ANZDATARegistry in Adelaide, South Australia | Medical and health

ANZDATARegistry

Locality: Adelaide, South Australia

Phone: +61 8 8128 4758

Address: SAHMRI 5000 Adelaide, SA, Australia

Website: https://www.anzdata.org.au/

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25.01.2022 The first three chapters of the 41st ANZDATA Annual Report (data to Dec 2017) on incidence, prevalence and mortality are now available at: http://www.anzdata.org.au/v1/report_2018.html

23.01.2022 The 2017 ANZSN ASM will be held in Darwin 4-6 September 2017, closing date for abstract submissions 26 April 2017. The registry receives a high volume of requests in the run up to this event. We recommend that all data requests for abstracts be submitted as soon as possible and regret that requests received after 5 April 2017 may not be completed prior to the abstract closing date.

23.01.2022 Infographic summary of 2017 ANZDATA data - Developed for consumers, with consumers

23.01.2022 Thanks to all involved in the BEAT-CKD Annual Research Forum 2020, via webinar hosted at SAHMRI #beatckdforum20

23.01.2022 The summary of 2016 data is now available from: http://www.anzdata.org.au/v1/interim_summaries.html Individual hospital reports are currently being produced and will be available soon.... Thank you to our funders and our contributors in renal units through Australia and New Zealand. Merry Christmas & Happy New Year!

23.01.2022 ANZDATA Deputy Executive Officer Phil Clayton is presenting at tomorrow nights Statistical Society of Australia SA Branch meeting. More details in the link below:

22.01.2022 We have a new-look website! All the old stuff and more - at https://www.anzdata.org.au/

21.01.2022 The open access protocol paper for BEST-Fluids (one of our registry-based trials) is now available. https://trialsjournal.biomedcentral.com//s13063-020-04359-2

21.01.2022 ANZDATA is hosting the BEAT-CKD Registries Workshop, 3-4 April at @SAHMRI. This event is supported by the NHMRC BEAT-CKD Program Grant. Registration is free for members of the nephrology community. For details and program see http://beatckd.org/events/

21.01.2022 Congratulations to Dr Philip Clayton for being awarded a Jacquot Research Establishment Fellowship for 2019 to undertake his research titled, Transforming national kidney allocation to increase utility and equity.

21.01.2022 ANZDATA Senior Biostatistician Dr Chris Davies presented a webinar today on Data Linkage to ANZDATA for the Population Health Research Network. Available below on Youtube:

20.01.2022 Are you a person with Kidney disease? Do you want to participate in Kidney research and contribute but don’t know how to be involved? Then this workshop is for you. The Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) is conducting an Introductory Workshop for Kidney Consumers on the topic of A practical workshop for people/carers with kidney disease on how-to be involved in kidney research as a consumer partner. The workshop will highlight the i...mportant research work done in kidney research with the collaboration of consumers like you. The workshop will address the need for consumer involvement in kidney research and will have stories from consumers who were involved in the kidney research projects. Learnings from the Better Evidence And Translation -Chronic Kidney Disease program (what worked and what didn’t) Opportunities for consumer involvement moving forward Please Click the Following Link to Register for the workshop on 18th November (Wednesday) 10am-12pm Adelaide time. No registration cost involved and the workshop is free to attend: https://adelaide.zoom.us//tZcpde6qqzsrG9c-YjMChas01yy25t-9 It would be great if you could attend the workshop and share your feedback and opinions. It will be an interactive workshop to have a genuine conversation with the researchers and kidney doctors unlike a seminar. See more

18.01.2022 Professor Richard Kitching - Update on the current landscape of kidney disease research in Australia. Patient sessions at ANZSN - join the webcast now! http://beatckd.org/even/anzsn2018patientsessionlivestreams/

18.01.2022 The 2012-2017 individual hospital reports on Transplant & Dialysis are now available for contributing units to download from the ANZDATA Secure Report Depot. Abridged versions of these reports are available on our website: http://www.anzdata.org.au/v1/hospitalreport.html

17.01.2022 On Wednesday 4 May, ANZDATA and ANZOD data entry system will be down for 2 days from 5am ACT due the Registrys relocation to Sahmri

17.01.2022 We are excited to share that there will be two Consumer Sessions at this years ANZSN Annual Scientific meeting to be held at the International Convention Centre in Sydney from the 8th - 12th of September. If you are unable to attend in person there will be a webcasting option available. Registrations are essential and can be made at the following link: http://beatckd.org/anzsn-2018-patient-sessions/

16.01.2022 The latest publications produced using data from our registry (including three from April already) are available at http://www.anzdata.org.au/v1/publications_2016.html

16.01.2022 Congratulations to the ANZDATA researchers who received prizes at the Transplantation Society of Australia and New Zealand Annual Scientific Meeting! Dr Philip Clayton was awarded the Kidney Health Australia Prize for Best Presentation in the Field of Clinical Research. Dr Matthew Sypek received the Early Career Researcher Clinical Award and the prize for Best Poster.

