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Epilepsy in the Family
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25.01.2022 I've just found a fantastic resource that will help if you're trying to explain to someone what Epilepsy is, the types of seizures that exist or treatments (including EEGs etc) that people living with Epilepsy may have. http://www.ninds.nih.gov/diso/epilepsy/detail_epilepsy.htm
24.01.2022 Suzanne is speaking on the ABC this Sunday on Radio National! The ABC's Robyn Williams is broadcasting a talk he had with Suzanne recently about different types of seizures, especially complex-partial seizures. When?... Radio National is broadcasting the talk this Sunday 13th November @ 8.45am on Ockham's Razor. If you can't tune in at that time, you can hear the podcast on the ABC's website - http://www.abc.net.au/rn/ockhamsrazor - at a more respectable time!
24.01.2022 As we head into the festive season, here's a quick lighthearted reminder of a few things to keep in mind for those living with epilepsy ... http://uponasunshine.blogspot.com.au//epilepsy-know-your-t
24.01.2022 Here's something I came across recently on MRI-guided Laser Surgery which I found a great source of information for those living with Epilepsy. Another option for treatment and who can elect to have the surgery ... http://www.epilepsy.com//community-corner-mri-guided-laser
23.01.2022 Revolutionary thinking in prevention treatment of Epilepsy from Melbourne, Australia ... http://mobile.abc.net.au//epilepsy-drug-may-work-a/7588722
23.01.2022 In the depths of an outpouring of grief of Prince's recent passing (including mine), people were confused about his cause of death. A friend mentioned that no one was touching on a very valid point - Prince suffered epilepsy as a child. She also reminded me of SUDEP - and the likelihood this could be a very real cause of his death. And then I found this great article ... ... https://ktslagle.wordpress.com/tag/prince/
23.01.2022 Interesting find ... a visual guide to Epilepsy. http://www.webmd.com/epilepsy/ss/slideshow-epilepsy-overview
23.01.2022 Something to think about this Valentines Day ... an interesting take on St Valentine and Epilepsy! http://www.epilepsy.com//2015/2/valentines-day-not-just-lo
21.01.2022 Heres the link now on the Radio Nationals website which you can hear Suzannes interview. Suzanne gave some great insights this morning about experiencing Complex-partial seizures; anyone who wonders what its like to have seizures of this nature should have a listen.
21.01.2022 Suzanne is speaking on the ABC this Sunday on Radio National! The ABCs Robyn Williams is broadcasting a talk he had with Suzanne recently about different types of seizures, especially complex-partial seizures. When?... Radio National is broadcasting the talk this Sunday 13th November @ 8.45am on Ockhams Razor. If you cant tune in at that time, you can hear the podcast on the ABCs website - http://www.abc.net.au/rn/ockhamsrazor - at a more respectable time!
21.01.2022 Great news for children suffering severe epilepsy in the state of Victoria, Australia. Finally, common sense (and more importantly relief for these children) prevails ... http://www.sbs.com.au//04/12/vic-medical-cannabis-bill-pas
20.01.2022 Happy New Year! Heres to a fantastic 2012 year ahead! You may have missed this article (as did I) in early December 2011 reporting on the possibility of finding a genetic link in research conducted by Melbourne-based Professor Ingrid Scheffer. Professor Scheffer has won the Asia-Pacific LOreal-UNESCO Women in Science 2012 laureate honours for her work in this area.... http://www.smh.com.au//s/brain-matters-20111204-1oddc.html
19.01.2022 Fortunately the generosity of the Lambert family will help so many people - especially those with Dravet Syndrome. Thank you Barry and Joy Lambert for your $34million gift that will ultimately help so many. http://www.afr.com//why-millionaire-barry-lambert-invested
19.01.2022 Great news for children living with severe Epilepsy ... http://m.smh.com.au//world-first-as-nsw-trials-medical-can
18.01.2022 Happy New Year! Here's to a fantastic 2012 year ahead! You may have missed this article (as did I) in early December 2011 reporting on the possibility of finding a genetic link in research conducted by Melbourne-based Professor Ingrid Scheffer. Professor Scheffer has won the Asia-Pacific L'Oreal-UNESCO Women in Science 2012 laureate honours for her work in this area.... http://www.smh.com.au//s/brain-matters-20111204-1oddc.html
18.01.2022 The reason Im posting this is its Purple Day - a cause for a very misunderstood and not often discussed medical condition (and often life threatening) that is very close to my own heart. I have it. EPILEPSY. Please share it or would like to know something about it. Many thanks!... http://purpleday.gofundraise.com.au/
17.01.2022 The reason I'm posting this is its Purple Day - a cause for a very misunderstood and not often discussed medical condition (and often life threatening) that is very close to my own heart. I have it. EPILEPSY. Please share it or would like to know something about it. Many thanks!... http://purpleday.gofundraise.com.au/
17.01.2022 Interesting article on the future of Epilepsy medication especially for those that see an aura, experience a sensation or particular smell ... Any thoughts? http://psychcentral.com//the-future-of-epilepsy/75238.html
16.01.2022 Here's the link now on the Radio National's website which you can hear Suzanne's interview. Suzanne gave some great insights this morning about experiencing Complex-partial seizures; anyone who wonders what it's like to have seizures of this nature should have a listen.
