Centre of Research Excellence in Pulmonary Fibrosis | Interest
Centre of Research Excellence in Pulmonary Fibrosis
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25.01.2022 Now see Prof Dan Chambers, valued investigator on the Centre of Research Excellence in Pulmonary Fibrosis discussing the PF research environment and the need for more funding towards dedicated PF research https://lungfoundation.com.au/get-involv/campaigns/pfmonth/
24.01.2022 Have you participated in one of our free Understanding #COVID19 webinars? There are still spaces available for the third instalment, which will focus on providi...ng support for carers and their loved ones, presented by Clinical Psychologist Debra Sandford. Dont miss your opportunity to learn practical ideas for managing the unique emotional and mental challenges you might be facing during this time. To register visit: https://lungfoundation.com.au//understanding-covid-19-wel/ *Please note, when you register for one of our Understanding COVID-19 webinars you receive access to all sessions.
24.01.2022 You might be noticing feelings of anxiety, fear, distress and even anger in yourself and your loved ones, particularly those you live with. If youre spending a... lot more time than usual at home, its completely normal to experience tension or strain in the household. Clinical Psychologist, Debra Sandford shared her tips for coping with isolation, dealing with tensions in the household and techniques to manage the unique challenges that come with the current restrictions. For more information from Debra about looking after your mental health at this time, visit our website: https://bit.ly/3c1xB66
22.01.2022 In a collective effort to reduce the spread of #COVID19 (#coronavirus), were all spending a lot more time at home than usual. Information about the importance ...of cleaning your home environment during this time can be both confusing and overwhelming, particularly if you experience shortness of breath and fatigue. There are some simple techniques to prevent the potential spread of the virus in your home and we have collated a list of key cleaning advice for people living with a lung disease or lung cancer. To find out more, visit: https://lungfoundation.com.au/news/covid-19-cleaning/ #UnitedAgainstCOVID19
21.01.2022 We are pleased to announce two more webinars on #COVID19 with leading health professional to help answer some of your questions. The first webinar will feature... Prof Dan Chambers, who will myth bust the misinformation about COVID-19, offer practical advice for keeping yourself and others safe, and answer your frequently asked questions. Then Clinical Psychologist Debra Sandford will join us once again to discuss the impact of COVID-19 on patients and carers at this time and offer tips and advice for managing emotional wellbeing and the mental challenges during this time. To register for this free live webinar series, visit: https://lungfoundation.com.au/patient-education/ *Please note, if you registered for our last Understanding COVID-19 webinar you will automatically receive access to the whole series. #UnitedAgainstCOVID19
19.01.2022 The next Australasian Pulmonary Fibrosis Virtual Research Presentation is tomorrow - Friday November 20 - at 2.30 AEDT featuring Dr John Mackintosh: "Endotyping Fibrotic Lung Diseases The Next Frontier", introduced by Prof Dan Chambers. Contact [email protected] for the link
18.01.2022 There is no doubt that COVID-19 is creating a sense of anxiety for anyone living with lung disease or lung cancer and we want you to know that Lung Foundation ...Australia is here to support you, but we need your help today. A message from our CEO Mark Brooke during what is an unprecedented time for Lung Foundation Australia and our community. #UnitedAgainstCOVID19 Support our services by donating today, visit: https://lungfoundation.com.au/donate/
18.01.2022 With the help of our #COVID19 Expert Working Group, we are answering the most frequently asked questions from our community about social distancing and self-iso...lation. Now more than ever, its important to prioritise your health. This might mean ceasing unnecessary physical interactions, limiting time outside of the home and talking to your friends and family about what you need during this time. If people need to visit your home, ask them to wash their hands thoroughly on arriving, maintain physical distance from you and avoid touching anything unnecessarily. Weve developed a poster that you can hang on your front door as a reminder to anyone who might be entering your home. To find out more about social distancing and download the poster, visit: https://bit.ly/33V4z5h #UnitedAgainstCOVID19
