Eating Disorders Families Australia in Melbourne, Victoria, Australia | Charitable organisation

Eating Disorders Families Australia

Locality: Melbourne, Victoria, Australia

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25.01.2022 EDFA strive groups aim to help parents and carers learn more about eating disorders so they can be more effective & compassionate carers and strong advocates fo...r their loved one’s needs. Did you know that by joining EDFA, carers can attend our twice monthly National education sessions on the 1st & 3rd Thursday of each month? This week we will be learning from two courageous young people who will give us personal insight into their own eating disorder experience. We will explore ... why making changes is so difficult? what it feels like to live with an ED? what is an eating disorder really about? why is my eating disorder so uncomfortably comfortable? what do I need to help me move forward? what do parents and carers need to know? ... and more When? Thursday 1st April 2021, 8pm-9.30pm AEST (Victoria) The session will include 30 minutes of Q&A's The meeting link for this event can be accessed in EDFA's private strive Australia FB group: https://www.facebook.com/.../edfastriveaust.../announcements (you need to be a paid member of EDFA to attend) Carers... join EDFA as a member to attend! Just $25 family membership per annum. Check out the benefits of becoming a member here: https://edfa.org.au/get-involved/become-a-member/ Then join strive Australia private carers FB group for access to EDFA's education sessions and support groups: https://www.facebook.com/groups/edfastriveaustralia

24.01.2022 October is National Mental Health month. Here is what EDFA has on offer for our members. If you have not yet joined our volunteer organisation, please do so for just $25 annual family membership which gives you free access to all our support & educational sessions. Join here: https://eatingdisordersfamiliesaustralia.wildapricot.org//

24.01.2022 New study to help 13-25 year olds with body image concerns. It is a prevention program for those at risk of an eating disorder or who want to improve their body image & can also be an early intervention program for those who have an eating disorder. Parental consent required for under 16s but this may be worthwhile for siblings to participate in to give them assistance with body image concerns. Go to https://mediasmart.flinders.edu.au for more details & to access survey

24.01.2022 Eating Disorders- not what you think- a podcast by Butterfly Foundation as part of Mental Health Month. EDFA Board Director Christine Naismith contributes to the conversation.

24.01.2022 Becoming a member with EDFA costs just $25 and not only supports our volunteer organisation but also comes with a huge range of benefits including: carer national support groups and education/information webinars, knowledge, connection, understanding, access to ED information & research and a welcome pack with an ED book. Growing our membership also helps give carers a stronger collective voice to lobby for better services & positive change in the ED sector! Membership application linked in our bio!

24.01.2022 We are very excited to extend our support to siblings...Register your interest for siblings support group below! https://edfa.org.au/siblings-support-groups/ #passthebaton4eatingdisorders... #noshamenoblame #carers4carers #eatingdisorderslivedexperience #livedexperience See more

24.01.2022 Check out all EDFA has on offer in December! Please let your Clinicians know about the next TBT-S training webinar on Thursday 3rd December! Only paid-up members of EDFA can attend the bi-monthly education sessions. Membership is only $25 annually per family, but you must be an Australian parent or carer of someone with an eating disorder to qualify. Join up today: https://edfa.org.au/get-involved/become-a-member/

23.01.2022 Thanks to InsideOut Institute for Eating Disorders for creating this video to help hospital staff know how to best support a person to eat in the hospital setting

