Cystic Fibrosis Community Care in Burwood, New South Wales | Medical and health

Cystic Fibrosis Community Care

Locality: Burwood, New South Wales

Phone: +61 2 8732 5700

Address: Suite 2A, 5 Belmore St 2134 Burwood, NSW, Australia

Website: http://cfcc.org.au

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• Medical and health
• Non-profit organisation
• Charitable organisation

25.01.2022 If you are planning on applying for one of our grants, such as CF-related reimbursements and fitness participation grants, please get your application in soon, as most of our 2020 grants and financial support programs close on 1 Dec 2020. If you haven’t reviewed our services recently, check out a full list of what we do at https://cfcc.org.au/about-cfcc/support/#financial or contact your state office.

24.01.2022 We recently introduced Hope and Charlie to you as the focus of our Christmas appeal. Christmas is just around the corner and Santa lists are being prepared, and we thought you might like to know what Charlie and Hope would like. Hope has asked Santa for ‘cupcakes with pink icing’. Charlie wishes for ‘dinosaur Lego, so I can build and play at the same time.’ Fingers crossed they receive these gifts and much more. However, all the demands of daily life for these two (and all p...eople living with CF) are still there. Lengthy medical regimes, hospital appointments and treatments continue. In fact, none of this stops for Christmas, and we constantly need to provide support to the CF community. With your support, our target is to raise $50,000 this Christmas. Please give your gift today, so we can continue to meet the growing demands of children, teenagers and adults living with CF. We want to keep children like Charlie and Hope smiling, not just for Christmas, but all year round. Please donate today at https://cfcc-christmas-appeal-2020.raisely.com/ Thank you!

23.01.2022 Our CFCC trivia night is on Wednesday 9 December at 7pm8.30pm. Don’t miss out on the fun! We invite all CFCC adults and parents to join us for a trivia night hosted by Quiz Meisters. There are prizes to be won, so make sure you join in on this interactive event.... For more details and to reserve your spot, visit https://cfcctrivianight.eventbrite.com.au.

22.01.2022 EARLY BIRD REGISTRATION CLOSES TONIGHT! Join the more than 200 amazing people who have already registered for the 2021 65k 4 65 Roses Walkathon! Many are talking about setting up local community hubs for people walking in their area, and with the event going virtual for the first time ever, you have more options than ever before to support Cystic Fibrosis Community Care and The Children's Hospital at Westmead while you do the 65k YOUR WAY!... If you've already registered, make sure you remind your teammates to sign up before prices go up at midnight tonight. And if you're not already registered? WHAT ARE YOU WAITING FOR REGISTER NOW www.65kroses.com #65k465roses #forsickkids Sydney Children's Hospitals Foundation

22.01.2022 Get in early and renew your membership with us for 2021! If you are wanting to become a member or renew your membership with us, you can do so at https://bit.ly/memberscfcc. Being a member with CFCC will give you access to a number of our programs and services.... If you are an adult living with CF, you will receive a free membership. You are however, required to complete an application form. For more details, visit https://cfcc.org.au/get-involved/become-a-member/

21.01.2022 When you give a gift that has an impact, it makes you feel like magic. When you choose SOCK it 2 CF socks for a friend or loved one this Christmas, you’ll get to share the joy of making a real, lasting difference to the lives of people living with cystic fibrosis. Your kindness will not only bring joy, but also hope that one day CF will stand for cure found.... Every person living with cystic fibrosis deserves to live a life unaffected. As well as bringing a smile this Christmas, your wonderful gift can provide program delivery, equipment and support services vital to the wellbeing of people living with cystic fibrosis. BUY NOW www.sockit2cf.com #MerrySockmas #newcampaign #noordinarysock #gift #sockit2cf #goodcause #togetherwecan #cystic fibrosis #charity #2020 #socks #giveback #makeadifference #buysocks #Christmas #wecansockit2cf #sockit2cf #powertocreatechange #redsocks