17.01.2022 This Global Pulmonary Fibrosis Awareness Month, Bill van Nierop is kayaking 2,200km along the Murray River to raise awareness and funds to increase support and ...research for lung disease thats almost the distance from Cairns to Sydney! You wouldnt believe he lives with Idiopathic Pulmonary Fibrosis, a rare and debilitating disease which can make even the simplest of tasks a challenge. With just 7 days and a few hundred kilometres to go show your support and help Bill reach his fundraising goal: https://donate.grassrootz.com/lungfoun/long-kayak-for-lungs See more
17.01.2022 https://lungfoundation.com.au/news-and-advocacy/advocacy/
17.01.2022 Do you have questions about clinical trials? Lung Foundation Australia, in collaboration with the Centre of Research Excellence in Pulmonary Fibrosis, have de...veloped a free and downloadable fact sheet which outlines the benefits, processes and key information about participating in clinical trials. To view and download the resource, visit: https://bit.ly/3cKrByN
16.01.2022 The difficult part of social distancing is that we can start to feel disconnected from each other. As a result, its normal to start to have feelings of isolat...ion, loneliness and sadness. Debra Sandford, Clinical Psychologist We are living in an unprecedented time and social distancing or self-isolation may bring about a variety of uncomfortable feelings for everyone. Clinical Psychologist Debra Sandford shared with us her tips for caring for your mental health during this time. If you are interested in more information about COVID-19 (coronavirus), including key advice for people living with lung disease or lung cancer, visit our website: https://bit.ly/39Gr5QF #UnitedAgainstCOVID19
16.01.2022 Its Global Pulmonary Fibrosis Awareness Month! Dont miss our final Pulmonary Fibrosis webinar for 2018 - its on next Tuesday 18 September, 7-8pm (AEST). Clin...ical Consultant Physiotherapist James Walsh will share his knowledge to help you develop a better understanding of exercising with a lung disease and the benefits. Find out more and register: https://lungfoundation.com.au/pulmonary-fibrosis-webinars/ #PFAwarenessMonth
16.01.2022 With COVID-19 restrictions easing across the country you may be starting to return to your normal routine, such as visiting grandchildren, family and friends. W...hile this is exciting, its important to feel safe and comfortable when easing back into your regular activities. Remember, its okay to go at your own pace. Bill, who lives with Idiopathic Pulmonary Fibrosis, provided Lung Foundation Australia with advice and tips on how to emerge back into the community. #WellnessWednesday #UnitedAgainstCOVID19
15.01.2022 Exciting virtual format for ERS 2020!!!!
15.01.2022 We understand that with the current COVID-19 (coronavirus) situation is scary and confusing, particularly if you have a pre-existing lung condition. While this ...may put you at greater risk of contracting a virus like COVID-19, there are things you can do to protect yourself by staying vigilant about your health. This includes following good hygiene practices and the guidance of your practicing healthcare team. For information specific to people living with a lung condition including resources from relevant organisations and advice from leading health professionals visit our website here: https://bit.ly/2THKlIB
13.01.2022 In collaboration with the Centre of Research Excellence in Pulmonary Fibrosis we have developed a tailored fact sheet for people living Pulmonary Fibrosis featu...ring guidance, advice and information relating to the COVID-19 pandemic. #UnitedAgainstCOVID19 To download the resource, visit: https://bit.ly/2S5rciC
12.01.2022 Practicing social distancing or self-isolation can leave people feeling lonely and isolated. In times like these, acts of kindness can mean everything. Consider... downloading and sharing this resource to offer your support to your community. Together, we are united against #COVID19. For more information about COVID-19 and to download the Hello Neighbour resource, visit our website: https://bit.ly/2xGCyT8 #UnitedAgainstCOVID19
11.01.2022 Our free and downloadable IPF resources developed in collaboration with Lung Foundation Australia!!!
08.01.2022 The next Australasian Pulmonary Fibrosis Virtual Research Meeting will be on October 16, 12pm 1pm A E Summer Time from University of Sydney Presentation: Dr Adelle Jee: "Diagnosis of CTD-ILD: old and new world"... Introduced by: A/Prof Tamera Corte Contact [email protected] for Zoom details
08.01.2022 Lung Foundation Australia grants are now open for a range of opportunities. See https://lungfoundation.com.au//awards-a/apply-for-funding/
07.01.2022 Our Respiratory Care Nurse, Nicole Parkinson sat down to share her tips and advice for people living with a lung disease or lung cancer to look after your physi...cal and mental health and stay connected with your loved ones during #COVID19. For information about caring for your health and wellbeing during this time, please visit: https://bit.ly/3bsyNzg To contact our Information and Support Centre, please call 1800 654 301.