23.01.2022 Statement from EDFA and EDV regarding this week’s VCE Yr 12 Maths Exam [Image reads: This week, EDV and Eating Disorders Families Australia were alerted to the fact that the recent Yr 12 Further Maths exam contained questions that utilised themes around weight gain, BMI, body size, overweight and obesity. We know that this has been highly distressing for some students and parents. EDV and EDFA have written to James Merlino, the Minister for Education and Mental Health, a...nd Stephen Gniel, the CEO of VCAA, to express our deep concern and disappointment about this issue. It is very disheartening to think that students who may have found this content distressing may have had their performance in this exam negatively impacted. Even more concerning is that some students may have had their eating disorder recovery compromised. Victoria is currently experiencing a surge in eating disorder new presentations and relapses in young people due to the impacts of COVID-19. There is more need than ever to be sensitive around issues such as weight, size, shape or attaching any type of classification to a person based on BMI. EDV and EDFA have asked the Minister and Mr Gniel to ensure there are checks and balances in place at VCAA to ensure content like this does not make its way into future exams or curriculum. You can read the full letter on our website. https://edfa.org.au/unca/edfa-and-edv-response-to-vce-exam/

23.01.2022 Okay, here’s a challenge to all our followers and members.... we have a goal to reach 1000 followers on Instagram by the end of January ‘21. We currently have 887 followers so the ask is not too big. Help us get there by following @edfaustralia on IG

22.01.2022 Thankyou Michelle Williams for speaking out about eating disorders & the need for early detection, urgent action & more services in WA. Hoping more people learn about EDFA & reach out for our lived-experience, peer-led support for families & Carers of people with eating disorders This news report on GWN7 News on Christmas Eve. https://www.facebook.com/gwn7news/videos/2846103689003438

22.01.2022 Insightful article from a brave ED warrior. You've got this Aud Ree Feel free to click to leave feedback inside the article itself as well... Tabitha Farrar Eating Disorder Recovery Coach - see references to you

22.01.2022 Having eating disorder clinics available could be the difference between life and death... http://www.abc.net.au//eating-disorder-treatment-/12772004

22.01.2022 With Christmas approaching fast here are some helpful tips and examples regarding the importance of non physical compliments! Stay tuned...more to come!! #passthebaton4eatingdisorders #noblamenoshame #carers4carers #eatingdisorderslivedexperience #livedexperience

22.01.2022 Reminder for those who have recently diagnosed loved ones or are new to the ‘eating disorder world’ that FEAST has a wonderful free program to help educate & empower you as a Carer. ‘The first 30 Days’ program provides a short daily education session you can read or listen to a recording. You can also choose to listen to topics on different days as they suit you. A great resource, even for those of us who have been at this for some time as you may pick up helpful tips or reminders as well. Sign up today & have a look at what is available- it’s free & knowledge is power!! https://www.feast-ed.org/register-now-for-our-30-day-educa/

21.01.2022 Today 10/10/20 is World Mental Health Day & this week is Carer’s Week.... A reminder on #worldmentalhealthday2020 that EDFA was formed by Parents & Carers with Lived-Experience. No one 'gets it' like WE who have lived it! Families of people with mental illness are doing it tough too. Can you spare 3 minutes to watch this video please? It describes perfectly what parents, carers & siblings go through on a daily basis caring for someone with an eating disorder, which is a life...-threatening mental illness which takes years to beat & impacts the entire family unit. This beautiful Mum shows you what it is like & why we started EDFA. I am delighted to say that two years on from this video, her daughter is doing well & the family is recovering from the experience Sadly though, Anorexia Nervosa has the highest mortality of ALL mental illnesses (with up to 20% dying from suicide or organ failure if not effectively treated ) so it is particularly challenging & frightening for the unwell person AND the whole family. I invite you to support our volunteer organisation Eating Disorders Families Australia by following our page, letting others know of our service - we now have a ‘strive’ parent/carer support group in every state & territory of Australia or even making a small donation to help us continue our work supporting, educating & connecting families so they are not alone in this battle to save their loved one Thankyou #mentalhealthmonth #carers4carers #volunteers #livedexperiencesupport #peer2peersupport #passthebaton4eatingdisorders #nationalcarersweek2020 #worldmentalhealthday Australian Government Department of Health The Project @InsightSBS @ABC730 #eatingdisorders #eatingdisordercommunity #eatingdisordersupport #eatingdisorderrecovery #eatingdisorderawareness #mentalhealth #mentalhealthmatters #eatingdisordersupport #selfcare #parentsupport #edfam #edfamily #edrecoverycommunity See more

