Connor's Cause | Other
Connor's Cause
Phone: +61 448 401 718
Reviews
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25.01.2022 Hi all, just a quick note to say I am now a big 3 yr old. I am getting around alot more and trying really hard with my talking. I am currently in WA visiting my Nanny Joyce and Eamon. Not much else for now, so take care, where ever you are.
25.01.2022 Just letting everyone know that I am starting to do my own version of commando crawling look out everyone I can move
24.01.2022 Hi All. Sorry it has been a while since any updates. Well the Drs have all my results back and I definately have PFIC. Im not letting it affect me to much. I can now crawl and enjoy getting around myself. I did need to have a sleep over in Sale Hospital, but thats ok. I love this car they have in Paeds. Just wish Mum could have taken me for a drive around the hospital.
24.01.2022 I am having a few nights sleep over in Sale Hospital. I need to put on more weight so the Drs have inserted a nasal feed tube. I am having double the recommended amount of special formula, to hopefully help out.
23.01.2022 Went to dieticians again on Monday not putting enough weight on so on Friday going into hospital to get the nasal tube in will be in for a few days hope this helps me gain weight quicker n keep it on
23.01.2022 Thought I should finally put something up since all this action has happened. So everyone knows that Connor received his new liver back in February,we ended up coming home on the 29th march and since that day there has been no stopping him its like we went into hospital with Connor but came out with someone else,he can actually run and jump now not having that big belly in the way and whenever he does something new he thinks hes king shit it just melts my heart to see him s...tarting to do what all the other kids his age do. So last week Connors bloods were not very good at all we had to have a sleepover in hospital so they could do a liver biopsy and it came back with very slight rejection but the drs have upped his meds and he is now heading back in the right direction Connor himself was no different at all still the same little ratbag,will keep everyone updated a lot more See more
22.01.2022 Hello to all my family, friends and followers. It is with much delight that I can officially say..... I HAVE HAD MY TRANSPLANT. Im still recovering, but not le...tting anything get in my way. My Drs are very happy with my progress. Here are some photos for you to see, please be aware that some are pretty intense and graphic content to be seen. See more
22.01.2022 I have another appointment at the Royal Childrens on the 10th of October. My Aunty Lee is coming to this appointment with me and Mum, she will get some more info out of the Drs, so we can share my progress. She is a feisty one, who will stop at nothing to get answers, just hope she isnt to nasty,lol
21.01.2022 This is the spunkiest little Tigger ever.
20.01.2022 Just thought we would put a few pics up
20.01.2022 Hi all havent posted anything for a while I am going good I now weigh about 8.9kg could be more but I wouldnt lay still on the scales,everyone was excited thats the most Ive ever weighed and I can pull myself to a standing position on the couch and with my new medicines I am feeling a lot better in myself
18.01.2022 I managed to keep my tube in last night,going to see if I can be good enough so my nanny Joyce can sleep with me tonight n let mum have some time with my brother n sisters oh n my dad
17.01.2022 Have been going really well without my tube in been drinking the amount that Im supposed to n my weight keeps going up yay Ill be starting to crawl in no time
17.01.2022 Look what Im starting to do
15.01.2022 had my dietician app on Tuesday I lost 40 grams as I was sick the week earlier so the dr is giving me another week to see if I can keep putting on weight so I dont have to get a nasal tube put in
14.01.2022 Just letting everyone know that today I went to surgery for my teeth dr thinks all my meds are making them weak,when I first woke I wasnt real good at all mum was a mess but now Im all good have eaten about 7 jelly cups and now Im settling down watching a movie with dad,thank u everyone for your concerns
14.01.2022 First night in hospital went pretty well slept good for mum was up abit early but oh well,I managed to pull the tube out of me nose so tonight had to go through the horrible process again tonight hopefully this time I cant pull it out I have extra tape on me face and both me hands are bandaged fingers crossed
14.01.2022 Got to go to dads house (Ronald McDonald house) couple of days ago was awesome breathing in fresh air
12.01.2022 A very big thank you to Lindsay for your deposit. It is very much appreciated.
12.01.2022 Glad to say I made it to Melbourne and back safely yesterday, Aunty Lee is a crazy driver in the city. She dont move for no one, and if they get in her way she gets nasty, lol. I had my appointment at The Royal Childrens yesterday, and I am glad to say that I have my feeding tube out, at least for a couple of weeks. I have finally hit the 8kg mark and my Drs are happy. I have to keep putting on weight or my tube will be back in. Still waiting on some more test results to come back from Tawaiin, hopefully they will have the results when I go back in 3 months.
11.01.2022 This is disgusting but this is what Connors old liver looked like it weighed 835 grams
11.01.2022 Hi all sorry nothing has been put up in a while,Im cruising at the moment running around everywhere and even climbing up on stuff,love pulling the chair over to the cupboard and helping myself. Still having problems with my vitamin E my levels are to low so going to start having regular injections and more Physio which is where we are going now so bye
11.01.2022 Sorry there has not been many updates. Connor is doing ok at the moment, had to cancel his dietician appointment today as he is sick. but we have another appointment next week so will let you know what they say then.
09.01.2022 Couple of pics of my scar
09.01.2022 Ups and downs in hospital
08.01.2022 Just thought that I would let everyone know that I am now officially on the transplant list
07.01.2022 More donations. Thanks Bronnie, Ruth, Bec, Reg and Max.
06.01.2022 I made it in the paper today and I will also be on tv for the good Friday appeal and the footy match today
06.01.2022 I put on 100 grams in 4 days n am now back at home I was good in hospital now mummy hopes Ill be good at home my sister n brother were a bit frightened of my tube at first but now are fine with it they havent left me alone
05.01.2022 Some more photos,just pulled out his tube from his nose
05.01.2022 Connors next Drs appointment is on the 11th August. We hope to have some more news. Will keep you all posted. Love to you all.
02.01.2022 Yesterday was a massive day we got the all clear from dr Mark so Connor had his first day at kinder and he had a ball, he did get abit tired by the end of it but he was an absolute trooper,needless to say mum was having mixed emotions but was so excited that he can finally start this journey
02.01.2022 Back from hospital big day out,doctors doing one more blood test just to rule something out but they certain it is pfic 1 that I have
02.01.2022 Another donation, Thanks Greg
