Epilepsy Action Queensland | Non-profit organisation

Epilepsy Action Queensland

Phone: +61 1300 374 537

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24.01.2022 Weve all been affected by Covid 19! Who could ever have imagined that 2020 would look like this?? Physical distancing. Border closures. ... Business closures. Job losses. Empty supermarket shelves. Remote learning for students and so much more! What are your Covid 19 survival tips?

24.01.2022 CALLING EVERYONE IN QLD! Purple Day is on March 26 and we want YOUR help raising funds for everyday Australians living with epilepsy. Click the link below to see how you can get involved. ... So tell us, what are you doing for Purple Day 2020? Purple Day ideas, registration and more: https://www.epilepsy.org.au/fundraise/purple-day/

23.01.2022 Has your mental health been impacted by Covid 19 and the various lockdowns and restrictions? Its more important than ever to reach out for support, and to reach out to other people and ask them if they are ok. #covid19 #mentalhealth

23.01.2022 MyEpilepsyKey, which is available Australia-wide, contains comprehensive information and access to special resources for people impacted by epilepsy. Its your "key" to self management. With resources specifically designed for parents, youth, adults and health professionals, MyEpilepsyKey includes: learning modules and factsheets about epilepsy, treatment options and seizure first aid. ... information and access to support networks, online groups, financial assistance and helpful apps. practical resources like an electronic seizure diary and a tool to develop a personal seizure management planand much more. Click here for more information and to access MyEpilepsyKey: https://www.epilepsy.org.au/our_services/my-epilepsy-key/

23.01.2022 Are you a Purple Project Pledger? As a part of our Purple Project, we are dedicated to exploring... POSSIBILITIES: There are numerous antiepileptic medications available, but they dont work for all people or seizure types, and sometimes their side effects are intolerable. We will support research and advocate for new accessible and affordable treatment options, including the newly emerging area of cannabinoid therapeutics.... Sign up with your email address to get updates on our pledge to support new and affordable treatment options for people living with #epilepsy Click here to find out more! https://www.epilepsy.org.au/purple-project/

23.01.2022 Covid-19 information and protocols from Childrens Health Queensland. https://www.childrens.health.qld.gov.au/covid-19/

22.01.2022 Is your childs school a certified seizure smart school? With students returning to school in the coming weeks, now is a great time to ask your childs school to complete our certified program. Seizure Smart Schools ensures that individualised Seizure Management Plans are developed for all students that live with epilepsy. ... First introduced in 2017, Epilepsy Action Australia pioneered the Seizure Smart Schools program. Its a comprehensive program designed to support your school, teachers and students most effectively. Click here to find out more! https://www.epilepsy.org.au/seizure-smart-schools/

22.01.2022 How are you staying connected to others during Covid 19 lockdowns? Are you spending more time reaching out to others on social media? Calling more people for a chat? Maybe youve joined more social media groups? ... Are we talking to each other more as a result of physical distancing? What does your "new normal" look like?

19.01.2022 Living with or caring for someone with epilepsy can sometimes be frightening, feel isolating or raise a lot of questions but you are not alone! Epilepsy Action Australia is committed to providing the highest quality support through Australias first and only Epilepsy Nurse Line. Our Registered nurses are qualified to answer questions about medications, lifestyle implications of epilepsy such as drinking alcohol, driving, playing sport or pregnancy, planning for the NDIS, em...ployment, first aid, seizure management and more. Click here to find out more: https://www.epilepsy.org.au/our_servic/epilepsy-nurse-line/

19.01.2022 If you are an NDIS participant, from Monday 6 April, you can purchase grocery items online to be delivered to your home. Click on the link to read more :-) #epilepsy #ndis ... https://www.ndis.gov.au/cor/priority-home-delivery-services

18.01.2022 Have border closures and travel restrictions had a negative impact on you? Have you been unable to attend medical appointments or access support services? Let us know how youve been affected and what support needs to be put in place during Covid 19.

17.01.2022 Lets talk about Medical Cannabis for epilepsy. In 2016 the Federal Government legalised the use of Medical Cannabis but left it to each State to decide their own legislation and regulatory framework. Globally there has been significant anecdotal evidence and preliminary research that suggests that Medical Cannabis can assist with reduction of both the frequency and intensity of seizures thereby improving the quality of life of those living with epilepsy. ... What is your experience? Have you tried to or would you like to access Medical Cannabis? Tell us whats happening in Qld. Are you looking for more information? Check out our Cannabis 4 Epilepsy website for the latest news and trusted information from Australia. https://www.c4e.com.au/

17.01.2022 P stands for Purple and Project. P also stands for.... PREVENTION: We must tackle epilepsy related deaths, especially those resulting from Sudden Unexpected Death in Epilepsy (SUDEP), and others that are clearly preventable. We will fund and develop healthcare tools and health care practitioner education to help minimise risk.... Have you taken the Purple Pledge yet? Its quick and easy to sign up with your email address. Well let you know about Progress to Prevent deaths and minimise the risks of living with #epilepsy Click here to find out more! https://www.epilepsy.org.au/purple-project/

15.01.2022 Have you joined the Purple Project yet? We want to hear from you! Tell us what Qld needs in order to improve access to specialist health care providers. ... To get updates on how we are improving our services to people living with #epilepsy across Australia, sign up here https://www.epilepsy.org.au/purple-project/ One of our Purple Project pledges is all about - PROVIDERS: People with epilepsy need better access to specialist health care. We will develop a range of initiatives to improve access. Our first initiative, supported by the Federal Government is the Epilepsy Nurse Line, launched in June 2019 with real time access to Registered Nurses, seven days a week Australia-wide. We can do more to ensure that people living with epilepsy have the best possible access which is timely and convenient to a range of skilled providers.