07.01.2022 COVID-19 WEBINAR Registration for our Understanding COVID-19: Looking after your mental health during the Coronavirus Webinar are filling up fast. We are livin...g in unprecedented and uncertain times due to #COVID19, it is normal to be feeling worried, concerned and confused. Join us and Clinical Psychologist, Debra Sandford to discuss practical and easy strategies to cope with the feelings that might arise at this time. To register, please visit: https://bit.ly/2Ujs9FD Remember we are here to help. Our Information and Support Centre is available to discuss resources and support services available to you, contact the team on the freecall number 1800 654 301. #UnitedAgainstCOVID19
05.01.2022 Two CREATE Hope PhD #scholarships for funding #pulmonary fibrosis #research for one year will be available for 2021. Thank you Lung Foundation Australia https://www.cre-pf.org.au/career-development Applications now open, until October 31
04.01.2022 Recognising the great work of PACT on International Clinical Trials Day!!!
04.01.2022 Congratulations to Jade Jaffar & Yet Khor for their successful CREATE Collaboration Grant application announced on 16/10/20. This funding will help them set up a multi-pronged research program on the effects of hypoxaemia & oxygen therapy in interstitial lung disease. Findings from this project will provide the initial steps and support future work for identifying biomarkers to aid hypoxaemia assessment and to guide appropriate use of oxygen therapy in ILD.
04.01.2022 If you were diagnosed with an incurable disease, the last thing you might do is push yourself to the very limits of human endurance. But Bill Van Nierop has just finished a 2200km journey in The Long Kayak For Lungs challenge to raise awareness of lung disease. #9Today
04.01.2022 The CRE in Pulmonary Fibrosis is proud and grateful to be the beneficiary of this marvellous donation for pulmonary fibrosis research. Thank you Lung Foundation Australia
02.01.2022 Pulmonary Fibrosis (PF) is a rare and life-limiting disease and many people with PF can find their disease isolating. Connecting with someone else who has the s...ame condition can make all the difference. This week for #RareDiseaseDay, reach out and connect to care. To find out more about our Peer Connect Service, visit: https://bit.ly/3bOU3A1 #RareIsMany #RareIsStrong #RareIsProud For more information, please call us on 1800 654 301 or visit: https://bit.ly/2Q4rCDG.
02.01.2022 Don't miss today's #pulmonary #fibrosis virtual #research meeting coming from Jade Jaffar at the ALF Bank and Mae Wong from CSL. "Working together: Creating a successful academic-industry collaboration" . Contact [email protected] for login details
01.01.2022 In case you missed it, our video series, Understanding Idiopathic Pulmonary Fibrosis (IPF) is raising awareness about the signs, symptoms and support for IPF this #PulmonaryFibrosisAwarenessMonth
01.01.2022 Are you living with a lung disease or lung cancer and have concerns about the impact of COVID-19 on your health? We are here to help. Connect to information and... resources about taking care of your health and wellbeing and key advice for people living with a lung disease or lung cancer by visiting our COVID-19 pages at: https://lungfoundation.com.au//coro/what-you-need-to-know/. If you have questions, need information or access to support services, our Information and Support Centre is here for you. Available during business hours, our team can provide guidance, practical tips and referrals for additional support to help you during this time. Please contact our Information and Support Centre on the freecall number, 1800 654 301. #UnitedAgainstCOVID19
01.01.2022 Dont miss todays #pulmonary #fibrosis virtual #research meeting coming from Jade Jaffar at the ALF Bank and Mae Wong from CSL. "Working together: Creating a successful academic-industry collaboration" . Contact [email protected] for login details