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Epilepsy Action Australia

Phone: +61 1300 374 537

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24.01.2022 It's not too late to send Lila a Christmas message! Read her story here: https://www.epilepsy.org.au/a-story-from-the-heart/ #epilepsyawareness #support

24.01.2022 Weekly Warrior If you want to be featured as a weekly warrior, please share your story in the comments below or send us a DM. Weekly Warrior: Gerard Wilkie, ... 'I was soon diagnosed after my first seizure which occurred at a school athletics carnival in 2012. At the time I knew nothing about epilepsy however, that drastically changed. When I was completing high school (2012-2016) there was a massive period of time where I lived in self-doubt. I believed I did not have epilepsy, or I wished for it to magically go away. Now studying at QUT, my self-doubt has decreased, my confidence and determination has increased. I have found ways of coping with my epilepsy and I have a great support system of friends, family, co-workers and specialists, who I can rely on and who believe in me.' Another true example of a Weekly Warrior.

24.01.2022 While Purple Month is coming to an end, the conversation about epilepsy should carry on Thank you to every single one of you for raising awareness for epilepsy. #LOOKforepilepsy For more information about epilepsy and its treatment, speak to your doctor. Sponsored by UCB Australia.... The views expressed below are those of the individuals and do not necessarily reflect the views of UCB. Information relating to seizure types from Fisher et al 2017 Epilepsia, 58(4):522530 See more

23.01.2022 Every October 23rd Epilepsy Action Australia and epilepsy organisations across the world come together to raise awareness of epilepsy risks, and how to take action to reduce them. Despite the impact of COVID-19 on all of us, right now it is more important than ever to stand together to make sure epilepsy, and the importance of positively tackling epilepsy risks is not forgotten. This year’s SUDEP Action Day theme is: #SpeakUp2SaveLives. You can get involved by having a conversation with your doctor about epilepsy risks or sharing vital information with others on SUDEP. Learn more about our SUDEP and Seizure Safety Checklist here: https://www.epilepsy.org.au/sudep-checklist/

22.01.2022 There's still time to support us through Play for Purpose! Get your tickets now and win: https://playforpurpose.com.au/epilepsy-action #winbig #playforpurpose #support

22.01.2022 Our hard work paid off! TikTok have created a new feature, to avoid seizures. The new feature allows viewers the option to 'skip all' photosensitive content. No doubt you saw Epilepsy Action Australia, across the News back in April, and writing to TikTok to make changes. Well it worked!! They personally wrote to Carol Ireland to inform her. Let's hope the other platforms follow suit. https://au.news.yahoo.com/tiktok-feature-allows-users-avoid

22.01.2022 You are important don’t ever forget that. Take some time out today to focus on you, your needs, your mental health. You are enough.

21.01.2022 It's great to see such a strong team of experts and leaders, including Carol Ireland who instigated creation of this group when she joined the Board of Medicinal Cannabis Industry Australia earlier this year to improve patient access. to #medicinal #cannabis. https://mcia.org.au/medicinal-cannabis-champion-to-chair-/

21.01.2022 Check out the story behind The Million Dollar Teddy Bear... #MillionDollarTeddyBear #EpilepsyActionAustralia #EAA #epilepsy #findacure #epilepsyawareness

21.01.2022 TEDDY HANGING OUT WITH RUSSEL HOWCROFT Teddy had a lovely time with Gruen star and 3AW breakfast host Russel, talking about all the ways a million dollars could help the quarter of a million Aussies with epilepsy. https://milliondollarteddybear.com/... #MillionDollarTeddyBear #EpilepsyActionAustralia #epilepsy #findacure #epilepsyawareness

21.01.2022 November is Epilepsy Awareness Month, will you host a morning tea fundraiser (could be held in person or via Zoom) to support the services of Epilepsy Action Australia? Find out more here: https://www.epilepsy.org.au/fundraise/e-tea/

21.01.2022 A huge thank you to the Wallsend Maryland Tigers RLFC for their incredible fundraising efforts! The club raised over $4,000 at their charity game day and raffle event in September, which saw the players’ jerseys and the footy pitch itself sporting purple ribbons for epilepsy awareness. Up the Tigers! To find out more about how you & your local club could do the same visit https://www.epilepsy.org.au/fun/your-own-fundraising-event/