12.01.2022 Many people have been cooking up a storm since having to stay at home. With supermarkets not always having fully stocked shelves, have you had to find inventive ways to cook your favourite meals? Share your favourite recipe ideas and cooking tips with others!

12.01.2022 Are you a Purple Project Pledger? The Purple Project is our Promise to you. We will develop a range of initiatives to improve access to specialist healthcare Providers. ... We will fund and develop health care tools and education which focus on Prevention of epilepsy related deaths. We will focus on Possibilities by supporting research and advocating for new accessible and affordable treatment options, including cannabinoid therapeutics. Click here to read more and to sign up to support the Purple Project: https://www.epilepsy.org.au/purple-project/ Well keep you informed of Progress and youll get access to our exclusive group for people living with epilepsy.

12.01.2022 Purple Day is coming up! Epilepsy Action Australia wants to raise $250k for the 250,000 people living with epilepsy in Australia. Check out our list of fundraising ideas for ways that you can get involved and help us reach our target! ... https://www.epilepsy.org.au//A-Z-of-Fundraising-Ideas-New.

12.01.2022 The countdown is on to March 26th! Join the Purple Day Volunteer Army! Epilepsy Action Australia have shopping centre stands and Bunnings sausage sizzles booked all across the country for Purple Day fundraising. ... Email us at [email protected] with the subject line Purple Volunteer Army and let us know how you can help. Tell us your home state and suburb so we can match you to the event nearest you

11.01.2022 Welcome to Epilepsy Action Queensland, a part of the Epilepsy Action Australia network. We are committed to providing innovative, high quality education and support services, to Australians living with Epilepsy, their carers, family, friends and wider communities. We are dedicated to minimising the impact of epilepsy and other seizure disorders.... We understand that access to support services, specialists and treatment options may differ from State to State, and even person to person. This is a page for people in Queensland. We want to hear from you! Comment on our posts, message our page, email us :-) If you require urgent support, please call our dedicated epilepsy nurse line on 1300 37 45 37. Our epilepsy nurses are available 7 days a week from 9am to 5pm. Click on the "About" section for more information about our products and services. Understanding YOUR perspective will help us to better target our services and lobby for what is most important to you. Together we can improve the lives of people living with Epilepsy.

11.01.2022 Small businesses need our support more than ever! Whos open for business in your local area? Give your favourite small business a shout out and let others in your area know where they can shop!

11.01.2022 As schools across Qld start to reopen to students, will you continue with remote learning? Are you a student studying from home? How are you coping with remote learning? ... Are you a parent navigating remote learning with your children? Ready to become a scientist and find a treatment for Covid 19 so that school can return to normal? School closures, disruptions to routine, remote learning challenges and uncertainty can impact us all in different ways. Share your survival tips and connect with others in Queensland. Even though we cant physically be together, we can definitely support each other. #epilepsy #covid19 #stayathome

10.01.2022 Our website now contains a page for COVID-19. It is filled with FAQs, information, and a personal message from our CEO Carol Ireland, for those living with epilepsy. #epilepsy #covid19 https://www.epilepsy.org.au/practical-steps-epilepsy-and-/

10.01.2022 Have you been going on a bear hunt? Have you put teddy bears in your window for children and families who are out having a walk? Purchase one of our Purple Day teddy bears and help us to raise funds to support the 250,000 people in Australia living with epilepsy. ... https://www.epilepsy.org.au//purple-day-teddy-bear-vanilla/

10.01.2022 Have a question about your recent epilepsy diagnosis? Or maybe a loved one has been experiencing difficulties with epilepsy and you need some guidance. Call 1300 37 45 37 to speak to one of our Registered nurses. 9am to 5pm, 7 days a week.