21.01.2022 EDFA is all about parents & carers with lived experience of caring for someone with an eating disorder supporting others as they navigate this complex, challenging, exhausting & often overwhelming path. Join us today if you need connection with other carers who understand what you are going through Your $25 annual family membership supports the work of our volunteer, not for profit organisation & gives you access to a whole host of support groups, education sessions, recordings, discounts to ED events & daily online support via our strive FB pages. https://edfa.org.au/get-involved/become-a-member/

21.01.2022 We invite you to head on over to LinkedIn to follow our new page. :)

21.01.2022 We hope that everyone got through Christmas Day & managed to find some moments of joy, but we know how challenging it can be for people with eating disorders & in turn those who are caring for them. We are thinking of you. Reach out on our statewide ‘strive’ Facebook pages if you need support or connection to others who understand what you are going through

20.01.2022 Eating disorders & relapses on the rise during the Covid-19 pandemic & ensuing restrictions due to the uncertainty, isolation & anxiety this has brought about. Our statewide EDFA strive parent and carer support groups are growing by the day, but the need in Victoria particularly has been greatest with the lengthy stage 4 restrictions. Please reach out to us at EDFA if you are caring for someone with an eating disorder https://www.theaustralian.com.au//7dd1aa0bca6fcaa68f8ad45b

20.01.2022 Despite the loneliness & despair that eating disorders bring please know that you are not alone & we understand how tough this journey is Recovery IS possible. There IS hope.

19.01.2022 This week, EDV and Eating Disorders Families Australia were alerted to the fact that the recent Yr 12 Further Maths exam contained questions that utilised themes around weight gain, BMI, body size, overweight and obesity. We know that this has been highly distressing for some students and parents. EDV and EDFA have written to James Merlino, the Minister for Education and Mental Health, and Stephen Gniel, the CEO of VCAA, to express our deep concern and disappointment about th...is issue. It is very disheartening to think that students who may have found this content distressing may have had their performance in this exam negatively impacted. Even more concerning is that some students may have had their eating disorder recovery compromised. Victoria is currently experiencing a surge in eating disorder new presentations and relapses in young people due to the impacts of COVID-19. There is more need than ever to be sensitive around issues such as weight, size, shape or attaching any type of classification to a person based on BMI. EDV and EDFA have asked the Minister and Mr Gniel to ensure there are checks and balances in place at VCAA to ensure content like this does not make its way into future exams or curriculum. James Merlino Dan Andrews Bill Shorten @dannypearsonmp https://www.eatingdisorders.org.au/concern-over-vce-maths-e

19.01.2022 Credit to @jennifer_rollin. Some important reminders to be mindful of the language we are using around our loved ones #passthebaton4eatingdisorders

18.01.2022 Help us open Wandi Nerida, Australia's first residential recovery centre for eating disorders. Originally planned to open in early 2021, a sudden lack of fundi...ng has thrown the centre's opening into uncertainty. We cannot allow this to happen. What impact will you make? Donate, unite and mobilise now https://bit.ly/3gfnIoO #ItsTimeToDonate #FightForWandiNerida

18.01.2022 Our November calendar is here! What events will you be joining us for? Head to our website for more details on signing up for strive groups and our National education events.

17.01.2022 Our December calendar is out, what events will you join us for? Head to www.edfa.org.au for membership details!