17.01.2022 The Journal of Cystic Fibrosis has just published a research article on the impact of COVID-19 on 181 people with CF across 19 countries. If you'd like to, you can read the article at https://bit.ly/covidCF

14.01.2022 Popped Up At Kimo CHRISTMAS MARKETS ARE ON TOMORROW from 10am to 3pm! Are you located in or around Gundagai NSW? Popped Up At Kimo gives you a chance to support CFCC AND get started on your Christmas shopping! The markets, taking place under COVID guidelines, will feature more than 50 boutique pop-up shops in the beautiful grounds of the homestead at Kimo Estate Lunch will be available from The Ten Mile at Holbrook.... All money raised from the general admission and raffle tickets will go directly to Cystic Fibrosis Community Care BUY ADMISSION AND RAFFLE TICKETS NOW at https://bit.ly/3eOw9GS

14.01.2022 Thank you to all of our dads for joining our last online session for the year! It was great to have you all come together on this forum. While this was our last online support session for 2020, we do have an exclusive CFCC trivia event coming up. Don’t forget to RSVP at https://cfcctrivianight.eventbrite.com.au and keep an eye out for our upcoming 2021 online sessions.

13.01.2022 Nothing feels better than giving a gift that really makes an impact. When you choose SOCK it 2 CF socks for a friend or loved one this Christmas, you’ll get to share the joy of making a real, lasting difference to the lives of people living with cystic fibrosis. Your kindness will bring joy this Christmas and hope that one day soon a cure for CF will be discovered.... Every person living with cystic fibrosis deserves to live a life unaffected. As well as bringing a smile this Christmas, your wonderful gift can provide program delivery, equipment and support services vital to the wellbeing of people living with cystic fibrosis. SHOP NOW www.sockit2cf.com.au #MerrySockmas #newcampaign #noordinarysock #gift #sockit2cf #goodcause #togetherwecan #cysticfibrosis #charity #2020 #socks #giveback #makeadifference #buysocks #Christmas #wecansockit2cf #sockit2cf #powertocreatechange #redsocks

12.01.2022 #cysticfibrosis #redsockcf

11.01.2022 Don't miss out on these great discounted prices - REGISTER NOW and support Cystic Fibrosis Community Care and The Children's Hospital at Westmead. We need you now more than ever! The 2021 65k 4 65 Roses Walkathon will be a virtual event, which will offer flexibility to do the 65K YOUR way! The event will take place over the span of a week, from 13 February through 21 February with an emphasis on 65K Day on 20 February. Get in now before prices increase - tell your family a...nd friends and get your team registered now at https://www.65kroses.com/! #65k465roses #forsickkids Sydney Children's Hospitals Foundation

10.01.2022 Are you living with a long-term physical health condition? Researchers at the Uni of NSW want to hear about your experiences of feeling socially connected, belonging and loneliness of people living with a long-term health condition. This study involves an interview with you for about an hour about your experiences of living with a long-term health condition, and of social relationships and supports. They will ask to interview you on two more occasions in the next six months. ...If you choose to participate, you will be reimbursed in recognition of your time. For more information contact Dr Maja Lindegaard Moensted: email [email protected] or phone 0405 976 187.

09.01.2022 MEET TEAM ASTON Team Aston is joining the 65k 4 65 Roses for the first time ever in 2021. They are walking for Aston Heather, who is not quite a year old and was diagnosed with cystic fibrosis at the beginning of 2020 Aston had struggled with weight gain and had some breathing issues. Once we were admitted to hospital he was diagnosed with trachea-bronchomalacia (floppy airways) which ultimately ended up with him having to have a tracheostomy. After the trach...eostomy procedure he developed liver issues related to cystic fibrosis, and had a large bleed which resulted in an emergency operation to stop the bleeding." CLICK TO READ MORE https://bit.ly/3qFkFuH With Aston now at home, his family is looking forward to walking in support of Cystic Fibrosis Community Care and The Children's Hospital at Westmead. They urge everyone else to get involved. "2020 has been a hard year for so many people, and it’s great that people can come together virtually and raise money for a great cause." REGISTER NOW to join Team Aston in the fight against cystic fibrosis this upcoming February. Early bird registration has been extended through this Friday. Get in quick - prices WILL go up at midnight 11/12! REGISTER NOW www.65kroses.com #65k465roses #forsickkids Sydney Children's Hospitals Foundation

