Epilepsy Action NSW | Non-profit organisation

Epilepsy Action NSW

Phone: +61 1300 374 537

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25.01.2022 Small businesses need our support more than ever! Who's open for business in your local area? Give your favourite small business a shout out and let others in your area know where they can shop!

25.01.2022 Have you been going on a bear hunt? Have you put teddy bears in your window for children and families who are out having a walk? Purchase one of our Purple Day teddy bears and help us to raise funds to support the 250,000 people in Australia living with epilepsy. ... https://www.epilepsy.org.au//purple-day-teddy-bear-vanilla/

24.01.2022 As NSW starts to reopen schools, will you continue with remote learning? Are you a student studying from home? How are you coping with remote learning? ... Are you a parent navigating remote learning with your children? Ready to become a scientist and find a treatment for Covid 19 so that school can return to normal? School closures, disruptions to routine, remote learning challenges and uncertainty can impact us all in different ways. Share your survival tips and connect with others in NSW. Even though we cant physically be together, we can definitely support each other. #epilepsy #covid19 #stayathome

22.01.2022 Hey NSW! Epilepsy Action Australia need YOUR support - TODAY! We are urgently asking for donations to keep our services running and accessible to Australians nationwide. No matter how remote you are, or how severe your situation, Epilepsy Action Australia have been there to support Australians living with epilepsy since 1952. Help us keep going by downloading this Fighter Pack and spreading the word https://www.epilepsy.org.au//Tax-Appeal-Fighter-Pack-Clien

21.01.2022 Welcome to Epilepsy Action New South Wales, a part of the Epilepsy Action Australia network. We are committed to providing innovative, high quality education and support services, to Australian's living with Epilepsy, their carers, family, friends and wider communities. We are dedicated to minimising the impact of epilepsy and other seizure disorders.... We understand that access to support services, specialists and treatment options may differ from State to State, and even person to person. This is a page for people in New South Wales. We want to hear from you! Comment on our posts, message our page, email us :-) If you require urgent support, please call our dedicated epilepsy nurse line on 1300 37 45 37. Our epilepsy nurses are available 7 days a week from 9am to 5pm. Click on the "About" section for more information about our products and services. Understanding YOUR perspective will help us to better target our services and lobby for what is most important to you. Together we can improve the lives of people living with Epilepsy.

21.01.2022 Have you joined the Purple Project yet? We want to hear from you! Tell us what NSW needs in order to improve access to specialist health care providers. ... To get updates on how we are improving our services to people living with #epilepsy across Australia, sign up here https://www.epilepsy.org.au/purple-project/ One of our Purple Project pledges is all about - PROVIDERS: People with epilepsy need better access to specialist health care. We will develop a range of initiatives to improve access. Our first initiative, supported by the Federal Government is the Epilepsy Nurse Line, launched in June 2019 with real time access to Registered Nurses, seven days a week Australia-wide. We can do more to ensure that people living with epilepsy have the best possible access which is timely and convenient to a range of skilled providers.

20.01.2022 Epilepsy Action Australia need YOUR support - TODAY! We are urgently asking for donations to keep our services running and accessible to Australians nationwide. Families like Natalie's are severely impacted without your help. No matter how remote you are, or how severe your situation, Epilepsy Action Australia have been there to support Australians living with epilepsy since 1952. Help us keep going by downloading this Fighter Pack and spreading the word https://www.epilepsy.org.au/the-fight-of-our-lives/

19.01.2022 Are you a Purple Project Pledger? As a part of our Purple Project, we are dedicated to exploring... POSSIBILITIES: There are numerous antiepileptic medications available, but they don’t work for all people or seizure types, and sometimes their side effects are intolerable. We will support research and advocate for new accessible and affordable treatment options, including the newly emerging area of cannabinoid therapeutics.... Sign up with your email address to get updates on our pledge to support new and affordable treatment options for people living with #epilepsy Click here to find out more! https://www.epilepsy.org.au/purple-project/

19.01.2022 We've all been affected by Covid 19! Who could ever have imagined that 2020 would look like this?? Physical distancing. Border closures. ... Business closures. Job losses. Empty supermarket shelves. Remote learning for students and so much more! What are your Covid 19 survival tips?

