Eating Disorders Genetics Initiative | Medical company
Eating Disorders Genetics Initiative
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24.01.2022 Eating disorders can affect anyone regardless of age, gender or ethnicity. EDGI researchers hope to recruit people from all walks of life, representing eating disorders as they live in the community, not only the people who are detected by the healthcare system. Join #EDGIAUS today at: edgi.org.au
24.01.2022 #EDGI is the next generation of our genetic studies of eating disorders. Prof Cynthia M. Bulik invites those with first-hand experience of bulimia nervosa, anorexia nervosa, & binge-eating disorders to participate in this groundbreaking study. Head to our website for more info: www.edgi.org.au
23.01.2022 Concerning statistics from WA this week reveal a 43% increase in children seeking help for eating disorders this year. COVID-19 has made 2020 an even more challenging year than normal & the holiday season can be extra difficult for those living with an eating disorder. Importantly, don't be afraid to seek help from a healthcare professional when required. To help us gain a better understanding of eating disorders, take our survey at www.edgi.org.au... QIMR Berghofer Medical Research Institute #eatingdisorders
23.01.2022 It would be exciting to be able to test early on in the presentation of an eating disorder for these gene variations to ensure that support & monitoring is provided early. Knowing that a gene is there will also help sufferers stop blaming themselves for their illness or the challenges they face in recovering, - Nadia, 33, Librarian who battled anorexia nervosa after graduating from university, BRISBANE Read her story: ... QIMR Berghofer Medical Research Institute #eatingdisorderawareness #eatingdisorders Butterfly Foundation
22.01.2022 Merry Christmas from our EDGI AUS Team!
21.01.2022 Abbey Coleman, Radio presenter at B105, is set to appear on the 'End Eating Disorders' podcast. The podcast, which aims to address the stigma surrounding eating disorders, has released three episodes featuring host Millie Thomas & guest interviewees Wendy Brocket & Luke Chivers. Head here for more info:
21.01.2022 Professor Nick Martin Ph.D. Head, Genetic Epidemiology Laboratory, QIMR Berghofer Medical Research Institute & Lead Investigator, Eating Disorders Genetics Initiative (AUS arm), BRISBANE, is calling on all Australians age 13 years or over who have first-hand experience of anorexia nervosa, bulimia nervosa, or binge-eating disorder to take part in #EDGIAUS. Head to: www.edgi.org.au for more info.
21.01.2022 Did you know binge eating disorder (BED) is the most common eating disorder? Nearly 3% of Aussies are expected to develop BED in their lifetime. To learn more about what factors contribute to eating disorders, visit www.edgi.org.au.
21.01.2022 EDGI aims to identify up to hundreds of genes that influence a person’s risk of developing an eating disorder. We know there will be a large number of genes. It's just a question of how large our sample size is. - Prof Nicholas Martin, Lead EDGI Investigator, Geneticist & Head, Genetic Epidemiology Research Group, QIMR Berghofer Medical Research Institute Head here for more info: www.edgi.org.au #eatingdisorders #eatingdisorderawareness
21.01.2022 Reaching out for help is one of the best things you will ever do. & the reason I’m so open about the challenges that I faced is to share the methods that worked for my recovery, in the hope that they may help others who are facing those same challenges right now. When you’re in the thick of living with an eating disorder, it can feel very dark & that recovery isn’t possible. But I’m here to tell you that, with help, it is. - Bec Brown, Business owner & author who battled anorexia nervosa, bulimia nervosa & binge eating disorder intermittently from the time she was 12, SYDNEY Read her story: https://edgi.org.au/becs-story/
19.01.2022 Professor Cynthia M.Bulik, Lead Investigator of EDGI, recently wrote an article on how she searches for signs of impending anorexia nervosa. Read the full article here:
19.01.2022 Millie Thomas, EDGI participant & Eating Disorders Recovery Coach living in the Sunshine Coast, recently shared her story with 9Honey. Read below. End ED
18.01.2022 I've chosen to volunteer for #EDGIAUS because I think it's really important that we have more research into the reasons why eating disorders happen. If we can help educate health professionals & the general public, that can only lead to saving lives. - Stephanie, 30, EDGI participant, office manager & opera singer who has battled anorexia nervosa for more than 15 years, SYDNEY Read her story: https://edgi.org.au/stephanies-story/
18.01.2022 Eating disorders are very complex & serious illnesses. Hear Dr Sarah Maguire, Clinical Psychologist & Director of the InsideOut Institute for Eating Disorders, explain how #EDGI will enable us to gather information about the causes of eating disorders & potential treatment targets. If you have first-hand experience of an eating disorder head to www.edgi.org.au. Together we can improve treatments & hopefully even find a cure for these devastating illnesses.
