Frontier at Brain & Mind Centre in Sydney, Australia | Public & government service

Frontier at Brain & Mind Centre

Locality: Sydney, Australia

Address: 100 Mallett Street 2050 Sydney, NSW, Australia

Website: http://www.ftdrg.org

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• Non-profit organisation
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• Medical research centre

25.01.2022 The Lovell Foundation is running a series of lectures on young onset dementia starting 4th May. Hear from experts in the field talk about dementia prevention, relationships & family, intimacy, and the caring role in dementia. Register here: https://www.dementia.org.au/events

24.01.2022 Its so important that we raise awareness of FTD to not only educate the general public, science and medical communities, but to provide insight into the profoundly life-changing effects of this rare young-onset disease. We invite you to join us in learning about FTD from those that research, diagnose, and treat FTD, and most importantly from the inspiring carers with lived experience on Oct 3rd at the FTD Marathon Webinar https://www.youtube.com/watch?v=iQH5HDKVlR4

20.01.2022 Hot off the press! PhD student Cherie Strikwerda-Brown's work shows how brain regions affected in people with FTD can give rise to altered moral behaviour, providing insight into understanding this challenging symptom. Pre-print: https://psyarxiv.com/qk4d8/

20.01.2022 Frontier PhD student Nikki-Anne Wilson studies social cognition, imagination & behaviour in FTD. She has published two papers this year in Neuropsychologia & Cognition, and was runner-up in the University of Sydney 3 Minute Thesis competition. Watch her 3 minute thesis here: https://vimeo.com/440632521

18.01.2022 As COVID-19 continues to impact the country, there has been an increase in online and phone scamming. Those with FTD are particularly vulnerable due to poor judgement and lack of consequential thinking. As such, the The Association for Frontotemporal Degeneration has compiled an excellent list of strategies to guard against those with dementia from falling prey to scammers. https://www.theaftd.org/defending-against-scams-during-cov/

15.01.2022 New finding in FTD research! Prof. Muireann Irish and Siobhan Shaw of FRONTIER are the first to publish a study revealing profound levels of anhedonia in behavioural-variant FTD and semantic dementia, attributable to the degeneration of frontostriatal pleasure circuits in the brain. Anhedonia appears to be distinct from apathy and depression in FTD, and warrants serious consideration as a standalone clinical feature. https://t.co/iSkLDZDsF1?amp=1

15.01.2022 Primary Progressive Aphasia (PPA) is a term used to describe a group of language based FTD syndromes. Differentiating between the different subtypes of PPA continues to be a challenge in both research and clinical settings. Can a test of short-term and working memory be used to differentiate between the syndromes? Frontier PhD student and Clinical Neuropsychologist David Foxe has investigated this and has published his findings below: https://www.sciencedirect.com///abs/pii/S001094522030321X

15.01.2022 Dementia Australia's free National Symposium Series 2020 will begin on 4th Aug and will run for 6 weeks. The online webinar series will primarily focus on achieving person-centered dementia care, and will feature local and international experts such as Dementia Australia CEO Maree McCabe and Ita Buttrose. Register here: https://www.dementia.org.au/conferences/symposium-2020

14.01.2022 It is the start of World FTD Awareness Week! We will be covering the latest research, providing useful resources and meeting some of the Frontier researchers! Also, there is still time to register for the FREE World FTD marathon this Saturday 3rd Oct: https://www.worldftdunited.net/marathon

13.01.2022 The Australian government has set up an Older Persons COVID-19 Support Line (1800 171 866) which is open from 8:30am - 6pm Monday - Friday. The support line can assist with the following and more: - Talking with someone about the COVID-19 restrictions and the impact on them - If you are feeling lonely or are worried about a loved one - If you are caring for someone and need some information or a listening ear... - If you need help or advice about changing the aged care services they are currently receiving - If you need help to access new care services or essential supplies such as shopping - If you are concerned about a friend or family member living with dementia More information can be found here: https://www.health.gov.au//coronavirus-covid-19-advice-for

13.01.2022 EVENT: 2020 World FTD Marathon Research teams from around the globe will mark World FTD Awareness Week by giving online presentations on various topics related to FTD and caregiving on Sat 3rd OCT in what is a free and day long event. The online marathon will begin in Australia, and then move to Europe, and North and South America. More info and registration below. Don't miss this important and unique event! More updates to follow.

13.01.2022 Today is Swallowing Awareness Day. People with FTD sometimes experience swallowing difficulty which makes eating and drinking challenging.

11.01.2022 The Wicking Dementia Research & Education Centre at the University of Tasmania has a Massive Open Online Course (MOOC) titled ‘Preventing Dementia.’ This course offers university-quality education about the latest research in dementia risk and protective factors. This course is designed to be suitable for people of all backgrounds those that have an interest in dementia, allied health professionals, clinicians, carers, etc. Enrol now for the October course: https://www.utas.edu.au/wicking/preventing-dementia

08.01.2022 All three legs of the 2020 World FTD Marathon are now available to view online! https://www.worldftdunited.net/marathon

06.01.2022 Same needles, Different haystacks - Frontier’s Prof Olivier Piguet has written an editorial review in the BMJ medical journal about the importance of understanding early symptomatology in genetic Frontotemporal dementias. Prof Piguet highlights how identifying early clinical symptoms (neurological, cognitive, and behavioural) has implications for interventions and disease modifying treatments. Read more here: https://jnnp.bmj.com/conte/early/2020//07/jnnp-2020-323561

03.01.2022 Anna Dorrington is an artist and carer for her husband who has FTD. Her artwork is featured in the video below, which is a moving portrayal of the stages of grief she experienced as she was caring for her husband. Anna touches on some very important themes such as change, feelings of emptiness, acceptance, and movement towards contentment. https://www.youtube.com/watch?v=bSNiJlBo-nM&feature=youtu.be

03.01.2022 David Foxe is a Clinical Neuropsychologist at the FRONTIER Clinic. He has over 10 years of clinical experience and has recently begun investigating Primary Progressive Aphasia (PPA), a term used to describe a group of language based Frontotemporal dementias. David's research is focused on identifying cognitive tests which can accurately diagnose language based dementias such as PPA. https://www.youtube.com/watch?v=KKT_WxivdqE

03.01.2022 https://www.theage.com.au//it-doesn-t-define-me-what-is-it

02.01.2022 Dr Siddharth Ramanan is a Postdoctoral Research Associate who completed his PhD with Frontier in 2019. He recently sat down with Dr Anna Volkmer and Shalom Henderson to discuss Logopenic Variant Primary Progressive Aphasia (lvPPA) - a rare type of dementia that affects language function. Learn more about lvPPA in the podcast below: https://podcasts.apple.com//logopenic-progre/id1350258595

02.01.2022 What do you know about ageing and dementia? Researchers at CAIN, a neuroscience group at The University of South Australia are conducting a study on how much young Australian adults know about ageing and dementia. If you are between the ages of 18 - 44, we would be grateful if you could assist our colleagues and complete this 10 minute survey Thank you! ... https://research.unisa.edu.au/redcap/surveys/

01.01.2022 Overspending and falling for financial scams is often reported in people with behavioural-variant FTD. Dr Stephanie Wong from Frontier is investigating why this happens, and how common it is in healthy ageing and dementia. To find out more, or participate in the study, see: https://stepupfordementiaresearch.org.au/finance-skills/