Cleft Connect Australia in Brisbane, Queensland, Australia | Medical service

Cleft Connect Australia

Locality: Brisbane, Queensland, Australia

Phone: +61 7 5439 9790

Address: Australia Wide Brisbane, QLD, Australia

Website: http://www.cleftconnect.org.au/

Likes: 1263

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• Non-profit organisation
• Charitable organisation
• Medical service

25.01.2022 With the familys permission we can now share the heartbreaking news that Rylen has grown his wings We cannot thank everyone enough who has hit the share button or made a donation to help this family out. We will leave the donation option open for another week and then will donate all funds raised directly to the family. We would also like to reiterate that this is an extremely rare occurrence that hasnt happened before. If you have any questions or queries before your childs pending surgery we strongly suggest discussing these concerns with your childs surgeon. Rest easy and fly high sweet boy

25.01.2022 With the Super bowl on today we have to shout out to one of our own born with a cleft, Peyton Manning. One of the greatest players in the NFL in America. https://www.wthr.com//51-6c8c7701-02cd-49ab-973b-371950802

25.01.2022 Archie has been extremely blessed by you all with his lip repair teddy bear and his palate repair support bag. This wouldnt be possible without the kind support, to everyone who has donated, families who have fundraisered and to suncoast printers for printing the name on the teddy bear shirt. We are going to show you some of the faces that you have helped.

25.01.2022 Our website is currently being updated if you or someone you know need to order a hospital support bag can you please email us directly on: [email protected]

25.01.2022 CLEFT AWARENESS WEEK Meet Ziggy Ziggy was born with 1 in 700 smile And I’d be lying if said I didn’t miss it some days. ... 4 months lip repair - 11 months palate repair. 4 sets of grommets and adenoids and dental surgery under his belt. Waiting now for his bone graph and gum cleft repair in primary school He is so resilient from his surgeries and pain he endured the first two year of his life. And his scar is barely there these days! We are so lucky to have the cleft care we have in Australia.

24.01.2022 Wishing everyone a Happy Easter

23.01.2022 This quote is a great one Especially when its time for surgery and recovery. Just breathe. And the CCA village is always here.

22.01.2022 CLEFT AWARENESS WEEK Meet Mahli My little girl Mahli is 2 weeks old. She was born with an undiagnosed cleft lip.

22.01.2022 Did you know we have a secret group? Cleft Connect Private Group is for all people involved in the journey of a child or young person with a cleft condition of any kind. We welcome all who are affected by a cleft condition and their friends, family and supporters.... Please private message us so we can add you to the group Image may contain: possible text that says f PRIVATE FACEBOOK GROUP

21.01.2022 Cleft palate before and after photos.

21.01.2022 A massive shoutout and thank you to the team at B Box who have just generously donated some training cups to us! These will now be added to our palate repair hospital support bags. We understand that not every child is willing to take the green spout so we now have an alternative as these cups are free flowing and require no sucking. B Box also stock many other great items, feel free to jump onto their website and take a browse! Thank you again B Box, we really appreciate y...our support www.bbox.com.au

21.01.2022 Our hearts are hurting and thoughts are with one of our cleft families who sadly with palate repair surgery a rare occurrence has happened. This family are sitting by their babys bedside hoping for a miracle. We would like to rally together to raise some funds to help this family at such a difficult time, to support them and have them be together as a family without needing to worry about their financial situation. There are no words in this world to make it any better, but please know we are all thinking of you All funds raised will go directly to the family. We thank you for your kind donation and ask if you could please share this post amongst your family and friends.

20.01.2022 Call the Midwife last year aired this episode which is great awareness for our babies born with a cleft lip and palate. I felt they captured the challenges at the start of the journey well.

19.01.2022 This is our lip repair teddy bear hospital support bag. All our support bags and membership is FREE. If you only just found us thats ok teddy is still free up until bub is 1 year old. Thank you to Suncoast Printing who helps us make teddy each special with child name on the t-shirt for free. Link to the hospital support bag in the comments.

19.01.2022 Happy Fathers Day to all our wonderful Dads! You play a massive roll in supporting your family through the cleft journey and we want you to know its never unnoticed and very much appreciated. We hope you have a wonderful day with your cleft cutie. Please feel free to share a photo below with your child or a photo of your celebrations today

18.01.2022 Sending our love to Hudson and his family as he gets his forever smile today

18.01.2022 CLEFT AWARENESS WEEK Meet Hudson Hudson was born with a undiagnosed unilateral cleft lip and palate. During those first moments I cried so much & felt like I failed our baby. The first few weeks were tough, the appointments, the feeding issues and just adapting to life in general with a baby. 12 months on I’m so proud of our boy, he’s so strong, resilient & developing well. I’m forever grateful for all the support & friendships that have come from cleft connect, it’s so nice to not feel alone and connect with families on a similar journey.

17.01.2022 How cute is this Great Dane born with a cleft lip and palate.

16.01.2022 Call out to cleft parents, how amazing are our children? They go through more than some adults could cope with and do it with grace and resilience. Watching my son at the dentist and seeing him doing exactly as they asked despite his obvious discomfort. His hands clenching and unclenching were give away signs of the trauma yet he bravely battled through. My heart just melted. Please feel free to share your stories of inspiration of your cleftastic child

15.01.2022 This is great advise for everyone. Especially when your precious child is going through and recovering from surgery.

14.01.2022 Wishing all families a Merry Christmas

14.01.2022 Wishing families a Happy New Year

13.01.2022 Not all clefts are diagnosed during pregnancy. Sometimes its a surprise. CCA is always here to help along the cleft journey to connect families to the right resources and medical advise. ... Plus we are here with our own experience and very happy to share our advise. And most of all we are here to listen to you. See more

12.01.2022 You may have heard some hospitals are gradually increasing non-elective surgeries. Chief of surgery Dr Stuart Bade explains what this means for your childs surgery at the Queensland Childrens Hospital .

