Dementia Carers Survival Assistance | Community organisation

Dementia Carers Survival Assistance

Phone: +61 439 401 101

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25.01.2022 I chose this quote as it is not only simple but so true. As you lose your loved one with dementure / alzheimers you also need to focus on good memories even in the current day to day living. It is great to see them achieve something so little. I had a proud moment when husband started winter group exercise yesterday with so many beautiful friends he has made and who help him. Share things that make you happy and share this page with your friends in order for it to grow xx

24.01.2022 Hi followers, hope you are all sharing this page public to bring in those that need it, remember Alzheimer’s like other nasty health doesn’t choose an age group, never in our wildest dreams did myself or husband ever question that in our fifties our life would be turned upside down. Our beautiful family deserve to enjoy grandchildren, children, their partners and all those magical moments. It breaks my heart when we go to their sports and I realise my husband has not a clue ...who he is watching or even if he is watching. All part of Alzheimer’s but heartbreaking.

24.01.2022 Inviting anyone who has their own experiences to also share as I am sure plenty of people out there that can contribute xx

23.01.2022 I hope everyone is making the most of this long weekend to recharge your wellness and spend time with friends, family. I have taken my husband out for coffee, a drive and been out in the garden before the winter months hit. It has given him some motivation to go outside which is great and turnaround from sitting inside. He has decided he wants his own garden so take 2, we will get another going. ... I hope to get other carers to join this page so we can work together. Please share this page to anyone in this position, they don’t have to be looking after someone with dementia. We all travel this lonely, mentally trying path and can never give up on that one person who needs us.

23.01.2022 Cannot stress enough how important laughter is , share the funny side of frustrating situations. Recently there was a constant request for a vege garden, so decided to make one in a large tub. Plants were bought but nothing happened, I said how about you planting them? Reply was can you? So I made the garden, has it been watered? Oops not sure...... so plants are only alive from my watering. If they grew by love alone, it would be the best plants ever, I watch regularly as... husband watches over them many times a day. It itself can create beautiful memories of how a small project can make a person with Alzheimer’s so happy. People who visit are shown his garden with so much pride. I planted some small onions that were similar to chives. Went to water them, oops what are some doing thrown on ground. Me did you weed the garden? , reply yes. I guess they may have resembled a weed. Have to look at things like this with humour, have a good laugh and share with friends. I find some hilarious moments , people say, but you can laugh? It keeps me going and I am writing these memories down so we can look back at some great moments. No one wants to remember doom, gloom and frustrating times.

20.01.2022 Hi, I am finally back with so much wealth of information and hands on experiences and hurdles we have overcome. I hope all carers managed to get through the festive season without too many dramas. These times can be hard for the pwd as often families get together and create lots of noise and activities which is out of the everyday routine. I am not saying change Christmas but maybe after sometime take the pwd to a quieter area of house or yard, so the day is t too overwhelming to them.

19.01.2022 Sorry I have not been on here for everyone. Any carer will know how each day can be consumed with everything but your own needs x

19.01.2022 I am back after a few tough weeks but still smiling even though I did have a few tears along the way. Post on this site some of your experiences and how you turned the tough into getting on with things. I am sure I am not the only one keen to hear. I did laugh at Miss nearly 7 who calls dementure, demention. Sounds cute. Take every little opportunity to laugh. This is a tough and extremely hard job to do BUT try and have memories not only of the past but make happy mem...ories now while you can. Share things with people and remember to laugh.

16.01.2022 If you know of anyone out there who needs some support, please forward them to check out our page . We would love to hear from any carers and how they cope. You can also share what you do when you feel overwhelmed and are struggling

16.01.2022 Share you funny incidents with PWD. I want everyone to try and see some happy fun things and share. People say to me, you can laugh and seem happy. I have lonely and sad times but being a carer is hard enough so why not have a few lighter moments along the way.

15.01.2022 Caring for our loved ones has its ups and downs like a roller coaster and with it comes our emotions of anger tears frustration acceptance but generally just sticking up for what we expect for the person we are caring for. I am feeling very angry as my husband was treated unacceptable in my eyes this weekend. Yes he has alzheimers but travelling in a car he has never once tried to get out unless told to. BUT the person who took him to weekend respite locked his door with kiddy lock and put both him and other person in backseat like a pair of prisoners and arrived home the same. I cannot believe the attitude of these employees nor their organisation. Somethings need to change. Why should we stand back and accept this type of treatment? Train staff in these positions.

15.01.2022 We have a local MIPS (mobility impairment program) which is basically light exercises and most people have things such as arthritis, injuries etc where light exercises are a great help and they also meet other people. This group is full of beautiful caring people who do pool exercised in summer and indoors in winter months. Highly recommend this for anyone who access to this type of program. My husband has been doing it for a number of years and has so many people looking ...out for him. He absolutely loves going and I have "spied" a few times. Today was their last summer day at the pool so I had a look from outside for awhile and although days are tough, I felt a little tear of proudness watching him trying to do the program to some beaut music. He was doing the best he could but the most beautiful thing was seeing how much enjoyment he was having. He looked like he was on cloud nine. These are the things that make the difficult times a little special. Keep this in mind as it is a terrible disease but the person can also have some awesome times themselves. I felt a tad proud watching him today. See more

15.01.2022 Always pitch in to help any health issues that need a cure or further assistance. One day it may happen to someone close to you.

14.01.2022 Been awhile since my last post and during this time so much has happened. Not sure about others but my life is always on overload with so many daily demands, chores and trying to fit in a bit of your own life which is also important. Your own life is usually put on hold when you are caring for someone with Alzheimer’s but it is so important for you to fit somethings in that you enjoy. You may continue to play a sport, take time out for your hobby, to read or basically some...thing that is for you. This way you stay slightly connected to your life. We are all aware that most of us will eventually be returning to our life but while we are caring we need our own interest or hobby to keep us stimulated and find some enjoyment. Take a few minutes now to sit and think of one thing that brings you pleasure ie reading, cooking, playing a sport that also connects you to others. Write it down and make tomorrow or next working week to reintroduce it to your week. Yes you may have to find either a family member or community to look after your loved one but that is OK. You need downtime too.

08.01.2022 This is how you may feel in the early days as a carer but trust in yourself and learning as you go creates that strength you will need.

06.01.2022 Being a full time carer is hard work and draining. Keep physically active ie daily walk, meditation, gym workout .... release some stress in a healthy way, and create the endorphins needed for happiness. Fresh air and exercise is great for your mental health well being.

05.01.2022 A huge thankyou to all who have liked my page so far. It may not affect you but may I ask you all to share via your page. So many of us find this lonely and hard road to be travelled but no one to do it with. Lets make a difference to someone's life today, :)

02.01.2022 I have been busy writing some newsletters in preparation for release. It has taken me back six years ago to some raw times but lots have happened since. When prescription glasses first time were lost, I was beside myself going through every place including kitchen garbage, wash basket, under bed, in things, under furniture etc not once but several times, omg how could a pair of glasses disappear??? Stressed out was an understatement . Two days passed then when I was out gardening there appeared a pair of folded glasses wow I can’t describe the feeling. I haven’t any idea how they ended up there but it became a funny story to remember. This was an example of finding humour wherever you can on this journey, it keeps all those good mendorphins surfacing and life is easier to manage. Share on here a funny story you have experienced.