17.01.2022 We know how tough this time can be for families, EDFA will continue to provide support

16.01.2022 Due to a tech issue, last week's planned Temperament Based Therapy with Supports (TBT-S) webinar for Clinicians will be running this Thursday 10th December. Let your Clinicians know of this great opportunity to learn more about this emerging therapy from USA. Tickets only $50 & recording can be viewed at a later time also. Details: https://edfa.org.au/clinicians/tbt-s/

16.01.2022 In today’s paper: The Covid19 Pandemic has created a national surge of between 25 and 50 per cent in presentations for eating disorders across the public health system Our volunteer, parent-led support organisation, EDFA is here for the families of those affected by these life-threatening mental illnesses https://www.theage.com.au//surge-in-eating-disorders-revea

15.01.2022 For Victorians (north east region) Free Collaborative Carer Skills Training over 7 sessions via BETRS starting 20th October. Register your interest ASAP

15.01.2022 ......then THIS HAPPENED!!! More about our exciting news coming early 2021!!! @hughvancuylenburg Follow us - IG -@edfaustralia and Twitter - @edf_aust... #passthebaton4eatingdisorders #noblamenoshame #carers4carers #eatingdisorderslivedexperience #livedexperience #theresilienceproject

14.01.2022 ...we know that our lived-experience support and education is needed, appreciated, and making a difference #passthebaton4eatingdisorders #noshamenoblame #carers4carers #eatingdisorderslivedexperience #livedexperience

14.01.2022 For teachers and students heading back to school tomorrow. We encourage you to read.

13.01.2022 Evidence that high fat diet important in surviving anorexia https://news.yale.edu//yale-finds-neuron-behind-fatal-anor

13.01.2022 Bring on a better 2021! #passthebaton4eatingdisorders #noshamenoblame #carers4carers #eatingdisorderslivedexperience #livedexperience

13.01.2022 Please sign the petition to get Queensland State Government to provide some funding assistance & support the opening of Australia’s first eating disorder residential facility, Wandi Nerida, located on the Sunshine Coast https://butterfly.org.au//fightforwandiner/sign-petition/

13.01.2022 ED’s don’t take a break and neither do we. We support carers 7 days a week #passthebaton4eatingdisorders #noshamenoblame #carers4carers #eatingdisorderslivedexperience #livedexperience

11.01.2022 This is valuable info for use at all times of the year, not only for Christmas You can't tell if someone has an eating disorder (ED) simply by looking at them, as they are mental illnesses & affect people of all shapes & sizes. Body and diet talk can trigger extreme distress in someone struggling with an ED, which is the last thing anyone would wish to do to someone they love

10.01.2022 October is National Mental Health Month, an initiative of the National Health Foundation Australia! It’s an important time where the mental health community comes together to raise awareness, and advocate for the mental health of all Australians!

10.01.2022 As 2020 draws to a close, we acknowledge what a difficult year it has been for many people, with the uncertainty & anxiety that Covid-19 restrictions, isolation & lockdowns brought about. There have been record numbers of new cases of eating disorders & relapses, which as we all know, are life-threatening mental illnesses which impact the entire family unit. This article explains how families are affected & the task they take on to try to get their loved one well again. Hoping 2021 is a better year for everyone https://mirror-mirror.org//how-eating-disorders-affect-fam

10.01.2022 Article reminding GPs of the huge rise in eating disorder cases, both new cases & relapses due to the Covid-19 pandemic & to be aware & better informed to help those struggling. https://www1.racgp.org.au//triggers-and-exposures-sharp-sp

10.01.2022 Reminder to all strive parents and carers our October national education event is TOMORROW night (Thursday 1st). More information on strive facebook pages!

08.01.2022 A new page has gone live on our Website. We hope you find it useful :) https://edfa.org.au//re/eating-disorder-books-for-parents/

08.01.2022 Launching soon! Keep an eye out for our brand new Website. Can't wait to share it with you.

07.01.2022 EDFA are proud to announce our exciting webinar with the world renowned Prof. Tony Attwood covering the links between Autism and Eating Disorders. BOOK NOW at https://edfa.org.au/tony-attwood-autism-and-eating-disorde/ EDFA Members get your subsidised discount code via the strive AUSTRALIA group page.... WHEN: SATURDAY FEB 27 2021 11.00AM-1.30PM AEDT. Carers and Clinicians welcome!! Includes half hour question and answer time. @autismspectrumaustralia www.tonyattwood.com.au @amazeautism @scopeaust @noahsarkaus @autismsupportandawareness @autismawareaus @autismspeaks Specialist Hypnotherapy@aspergersvicempowers Aspie Whisperer #noshamenoblame #carers4carers #passthebaton4eatingdisorders #eatingdisorders #autism #aspergers #aspergerssyndrome #professortonyattwood #tonyattwood #asd #autismandeatingdisorders Barb Kelly Psychology

