Centre of Research Excellence in Newborn Medicine in Melbourne, Victoria, Australia | Community organisation

Centre of Research Excellence in Newborn Medicine

Locality: Melbourne, Victoria, Australia

Address: Murdoch Children's Research Institute, 50 Flemington Road, Parkville 3052 Melbourne, VIC, Australia

Website: http://www.crenewbornmedicine.org.au/

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• Charitable organisation
• Community organisation
• Medical research centre

25.01.2022 Did you miss the 2020 Newborn Medicine Online Forum? Want to re-watch a presentation or two? We are excited to announce recordings of the event are now available on our website: https://bit.ly/33H9gQj... This was our free online event for health professionals and families who care for babies born sick or too soon. #newbornmedicineforum

25.01.2022 ONLY TWO DAYS LEFT !!! If you are a parent of a baby who has required hospitalization in a neonatal intensive or special care nursery directly after being born on or after January 2013 you still have time to contribute to this important study. https://fb.watch/2o_gKSn-s5/

24.01.2022 Here is a sneak peak of our NEW Short Cut Video for families on BPD featuring Associate Professor Brett Manley, This is the first in a series of videos we are producing here at the CRE in Newborn Medicine, addressing topics of interest and concern as identified by our Consumer Advisory Group. The full length video can be found here: https://bit.ly/2FKvFoh

23.01.2022 Our team have created another new handout to assist families. It is called "Filming a baby's general movements at home" It is a clear, simple checklist designed to ensure that families have all the instructions they need to film their baby's general movements effectively. It has been developed with our Consumer Advisory Group & with health professionals from all around the world. You can download the PDF here: https://www.crenewbornmedicine.org.au/filming-baby-at-home... Please share this post with anyone you know who will benefit from this guide.

22.01.2022 Research News: A new study led by CRE in Newborn Medicine PhD student Grace McMahon has highlighted the need for dads to be aware of the potential impact of very premature birth on their mental health. Grace found around 1 in 5 fathers in the study experienced persistently high depressive symptoms and over 50% experienced moderate anxiety symptoms throughout the first year following very preterm birth. The study also found that the experience of more severe depressive and an...xiety symptoms had little impact on fathers' parenting behaviours when their baby was 12 months old. You can view Grace speaking about her findings and their significance on our website news here: https://bit.ly/2YlniV7 If this research has touched on topics that have affected you personally, support is available through: Lifeline: 13 11 14 MensLine Australia: 1300 78 99 78 Perinatal Anxiety and Depression Australia (PANDA) Helpline: 1300 726 306

22.01.2022 A baby’s movements can provide important information about their future physical development when assessed by trained health professionals. As smartphone technology becomes more widespread, health professionals have been asking families to film their babies’ movements at home for clinical assessments, but clear instructions for good video recordings are not always available for families. We are inviting families living in Australia with babies who are, or will be 14-16 week...s old (approximately 3-4 months, from their due date of birth) before the 30th of September 2020 and have not been admitted to the Neonatal Intensive Care Unit or Special Care Nursery to participate in this study. You can find info here: https://bit.ly/2OFe4yI

22.01.2022 The role of our research nurses involves the organisation, implementation & precise running of our clinical trials & long term follow up studies. They assist in training all our staff both formally & informally & they are a patient & parent advocate. They are invaluable to our research team. ... Meet one of our best, Merilyn Bear here: https://bit.ly/2NPSQO6

21.01.2022 Have you registered for our 2020 Newborn Medicine Online Forum yet? If not, you best do so now - we only have limited places left! Wednesday 9th September @ 10am till 11.30am(AEST), join us online to hear all about our past, present and future work to improve the outcomes of newborn babies... For all the details and to register, head here: https://bit.ly/2YaqZh4

21.01.2022 Research News: One of our PhD students, Dr Liz Baker, recently published a paper explaining the laboratory evidence for using cell therapy in the treatment of brain and lung injury suffered by preterm babies and the challenges that the field may face as this new area of research moves into practice in the NICU. Liz is coordinator of a clinical trial at the Royal Womens' Hospital in Melbourne to determine if this cell therapy is an effective way of improving the injuries seen in babies as a result of preterm birth. You can watch Liz talking about this fascinating area and her work here: https://bit.ly/3fzEDkD

19.01.2022 Research News: CRE in Newborn Medicine PhD Candidate, Rosie Yates recently published findings showing that being born very preterm (less than 32 weeks gestation) can increase a child's risk of mental ill-health. You can watch Rosie speaking about her work and the findings here: Research News: https://bit.ly/35W4ek0