14.01.2022 A great article from Epilepsy.com team on how to manage priorities for those of us with Epilepsy ... food for thought. http://www.epilepsy.com/newsletter/mar13/cc_priorities
14.01.2022 Heres something I came across recently on MRI-guided Laser Surgery which I found a great source of information for those living with Epilepsy. Another option for treatment and who can elect to have the surgery ... http://www.epilepsy.com//community-corner-mri-guided-laser
14.01.2022 Great news and a beacon of hope for those that suffer seizures ... http://www.nbcnews.com//cannabis-drug-reduces-seizures-sev
14.01.2022 We've been asked about further information about SUDEP and its causes (currently there is no treatment). Here's a very informative webpage about SUDEP and which people living with epilepsy are most at risk ... http://patient.info/hea/sudden-unexpected-death-in-epilepsy
14.01.2022 Some interesting facts ...
14.01.2022 A great article from Epilepsy.com team on how to manage 'priorities' for those of us with Epilepsy ... food for thought. http://www.epilepsy.com/newsletter/mar13/cc_priorities
12.01.2022 A sad event ... Especially for someone so young and talented and something those of us living with Epilepsy are always at risk of ... http://m.smh.com.au//australian-artist-matt-doust-dies-in-
12.01.2022 Happy New Year from all of us at Epilepsy in the Family! We hope you've had a seizure free and healthy break over the holidays. I came across an interesting article today on Epilepsy.com (an initiative of the Epilepsy Foundation) which you may find interesting on Seizures, our heartbeats, SUDEP and potential links ... http://www.epilepsy.com/newsletter/jan14/heart-sudep
12.01.2022 Back to basics - some great information if youve been recently diagnosed with Epilepsy or trying to provide other people with information in your life. http://www.epilepsy.com/learn/about-epilepsy-basics
11.01.2022 Further cutting edge research into Epilepsy and gaining greater understanding of its effects ... http://epilepsynewstoday.com//researchers-develop-virtual/
11.01.2022 As we head into the festive season, heres a quick lighthearted reminder of a few things to keep in mind for those living with epilepsy ... http://uponasunshine.blogspot.com.au//epilepsy-know-your-t
10.01.2022 Happy New Year from all of us at Epilepsy in the Family! We hope youve had a seizure free and healthy break over the holidays. I came across an interesting article today on Epilepsy.com (an initiative of the Epilepsy Foundation) which you may find interesting on Seizures, our heartbeats, SUDEP and potential links ... http://www.epilepsy.com/newsletter/jan14/heart-sudep
10.01.2022 Even Hollywood actors are not immune from the effects of Epilepsy .. Thank you Harrison Ford!! http://www.epilepsy.com//harrison-ford-talks-about-epileps
10.01.2022 Something we've just become aware of ... and how technology is progressing Epilepsy treatments. Levetiracetam - the first drug the FDA (USA) has approved which is made by a 3D printer! Apparently one of the benefits is apparently it can be absorbed quicker ...... http://www.epilepsy.com//first-fda-approved-drug-made-3d-p
09.01.2022 Ive just found a fantastic resource that will help if youre trying to explain to someone what Epilepsy is, the types of seizures that exist or treatments (including EEGs etc) that people living with Epilepsy may have. http://www.ninds.nih.gov/diso/epilepsy/detail_epilepsy.htm
09.01.2022 Hello all ... and welcome to our new Likes! Has anyone had any experience with Marijuana Oils? Its becoming more and more prevalent in the news and as an alternative treatment therapy? Im interested to hear your views. ... http://www.huffingtonpost.com//texas-legalizes-marijuana_n
08.01.2022 A Fitbit for the Brain has been developed in Melbourne, Australia for those people living with Epilepsy ... the Minder. http://ab.co/2uVfoBJ