07.01.2022 Check out our April calendar for this month's events!

07.01.2022 Christmas is joyful but often scary for people living with an eating disorder. Be the best support that you can be. Check out these helpful tips! #passthebaton4eatingdisorders #noshamenoblame #carers4carers #eatingdisorderslivedexperience #livedexperience

07.01.2022 Last chance to get a FREE copy of this helpful resource, "Unpack your Eating Disorder'. If you are a parent or carer of someone with an eating disorder & living in Australia, then we encourage you to join up today as a member of EDFA for just $25 annual family membership to support our volunteer organisation continue its important work & to show strength in numbers to Government & other funding bodies, when seeking grants or funds to enable EDFA to continue achieving its goal...s & dreams for improvements in the ED sector & better support of the familes & carers who have such a long, exhausting & challenging task guiding their loved ones towards recovery from an ED. EDFA will provide this book with membership until December 31st 2020. This has been possible through 2019/20 thanks to generous donations by the MacNamara Family Foundation & the Garvey Family. Our funds are now exhausted, so we can no longer provide the books, unless another benefactor would like to make a contribution specifically to keep this offering available. Your $25 membership also provides you with daily online support, connection & information via our statewide strive Facebook groups as well as our monthly online strive support meetings & our National strive Australia page which gives access to our twice monthly education sessions, helpful files, recordings and information to inform & support you in your role as the carer of someone you love who is unwell with an ED. Knowing you are not alone & learning from others with lived experience & stories of recovery, can be so empowering. Join up here: https://edfa.org.au/get-involved/ See more

07.01.2022 So proud of our Co-founder, Christine Naismith, who has been busy with a national tour on ABC radio to speak about all things EDFA and 'strive Carer Support Groups'. Hear her speak with Rebecca Levingston of Mornings on ABC Brisbane https://www.abc.net.au//prog/mornings/edfa-air-1/12789030

06.01.2022 It’s ‘Mental Health Month’ & ‘weight stigma awareness week’, so a good time to remember that eating disorders are serious mental illnesses which affect people of all shapes & sizes. Don’t remark on someone’s weight- you never know the impact it may have on them https://www.ucsf.edu//anorexia-nervosa-comes-all-sizes-inc

06.01.2022 Dear supporter, The COVID-19 pandemic has sent a wrecking ball through the Australian Eating Disorder community, mental health system and the not-for-profit sector. Our organisation, that only exists, and is only successful due to the 7 day per week commitment of our passionate Volunteer Lived-Experience founders and carers, has an unprecedented demand to help more and more Families just when our small amount of donated funds have plummeted. ... If you're not yourself one of the people who needs help now, now is the time to help others. Some of the ways you can help will be highlighted during GivingTuesdayNow, which is being held around Australia today - Tuesday 1st December 2020. If you're able to lend a hand to people in trouble, and to the groups who are supporting them, we'd like to invite you to find our listing on the Register here: https://www.givenow.com.au//eating-disorders-families-aust We wish you health and thank you for your continued support.

