CCMV Association Australia in Sydney, Australia | Non-profit organisation

CCMV Association Australia

Locality: Sydney, Australia

Address: Thornleigh 2120 Sydney, NSW, Australia

Website: http://www.cmv.org.au/

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23.01.2022 Perth Researchers are looking for parents or carers of affected children to contribute advice to the study based on your experience of having a child with CMV- related hearing loss.

20.01.2022 This is something that we would really like all women who are thinking about getting pregnant or during their pregnancy to know about, South Australia’s Chief Public Health Officer Professor Nicola Spurrier said #cmvinthenews #stopcmv

20.01.2022 In case you missed it. 7NEWS Adelaide and one of our wonderful CMV families shared their story. We are getting lots of tags to say that 7NEWS Sydney and 7NEWS Melbourne also ran the story. Thank you Adrienne for campaigning for more CMV awareness. Please share

19.01.2022 Fri-YAY Feels Meet #cmvwarrior Cove 16 months ago Cove could barely hold his head up during tummy time, and recently he decided to walk the most he has ever walked. ... Cove has a big brother Rome, they are 16 months apart, growing together so close in age, they have been able to show each other the way. Cove is now almost 19 months old and thriving along side his big brother. #facesofCMV #cmvawareness #cmvwarrior #stopcmv #endCMVsilence #siblingsrock

19.01.2022 Please help us raise much needed awareness about congenital CMV and the new FREE e-learning course, Congenital cytomegalovirus (CMV): Prevention is in your hands, which is available for midwives, midwifery students and other maternity health care professionals. The course has been recognised by the Australian College of Midwives (ACM) for 2 Continuing Professional Development (CPD) hours, which is equivalent to the course duration. Here is the link to the course:... https://www.midwives.org.au//congenital-cmv-prevention-you #DontForgetToTagaMidwife #TogetherWeCanStopCMV #StopCMV #EndCMVsilence https://youtu.be/GAQFpj_u_cI

19.01.2022 Together we can #StopCMV Please watch (only 2 mins 45 secs long) & share with your friends to help raise awareness about the most common viral cause of disabilities to newborn babies world wide. Thank you Bree, Dax, Dylan and Mitch for sharing yourselves with us and introducing the free e-Learning course: Congenital cytomegalovirus (CMV): Prevention is in your hands.... Covid-19: - 7 months old - awareness: global - funds spent: $billions/possibly trillions? - Australian's affected: 102 deaths, 7,260 total cases Congenital cytomegalovirus (CMV): - about 60 years old now - awareness: limited & most of it raised by families affected by the virus - funds spent: limited - Australian babies affected: Approximately 400 will either die or have permanent disabilities every year #EndCMVsilence #CMVWarrior https://youtu.be/NLG2U-UXb5w

19.01.2022 Cytomegalovirus (CMV) is the most common infectious cause of disabilities in newborn babies. Each year, 2000 babies are born in Australia with Congenital CMV. Of these, 400 will experience long term effects. That’s 1 to 2 children born with disabilities from Congenital Cytomegalovirus every day in Australia alone.

14.01.2022 Please watch (only 3 mins 45 secs long) & share with your friends to help raise awareness about the most common viral cause of disabilities to newborn babies world wide. Thank you Tracy Carroll for your incredible courage and for sharing Ella's life in the hope that others can help prevent this happening to their children. Covid-19:... - 7 months old - awareness: global - funds spent: $billions/possibly trillions? - Australian's affected: 102 deaths, 7,260 total cases Congenital cytomegalovirus (CMV): - about 60 years old now - awareness: limited & most of it raised by families affected by the virus - funds spent: limited - Australian babies affected: Approximately 400 will either die or have permanent disabilities every year #TogetherWeCanStopCMV #EndCMVsilence https://youtu.be/mZbarxjOMho

13.01.2022 PROTECT your BABY from CMV during pregnancy. Educational resources are available on our website. Have you seen a flyer or poster? Take a picture and share it with us. Don’t forget to tag us and use the hashtag #StopCMV ... #EndCMVsilence #CMVawareness https://www.cmv.org.au/educational-resources/