18.01.2022 Kate Rawnsley, mother to 2 year old Macy, recently told us about her experience of having a baby admitted to the NICU after birth and how financial stress was a distraction from what really mattered most. After a seemingly normal pregnancy and birth, it was a shock when our daughter was diagnosed with a rare genetic disorder (GACI). Macy was in heart failure and wasn’t expected to survive the week. After 9 weeks in intensive care and another 3 months on the cardiac ward, Ma...cy defied the odds and was able to be discharged to hospital-in-the-home. We stayed in an apartment close to the hospital and had regular nurse and allied health visits. After bouncing in and out of hospital for another 6 months, we were finally allowed to take our baby home for good (in regional Victoria) two weeks after her first birthday! Macy will turn 3 soon and she is full of life! Macy’s heart function is improving and she is stable on medications at home. She loves to run and dance and is always making us laugh! When faced with the possibility of losing your child, money worries are an extra stress that you just don’t want to think about. The suggested paid parental leave scheme would have made the world of difference for us. It would have alleviated one of the uncertainties in our lives and allowed us to focus solely on what was most important - our daughter. If you too are a parent of a baby, or babies, who have required hospitalisation in a neonatal intensive or special care nursery directly after being born on or after January 2013, we would love you to take part in an online survey about your experiences. We plan to use these survey results to advocate for changes to paid parental leave schemes around Australia to ease the financial impact on families at this time of stress and uncertainty. You can learn more about the survey and how to take part here: https://bit.ly/3fqdiCl

18.01.2022 Want to know what it's like working in the Centre of Research Excellence in Newborn Medicine? Our latest Post Doc Porfile gives you a little insight. Dr Amanda Kwong, a researcher and physiotherapist, talks about what she studied in her PhD, what she is working on in the team now and what she hopes to do in the future. ... You can read all about it on our website here: https://bit.ly/2z9P6U2 And if you have any questions for Amanda about her work, please comment below or email us at [email protected]

18.01.2022 Happy International Day of Women and Girls in Science! Today we celebrate our CRE in Newborn Medicine team and all those research teams worldwide that are demonstrating gender equality and engaging women and girls in #STEM ... Read more from our Director Professor Jeanie Cheong in our news here: https://bit.ly/2Z7yrtM #IDWGS #WomenInScienceDay #IDWGS2021

18.01.2022 This week is Men's Health Week. Having shown 1 in 5 fathers experience symptoms of depression & ~50% experience moderate anxiety in the first year after the very preterm birth of their baby, the Centre of Research Excellence in Newborn Medicine aims to support father's to achieve good mental health by working to identify those fathers most at risk. This way, early intervention programs can be developed to reduce the impact of these events on both the father and the whole fam...ily unit. Lead researcher, PhD Candidate Grace McMahon spoke to ABC Radio about this yesterday. You can listen here: https://ab.co/3fvxRw6 For more information about Men's Health Week, click here: https://www.menshealthweek.org.au/

16.01.2022 Everyone at the CRE in Newborn Medicine wants to wish all mothers a very special Mother's Day today. We know it may not be the same as previous years for some, but we hope that you are showered in the love and gratitude that you deserve for all that you do. We especially acknowledge those mothers with babies born sick or too soon. We are dedicated to ensuring you see your children reach their full potential. To the mothers in our Consumer Advisory Group we take this opportunity to say thank you. Your insights and knowledge are helping us achieve our aim of improving the health and wellbeing of all babies. Have a wonderful day.

16.01.2022 Central to the work of the Centre of Research Excellence in Newborn Medicine is our Consumer Advisory Group. The lived experiences of those who have been born early or sick themselves, or those that care for someone who has been born early or sick, has helped direct our research priorities & our communication with the community. Our Consumer Engagement Coordinator recently had a chat with one of our consumer advisors to find out what led her to want to get involved in newbor...n medicine research. Louise is a 29 year old paediatric nurse who was born at 24 weeks gestation. You can read here: https://bit.ly/2QbxEU5 See more

16.01.2022 Check out the impressive line up of presentations and speakers we have planned for the 2020 Newborn Medicine Online Forum ! This is an event targeted towards families and health professionals who care for babies born too soon or sick. Following the presentations you will have an opportunity to add your voice to our research through a Q & A session where we will invite those with lived experience to participate in the forum. We look forward to seeing you on Wednesday 9th Sep...t at 10am (AEST). You can get all the information and register here: https://bit.ly/2YaqZh4 #newbornmedicineforum

14.01.2022 The CRE in Newborn Medicine has teamed up with researchers at The University of Melbourne to develop telehealth resources during the COVID-19 pandemic and beyond. These resources support families and health professionals in accessing and delivering the highest quality health care. Today we are excited to release our Telehealth Appointment Guide for Families with Young Children. This follows the release of our ‘Infancy Guide’ earlier in the year, and has been modified to refl...ect age appropriate activities and instructions for families using telehealth with young children. The guide provides health professionals using telehealth with families and young children a set of clear, easy to follow instructions on setting up and connecting to telehealth. Like the Infancy Guide, health professionals can add their contact details and additional instructions to families by utilising the modifiable section at the bottom of the guide. You can download this & our previously released Infancy Guide here: https://bit.ly/3jhSQno We encourage you to share this resource with anyone you think may find it useful

