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25.01.2022 4-year-old Maya (AKA Mighty Miss Maya), who has cerebral palsy, takes first steps on her own. [Mighty Miss Maya - Will to Walk]
25.01.2022 Hi wonderful people! So quick update.. The neurologist in Brisbane confirmed the diagnosis of Cerebral Palsy. Mild quadraplegia causes my hands to fist alot, so slapping and clapping are awesome therapy and show my great improvement! The Diplegia affects my legs and although I can't yet sit up by myself or walk, I have found my own style of movement and I love to dance!! Let me show you my moves!! ... There are no limits in life, only loopholes #DancingStar!! #BoogieBaby!! #MyOwnStyle #HeadShakingHandSlappingSpinAroundDanceOff! #ForTheLoveOfMusic #GoBodhiGoBodhiGoGoGoBodhi!!! #ThereAreNoLimits #WeAllHaveUniqueAbilities #NopeWeDontDisInThisFamily #SoMuchToLove!! #MostAwesomeGuyAward! #InspiringSmilesDailySince2016!
20.01.2022 Cuddle time with my brother's and sisters is the best! #FamilyLove #LotsOfHugs #LovingLife
20.01.2022 No more tubes, wide awake and ready for adventure! #LovedMySleepoverWithMum #AboutToAnnounceMyBIGSurprise!!
19.01.2022 HAPPY 1ST BIRTHDAY TO ME!!!! Celebrating in style with a trip to Sydney to meet my Papa & my big sister Nesha!! I've visited the beach & seen the waves, had chocolate pancakes for brunch at Strawberry Fair, went to Skyzone and had a blast with my brothers and sisters, spent time with my Papa & got to eat his yummy stew & fruit salad, opened presents from my brother Keinan, and I'm now on a train to stay at the Radisson Blu hotel in Darling harbor tonight before catching the train back home to get hugs from my Dad & Nana Feeling so loved and spoiled!!!
19.01.2022 I am the avatar!
19.01.2022 Happy Easter!!
19.01.2022 Join our Alliance today and help more children just like Eva.
18.01.2022 So a Lot has happened since I last updated you all on my progress! I celebrated my due date (September 21st) at 2 months old .. I've graduated out of size '00000's and actually fit my '0000's! .. I'm now over 3 months & over 3 kilos! .. I've discovered a dislike for doctors and sharp, jabby, pokey things .. & I'm developing very distinguished looking 2nd & 3rd chins On the whole life is Awesome and I'm loving it!
18.01.2022 Love this idea! ..."Ummm, mummy why didn't I get an octopus!?"
18.01.2022 Happiest memories!!
17.01.2022 Come have some fun with us!!
17.01.2022 Laughter, Exploration and Love #WhatLifeIsAbout #TheImportantStuff
16.01.2022 Bathtime is fun! #Bubblefun! #SqueakyClean #Splashtime
16.01.2022 Guess where I'm not??!!! YAY!!! #GoME!! #EscapedAgain!! #OnMyWayHome!! #Celebrate!!!
15.01.2022 Well done Roman!!
14.01.2022 We all have unique abilities to create a life of beauty
14.01.2022 Live Inspire Love
13.01.2022 All my chrome-gnomes are accounted for! None are missing!! Doctors said it appears to be 'cerebral palsy diplegia' meaning my muscles and joints to my legs need lots of physio (& maybe Botox!?! Really?? I thought the chubby wrinkles worked for me??!) to get me crawling, sitting up by myself and give me my best chance of eventually walking. Mum and Dad are currently looking into a special crawling trainer, just need to find a company to supply them here in Australia. ... For now I have my big red ball for my core strength, lots of stretching to do and need to catch up around 14 months on my development. Chill.. I've got this! Every day presents each one of us with a new challenge ..I Will Rise To Meet Mine. #FightingSpirit #InnerStrength #LimitlessMindset
13.01.2022 So we're here.. physio & blood tests have been mentioned, can't wait to find out what they are! Basically the doctors say that I'm behind in my development, I'm currently 15months old, 13months old as per my due date, and I'm only at a 4-6months development level..so they're worried I'm way behind!! (Haha..if only they knew I write my own blog!) Really I'm not phased though, I got bulk rebellious genes from Mum, Dad & 7 brothers & sisters! ..So if anyone says I can't, then just watch me do it!