20.01.2022 In Australia, around 1 in 150 people are currently diagnosed with epilepsy so chances are most people know someone with the condition. Enrol today in our most popular Online course, Epilepsy Essentials. https://learn.epilepsy.org.au/w/events/1-epilepsy-essentials #epilepsyawareness #education #onlinecourse

18.01.2022 Have you decided on your Purple Day Competition entry? Make sure you get an entry in before March 26th! https://www.epilepsy.org.au/unmask-epilepsy-competition/ #unmaskepilepsy #purpleday2021 #designcompetition #epilepsyawareness

17.01.2022 Wishing everyone a safe and festive Christmas from everyone at Epilepsy Action Australia!

15.01.2022 Our gorgeous Ted E Bears make a great Christmas gift! Click here to get yours today & support us at the same time! https://www.epilepsy.org.au/pr/cuddly-teddy-bear-chocolate/ #support #epilepsy #christmasgiftideas

15.01.2022 If you want to be featured in our WEEKLY WARRIOR share your story in the comments below or DM us. Hi my name is Kristy Hart I got diagnosed with epilepsy at the age of 13 years old. I was watching tv at my Aunties house at the time of my ever first seizure. My aunty did not know what was going on and called the ambulance pretty sure I had to get a lot of tests done. When I was in year 11 and 12 I was in hospital nearly everyday and that was because of stress due to doing my HSC. I had a lot of regular specialist appointments through out my life to make sure I am on the right medications etc. I am now 31 years of age I was 2 years seizure free till I ended up having a seizure about three months ago and was hospitalized because it was a really bad seizure I got told when I woke up in hospital.

15.01.2022 10% Discount on Hemp Face Masks use Code STAYSAFE - $5 from each sale supports Epilepsy Action. Protect the whole family with Hemp Black quality face coverings. We can all do our part to stop the spread of this virus and keep our loved ones safe. Use code STAYSAFE at https://hempblack.com.au/

15.01.2022 [To become a #WeeklyWarrior share your story & a photo in the comments below!] FROM MELISSA I was diagnosed with Grand Mal Tonic Clonic Epilepsy after having a seizure at the end of my Crazy Clints shift 19 years ago when I was 15. I struggled to stay seizure free until I fell pregnant with my first daughter at 22. Stayed mostly seizure free for the next decade and birthed another 2 daughters and got married last November in Hamilton Island. Just over a year ago was my la...st seizure. Here's hoping that's the last one... EVER. I've had a few close calls but then I made the choice to pay attention to my triggers and my feelings right before a seizure and I've been able to keep myself safe. If I didn't make the choice to pay attention to my body after my last near-death experience at 21, I wouldn't be here today. To everyone with Epilepsy, don't be embarrassed or ashamed of your diagnosis, embrace it and help spread awareness. Most importantly, Seize the day

13.01.2022 Happy December! Get into the festive spirit with us by hosting your own fundraiser: https://www.facebook.com/fund/epilepsyactionaustralia/ #epilepsyawareness #support #fundraising

13.01.2022 Our Million Dollar Teddy Bear has hit the media! Please share this beautiful campaign, created by Alex GoHard Wadelton, the Dad of one of our young clients! Ask your contacts to share far and wide (www.milliondollarteddybear.com) for only then can we hope to find a home for Maximillion!

13.01.2022 The National Epilepsy Line is for all people affected by epilepsy. Call 1300 37 45 37 to speak with one of our Registered Nurses. #epilepsy #hotline #support

12.01.2022 Last Friday we saw the Sydney Opera House turn purple for Purple Day! After the event was postponed in 2020 it was amazing to finally spread awareness on such a massive scale for the 250,000 Australians living with epilepsy.

12.01.2022 Call out for Social Media Volunteers to join our network - Message us today for more info!

11.01.2022 Have you read Lila's story yet? Read it here and send her a message from the heart this Christmas: https://www.epilepsy.org.au/a-story-from-the-heart/ #epilepsyawareness #community #support

11.01.2022 We are here for you! No matter what the question or the problem, our trained Registered Nurses are here to support you. Call them today on our National Epilepsy Line 1300 37 45 37 or email [email protected].