06.01.2022 A fabulous article from the amazing Judy Krasna at FEAST, who sums up the true value of lived experience & parents being ‘experts by experience’ in their own child https://www.feast-ed.org/credentials-from-the-university-/

05.01.2022 Our friends at @End ED just getting on with it and getting it done! We salute you Mark and Gayle Forbes!!

05.01.2022 This is a really important survey to shape the priorities for eating disorder research & we need Carers & people with eating disorders to contribute to ensure the needs of families are considered. Please take 10 minutes to contribute your ideas & express what is important to you for better ED treatment for our loved ones & more inclusion & acknowledgement of Carers

04.01.2022 Identification and Management of Eating Disorders in Children and Adolescents Laurie L. Hornberger, Margo A. Lane and THE COMMITTEE ON ADOLESCENCE Pediatrics January 2021, https://pediatrics.aappublications.org/conte//e2020040279

04.01.2022 Thanks to InsideOut for creating an online training program for Carers of people with eating disorders. EDFA has been involved & we'd love carers to trial the program and tell us what you think. If you want to know when InsideOut start recruiting for the trial, register your interest via link in attached post

02.01.2022 In today’s paper. Thanks to Merril Bohn, Rohan Wastell & daughter Claire for sharing your story

02.01.2022 This is Carer’s Week Live cross to Carer’s Australia speech https://www.facebook.com/CarersAus/videos/644509449546792/

02.01.2022 It’s Live!!! Our new website has launched! Go check it out at edfa.org.au. Hope you love it as much as we do! Our members are multi talented Carers who are so generous with their time by giving back to our community so - We are delighted to say a HUGE Thank You for the endless hours of dedication and creativity to complete the vision Jo-Lise Finn!! (Strive NSW) ... #volunteers #wecare4carers #newwebsite #passthebaton4eatingdisorders. Link in bio. See more

02.01.2022 EDFA presents the next Clinician-only webinar training session on the latest emerging eating disorder treatment from USA, Temperament Based Therapy with Supports (TBT-S) this Thursday, 3rd December. Please pass on to your GPs, Psychologists, Therapists, Nurses, Paediatricians, Psychiatrists, CAHMS & CYMHS & clinical support teams, so they can learn more about this modality. https://us16.campaign-archive.com/ Learn more about TBT-S on our website too: https://edfa.org.au/clinicians/tbt-s/

02.01.2022 EDFA is proud to have been involved in this Carer training initiative brought about by our friends InsideOut Institute for Eating Disorders. Parents & Carers, please take a look & provide your feedback so the program can be tweaked to meet the needs of parents & carers of people with eating disorders Thankyou to our volunteers Merril Bohn, Rohan Wastell, Stacey Rogers, Robyn Gorfine & Briony Tyquin for your involvement. ... We are so grateful that the Carer voice is being recognised & the need for this kind of lived-experience support, combined with evidence based knowledge is being made readily accessible to all Australian families supporting someone with an eating disorder

01.01.2022 Recruits needed for genetic ED study **Please note some questions can be confronting, so may be advisable to ensure you are nearby while a loved one is filling in this survey, or have a support person yourself if filling out the survey personally ** The international EDGI study aims to enrol more than 100,000 people worldwide, with more than 3,500 volunteers from Australia. Anyone aged 13 years or over who has, at any point in their lives, experienced anorexia nervosa, bul...imia nervosa or binge-eating disorder is urged to take part in the potentially life-saving study by filling out a questionnaire and providing a saliva sample. https://www.abc.net.au//eating-disorders-genetic-/12683754 See more

01.01.2022 This amazing post, from one of our members, has made all our efforts, passion and dedication to change the world of eating disorders treatment and care truly worthwhile, gives us further motivation and shows we are on the right track. This is why we do what we do - parents, Carers, families need lived experience support and we best placed to provide it.

01.01.2022 This discussion is going live in 5 minutes (8am AEST) for anyone who may be interested in listening

01.01.2022 Join us tomorrow night for our next national education event! The Zoom link will be made available via the strive Australia page. As this page is only accessible to paid EDFA members, if you are an Australian carer of someone with an eating disorder please ensure you have joined EDFA today for just $25 annual family membership so you don’t miss out on this (or all our upcoming education events) at edfa.org.au

01.01.2022 Carers & people with lived experience of an eating disorder invited to participate in this survey to help identify the top priorities to focus on in ED treatment & research...