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CFSUnravelled

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21.01.2022 I believe in you!!! My experience has taught me that I will NEVER put anyone in the too hard basket for recovery from #Fibromyalgia #MECFS #POTS Sure, it can feel like that sometimes, but I have seen people turn it around against all odds. ... So, don't rely on me, or others, start saying it YOURSELF! "I believe in you" - BE that person for yourself, BE KIND TO YOURSELF! What other things do you say to yourself that really help you?

13.01.2022 Anxiety is common in society, but people experiencing chronic illness are often much worse affected. With ME/CFS/POTS, anxiety seems to be particularly prevalent. Some people have a long history of anxiety, some develop it whilst they are sick and some don't even realise that they are experiencing it (it's their norm after all) There are many strategies that can help, but when we are talking about very strong anxiety, more focussed measures often need to be taken.... So I thought we might have a discussion about what worked for you!? What kind of options have you tried and what did you find most helpful? Feel free to share stories about others' experience if you have them, just don't name them :)

10.01.2022 Having a child that is chronically ill is undoubtedly extremely upsetting. But as a parent myself and as someone that personally experienced 7 years of ME/CFS/FMS/POTS - her biggest regrets nearly broke my heart. In fact, you may even hear the little wobble in my voice early on in the interview! Listen to Darcy tell her story:... http://bit.ly/2yKDIcu Did you feel like me?

08.01.2022 When you experience ME/CFS, there often seems that so little is available to you to enjoy or feel productive. The frustrations can become totally overwhelming becoming our central focus. Katie shared how after years of frustration and relapses, she managed to finally turn this around.... I love the wisdom this young woman shares after recovering from nearly 9 years of ME/CFS. http://bit.ly/2halSrP Listen carefully and jot down and share what you think was most insightful about this interview!

01.01.2022 Nobody wants to be a SELFISH person, do they? (or at least most of us!?) With #chronicillness like #mecfs #fibromyalgia #pots we naturally are less able to do things for others. So a CHOICE emerges of where to invest your limited energy, but many people struggle with this choice especially parents!... My advice is PRIORITIES YOURSELF and be OK with that. What good are you to others if you feeling more poorly than you need to!? Do you struggle with guilt about doing self-care? What has been the best way for you to overcome that?