17.01.2022 On behalf of our EDGI AUS team, we wish you a very healthy, happy & productive New Year. We have no doubt 2021 will be full of light, love & laughter
17.01.2022 As I continue on my journey of recovery, I recognise it will not be purely linear. Recovery is not a passive process. Sometimes things can be triggered, which will reacquaint you with your eating disorder. But with each episode, I emerge with a healthier outlook on life, & with more responsibility to myself, & my growth. - Juliana, 26, University student living with anorexia nervosa who obsessed over her body image & weight for most of her teens, Adelaide Read her full story here: QIMR Berghofer Medical Research Institute
16.01.2022 My message to Australians aged 13 & over who have first-hand experience of an eating disorder is to please take part in the Eating Disorders Genetics Initiative. It is an absolutely incredible project that has the ability to really save lives. By participating in it, you can impact the future. - Millie Thomas, 32, Eating Disorders Recovery Coach & EDGI participant, SUNSHINE COAST Become a part of something bigger join #EDGIAUs: www.edgi.org.au
15.01.2022 Weight Stigma Awareness Week 2020 Everyonein every size/shape bodydeserves life-saving and life-optimising treatment, but weight stigma is a barrier to that f...or many people. It is well recognised that people with all eating disorders come in all different sized bodies, yet access to care can be significantly interrupted by strongly held beliefs and stereotypes about eating disorders and weight, delaying or obstructing treatment and impacting recovery. Weight bias is evident towards people with eating disorders who are in bigger bodies. They struggle to have their distress recognised and validated, disorders diagnosed or gain access to appropriate treatment. Or, when in treatment recommendations are for weight loss- despite countless research showing that the pursuit of body changes maintains eating disorder beliefs and behaviors rather than allow people to heal from them (Stice et. al. 2017 Journal Abnormal Psychology). Theoretical Models exploring the development of eating disorders repeatedly identify body dissatisfaction, dieting behaviours, internalisation of thin ideals and pursuit of thinness as precipitators to the development of a disorder; and maintenance (O’Brien et al 2016 Appetite). Body dissatisfaction, internalisation and pursuit of the thin idea and dieting behaviours are all rooted in weight stigma and fat phobia, which remains commonplace in the clinical and research communities, and among people personally impacted by eating disorders. For example: - Clinicians do not feeding higher weight patients at an adequate level compared to lower weight patients. - Treatment programs not accepting patients whose weight may not be objectively low. - Research is not balanced to include all body sizes because of the general assumptions made about weight and its association to certain diagnoses. For instance, a person in a higher weight body can have Anorexia Nervosa (termed" Atypical Anorexia Nervosa") and, because of weight, be excluded from studies. - Treatment services advertise "weight management" or weight loss as a component of treatment for higher weight people with an eating disorder, especially those with binge eating disorder who are wrongly assumed to be universally in larger bodies Instagram accounts to follow to learn more: Ragen Chastain @ragenchastain Virgie Tovar @virgietovar Rachel Milner: @drrachelmilner Shira Rosenbluth: @theshirarose Read: Weight Bias: A Call to Action (Alberga et al, JED 2016) https://jeatdisord.biomedcentral.com//10/s40337-016-0112-4 Join the ANZAED Weight Stigma and Social Justice Interest Group to learn more and join a community of people having important conversations. https://www.anzaed.org.au/special-interest-groups/ #WSAW2020 #EndWeightHate
14.01.2022 Living with anorexia nervosa was very overwhelming & isolating. I didn’t understand what I was going through, which made it very hard for me to articulate it to others." -Rachel Favilla, Clinical nutritionist, yoga teacher & author who developed anorexia nervosa while undergoing treatment for liver cirrhosis, ADELAIDE Read her story: https://edgi.org.au/2580-2/ QIMR Berghofer Medical Research Institute Eating Disorders Association of SA
14.01.2022 Stephanie, 30, Office manager & opera singer who fought anorexia nervosa for more than half her life explains what it's like to live with this potentially devastating mental illness. Read her full story here: https://edgi.org.au/stephanies-story/ QIMR Berghofer Medical Research Institute