07.01.2022 CRE in Newborn Medicine Director, Professor Jeanie Cheong and our former Director, Professor Lex Doyle were recently interviewed for a feature article in the medical journal Nature, discussing research into babies born extremely preterm and their long term outcomes. As the leader of the Victorian Infant Collaborative Study (VICS) which has followed preterm birth survivors for four decades, Jeanie said "This is an exciting time for us to really make a difference to their health." You can read the full article on our website news, here: https://bit.ly/2XUQJ03

07.01.2022 Are you a parent of a baby who has required hospitalization in a neonatal intensive or special care nursery directly after being born on or after January 2013? The Miracle Babies Foundation, the Centre of Research Excellence for Newborn Medicine at the Murdoch Children’s Research Institute, and The University of Melbourne are undertaking an important research study. This study will help us to learn more about your experiences of receiving Australian Government or industry p...aid parental leave schemes in Australia and the financial impact of having a baby (or babies) requiring hospitalisation directly after being born. We plan to use the study results to help ask for changes to paid parental leave schemes around Australia. Taking part involves completing an online survey. Please click on the following link to learn more about taking part https://redcap.mcri.edu.au/surveys/?s=MLJXFF44TM See more

06.01.2022 Tune in to this Facebook Live session tomorrow morning at 10am where our Knowledge Translation Fellow Dr Abbey Eeles will be speaking to Miracle Babies Foundation about our new collaborative study aiming to increase support for parents financially impacted by having a baby born sick or too soon.

05.01.2022 The Centre of Research Excellence is excited to introduce Listen.Share.Learn. this year ! This a series of online discussions that invite health professionals & families who care for babies born sick or too soon to come together online and share their experiences in an effort to facilitate learning & create change. Our first discussion will be held in the evening on Tuesday 13th April and will focus on Parent Mental Health in the neonatal unit and beyond. ... We look forward to welcoming you to the discussion. More details soon, watch this space !

05.01.2022 This is one of our Chief Investigators, Peter Anderson. Peter is Professor of Paediatric Neuropsychology at The Turner Institute at Monash University and co-lead of the Victorian Infant Brain Studies team at Murdoch Children's Research Institute. Peter is well known globally for his research into the brain and cognitive development of very preterm infants. He is heavily involved in large studies evaluating the benefits of early intervention and cognitive training programs. He... also has a focus on parental psychological distress following very preterm birth. You can see Peter presenting his latest research along with other investigators from our team at the 2020 #newbornmedicineforum. More details and registration are on our website here: https://bit.ly/30ROYUj

05.01.2022 Wow! What an incredible response to our 2020 #newbornmedicineforum ! Over 580 attendees joined us live yesterday to celebrate the work of our past, present & future. A recording will be available on our website soon. We truly LOVED bringing you this event and look forward to engaging with you more in 2021. ... You can provide your ideas about what you would like to see from us and your feedback about the event here: https://bit.ly/3hgbviv

02.01.2022 We are excited to announce registrations for the 2020 #newbornmedicineforum are now open! This is a FREE event for families & health professionals caring for babies born too soon or sick. It will be held online on Wednesday 9th September at 10am (AEST) ... For further information and registrations click here: https://bit.ly/33Awmd5

02.01.2022 We are excited to launch our Short Cut Video Series for families, addressing topics & questions of interest and concern, as identified by our Consumer Advisory Group. The first in the series is focused on Bronchopulmonary Dysplasia, or BPD. Extremely preterm babies are born before 28 weeks' of gestation (more than 3 months early). Bronchopulmonary Dysplasia or BPD is a chronic lung disease that affects the growth and development of extremely preterm babies' lungs. Despite im...provements in medical treatments and technologies in the neonatal intensive care unit, BPD is still a big problem with around half of all babies born extremely preterm being diagnosed with BPD. The Centre of Research Excellence in Newborn Medicine sat down with leading expert Associate Professor Brett Manley to ask some important questions about BPD for babies and families in the neonatal unit and beyond. Learn about the condition, its treatment, and some groundbreaking research that aims to reduce BPD and improve the health and developmental outcomes for extremely preterm babies. Available on our website here: https://bit.ly/2FKvFoh

01.01.2022 STUDY RECRUITING ! Do you have a baby born in June-August 2020 and are living in Australia or know someone who does? Researchers at the Murdoch Children’s Research Institute and Centre for Research Excellence in Newborn Medicine are now seeking babies born between June-August 2020 to participate in a study to learn how families can use simple instructions to film their babies’ movements at home. This study will help researchers inform how we can provide families with clear i...nstructions that are adequate to record videos suitable for healthcare providers. For more information, please visit the study information website here: https://bit.ly/2OFe4yI or take the study screening link here: https://redcap.link/babymovements