09.01.2022 Our nurses have been there to help you all through the Epilepsy Nurse Line - any day, for free. Now we need your support more than ever to keep our nurses available. Please consider an urgent donation today. The Fight of Our Lives: https://www.epilepsy.org.au/the-fight-of-our-lives/ Donate here: https://www.epilepsy.org.au/donation/make-a-donation/

08.01.2022 Hey Queenslanders! For people living with epilepsy in Australia education and support are invaluable! As you know, we are always here to provide nurses, training, resources and personal assistance to those who need it the most. Right now we need YOUR support to keep our nurses on the frontline please join our fight today The Fight of Our Lives: https://www.epilepsy.org.au/the-fight-of-our-lives/ Donate here: https://www.epilepsy.org.au/donation/make-a-donation/

07.01.2022 Have you discussed Sudden Unexpected Death in Epilepsy (SUDEP) and seizure safety with your Dr? Epilepsy Action Australia in partnership with SUDEP Action UK, are providers of the SUDEP and Seizure Safety Checklist - the first resource in Australia to assist people living with epilepsy, to discuss individual risk factors with their Dr and develop a plan to minimise those risks. Click on our website link if youd like us to email you or to make an appointment for one of our ...specialist epilepsy nurses to call you. Health Practitioners can register on our website to receive access to the checklist. Together we can improve the quality of life of those living with epilepsy and reduce the risk of SUDEP https://www.epilepsy.org.au/sudep-checklist/

07.01.2022 We're moving! Click here to join our new Group https://www.facebook.com/groups/epilepsyactionqueensland

07.01.2022 We cant be together, but we can all stay connected. How are you managing social distancing and staying at home?

06.01.2022 Are you, or someone you know, having difficulty getting out to pick up medications? Your pharmacy may be able to deliver them for free, via Australia Post. Following the Australian Government announcement to allocate $25 million to fund home medicine services in the wake of the coronavirus pandemic, Australia Post has announced the launch of its Pharmacy Home Delivery Service.... The new delivery option will support vulnerable Australians, including those isolating themselves at home on the advice of a medical practitioner, people over 70 and people with chronic health conditions. The initiative has been developed in association with the Pharmacy Guild of Australia and allows vulnerable members of the community to receive medication and other essential supplies (under 500grams) through Australia Posts Express Post network, once a month https://newsroom.auspost.com.au//australia-post-launches-f

06.01.2022 Do you know about our dedicated Epilepsy nurse line? Our epilepsy trained nurses are available to answer your questions from 9am to 5pm, 7 days a week. Call 1300374537 ... Like so many other businesses, we have been financially impacted by Covid 19. Please consider making a donation to help us to keep our amazing nurses working to help you, when you need them.

05.01.2022 Many people living with or caring for someone with epilepsy require additional support services. With so many restrictions introduced because of Covid 19, how has your access to vital support services been impacted? Have you had to change the way you access support from local organisations? ... Have you been left without adequate support? You are not alone Share your experiences and let us know how we can better support you! #epilepsy #covid19

05.01.2022 We're closing this page - Head over to our new Group to continue the conversation: https://www.facebook.com/groups/epilepsyactionqueensland

04.01.2022 Covid 19 and Epilepsy. How have you been affected by Covid 19? Do you have questions about how Covid 19 impacts people living with epilepsy? ... Weve added a page on our website to answer your questions and concerns. Have a question that isnt answered? Let us know and well do our best to find the answers. Click here to read more! https://www.epilepsy.org.au/practical-steps-epilepsy-and-c/

04.01.2022 HELLO QUEENSLANDERS Epilepsy Action Australia need YOUR support - TODAY! We are urgently asking for donations to keep our services running and accessible to Australians nationwide. No matter how remote you are, or how severe your situation, Epilepsy Action Australia have been there to support Australians living with epilepsy since 1952. Help us keep going by downloading this Fighter Pack and spreading the word https://www.epilepsy.org.au//Tax-Appeal-Fighter-Pack-Clien

03.01.2022 Whos ready for a Purple Day Picnic? Purple Day on March 26th is the perfect opportunity to get together with friends and family and host a picnic - all while helping people living with epilepsy! Register here: https://www.epilepsy.org.au/get-involved/fundraising/... Eat purple food, wear purple clothes, and bring a gold coin donation for Purple Day!

03.01.2022 In the interest of health and safety of our employees, clients and community, our staff are now working remotely. The office is officially closed however, we are still contactable via our phone and email service. There might be a slight delay in response times and we thank you in advance for your patience. More information will be posted when available. If you have any questions do not hesitate to contact us on [email protected] or call 1300 37 45 37. Were here to help. Epilepsy Action Australia.

02.01.2022 A personal message from our CEO. Epilepsy Action Australia urgently needs your help. Our services help Australians living with epilepsy - and their families, schools and communities. ... We are at risk of not being able to deliver this life changing support. Please consider donating today. The Fight of Our Lives: https://www.epilepsy.org.au/the-fight-of-our-lives/ Donate here: https://www.epilepsy.org.au/donation/make-a-donation/

01.01.2022 SHOP ONLINE FOR A CAUSE! Even though most of the shops are closed, and we are all staying at home...we can still go shopping online for those upcoming birthdays, household goods and so much more. :-) You, your family, your friends and work colleagues can help us to continue supporting families living with epilepsy for no extra cost at Shop4Action.... Epilepsy Action Australia receives a percentage of all sales Check out our exclusive Epilepsy Action merchandise as well as thousands of quality products from well known brands and retailers. Click here to start shopping https://www.epilepsy.org.au/shop4action/