12.01.2022 Raise your hand to help STOP CMV! Let’s see your hands. Write Stop CMV on your palm, take a photo, upload to your social media and tag us CCMV Association Australia. Don’t forget the hashtag #StopCMV June is CMV Awareness month!... Cytomegalovirus (CMV) is the most common infectious cause of disabilities in newborn babies. 1 to 2 children are born with disabilities from congenital cytomegalovirus (cCMV) every day in Australia alone. It causes deafness, blindness, seizures, global developmental delay, dyspraxia, cerebral palsy, miscarriage, stillbirth, intellectual disability, processing issues, feeding problems and death. Until a successful vaccine is developed, being aware of the virus and the simple ways to minimise risk of contracting it will help to significantly reduce the number of babies born with congenital CMV. To find our more visit www.cmv.org.au #StopCMV #CMVawareness #helpspreadthewordnotthevirus

11.01.2022 Congenital Cytomegalovirus (cCMV) awareness video. CMV is the most common viral and infectious cause of disabilities in newborn babies. Please share and help #endCMVsilence... #StopCMV #CMVawareness #helpspreadthewordnotthevirus

11.01.2022 A letter from the founder and president of CMV Australia. #StopCMV #EndCMVsilence

10.01.2022 Meet Jock and his support crew Jock was born with Congenital Cytomegalovirus (cCMV) and as a result has a number of disabilities. Luckily, Jock has the most amazing friends and support network who are with him every step of his forever changing journey.... #StopCMV #FacesofCMV #CMVwarrior #CMVawareness #EndCMVsilence

10.01.2022 Thank you Jayne, Jock and Riverland Mallee Coorong, SA, for helping raise awareness about the most common viral cause of disabilities to newborn babies in Australia. #CMVawarenessmonth #TogetherWeCanStopCMV #StopCMV #EndCMVsilence #Spreadthewordnotthevirus

10.01.2022 Thank you Children’s Health Queensland for helping raise much needed awareness about congenital CMV, the most common viral cause of disabilities to newborn babies in Australia.

09.01.2022 A beautiful segment on the project tonight about another young family affected by congenital cytomegalovirus (CMV).... Thank you Ami Slik, Willow and Jesse Taylor for helping raise awareness about the most common cause of disabilities to newborn babies from a virus or infection during pregnancy. cCMV not only causes hearing impairment/deafness, intellectual disabilities and an enlarged liver though. It is also a cause of cerebral palsy, still birth, dyspraxia, apraxia, autism..., epilepsy/seizures and death amongst other diagnosis. In Australia alone at least 400 children and their families are affected every single year by congenital CMV for the rest of their lives. We have heard so much about covid 19 this year, if only people knew as much about congenital CMV and the devastating affects and the heartache it has continued to cause so many families all over the world.....

09.01.2022 Great infographic from CMV Canada Posted @withregram @cmvcanada CMV Canada is incredibly grateful for the support of organizations like @sogcorg They do great work in our communities and have helped us develop an informative infographic to educate pregnant women and parents about the risks of #CMV. ... Thank you to the SOGC and all of the health care providers who are out there spreading the word every day! #CMVawareness #CMVspeaks #StopCMV #PublicHealth #InfectiousDisease #Pregnancy #Infant #Baby #Newborn #Maternity #MaternalHealth See more

06.01.2022 Posted @withregram @cmvmass You may be wondering to yourself, How common can CMV be if I am just learning about it? The statistics may surprise you. . . . #cmvawareness #cmv #stopcmv #stopcmv #cytomegalovirus #cytomegalovirusawareness #cytomegalovirusinfection #spreadthewordnotthevirus... For more info head to www.cmv.org.au

06.01.2022 Thank you. Thank you. Thank you. We are so grateful for our CMV families and the communities that support both them and us. Thank you Nonna & Nonno's Bakehouse

04.01.2022 CMV IN THE NEWS !!!

04.01.2022 PROTECT your BABY from CMV Don’t share : Wash hands : Kiss on the head : Clean surfaces : Toss the Tissues Head to www.cmv.org.au for more information on preventative hygiene measures in pregnancy.... Together we can #StopCMV #cmvawareness #EndCMVsilence