14.01.2022 Dr Sarah Maguire, Clinical Psychologist & Director, InsideOut Institute for Eating Disorders, Sydney urges Australians aged 13+ years with first-hand experience of an eating disorder, to enrol in the world's largest ever genetic investigation into these complex, devastating illnesses. Take our online survey here: www.edgi.org.au
14.01.2022 "EDGI is an essential part of the journey to help us understand which genes & environments will give us most leverage in preventing & more quickly treating eating disorders." - Professor Tracey Wade, Ph.D., Matthew Flinders Distinguished Professor, College of Education, Psychology and Social, ADELAIDE Head here for more info: www.edgi.org.au ... QIMR Berghofer Medical Research Institute
13.01.2022 #EDGIAUS researchers are calling on any Australian aged 13 years & over who has currently, or at any point in their lives experienced anorexia nervosa, bulimia nervosa or binge eating disorder. Sign up here: edg#edgiaus QIMR Berghofer Medical Research Institute #eatingdisorders #eatingdisorderawareness
13.01.2022 Once an eating disorder creeps into your life, it completely changes who you are. Every day we are required to eat to survive. So, having an illness that affects your perception of food & your ability to survive, is devastating." - Sophie, 21, University student diagnosed with anorexia nervosa at 18 years of age, BRISBANE Read her story: https://edgi.org.au/sophies-story/
13.01.2022 Dr Sarah Maguire, Clinical psychologist & Director of the InsideOut Institute for Eating Disorders, believes that identifying the genes that predispose people to eating disorders will revolutionise future research into causes, treatment & prevention of the illnesses. Visit: edgi.org.au for more info QIMR Berghofer Medical Research Institute
09.01.2022 Australian scientists are working to identify the genes which could determine if someone is at risk of developing an eating disorder. www.7NEWS.com.au #7NEWS
09.01.2022 Millie Thomas, Eating Disorders recovery Coach, often, when talking about eating disorders, says that the genes load the gun & the environment pulls the trigger. What does she mean by this? Watch our video to find out. QIMR Berghofer Medical Research Institute End ED For more info head to: www.edgi.org.au
08.01.2022 What does #EDGIAUS involve? Study participation involves providing informed consent, completing an online survey & providing a saliva sample. Head to our website for more info: www.edgi.org.au QIMR Berghofer Medical Research Institute InsideOut Institute for Eating Disorders Eating Disorders Queensland Butterfly Foundation
08.01.2022 Merry Christmas Eve! We hope Santa finds you this evening!
06.01.2022 Do you have first-hand experience of an eating disorder? Want to contribute to the largest & most rigorous genetic investigation of eating disorders ever performed? Join #EDGIAUS today at: http://edgi.org.au QIMR Berghofer Medical Research Institute
05.01.2022 When contributing to this research, I felt overwhelmed because it felt like someone saying, ‘we acknowledge you have had a real illness, & you can help us find out why’. If you have ever lived with an eating disorder, it’s possible for you to feel that your life experience counts, too. - Dr June Alexander. Join #EDGIAUS today at www.edgi.org.au
05.01.2022 Eating disorders can occur at any body size. Let's work towards addressing misconceptions so that those living with an eating disorder can get the treatment they need. If you're aged 13 years & over who has currently, or at any point in their lives experienced anorexia nervosa, bulimia nervosa or binge eating disorder take our online survey at: www.edgi.org.au #eatingdisorders... QIMR Berghofer Medical Research Institute
04.01.2022 Millie Thomas, 32, Eating Disorders Recovery Coach & EDGI participant encourages Australians aged 13 years or over with first-hand experience of an eating disorder to take part in #EDGIAUS. End ED Head to our website for more info: edgi.org.au
04.01.2022 Did you know there has been two-fold increase in the prevalence of disordered eating behaviours observed in some Australian communities over a 10 year period? Help make a difference, so these figures don't continue to climb. Join #EDGIAUS today at: www.edgi.au
01.01.2022 I believe it’s likely there’s a strong genetic component that increases a person’s risk of developing an eating disorder. I’d never experienced bullying about my weight, or pressure to lose weight from anyone, and it’s hard to pinpoint exactly what led to its onset, save for general social factors. Which is why I feel it’s so likely there’s a genetic aspect." - Tara, 20, Medical science student who was diagnosed with anorexia nervosa at 13 years of age, CANBERRA Read her story: https://edgi.org.au/taras-story/ QIMR Berghofer Medical Research Institute InsideOut Institute for Eating Disorders
