Fara Australia in Greensborough, Victoria | Community organisation

Fara Australia

Locality: Greensborough, Victoria

Add/Update information

Reviews

Tags

• Community group
• Non-profit organisation
• Community organisation

24.01.2022 What an amazing result! Thank you to everyone who joined and donated to the rideATAXIA Global Challenge. Repost from @rideataxia Thank you to all of our incredible participants and donors who supported the rideATAXIA Global Challenge!Together, you raised an incredible $442,346 and have collectively traveled 44,614 miles/73,409 km in support of FA research.We celebrate every one of you. #rideataxiaglobalchallenge

24.01.2022 Hope for Ataxia has scheduled their next speaker session for Friday, Dec. 4th (or Saturday in AU). They will have four speakers as follows: 9AM Eastern (2PM in the UK, 11PM in Sydney) Jan Goldstein-Elman, Physiotherapist from One Step Ahead Mobility 12PM Eastern 12PM EDT (5PM in the UK, 2AM Saturday in Sydney) Tim Anderson, Owner and Trainer from Original Strength 3PM Eastern (8PM in the UK, 5AM Saturday in Sydney) Heather Krause, Veteran/Ataxian/Artist at Art By Heathe...r 6PM Eastern (11PM in the UK, 8AM Saturday in Sydney) Shameka Andrews, Disability Advocate People may sign up to attend these session or to attend our weekly Global Ataxia Support Group meetings at www.hopeforataxia.org/gasg www.hopeforataxia.org Raising Ataxia awareness globally

24.01.2022 Argentina https://www.instagram.com/tv/CGgLnwPJ5HS/

23.01.2022 Thank you to the wonderful A/Prof. Mirella Dottori and her team at the Illawarra Health and Medical Research Instutute for giving us a tour of their lab for the #rideataxiaglobalchallenge. We are so grateful for the work that you are all doing to find a cure for FA. Big thanks to fara Ambassador @nickrousch and fara Board member @emmaehampton for popping in for a visit. #ihmri #curefa #rideataxia #crankinwithkyle

22.01.2022 Great to catch up with some of the Sydney FA community last night. @fionwheels @thrillhouse @elvistrompfpersonaltraining @emmaehampton Gorgeous night for a get together. Thank you for the location suggestion @catydid007

21.01.2022 Repost from @rideataxia As we prepare to begin our journey back to the States, we are feeling very grateful for the hospitality of our international researchers and partners.In the spirit of that gratitude, our friends at ATAR in Argentina are here to issue today’s challenge which is to either write a physical or virtual thank you note to a researcher.You can also make a thank you sign, snap a photo holding it, tag us, and we will make sure to pass it along for you!For more information and to see the other locations we will be exploring today, check out the full Google Earth Map at the link in our bio! #rideATAXIAGlobalChallenge #FAMindBodySoul

20.01.2022 FA Patient Information Forum Presentation Recordings - https://mailchi.mp//fa-patient-information-forum-presentat

20.01.2022 Today we jump across the ditch to visit our FARA NZ neighbours! Repost from @rideataxia All aboard our sea jumper plane to New Zealand! And before you ask, no we are not going to have time to do A Lord of the Rings tour. But we are going to stop by one of the newest site additions to the Collaborative Clinical Research Network (CCRN) in FA - Auckland City Hospital! Here we will meet Principle Investigator Dr. Richard Roxburgh and his team. Let’s give them a big Global Challenge Welcome and Thank you! Don’t forget with only 10 days left make sure you check our whole journey on the Google Earth Map. For more information and to see the other locations we will be exploring today, check out the full Google Earth Map at the link in our bio. #rideATAXIAGlobalChallenge #FAMindBodySoul

16.01.2022 Give the Gift of FA Research for #GivingTuesday - https://mailchi.mp//give-the-gift-of-fa-research-for-givin

16.01.2022 Thank you @fugenconstructions for presenting this beautiful framed picture to @fara_australia We are so grateful for your amazing fundraising efforts during this years @coleclassicswim with over $54,000 raised by your remarkable @lend_us_some_muscle Swim Team. Thank you for supporting a #raredisease such as Friedreich Ataxia, it means so much to our FA community

12.01.2022 fara Fundraising off to a great start for 2021 - https://mailchi.mp//fara-fundraising-off-to-a-great-start-

10.01.2022 Calling all teens with FA. Please join fara Australia Ambassadors Sam and Ashlee for a zoom catch up this Sunday evening at 8pm (AEDT). Email [email protected] to get the link to join.

08.01.2022 Thank you to the pfizer Australia Rare Disease Team for your continued support of people living with rare diseases like Friedreich Ataxia.

08.01.2022 Reminder - Virtual FA Patient Forum Invitation to Register - https://mailchi.mp//reminder-virtual-fa-patient-forum-invi

08.01.2022 Hi All, Please encourage any teens diagnosed with FA (12 - 18 years of age) to join us for a catch up with fara Ambassadors Sam and Ashlee on Sunday 28th March, 8pm.

08.01.2022 Global Challenge final week, and a visit to Australia! - https://mailchi.mp//global-challenge-final-week-and-a-visi

07.01.2022 Over the weekend we visited Brazil and Argentina Repost from @rideataxia Cue the Samba Music, great food, and one strong cup of coffee because we are headed to Sao Paulo, Brazil!But before we do some sightseeing in the big city,we are stopping by the University of Campinas to visit researcher Dr. Marcondes Franca Jr as he tells us about some of this work on Cardiac imaging biomarkers in FA and introduces us to the other members of his team! For more information and to see the other locations we will be exploring today, check out the full Google Earth Map at the link in our bio. #rideATAXIAGlobalChallenge #famindbodysoul

04.01.2022 Brazil! https://www.instagram.com/tv/CGgLh_Ip8Ch/

03.01.2022 Repost from @rideataxia Next Stop: Wollongong! Now say that 5 times fast. We are excited to take you up the south pacific coast of Australia to the beautiful city of Wollongong. As we check out the panoramic views of the Tasman Sea we are also going to stop by the University of Wollongong and visit Dr. Mirella Dottori who was funded a general reach grant from FARA to study Nanoparticle-Mediated Gene Delivery of Frataxin Neurons. For more information and to see the other locations we will be exploring today, check out the full Google Earth Map at the link in our bio. #rideATAXIAGlobalChallenge #FAMindBodySoul