Australia and New Zealand Sarcoma Association in Parkville, Victoria, Australia | Non-profit organisation

Australia and New Zealand Sarcoma Association

Locality: Parkville, Victoria, Australia

Phone: +61 1800 177 657

Address: Level 1, 305 Grattan Street 3000 Parkville, VIC, Australia

Website: http://www.sarcoma.org.au

Likes: 682

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• Medical and health
• Non-profit organisation
• Charitable organisation

24.01.2022 Today is the start of Sarcoma Awareness Month! Like last year, we are encouraging you to 'Go Yellow For' your loved ones. We have developed tiles that best represents who you are going yellow for. Share it on your Facebook, Instagram, LinkedIn, Twitter, etc. Who are you going yellow for? You can also download them from our website https://sarcoma.org.au//ev/july-is-sarcoma-awareness-month #anzsa #sarcoma #sarcomaawarenessmonth #sarcomaawareness #sarcomaiscancer

24.01.2022 We're ending the week with positive news. #ANZSA is proud to announce that the Johanna Sewell Sarcoma Research Grant was awarded to Dr James Blackburn from the Garvan Institute of Medical Research who will look to improve fusion gene detection and immune response assessment in #sarcoma patients. Read more below or from here https://sarcoma.org.au//anzsa-sarcoma-research-grant-dr-ja Fusion genes result from mis-repair of broken chromosomes and cause an estimated 30 per cent ...of all sarcoma cases. Their precise detection helps determine patient prognosis and informs appropriate treatment and care, thereby impacting overall mortality. To address limitations in current diagnostic techniques, Dr Blackburn’s research team has developed and published a novel sequencing-based fusion gene test for sarcomas and other solid cancers that simultaneously detects all fusions present in a patient sample. As many cancer-causing fusions are not currently treatable, Dr Blackburn’s team aims to advance their proven test design by additionally detecting the presence of immune cells within tumours, the sequencing of which will indicate patients who are potential candidates for immunotherapy. The combination of highly accurate fusion gene diagnosis and immune cell monitoring provided by this new test design will enhance knowledge of potential treatment options and improve outcomes for sarcoma patients. We thank Helen Sewell AM for her support and contributions. #SarcomaAwarenessMonth

22.01.2022 Excited to hear that A/Prof Evan Ingley will be speaking at the Rotary breakfast meeting (WA) on his research project that was supported by Kicking Goals For Xav Sarcoma Research Grant and ANZSA. Our WA friends, please join if you're able to! More details in the image. #sarcoma #cancer

21.01.2022 You asked, and we've listened. We're happy to launch Sarcoma Stories on our website. It'll feature stories from sarcoma survivors, parents, carers and clinicians. To kick things off, we're featuring Karen Lurati's story. Karen was diagnosed with liposarcoma (cancer that starts in fat cells). Three years later, she remains cancer-free and feels ready to share her story, but admits the emotional recovery has taken a lot longer than the physical. Read more about her story... #S...arcomaAwarenessMonth #sarcoma #anzsa Thank you, Karen, for sharing your story! https://www.sarcoma.org.au/sarcoma-stor/karen-luratis-story

20.01.2022 Cancer research has led to better treatments and outcomes for #sarcoma patients. This #WorldCancerResearchDay, we want to say thank you to all our sarcoma researchers and collaborators for the amazing work they're doing! We also want to thank all of you who donated and helped spread awareness! Read about our work sarcoma.org.au/projects

20.01.2022 So lovely to see the Slater & Gordon Class Action team celebrating #SarcomaAwarenessMonth by "Going Yellow" during their team meeting! This is something you can do at your meetings too! It's a great way for your friends and colleagues to show support towards you and the sarcoma community. Tag us and show us your "Go Yellow" pictures!

20.01.2022 Great news! Registration is now open for the ANZSA Virtual ASM 2020. It is free for ANZSA members and $26 for non-members. All consumers are encouraged to join. Register here sarcoma.org.au/asm-2020/welcome. We hope to see you online!

20.01.2022 We're ending the week on another positive note. Our CEO, Dr Denise Caruso, spoke to Rare Cancers Australia in a podcast about #sarcoma, sarcoma research and #ANZSA in conjunction with #SarcomaAwarenessMonth. Have a listen. Hope you are all keeping well and safe.

20.01.2022 We're pleased to share with you our half-year progress. It has been a busy period for us despite COVID-19. Read it here: https://sarcoma.org.au//newslet/anzsa-newsletter-july-2020

18.01.2022 Our next webinar is on 16 July (Thursday)! We'll focus on managing practical issues such as finance, accommodation, childcare, employment, etc. while going through treatment. Register today https://register.gotowebinar.com/regist/4502867760231478540

17.01.2022 This #SarcomaAwarenessMonth, we've been invited to speak about #sarcoma, clinical trials and what #ANZSA does. Dr Denise Caruso, our CEO was featured in this podcast episode. Have a listen! Many thanks to the Cooper Rice-Brading Foundation and Sock it to Sarcoma for having us.

17.01.2022 Managing your everyday life is a lot to think about and organise when you're going through #sarcoma treatment. Join us at this week's webinar to learn how to manage practical issues like finances, travel, work, studies, childcare, legal, etc. Register: https://bit.ly/300WquF Share this with people you know who need to watch it.

