeks.... Cost $80. Session times are 4pm-6pm on each session date. All attendees must a be a financial member of Arthritis and Pain Support ACT or the ACT ME/CFS Society. You can join or renew your membership to take part. Please see flyer below for more details.

15.01.2022 Health Care Consumers' Association Inc will be holding a Free Health Seminar: Looking after my feet This Seminar will be held via zoom from 7pm - 8:30pm on Thursday, 22nd October 2020. See below for more details.

14.01.2022 Are you a Tired Teen? or the Parent of a Tired Teen? If so, come along to the next Meet Up! See below for more details

13.01.2022 CANBERRA TIMES: Canberrans have been strongly advised not to travel to greater Sydney as the ACT marks three weeks without a new case of COVID-19. There is just... one active case of coronavirus in the ACT. The total caseload sits at 113 and more than 50,740 tests have now been conducted. ACT Health has updated travel advice to greater Sydney. Canberrans are now strongly advised not to travel there unless for an essential reason. FULL STORY https://www.canberratimes.com.au//canberrans-told-not-to/

09.01.2022 We are excited for the launch of the Inclusive Community Garden on Wednesday 16th September. RVSP to [email protected] or call 6290 1984 for catering and Covid-19 purposes.

08.01.2022 Free Health Seminar - How to Stretch Your Health Dollar Find out: how to obtain free or cheap medical services how to save money on medicines... why health literacy is important share tips with others. Date: 7.00pm 9:00pm, Tuesday 17 November 2020 Venue: By Zoom. Link sent on registration. Zoom support provided. Register: by Friday 13 November to [email protected] or phone: 6230 7800 FREE All Welcome For more information on this or other free health seminars provided by Health Care Consumers’ Association ACT contact: [email protected] or phone: 6230 7800.

07.01.2022 The ACT Government will be progressing to Stage 3 of Canberra’s Recovery Plan from 12 noon this Friday 10 July. The following changes will take place: All ve...nues, facilities and businesses can have gatherings of 25 people, or one person per 4 square metres of usable space (excluding staff) whichever is greater. Outdoor gatherings can have up to 250 people, unless otherwise stated in the Directions. Professional events are to be ticketed, and spectators are to be seated. Sporting and entertainment venues with tiered patron seating should be no more than 25% of total seating capacity. Food courts can reopen for dine-in. Casinos, gaming and gambling venues can reopen. Bars, pubs and clubs are able to serve alcohol to seated patrons, with no limit on group size. Nightclubs can operate as bars if they wish. Steam-based services, including saunas, steam rooms, steam cabinets and bathhouses can reopen. Full contact sports, dance and martial arts competitions will be allowed. Outdoor community sports can have up to 250 spectators across the site (excluding staff and participants). Up to 25 patrons will be permitted at an unstaffed gym, health club and fitness facility. More detail on the changes www.covid19.act.gov.au/changes The final decision to proceed with easing of restrictions will be based on advice from the ACT Chief Health Officer and will follow a thorough public health assessment of the situation here in the ACT. In response to the situation in Victoria, the ACT has taken extra measures to manage risk factors and allow us to continue with Stage 3 of Canberra’s Recovery Plan. This includes: Extending the ACT State of Emergency to Friday 21 August. Joining NSW in temporarily closing our borders to Victoria. Introducing a mandatory 14-day quarantine for ACT residents returning to the Territory from Victoria. Be sensible and exercise common sense. The pandemic is not over. Restrictions have eased but our responsibilities haven’t. It’s important we all continue to practise good hygiene, maintain 1.5 metres from others, stay home if we’re unwell and get tested if we have COVID-19 symptoms, no matter how mild. If you haven’t already, download the COVIDSafe app www.covidsafe.gov.au and leave your first name and number with businesses to assist with contact tracing if required. We all have a part to play during this pandemic. Don’t let complacency set us back.

07.01.2022 With the new Australian ME/CFS Centre for Collaborative Research expected to open early next year, we’re so pleased to let you know a little more about the rese...arch work underway. One of the first projects led by director Dr Chris Armstrong will be to develop a research approach that focuses on individual patients and the biology that underlies their disease by analysing 100 ME/CFS patients over three years, monitoring their health data via wearables and sampling and analysing their blood and urine. The longitudinal study approach is the cornerstone of personalised medicine, Dr Armstrong says. By looking at the biological differences in an individual at mild and severe moments of their disease we can start to piece together what may be causing their illness and, at the very least, work out what improves or exacerbates their symptoms, he explains. You can read more about the project here: https://www.emerge.org.au//australian-research-centre-to-o

07.01.2022 We are so excited to be launching the Emerge Australia ME/CFS Community Forum over the coming weeks! We would LOVE it if you could possibly spend about 5 minute...s (or less) sharing your thoughts with us about the forum e.g. topics that are of interest to you. Your input will genuinely help us to get the forum off to a great start. Our priority is to create a safe, welcoming space for people living with ,and affected by ME/CFS, to be able to come together and share their experiences. This survey should take less than five minutes to complete. As ever, please so share any thoughts in the comments below https://www.surveymonkey.com/r/me_cfs_forum

06.01.2022 Ms Breanna Weigel is a new research student to NCNED. Breanna is currently completing her Biomedical Science Accelerated Hon...ours Degree with NCNED. Currently, Breanna is writing a paper reporting findings for a gastrointestinal and dietary paper, as well as conducting data analysis for a second study examining the role of nutritional intake and supplement use in ME/CFS. , , , , , , , , , , , // , / / .

05.01.2022 Deep breathing is a proven technique anyone can use to reduce stress and anxiety If you’re feeling overwhelmed, finding it difficult to focus, or struggli...ng to fall asleep, this simple breathing exercise might help. You can try it alone, or with others. Our friends at Mental Illness Education ACT have developed a range of online resources including video exercises just like this one. From breathing techniques to mindfulness, these free videos are available any time you need. Visit www.mieact.org.au to watch and learn more. If you’re struggling with stress and anxiety or need further support visit www.health.act.gov.au/mentalhealth

04.01.2022 This week, 17th-23rd August 2020, is Healthy Bones Action Week! We sometimes forget about our bones and bone health when we’re living with ME/CFS. The reality is though that low exercise and low exposure to vitamin D can put us at huge risk of osteoporosis. During this week, let’s take some time to think about our bones as well. https://dairy.com.au/our-programs/healthy-bones-action-week

03.01.2022 Three week online Zoom course starts this Wednesday 23rd September! Making the Most of Life in Uncertain Times Please contact the Society on 6290 1984 or email: [email protected] to make a booking.

03.01.2022 Finding hope for those living with Chronic Fatigue Syndrome - By Hilary Harper on Life Matters Imagine going for a short walk one day and then the next morning you can't even get out of bed. That's what life is like for some people living with what's commonly known as ME (Myalgic Encephalomyelitis)/CFS. A new research project seeks to find out more about the disease, and identify some possible treatments, using existing drugs.... Guests: * Sue Collins, lives with ME/CFS and heads up the Geelong ME/CFS Support Group * Dr Heidi Nicholl, CEO of Emerge Australia, a national organisation working for people with ME/CFS * Professor Ken Walder, lead researcher of ME/CFS study at Deakin University Duration: 16min 14sec Broadcast: Wed 14 Oct 2020, 9:27am https://www.abc.net.au//finding-hope-for-those-li/12761110