07.01.2022 It doesn't get much better than the joy of watching a loved one open the gift you have chosen for them. But what IS better than that feeling is when the item you purchased also helps to support people living with cystic fibrosis. To make sure you get your socks find their way under the Christmas Tree, you need to order before 12 December. Australia Post reports that if orders are not sent out on the morning of 12 December, they are unable to guarantee delivery. We do not want... you or loved ones missing out. Remember these are no ordinary socks; these socks are something special: they give back. Your wonderful gift funds program delivery, equipment and support services vital to the wellbeing of people living with this condition. Don’t wait. Don’t hesitate. Purchase your socks before they run out, order now and you can be one of Australia’s most generous supporters doing their part to help those who need it most. Buy before 12 December to get your socks for Christmas. ORDER NOW www.sockit2cf.com.au #merrySOCKmas #sockit2cf #cysticfibrosis #CFawareness #socks #perfectchristmasgift #noordinarysock

05.01.2022 2020 is a year that we will not forget. Despite the challenges of fires, floods and a pandemic, our sense of community and generosity of spirit are powerful reasons to hold onto hope. We want to acknowledge and say thank you to our amazing, supporters, fundraisers, members and volunteers. Thank you for your continued kindness and commitment to our cause. Today is Giving Tuesday and the power of giving can change lives. Please support us today and see what a difference you can make. This Christmas, we need your support more than ever. Donate today https://loom.ly/MlGimCk

05.01.2022 Our CF Dads online session is on Thursday 19 November 2020, 12 noon - 1.30pm This is a reminder to RSVP to our last online support session for 2020. If you are a dad, male carer or father figure, don't forget to RSVP at https://cfccdadschat.eventbrite.com.au

05.01.2022 Don't miss out! Most of our 2020 grants and financial support programs close on 1 Dec 2020. If you would like to apply for a grant or financial assistance this year, please ensure we receive your application by 1 Dec 2020. Find out more by downloading an application form at https://cfcc.org.au/about-cfcc/support/#financial or contact your state office.

05.01.2022 This is the last reminder to RSVP to our trivia event on Wednesday 9 December from 7pm to 8.30pm. We don’t want you to miss out! We invite all CFCC adults and parents to play along with their families and join us for a trivia event hosted by Quiz Meisters. RSVPs close 2 December. For more details and to reserve your spot, visit https://cfcctrivianight.eventbrite.com.au

04.01.2022 Shout out to the Sydney University Science Revue! Sydney University Science Revue gives the wildly wacky, funny and intelligent students who make up the group a means to socialise and make friends while working toward the annual performance of their show. Every year, they donate the proceeds of the performance's ticket sales to Cystic Fibrosis Community Care As with so many other things that were affected by COVID-19, the Revue's normal activity was halted. Still wanting ...to support CFCC, however, the group has just made a donation of $1000 Thank you, Sydney University Science Revue! Your support means the world, and we hope you're back on stage in 2021

02.01.2022 You still have a chance to get your discounted early bird registration rates for the 2021 65k 4 65 Roses Walkathon, but the clock is ticking! Registering is a great way to support Cystic Fibrosis Community Care and The Children's Hospital at Westmead to raise vital funds and awareness for cystic fibrosis. With this year's event going virtual for the first time ever, it's your chance to do the 65k YOUR way! All in one day? Spread across a week? 7kms? The full 65kms? IT'S UP ...TO YOU! The 2021 65k 4 65 Roses Walkathon will take place over the span of a week, from 13 February through 21 February with an emphasis on 65K Day on 20 February. Early bird registration closes at midnight, 4 December Don't miss out - get your family and friends together, and get your team registered now! REGISTER NOW www.65kroses.com