16.01.2022 Shoutout to an absolute legend, Lucy, who raised over $6.7k from her 'shave' event to support her mom who's diagnosed with a soft tissue sarcoma. ANZSA Director, A/Prof Peter Steadman was there to thank the organisers on behalf of ANZSA. #SarcomaAwarenessMonth #sarcoma

15.01.2022 "In terms of the next advances for sarcoma, I don’t think it will be one major breakthrough that will solve everything, but I think we will see a series of incremental advances that will make an overall difference things like better supportive care, new molecules and better combination therapies." Dr Susie Bae. In conjunction with National Science Week, Dr Susie Bae shares her insights about her work and how clinical trials are crucial to improving sarcoma diagnosis and treatment. Read her story here https://sarcoma.org.au//sa/dr-susie-bae-medical-oncologist

14.01.2022 We're proud to announce that the Xavier Krikori Sarcoma Research Grant was awarded to Dr Rachael Terry from the Children’s Cancer Institute who will investigate new immunotherapy strategies for children with rhabdomyosarcoma. You can read more below or here https://sarcoma.org.au//anzsa-sarcoma-research-grant---dr- Dr Terry will be working together with researchers in the ZERO Childhood Cancer Personalised Medicine Program at Children’s Cancer Institute and Sydney Children...’s Hospital, Randwick, and collaborators at the Peter MacCallum Cancer Centre. Rhabdomyosarcomas (RMS) are the most common soft tissue cancer that occurs in children and are the cause of around five per cent of all childhood cancers. RMS can be divided into two main groups based on their molecular features fusion-positive RMS (FP-RMS) and fusion-negative RMS (FN-RMS). Children diagnosed with FN-RMS generally have a better chance of survival than those with FP-RMS. However, the outcomes for a patient with either FP-RMS or FN-RMS are extremely poor once the cancer has spread to other parts of the body such as lung or liver, with less than 30 per cent chance of survival. Unfortunately, there has been little progress towards new therapies for these patients in recent years. Having said that, immunotherapies such as immune checkpoint inhibitors, which activate a patient’s own immune system to target and kill cancer cells, are starting to show some promising results in childhood cancer and could be used to treat sarcomas. However, only a handful of trials have tested immune checkpoint inhibitors in children with sarcomas such as RMS. So far, these inhibitors as single treatments have generally not been very effective. Dr Terry and her research team are proposing that treating children with a combination of inhibitors will be far more effective against sarcomas such as RMS than single therapy. With the Xavier Krikori Sarcoma Research Grant, Dr Terry’s research will determine which immunotherapy combinations are optional for treating both FP-RMS and FN-RMS. To better understand how to treat RMS most effectively, Dr Terry will intensively investigate the immune profiles of RMS, using samples from sarcoma patients enrolled in the ZERO Childhood Cancer Clinical Trial. Pre-clinical testing of these combinations in mouse models will provide the data needed to apply for additional funding to expand this program to test other immunotherapy combinations in RMS. They also plan to incorporate other sarcomas such as osteosarcoma and Ewing sarcoma in future research, to improve survival and quality of life for more children with sarcoma. We thank Kicking Goals For Xav for their support and contributions.

13.01.2022 Today is Super Maxi's birthday! We first shared Maxi's osteosarcoma journey last year, and today we've his updated story which you can read in our Sarcoma Stories web page https://sarcoma.org.au//maxis-journey-osteosarcoma-survivor MaxisJourney

13.01.2022 Congratulations to Dr Hayden Snow and his peers (most of whom are ANZSA members) for having their article published in the prestigious Journal of Surgical Oncology! Dr Hayden's research was made possible thanks to Hannah's Chance #sarcoma research grant. Amazing work! Read onlinelibrary.wiley.com/doi/10.1002/jso.26261 #liposarcoma #radiotherapy

11.01.2022 Vale Prof Martin Tattersall AO. We pay our respect and tribute to our friend, mentor and colleague - Prof Martin Tattersall AO. Read our full tribute: https://sarcoma.org.au//vale-professor-martin-tattersall-ao Prof Tattersall was a founding Board Director and member of ANZSA (then known as ASSG). It was his vision to bring together the adult and paediatric sarcoma researchers around Australia and New Zealand to improve the outcomes of patients with sarcoma.... Prof Tattersall’s work will continue to influence sarcoma care in Australia and globally. His desire to ensure progress in sarcoma biology and treatments, including paediatric types, ensures he is recognised as a holistic sarcoma pioneer for all. To honour Prof Tattersall’s incredible contribution to sarcoma research and care, ANZSA has named the plenary lecture at our annual scientific meeting The Professor Martin Tattersall Lecture.

11.01.2022 Had a really good webinar earlier on managing practical issues while undergoing sarcoma treatment! If you missed it, we'll have a recording available soon. Meanwhile, find out more about sarcoma where http://sarcoma.org.au #sarcomaawarenessmonth #goingyellowforsarcoma

11.01.2022 Our Consumer Panel Advisory member, Julijana, shared her #sarcoma journey and insights to deal with challenges (physical, mental, emotional and social) in conjunction with #SarcomaAwarenessMonth. Have a listen! Thanks for the opportunity, Rare Cancers Australia

09.01.2022 Today marks the end of July's #SarcomaAwarenessMonth. Huge thanks to those who participated in our events, donated and created awareness. ANZSA's efforts to improve #sarcoma diagnosis and treatment continues, and we hope you'll continue this journey with us.

04.01.2022 Life after sarcoma treatment is a crucial area to address. Join us this Thursday for a free webinar on survivorship - life after treatment to learn ways to cope and self-manage. Register here https://register.gotowebinar.com/register/819712714390992140

01.01.2022 Watch Lucy and Tim's hair shave! Lucy and Tim shaved their hair to support Lucy's mom, who's diagnosed with a soft tissue sarcoma. Their fundraising efforts raised over $6.7k! Thank you for supporting sarcoma research!

01.01.2022 Exciting news! The ANZSA Board is calling for nominations for two additional Directors to join the Board. ANZSA members including consumers are encouraged to nominate themselves for it. Read the notice for the criteria https://sarcoma.org.au//call-for-nominations-anzsa-directo #sarcoma