A Secret Life | Media
A Secret Life
Phone: +61 413 932 300
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25.01.2022 Here is a world map of the 55 countries (in red) showing where "A Secret Life - Surviving a Rare Congenital Condition" has been distributed to either by hard copy or Ebook Kindle version since its release in September 2017 @ONEin5000 #anorectalmalformation #imperforateanus #ONEin5000
24.01.2022 THE BIG NEWS: A Secret Life - 2nd Edition is coming !! An updated version of the book with an extra 40 pages which includes:... - My Mum’s own words in much greater detail - Dedication to a special boy #InMemoryOfMax - A very special piece from Dr Alberto Pena - Impact of book globally in IA/ARM community - ONE in 5000 Foundation vision The book will be available worldwide from 18th April 2019 #AnorectalMalformation #ImperforateAnus #ASecretLifeBook2 #ONEin5000Foundation #SpreadingAwareness #56CountriesSoFar
24.01.2022 With an Australian Icon Bert Newton who has supported me greatly after our radio interview today about my book
15.01.2022 Very pleased to advise that the updated version of A Secret Life - Surviving a Rare Congenital Condition is now available worldwide both as Paperback & Kindle Versions by clicking the below link. This updated version has an extra 10,000 words and includes a much greater insight from my Mother’s perspective, also an amazing contribution from Dr Alberto Pena, as well as a special dedication to a young IA/ARM child from the UK, along with details of the global reach of the ON...E in 5000 Foundation. I hope you enjoy this updated version as we continue to raise awareness and understanding of IA/ARM to the wider community. All proceeds (less Amazon costs) go directly to the ONE in 5000 Foundation - Imperforate Anus / AnoRectal Malformation https://www.amazon.com/dp/0648102424/ref=sr_1_fkmrnull_2
13.01.2022 The 1st edition of the book was released in August 2017, and has since sold to more than 50 countries globally. We released the updated version in April 2019, and this week the book reached the worldwide top 100 books on amazon.com in the Special Needs Biographies category, where it reached no. 59. This is such a wonderful recognition of our IA/ARM community, the children and adults who live with the condition but most importantly the parents, who are so incredibly crucial for the child to obtain a quality of life in many very difficult circumstances, physically and emotionally. The more we spread the word, the less the stigma we face and the more the ONE in 5000 Foundation - Imperforate Anus / AnoRectal Malformation can be recognised as a global resource for the IA/ARM community and the wider community as well.
08.01.2022 This is a recent review of "A Secret Life" completed on www.amazon.com "This should be a mandatory book handout for families with new IA babies and for therapists/social workers who work in the medical field as well as staff of colorectal and pediatric surgeons centers and units around the world. Thank you for writing this Greg! A big hug from your international IA family!!! We love you and appreciate you."
06.01.2022 Since Senator Anne Urquhart’s speech in the Australian Parliament on Wednesday, we have sold books in Australia, USA, UK, France, Belgium, Germany, Israel & Phillipines, as we strive to continue to spread IA awareness across the world. #ONEin5000
01.01.2022 We have now sold over 1000 books and kindles worldwide for the ONE in 5000 Foundation Inc. which I find overwhelming, and at the recent PTN Conference we sold out the 80 books we had there. I can’t thank everyone enough for supporting the IA/ARM community and helping spread the word to so many others. The cherry on the top has been today being presented with this Certificate of Achievement in Hollywood from Alan Johnson (Ramada Plaza, West Hollywood) and Gavin Wood (ex-pat Aussie showbiz personality) who have been incredibly supportive of my book and spreading awareness here in the Los Angeles community.
01.01.2022 This video is from when we launched the updated version of my book in England earlier this years as a tribute to a beautiful little boy, Max Finnigan, son of Cassie & Jon Finnigan who had passed away suddenly a few months earlier. I was honoured to have a wonderful friend of mine, Bec Turrell-Brown read this part of the book which is my mums words about her experience of our early days of my life. Bec is also a mother to a wonderful 5 year old boy, who also has IA/ARM, so it was incredibly generous of her to do this for me and very fitting as someone who has walked in the same shoes as my mum as an IA/ARM mother. #ONEin5000 #InMemoryOfMax #ImperforateAnus #AnoRectalMalformation #AnalAtresia #Vacterl
01.01.2022 As featured by Patti Newton on 3AW Nightline's radio program: "A Secret Life - Surviving a Rare Congenital Condition written by Greg Ryan can be purchased as a hard copy through Readings Bookshop - Carlton for $20 or www.onein5000foundation.com.au for $20 plus postage or in a Kindle EBook format for $7.58aud on www.amazon.com.au This is to assist in spreading awareness of a birth defect that is very rarely spoken about or even heard of that affects 1:5000 babies born around ...the world. Proceeds of sale of book goes direct to the non-profit ONE in 5000 Foundation which is registered with the Australian Charities and not-for-profits commission. #ONEin5000 #anorectalmalformation #ImperforateAnus #Vacterl Www.onein5000foundation.com.au