11.01.2022 What exactly is an epilepsy bracelet? Is wearing one right for you? Learn more on MyEpilepsyTeam & decide whether you or your loved one should start wearing an epilepsy bracelet:https://bit.ly/349MgKf

10.01.2022 TEDDY GETTING HIS FASHION ON WITH THE CHRISTIAN KIMBER TEAM Being outfitted by 2019 National Designer of the Year Christian Kimber was a real honour. Hanging out with Ralph Kimber, Renuka Kimber and Christian was even better! https://milliondollarteddybear.com/... #MillionDollarTeddyBear #EpilepsyActionAustralia #epilepsy #findacure #epilepsyawareness

09.01.2022 To register your interest, send us a Facebook message or email [email protected] #adventureawaits #fundraisingforacause #epilepsyawareness

06.01.2022 Calling for all those interested in an adventure of a life time whilst supporting a very worthy cause! Hike Australia's most historic Larapinta Trail whilst representing those who's lives have been impacted by epilepsy. There are three easy ways to get involved: 1. Register to secure your position 2. Create your fundraising page and rally the support of all your family and friends 3. Dust off the hiking boots - We will meet you at Larapinta where the journey of a lifetime awa...its you! More details here: https://events.inspiredadventures.com.au//eaa-larapinta-2/

06.01.2022 Next Friday Oct 23rd is SUDEP Action Day. Awareness leads to assistance. Know the facts, visit our website for more details https://www.epilepsy.org.au/sudep-checklist/ #SUDEPActionDay2020 #SpeakUp2SaveLives #epilepsyawareness

05.01.2022 Thank you to everyone who donated on Purple Day! We appreciate every single dollar - and as you know it really goes so far to supporting Australians living with epilepsy

05.01.2022 The National Epilepsy Line never sleeps! While the EAA office will close for 2020 on the 25th of December, the National Epilepsy Line will be available over the break. Call 1300 37 45 37 and select option 1. #epilepsyawareness #hotline #support

04.01.2022 TEDDY WITH ACTING LEGEND NADINE GARNER Teddy was lucky to have a cuddle with Nadine after she completed narrating the special launch video to help find him a home. https://milliondollarteddybear.com/... #MillionDollarTeddyBear #EpilepsyActionAustralia #epilepsy #findacure #epilepsyawareness

03.01.2022 Our CEO serves on the Advisory Board of the Lambert Initiative for Cannabinoid Therapeutics at the University of Sydney. The university’s latest biannual Cannabis as Medicine Survey CAMS20, launched recently. The survey will delve into how, and why medicinal cannabis has been used by Australians to treat medical conditions over the past 12 months. Click the below link for more information.

03.01.2022 An important message one of our long term clients in Victoria Jordan is encouraging all families to reach out for support when needed. If you’re looking for support or advice for your epilepsy needs or a loved one, call our National Epilepsy Line on 1300 37 45 37

03.01.2022 October 10th is World Mental Health Day! Mental health is essential to our overall well-being and as important as physical health. If you are struggling right now, please talk to someone you trust. You can call our National Epilepsy Line on 1300 37 45 37 to speak to someone who can help, 7 days a week, 9am - 5pm.

02.01.2022 Our nurses have been available for families and communities like Amy's through Epilepsy Action Australia for a long time - but we need your support to continue providing these services. We appreciate all donations (link in our bio!) and if you're unable to donate, please share this post so more people know the reality of living with epilepsy - and how we can help https://www.epilepsy.org.au/donate/make-a-donation/

02.01.2022 Check out this ‘Bondi Blue’. We just love this colour! Still the same amazing quality and technology from Hemp Black and now with colour options! Get yours today but don’t forget to use the code STAYSAFE at the checkout to get your exclusive 10% off. https://hempblack.com.au/ PLUS Ecofibre will donate $5 from each sale to supporting Epilepsy Action

01.01.2022 From @MyEpilepsyTeam: What symptoms would you add? Click over to join the discussion & meet others living with #epilepsy:https://bit.ly/2TDBBCO

01.01.2022 For those interested in medicinal cannabis....... it has been four steps forward but..........still so far to go. This is a good read on the state of play in Australia.

01.01.2022 Today is the last day of November, and with it, the last day of Epilepsy Awareness Month 2020. #epilepsyawareness #community #support