Brainchild Foundation | Businesses

Brainchild Foundation

Phone: +61 1300 272 462

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25.01.2022 Today we were invited to participate in a virtual meeting with a number of other like-minded Australian childhood brain cancer groups, non-government organisations (NGOs) and charities, with the aim of working cohesively to increase research funding and improve outcomes for childhood brain cancer. It was such an honour to hear updates from each of these incredible organisations about the work they are doing in the field of childhood brain cancer research - So much passion, dedication and knowledge on one screen. Tomorrow is the second ‘Childhood Brain Cancer Awareness Day’ and the focus for 2020 is ependymoma. Let’s keep flooding facebook in gold

22.01.2022 One of Brainchild's main aims is to provide one on one tutoring to children with brain and spinal cord tumours on their return to school after treatment. After months of treatment and isolation most kids need a little bit of help to get back into the swing of school, and we offer 40 hours of one on one tutoring to facilitate this transition. It's so rewarding to hear about all of the wonderful successes that our Brainchild kids are having. One such success is Mitchell. Mitche...ll is in year 10 and has been having Brainchild tutoring for a while now. His mum Janine called us recently to let us know that not only did Mitchell feel so confident because of his tutoring that he insisted his teacher put him in the maths extension class (she had doubts) - he got an A!!!!! He also got another A, a B and two C's on his latest report card. Such a proud moment for Mitchell, his family and Brainchild. If you think that your child would benefit from tutoring, please email Karen on [email protected]. See more

21.01.2022 Today is the second annual 'Childhood Brain Cancer Awareness Day'. Each year will be focussed on a particular type of childhood brain cancer and this year it is Ependymoma. Gorgeous Kade and his family have been friends of Brainchild since his diagnosis with Ependymoma as a baby. It has been a great privilege to watch him grow up and we are in awe of his incredible family and their strength. This is Kade's story so far: On Monday the 24th of March, 2014 our whole world came c...Continue reading

21.01.2022 Please support our hardworking committee in Adelaide by purchasing a few tickets in the 2020 People's Choice Community Lottery. Last Saturday should have been our Adelaide Ball, which is the major fundraiser for us in Adelaide, but sadly due to Covid we had to cancel. All proceeds of Lottery ticket sales through the link below will go directly to Brainchild SA, and your support will help us support South Australian children diagnosed with brain and spinal cord tumours. Tickets are just $2 each and there are 3 amazing prizes on offer. Here's a link (Good Luck) - https://communitylottery.peopleschoice.com.au//brainchild-

19.01.2022 Every day families are being given the news that their child has a brain or spinal cord tumour. The news rocks you to your core and life as you know it ceases to exist. Do you have any words of advice or encouragement that you can give to these new families to help them navigate this horrible journey?

16.01.2022 Thank you to everyone who shared our post yesterday. We now have 6072 people who have taken the time to like the Brainchild page. Together we can really make a difference xx

16.01.2022 In May, Joshua’s Mum Vanessa shared his story with us from South Africa, and she wanted to share an update for childhood cancer awareness month. The aftereffects of Brain cancer can be cruel, and poor Joshua is having a hard time. Please keep him in your prayers and send him and his Mum a message of support from the Brainchild family here in Australia xxx ‘Joshua was diagnosed in November 2018 with a Pineoblastoma Grade IV Malignant brain tumour at the age of 14. He had one o...peration to relieve the hydrocephalus and a week later another 10 hour one to debulk the massive invader occupying his brain. Unfortunately, a section remains calcified to his brainstem and he is utilising natural treatments to shrink the residual tumour. Pineoblastomas represent less than 1% of childhood brain tumours and affects 1 in 1000 000 people, hence the lack of data. Josh took off a year off school and excitedly returned in January 2020. The updated version is: Josh excitedly returned to school in January 2020 only to be housebound because of lockdown due to the Corona virus. As the days turned into weeks and then months, he developed severe depression and even attempted suicide. The depression caused him endless suffering and he lost his drive to continue with his schoolwork as everyday was Groundhog Day. He has finally returned to school, one week off, one week on and is battling to catch up on the lost schoolwork. Battling depression has been more difficult to deal with than the brain cancer, but we are slowly getting there. Never lose Hope, never give up and watch out for the warning signs, depression is a big side effect of childhood cancer that no one talks about. Josh's double vision is now requiring surgery but because of Covid there is a delay in seeing an ophthalmologist, but he soldiers on, the Warrior who continues to inspire all who meet him. No one fights alone and he hopes to be a Psychologist when he grows up.’ Vanessa (Josh’s Mum)

16.01.2022 Brainchild is only 70 people shy of 6000 likes on our fb page. We want as many people as possible to know about us to ensure there is more community awareness of childhood brain tumours. Please invite your facebook friends to like our page and help us reach 6000 likes.