16.01.2022 PREGNANCY AND KIDNEY DISEASE RESEARCH CALL OUT: If you are a woman diagnosed with kidney disease (or her partner/family member), you can help us with this study. We are conducting a survey to understand your thoughts and experiences on current pregnancy education, information needs and preferences. To find out more about the study or to complete the survey, please visit: https://www.anzdata.org.au///consumer-perspective-surveys/

15.01.2022 Our move to Sahmri is complete! Data entry system and secure report depot are operational again. New contact phone number: +61 8 81284758, Fax: +61 8 81284769.

15.01.2022 Registration is now open for the BEAT-CKD Forum Workshop 1 on Grant Writing via Webinar on 5 August 2020. For more details and to register please visit: https://beatckd.org/2020-forum/

14.01.2022 Data to the end of 2017 is now finalised and locked. The summary report and appendices on incidence, prevalence, mortality and missing data are now available at: http://www.anzdata.org.au/v1/report_2018.html

13.01.2022 REGISTER NOW for the Patient and Carer Forum at ISN World Congress of Nephrology 2019 - A session for consumers, designed with consumers. Sunday April 14th 2019. Attend in Melbourne or via free live-stream! REGISTER HERE: http://beatckd.org/events/

11.01.2022 How should deceased donor kidneys be allocated? If you are a health professional working with donor families or kidney transplant recipients in Australia wed love to get your thoughts. Follow this link to learn more and complete a quick 10 minute survey. This survey is just for health professionals, but weve recently been asking the general community for their thoughts as well. Stay tuned for results soon.

11.01.2022 The dialysis KPI reports for Q1 2017 are available for contributing units to download from the ANZDATA Secure Report Depot. These include peritonitis and HD access reports based on real time data.

11.01.2022 Thanks to all who attended and contributed to the 2017 BEAT-CKD Annual Research Forum hosted by ANZDATA at SAHMRI!

10.01.2022 With all ANZDATA staff working from home, this is what our weekly BEAT-CKD research meetings look like.

10.01.2022 A Huge Congratulations to Dr Phil Clayton, Editor of ANZDATA, for winning the Kidney Health Australia Award at the ANZSN ASM yesterday!! We are proud to have such a talented team working here at the ANZDATA registry.

10.01.2022 Check out the updated page for our Aboriginal and Torres Strait Islander Health Working Group, which includes recent achievements such as this infographic: https://www.anzdata.org.au//aboriginal-and-torres-strait-/

09.01.2022 Join tomorrow afternoons Consumer Session at the ANZSN Annual Scientific Meeting, any time via WEBCAST! - Wednesday September 12th - Access via this link: http://beatckd.org/even/anzsn2018patientsessionlivestreams/

09.01.2022 The 2011-2016 individual hospital reports on Transplant & Dialysis are now available for contributing units to download from the ANZDATA Secure Report Depot. Abridged versions of these reports are available on our website: http://www.anzdata.org.au/v1/hospitalreport.html

08.01.2022 The August Interim Summary of Incidence is also now available to contributors through our secure report depot.

08.01.2022 Data to the end of 2019 is now finalised and locked. The interim summary report is now available at: https://www.anzdata.org.au//anzdata-42nd-annual-report-20/

07.01.2022 Did you know that SAHMRI is home to a number of key health registries? At this weeks Scientific Seminar it was fantastic to hear about some of the great transl...ational and observational work they do. Learn more about registries at SAHMRI: bit.ly/2K7LGoV L-R: Liddy Griffith (Senior Manager, Clinical Research), Associate Professor Maria Inacio (Registry of Older South Australians), Professor Stephen McDonald (ANZDATARegistry), Ms Grace ODonohue (AOANJRR), Ms Tamara Hooper (ACOR Transcatheter Aortic Valve Implantation Registry).

07.01.2022 Please save the date for the upcoming BEAT-CKD Annual Forum via Webinar on 3 & 4 August 2020.

05.01.2022 Registration is now open for the BEAT-CKD Annual Research Forum via Webinar on 3 & 4 August 2020. For more details and to register please visit: https://www.anzdata.org.au/an/for-information-2/beat-ckd-2/

03.01.2022 If you missed the Consumer Research Sessions at the 54th ANZSN Annual Scientific Meeting, head to the BEAT-CKD YouTube channel to view recordings of the presentations! Informed by the preferences of the BEAT-CKD Consumer Advisory Board. https://www.youtube.com/channel/UCmjWsEI9_iFrsJrTiKWFbeQ

02.01.2022 The team from ANZDATARegistry and Kidney Health Australia at the 2019 BEAT-CKD Annual Research Forum.

02.01.2022 New residence for ANZDATA Registry since May 2016

01.01.2022 The September summaries of living and deceased donor activity are now available on our website: http://www.anzdata.org.au/v1/living_kidney.html http://www.anzdata.org.au/anzod/v1/summary-org-donation.html