08.01.2022 In the depths of an outpouring of grief of Princes recent passing (including mine), people were confused about his cause of death. A friend mentioned that no one was touching on a very valid point - Prince suffered epilepsy as a child. She also reminded me of SUDEP - and the likelihood this could be a very real cause of his death. And then I found this great article ... ... https://ktslagle.wordpress.com/tag/prince/
07.01.2022 Just came across this article about brain tumors and epilepsy - the bonus is it includes some great tips to share with people on what to do and what not to do when people are suffering a seizure ... http://www.cancercouncil.com.au//br/brain-tumour-seizures/
07.01.2022 Something weve just become aware of ... and how technology is progressing Epilepsy treatments. Levetiracetam - the first drug the FDA (USA) has approved which is made by a 3D printer! Apparently one of the benefits is apparently it can be absorbed quicker ...... http://www.epilepsy.com//first-fda-approved-drug-made-3d-p
07.01.2022 For those that have had Epilepsy Surgery ... https://www.epilepsyresearch.org.uk/new-technique-could-in/
06.01.2022 Unfortunately not great news ... take note women who are pregnant taking Valproate. https://www.google.com.au//sanofi-epilepsy-drug-linked-to-
05.01.2022 Epilepsy 101: Audio Podcasts (essential listening to answer a range of questions relating to Epilepsy) We hope you survived the chocolate overdose after Easter! One of the requests we get frequently is I've just discovered that I have Epilepsy and I'm lost to start to find out information that can help me?... The good news is there's a number of sources out there: it's just a matter of finding them. Epilepsy Foundation has just uploaded some fantastic podcasts that answer some of those questions including: - Is it normal for people to feel scared or overwhelmed when first diagnosed? - What are seizure types and epilepsy syndromes? - What is typical first aid for a person during an absence seizure? - What happens to a person after a seizure (also called the postictal phase)? We can all learn something that can help either ourselves or educate those around us ... let us know your thoughts. Enjoy the podcasts! http://www.epilepsy.com//abou/epilepsy-101-audio-podcasts
04.01.2022 A 'Fitbit for the Brain' has been developed in Melbourne, Australia for those people living with Epilepsy ... the Minder. http://ab.co/2uVfoBJ
04.01.2022 Something to think about this Valentine's Day ... an interesting take on St Valentine and Epilepsy! http://www.epilepsy.com//2015/2/valentines-day-not-just-lo
03.01.2022 An interesting article on if seizures (in particular Tonic Clonic seizures) are the source of SUDEP ... A good read regardless. http://www.epilepsy.com///does-seizure-always-occur-sudep
03.01.2022 Weve been asked about further information about SUDEP and its causes (currently there is no treatment). Heres a very informative webpage about SUDEP and which people living with epilepsy are most at risk ... http://patient.info/hea/sudden-unexpected-death-in-epilepsy
02.01.2022 Back to basics - some great information if you've been recently diagnosed with Epilepsy or trying to provide other people with information in your life. http://www.epilepsy.com/learn/about-epilepsy-basics
02.01.2022 I came across this article today ... I wonder if it has the potential to assist anyone that is experiencing anything challenging relating to misfiring neurons and their brain ... And potentially those living with Epilepsy? http://www.theglobeandmail.com//learning/article22608412/
01.01.2022 Hello all ... and welcome to our new Likes! Has anyone had any experience with Marijuana Oils? It's becoming more and more prevalent in the news and as an alternative treatment therapy? I'm interested to hear your views. ... http://www.huffingtonpost.com//texas-legalizes-marijuana_n