16.01.2022 Last night we were invited to attend an art exhibition in Kangaroo Point by talented local artists (and friends of Brainchild) Kat and Caitie Clunies-Ross. These talented ladies not only displayed their beautiful artwork for the first time, they chose to make the evening a fundraiser for Brainchild Foundation, raising in excess of $700. You can find out more about their artwork on their page More Art From Me. Many thanks to everyone who attended and to the management and staff of Medley at Kangaroo Point for their generous support. Congratulations and thank you Kat and Caitie, it was a fantastic evening.

08.01.2022 Thank you so much to the team at Sky High Pole and Fitness in Adelaide. Last Saturday night saw a very excited group of Sky High students perform to a limited but extremely supportive audience at the SKY HIGH POLE STUDENT SHOWCASE 2020. Every student put their heart and soul into the performances and you would never have guessed that for some it was their first time performing. This year’s showcase raised an amazing $1450 for Brainchild Foundation SA. Thank you to everyone who performed,donated or purchased tickets to make this possible :)

05.01.2022 Today marks the end of Childhood Cancer Awareness month and the relatively unknown Gold Ribbon will be replaced with a sea of pink ones. We need to keep spreading awareness that kids get cancer too, so that one day the gold ribbon will be as recognisable as the pink one. Thank you for sharing your stories and for supporting Brainchild Foundation in our quest of 'beating childhood brain tumours for better tomorrows...' Mostly we want to send our love and strength to every family on this journey - we are here for you xxx

05.01.2022 I am not sure there are enough words to say thank you to the incredible team at FRANKiE4 shoes. Over the last few years they have raised in excess of $220,000 for Brainchild Foundation through the sale of their cute and comfortable sockettes. They are very dedicated to supporting Brainchild's Better Tomorrow's Program and have some very exciting new products in the pipeline. We are so grateful for their support and for helping us to keep the financial assistance to our Brainchild families going during COVID. https://www.facebook.com/frankie4.footwear

02.01.2022 Young Coby has had a difficult time over many years with Ependymoma and as his Mum Kristy explains, brain cancer affects the whole family. This is brave Coby's story so far: Coby was a happy and very easy baby, but for 6 weeks before his diagnosis Coby was vomiting every day and would have these crying melt downs twice a day, but it wasn’t a normal cry it was a harrowing cry. I took Coby to doctors and to a paediatrician to be told not to worry it’s just an ear infection, ev...entually after having no one listen to my concerns I took him to emergency. Within 5 minutes of entering there were nurses and doctors helping us and finally listening to my concerns. Coby was given morphine and he was soon to be taken away for an MRI. During the MRI they found a massive brain tumour - a malignant grade 3 ependymoma. The surgeon that was working the night of Coby’s diagnosis could not believe he learnt to walk. Coby was then taken in for an emergency EVD to drain the fluid from his brain. Coby was taken in for brain surgery on the Tuesday after Easter Monday, his surgery went for 10 long hours, with multiple blood transfusions. Coby spent months in hospital as he had complications with surgery. He lost the ability to swallow and was fed by an NG tube for months and months. Coby was moved to the oncology ward and underwent 3 months of intensive chemotherapy. Poor Coby spent more time in hospital than home. He then had 6 weeks of radiation under general anaesthetic every day, after this Coby had 6 months of oral chemotherapy. During this time Coby vomited a minimum of 4 times a day, but he still managed a smile afterwards. A year after his first diagnosis Coby relapsed and they found a tumour in his spine. Coby underwent spinal surgery and another 6 weeks of daily radiation to that site under general anaesthetic. Nearly 5 years after his first diagnosis Coby relapsed again, he was 6 and they found another brain tumour (ependymoma), however it was in his auditory canal on his left side. Coby was already deaf on his right side from the first surgery. They were able to remove most of the tumour however not all as we were trying to preserve some hearing. Coby underwent another 6 weeks of daily radiation however; he was so brave and did it without an anaesthetic. Coby is 11 now and in year 5 and he continues to have 3/4 monthly MRI’s. Coby is one of the bravest little humans I know, however, everything his little body has endured over the years has not made his journey an easy one. Right now, his hearing is fluctuating, and we have been told he could lose all of the little hearing he has left due to radiation. His moods are so bad, along with his daily melt downs and it’s extremely hard to reason with Coby. The effects of childhood brain cancer affect everyone around Coby, every day is a challenge for our family however, Coby truly is an inspiration to all that he comes in touch with. Keep fighting the good fight Coby we love you. Kristy (Coby’s Mum)