17.01.2022 P stands for Purple and Project. P also stands for.... PREVENTION: We must tackle epilepsy related deaths, especially those resulting from Sudden Unexpected Death in Epilepsy (SUDEP), and others that are clearly preventable. We will fund and develop healthcare tools and health care practitioner education to help minimise risk.... Have you taken the Purple Pledge yet? Its quick and easy to sign up with your email address. We'll let you know about Progress to Prevent deaths and minimise the risks of living with #epilepsy Click here to find out more! https://www.epilepsy.org.au/purple-project/

14.01.2022 Has your mental health been impacted by Covid 19 and the various lockdowns and restrictions? Its more important than ever to reach out for support, and to reach out to other people and ask them if they are ok. #covid19 #mentalhealth

12.01.2022 How are you staying connected to others during Covid 19 lockdowns? Are you spending more time reaching out to others on social media? Calling more people for a chat? Maybe you've joined more social media groups? ... Are we talking to each other more as a result of physical distancing? What does your "new normal" look like?

12.01.2022 Do you know about our dedicated Epilepsy nurse line? Our epilepsy trained nurses are available to answer your questions from 9am to 5pm, 7 days a week. Call 1300374537 ... Like so many other businesses, we have been financially impacted by Covid 19. Please consider making a donation to help us to keep our amazing nurses working to help you, when you need them.

11.01.2022 Many people have been cooking up a storm since having to stay at home. With supermarkets not always having fully stocked shelves, have you had to find inventive ways to cook your favourite meals? Share your favourite recipe ideas and cooking tips with others!

08.01.2022 Don't forget! We're closing this page - Head over to our new Community Group to connect www.facebook.com/groups/epilepsyactionnewsouthwales/

07.01.2022 Our nurses have been there to help you all through the Epilepsy Nurse Line - any day, for free. Now we need your support more than ever to keep our nurses available. Please consider an urgent donation today. The Fight of Our Lives: https://www.epilepsy.org.au/the-fight-of-our-lives/ Donate here: https://www.epilepsy.org.au/donation/make-a-donation/

06.01.2022 Have border closures and travel restrictions had a negative impact on you? Have you been unable to attend medical appointments or access support services? Let us know how you've been affected and what support needs to be put in place during Covid 19.

05.01.2022 Is your child's school a certified seizure smart school? With students returning to school in the coming weeks, now is a great time to ask your child's school to complete our certified program. Seizure Smart Schools ensures that individualised Seizure Management Plans are developed for all students that live with epilepsy. ... First introduced in 2017, Epilepsy Action Australia pioneered the Seizure Smart Schools program. Its a comprehensive program designed to support your school, teachers and students most effectively. Click here to find out more! https://www.epilepsy.org.au/seizure-smart-schools/

05.01.2022 A personal message from our CEO. Epilepsy Action Australia urgently needs your help. Our services help Australians living with epilepsy - and their families, schools and communities. ... We are at risk of not being able to deliver this life changing support. Please consider donating today. The Fight of Our Lives: https://www.epilepsy.org.au/the-fight-of-our-lives/ Donate here: https://www.epilepsy.org.au/donation/make-a-donation/

04.01.2022 Are you, or someone you know, having difficulty getting out to pick up medications? Your pharmacy may be able to deliver them for free, via Australia Post. Following the Australian Government announcement to allocate $25 million to fund home medicine services in the wake of the coronavirus pandemic, Australia Post has announced the launch of its Pharmacy Home Delivery Service.... The new delivery option will support vulnerable Australians, including those isolating themselves at home on the advice of a medical practitioner, people over 70 and people with chronic health conditions. The initiative has been developed in association with the Pharmacy Guild of Australia and allows vulnerable members of the community to receive medication and other essential supplies (under 500grams) through Australia Post’s Express Post network, once a month https://newsroom.auspost.com.au//australia-post-launches-f

03.01.2022 Covid 19 and Epilepsy. How have you been affected by Covid 19? Do you have questions about how Covid 19 impacts people living with epilepsy? ... We've added a page on our website to answer your questions and concerns. Have a question that isnt answered? Let us know and we'll do our best to find the answers. Click here to read more! https://www.epilepsy.org.au/practical-steps-epilepsy-and-c/ #epilepsy #covid19

02.01.2022 Many people living with or caring for someone with epilepsy require additional support services. With so many restrictions introduced because of Covid 19, how has your access to vital support services been impacted? Have you had to change the way you access support from local organisations? ... Have you been left without adequate support? You are not alone Share your experiences and let us know how we can better support you! #epilepsy #covid19

02.01.2022 We're closing this page - Head over to our new Community Group to connect www.facebook.com/groups/epilepsyactionnewsouthwales/

02.01.2022 If you are an NDIS participant, from Monday 6 April, you can purchase grocery items online to be delivered to your home. Click on the link to read more :-) #epilepsy #ndis ... https://www.ndis.gov.au/cor/priority-home-delivery-services