11.01.2022 CCA would like to help cleft families who run a business though these times. Check out Shar Designs who does custom items and can even do some for cleft surgery time. https://www.facebook.com/shardesigns.cleftmumma/

11.01.2022 Check out these cleft puppies

11.01.2022 CLEFT AWARENESS WEEK This is Marissa. Marissa is 5 years old and was born with bilateral cleft lip soft and hard palate. Marissa has a RARE SYNDROME DDX3X and is only 1 of 500 in the World. She also has Cerebral Palsy, Severe Intellectual Disability, Severe Obstructive Sleep Apnea, Autism Spectrum Disorder Level 2, Global Development Delay and is NIL by Mouth with a Gastronomy Peg low profile button device. Marissa is non-verbal and has her own Wheels as she only just started to take her first steps when she turned 5.

11.01.2022 Meet Everly with her lip repair teddy bear. This wouldnt be possible without the kind support, to everyone who has donated, families who have fundraisered and to Suncoast Printing for printing the name on the teddy bear shirt. We are going to show you some of the faces that you have helped.

10.01.2022 We please ask you to light a candle in honor of sweet baby Rylen this evening. If you wish, you can post a photo of your candle in the comments to show Rylens family that youre thinking of them. We will always remember you sweet boy

10.01.2022 Cades story of his journey being born with a cleft lip and cleft palate https://www.cdc.gov/ncbd/birthdefects/stories/cleftlip.html

09.01.2022 Happy Australia Day What a wonderful country to live in for a cleft child with the medical support we have.

09.01.2022 Wishing all Mums, Stepmums, Grandmas, Nannas aunties and women who play the role of mum have a happy mothers day. Our journey starts out with so many unknowns and emotions as a cleft mum, but we find a stength we never knew we had and are gifted with the greatest gift of all love from our child. Wish everyone a Happy Mothers Day

08.01.2022 This is wonderful to help cleft awareness, this is from last year but still good.

07.01.2022 Thanks Bells for putting on a fun night and a huge thanks for the generous donations given to Cleft Connect Australia Just over $330 that can be put to great use.

07.01.2022 Due to the strange world we are now living, Australia Post says delivery times can now be a lot slower than usual. So please be patient and allow more time for deliveries from CCA. We will continue to action orders and hospital bags as quickly as possible. Also a big shout out to Janet and the team at Suncoast Printers https://suncoastprinting.com.au/ for their continued support during these tough times

06.01.2022 IT'S CLEFT LIP AND PALATE AWARENESS WEEK! November 8-14 each year commemorates National Cleft Awareness Week so this week Shar Designs is doing another GIVE AWAY, for the chance to WIN yourself a personilsed black cooler with your choice of colour writing (for those that do not have a cleft affected child) or a Merry Cleftmas onesie or tee for your cleft cutie. All you have to do is share the post with the cleft fact sheet once you have shared, comment on Shar Designs post https://www.facebook.com/Shar-Designs-100194628442804/ to go into the draw entry closes on the 14th November at 5pm, winner will be announced on the 16th of November 2020 Get sharing and spread awareness for those 1 in 700!!!

05.01.2022 Hearing Children affected by cleft palate are more likely to have hearing problems and fluid in the middle ear. Every baby with a cleft palate needs to have their hearing monitored closely by a hearing specialist (audiologist). ... A hearing assessment should be arranged for when your baby is around four weeks old, and repeated again around 12 weeks of age. Annual hearing tests are recommended during early childhood for children with a history of cleft palate. See more

05.01.2022 We can all relate to this https://community.today.com//to-the-mom-who-just-received-

04.01.2022 CLEFT AWARENESS WEEK Meet Grace Born with bilateral cleft lip and palate. Grace is always the life of the party, and is always smiling. She gets her lip repair on the 21st of December.

02.01.2022 Meet Hudson with his lip repair teddy bear. This wouldnt be possible without the kind support, to everyone who has donated, families who have fundraisered and to Suncoast Printing for printing the name on the teddy bear shirt. We are going to show you some of the faces that you have helped.

02.01.2022 Seeing a growing trend with celebrating the 1st anniversary of there forever smile . It's such a big milestone as parents of our cleft babies. It's worth celebrating, I always remember my boys anniversary is the 29th November, like it's a birthday.

02.01.2022 A big thank you to the Waves Club Caloundra https://www.thewavescaloundra.com/ for allowing us to be the "charity of the month" and allow us to put donations tins throughout their venue last month. We raised just over $300 to help send out more free hospital support bags

02.01.2022 Hello families Just giving an update on our store. Due to the Covid 19 the cleft pigeon bottles are out of stock and could be for some time after talking to the company. We contacted Dr Brown bottles and they have plenty in stock and wont be running out any time soon.

02.01.2022 Tonight we have just found out that our gmail account where all the hospital bag forms go to be actioned not only has an inbox but a promotions tab that none on us here at CCA have ever checked till now Many requests for hospital bags ended in this tab Sadly this means we have missed so many of your forms. We will email asap all the ones we have missed to see how they are going and whether a belated hospital bag is of use. It is so devastating to us to think families have missed out not only on their hospital bags in their time of need but worse still think we ignored them. To those affected we are really sorry and despite our best efforts we have failed you. Please accept our heartfelt apology Jasmine and Peter

02.01.2022 Beautiful Mason

01.01.2022 Good to see research going on although its clear no definitive answers yet.