Cri du Chat Support Group of Australia Inc. | Community organisation

Cri du Chat Support Group of Australia Inc.

Phone: +61 3 9775 9962

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• Non-profit organisation
• Community organisation

22.01.2022 After a meet-up at Taronga Zoo in January, Lahna's family are looking forward to more time spent with families affected by Cri Du Chat Syndrome at the September family weekend. Lahna's mum said, "We are looking forward to seeing some familar faces and meeting many new ones! Knowing that there are other families who have been through and are going through the same as us makes our first time at the conference an important one. We can't wait for Lahna to spend time with kids just like her and for her super sibling Orlando to spend time with other super siblings!"

22.01.2022 Go Maddy! Hank our Hero - a true #cdcshero

20.01.2022 On behalf of the Committee of Management, it is with great sadness I inform everyone that Wendy Craig died yesterday morning after a long struggle with bowel cancer. Wendy was a founding member of the Cri du Chat Support Group of Aust. and was integral in organising the first meeting of 6 families at the Melbourne Zoo back in 1992. Following our incorporation in 1996, Wendy was the Association’s Secretary for a phenomenal 28 years. During this time, she donated countless hou...rs of her time in organizing our AGM and general meetings, took and circulated the minutes and maintained the register of members. As a wiz at Excel she tabulated registrations for our conferences and undertook many tasks associated with ensuring these ran smoothly and successfully. Her impeccable attention to detail and organizational skills were second to none and it was always a pleasure to work alongside Wendy as no job was too much trouble. As a friend to me and many of us over the years, particularly in welcoming new families, Wendy was an extremely generous and kind person who was always there to lend an ear when one needed a chat to someone who understood the challenge of caring and parenting a child-adult with special needs. She was loving and devoted mother to Bradley for over 30 years, caring for him during operations, tackling developmental milestones such as learning to walk and understanding his likes and dislikes. Spoken words were not needed in understanding Bradley’s needs in such a close and bonded mother-son relationship and on my visits to her home, I’ll always remember Bradley’s infectious smile at Wendy whenever she approached him. Wendy’s friendly face and positive attitude to everything she took on and the care she showed in her relationships with others will be greatly missed. As a Life Member of the Association, will are indebted to Wendy and she will always remain in our memory for the immeasurable contribution she has made and all the good times we have shared. Deepest condolences to Wendy’s partner Bill, her daughter Amanda and son in law Anthony, their children Brianna and Ally and her sons Jason and Bradley. Our heart felt thoughts are also extended to Wendy’s former husband, Roger who is our Treasurer and the current carer of Bradley.

20.01.2022 Well that was a fun night! Lots of support for our family weekend with a fabulous turn out. $7600 raised!!

19.01.2022 At our conference in 2013, Matthew was our youngest participant with CDCS. This time there will be 2 new friends younger than him, and 2 first-time participants just a little older. Isabella was a doting big sister, even then. Their grandma shared this photo and said she is "looking forward to a super hero weekend with lots of super hero families."

19.01.2022 ABOUT THE PRESENTER- Janelle Sampson Janelle Sampson is a Certified Practicing Speech Pathologist and has worked for over 30 years in both Australia and Canada,... predominantly with a focus on Augmentative and Alternative Communication. In 2011, she founded Two Way Street www.twowaystreet.com.au in Adelaide where she provides workshops, consultation, individual intervention, and various other programs. Janelle has worked extensively with families, in schools and with other organisations to support children and adults with complex communication needs. Two Way Street are a rapidly growing practice in South Australia who provide a range of services to support people with communication challenges with face to face services and workshops, as well as online programs, webinars and partnerships with Scope Victoria to introduce Communication Access initiatives throughout South Australia. Janelle is also the author of the ROCC (Roadmap of Communicative Competence) Assessment www.roccassessment.com.au . She provides regular consultations and workshops around Australia for ROCC, PODD and other areas related to supporting people with communication challenges. You can find out more about Janelle’s views on communication and read her occasional blog posts at https://janellesampson.wordpress.com/

16.01.2022 Hey I only just saw this come up on my news feed via the awesome "have wheelchair will travel" blog...How amazing is this place and the vision behind it...

14.01.2022 For many families, travelling with a child or adult with Cri Du Chat Syndrome requires extra support. Harvey's grandmother, Ann, will be travelling with his family from New Zealand. Ann says, "I'm looking forward to meeting other families and other grandparents affected by Cri Du Chat Syndrome."

14.01.2022 Only hours after Claire's diagnosis, I found the webpage for the Cri Du Chat Support Group of Australia. I was relieved to find family stories that gave me encouragement and hope. It was terrifying too, but at least I knew other people had coped, and had articulately shared their journeys. The geographical spread of families with CDCS made meeting many of these people an impossibility, but we were lucky to find some true friends nearby. I really felt sad for families unable t...o have that face to face contact. We considered attending a US or UK conference (held annually) but it was cost-prohibitive and too big of a challenge to consider on top of all we already faced. I decided that if we couldn't get to a conference overseas, we should just bring a conference to us! It was a lot of hard work and quite stressful, but the benefit for our family and the 31 others who attended in 2013 was astronomical. So much so that we have decided to do it all again, and we hope that in another two years, we will be attending an event like this one in NSW or Victoria (hint hint families!). The hardest part of the conference last time, was saying goodbye to be friends, and new 'family' at the end. Can't wait to meet up with friends again.

14.01.2022 Another Queensland family who have been busy raising awareness and funds for the family weekend and conference are excited to be travelling from Townsville. Janaya's parents and sister are looking forward to meeting all the other families who understand the challenges and joys that Cri Du Chat can bring.

13.01.2022 Congratulations Awareness Month Raffle winners! 1st prize - Sea World Accomodation package - Laurie Vea Vea 2nd prize - The Good Thing family portrait - Gail Hill... 3rd prize - $25 Dan Murphy's gift card - Andrew Wickens

13.01.2022 Register now :)

12.01.2022 The new committee, minus Kellie Campbell. Welcome Kellie, Belinda and Yvonne!

11.01.2022 Orlando will be joining our Super Siblings program, which includes a kids' club party and a program supervised by Carers Queensland counsellors and the Benevolent Society volunteers.

11.01.2022 Feel free to post a message conveying your gratitude to this Cargo Club Facebook post. The Duffy family and all those involved in the Cargo Club are amazing.

11.01.2022 Just two months to go until the 2015 Family Weekend and Conference. 37 families are registered to be represented!

09.01.2022 This webinar is free for families affected by Cri Du Chat Syndrome. Message for the code. You need to register before the live session to be able to view it at a time that suits you, any time within the next 30 days.

08.01.2022 Gemma and her family will travel from Melbourne to the Gold Coast again this year to meet up with other families affected by Cri Du Chat Syndrome. Gemma's mum shared, "We are looking forward to attending our second Family Weekend. It will be an opportunity to meet up with families we already know as well as meeting new families we have previously only met through social media. Family weekend is a wonderful way to make connections with others who share our journey and to be able to share ideas and resources. Gemma can't wait to get back to Seaworld and Jai is looking forward to catching up with all of the Siblings again."

01.01.2022 Jai added to the excitement of our 2013 weekend with a fall that resulted in a broken arm! It was less exciting when he realised he was unable to ride any of the theme park rides while wearing his cast :(. Jai's mum said, "This is Jai, Super Sibling to Gemma. He is the light of Gemma's life and is such a blessing in our lives."