11.01.2022 Snuggled in my very own bed #ImOutOfHospital! #SnugAsABug #Sleepyhead #HappyGuy #ProudAsCanBe #StrongLilMan #SpeedyGonzales #EarlyForEverythingNotLikeMum
10.01.2022 So mum's been having melt downs Doctors had to do another bloodtest because they lost the first lot so we're still waiting for results about the 'chrome-gnomes'. I'm meant to see an anesthesist about my MRI on the 20th & this is what has mum wigging out mainly because she has a family history with heart problems and I have a very special heart! ... So mums getting ready to go to battle and demand the very Best care for me (I'm cool with that ) and me, well I'm just loving my new exercise ball, sleepy snuggles and enjoying all the moments life offers to smile!
10.01.2022 Hi everyone! We'll we're Waay overdue for an update! I've had a super busy few months! ... We've had my amazingly cool bro and sis, Keinan and Nesha, come to stay with us. Love having my family around me! I've gone on road trips for check-ups at Lady Cilento Hospital in Brisbane, which included a brain scan to check for epilepsy and a hip x-ray (both came back ok! ) We've visited our awesome support team at the Alstonville Cerebral Palsy Alliance and enjoyed the Orio cafe after. I've had an amazing time celebrating Keinan's, Bailey's, Papa's, Nanna's and Mum's birthdays (P.s. cake is The Best!!) ..even better, Mum says we have at least seven more birthdays to celebrate this year and one of them is Mine!!! I'm growing two new teeth (mum calls them my 'fangs'), I'm doing alot of biting and physio and learning to move around way more and I have a cool new chair I'll show you later Oh, and we're moving house so soon I'll have an awesome new space to explore and conquer! And yeah...that's what's happening in my world... how's yours? #LifeIsAwesome #NoLimits #AllLove
10.01.2022 Sorry I haven't updated you all in a while, busy time of year for a chubba-bubba like me! Lots of new foods to try now I'm old enough and yesterday I went for my first swim! (I'll upload a video from Dad's phone soon) Water is great! Seriously, life is awesome! Loving it!
10.01.2022 'The little English-man'
09.01.2022 #EveryoneHasUniqueAbilities
09.01.2022 Years before I was born my big sister Tae-Tae, asked my mum to make regular donations to the Cerebral Palsy foundation due to the huge difference they make with their compassionate work. Those donations have helped change the lives of many children born and diagnosed with unique and challenging abilities...children like me. Who would have thought that when my family first started donating it would one day help their own..
08.01.2022 I love my family & I'm having the BEST time EVER!!! Mum brought my brothers & sisters & I to Brisbane for my appointment on Friday 13th at Lady Cilento Hospital & even though we need to stay longer & get our car checked before driving back I don't mind at All cause we've been staying with my Aunty Jamie & Uncle Adam & I love them soo much!! We've played at the park, had the most amazing feeds & got the most awesome cuddles full of the Happiest Love Ever!! My Aunty Jamie is my own special Mumum & I am her Som-som she has been a part of my journey from the time I first arrived in the world & I adore her face forever! These are some pics of our drive, the hospital & most important my cuddles & lots of happy smiles I'll update everyone on the medical mumbo-jumbo talk later, right now just sharing the love & happy's!!
06.01.2022 Ok, I just had to sneak online and share this with you all! My big sister did something beautiful today, something I hope I do a whole lot of as I grow up!...she made magic happen with a random act of kindness When my sister saw a homeless man sitting outside a shopping centre she went to the shops and brought a pair of warm socks, a small torch/light, a sleeping bag and a $20 gift card for the supermarket. It took a few shops and a bit of explaining to people what she was... looking for. After taking these to the gentleman, she caught a train to buy pizza and preordered another meal for the following night, then took the pizza back and shared a meal with the man whose name she had yet to learn. What my sister gave tonight went futher than the person she helped.. the pizza shop insisted on paying half and delivering the meal, wanting to share in the goodwill and kindness, the people in the shops as she asked for the locations of the items were inspired by her heart and while you read this I hope you are blessed with renewed hope in humanity. So many people being connected by such a beautiful feeling...that is magic! #LoveMyFamily #SoLuckyShesMySister! #RandomActsOfKindness #RAOKS #SharingTheLove See more
05.01.2022 You're hilarious Dad! #FatherSonTime #EnjoyingTheFreshAir #MyDadsSoFunny #BodhiAKATheFlash #FreshFromMyBathAndSmellingLikeLavendar #SmeltLikeRosesBeforeIfYouKnowWhatIMean
03.01.2022 I'm looking forward to exploring our unique world in my own unique way
01.01.2022 Love having a new day to discover new stuff .. & super loving that today is all about discovering smiles & chocolate!! Happy Easter everyone!! P.s. Do you like my Easter hat?! I mades it mines-self!
