FSHD-Global Research Foundation in Sydney, Australia | Non-profit organisation

FSHD-Global Research Foundation

Locality: Sydney, Australia

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• Non-profit organisation
• Charitable organisation
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25.01.2022 Hi everyone! Jen and I have a new video that weve posted on YouTube! In this episode we talk about mindset, negative vs positive thinking, and how we use positivity to get us through lifes challenging times. Hope you all have a wonderful day! Come check the video out here:

24.01.2022 Amazing results over the past 24 hours! Thank you to everyone that participated in the global 24 hour squat challenge and helped build their muscles for those who cant! @ehplabs @fshdglobal @laurensimpson @laurensimpsonfitness... #squats #fshd #musclesformuscles #24hourchallenge #m4msquatchallenge

22.01.2022 Need some motivation to get active? Say no more! Squat your way through May, or gather a Squat Squad to build muscles on your behalf - participate your way. Learn more - https://fshdglobal.org/squat-challenge-registration/

21.01.2022 THE SQUAT CHALLENGE IS HERE Follow Muscles4Muscles for updates throughout the challenge. We're so excited that this year's Muscles for Muscles squat challenge is now underway! We can't wait to see you participate in the challenge your way. ... For those who are squatting, follow this link to track your squats throughout the month: https://fshdglobal.org/track-your-squats Haven't registered? The challenge is running for the month of May, so sign up any time and help us spread the word! https://fshdglobal.org/squat-challenge-registration/

21.01.2022 A great initiative from the Australian Mint supporting charities during this challenging time! https://amp-abc-net-au.cdn.ampproject.org//article/12621404

21.01.2022 Squat as a team or as an individual. Registration's are now open! Make a difference and do something fun and positive this year.... #m4msquatchallenge #musclesformuscles #buildingmusclesforthosewhocant

20.01.2022 The 2020 Wyndham Corporate Surf Challenge will be held on Friday 20 November 2020 on the Gold Coast. This event is held by one of our longest and proudest sponsors - Wyndham Destinations! With surfing world champion Layne Beachley in attendance, along with some cool corporates, the day is nothing short of fun and exciting. The Surf Challenge is an important annual event on the FSHD Global calendar. As the beneficiary of the event, we are able to not only raise funds for our F...oundation but awareness into FSHD. There is still an opportunity to be part of this fantastic event by entering your team. If you live on the Gold Coast, Brisbane or Sunshine Coast, or simply want to get involved please contact us! Thank you to Wyndham Destinations for once again being a major sponsor and supporter of FSHD Global, who continuously go over and above to raise funds and create awareness for our cause.

19.01.2022 Have you registered? Less than one week to go!

19.01.2022 Who's ready for the challenge? Register today: https://fshdglobal.org/squat-challenge-registration/ Muscles4Muscles

19.01.2022 Did you know? FSHD can affect men, women, and children of all races and ethnicities around the world.The extent and degree of muscle weakness is very variable.... However, most people with FSHD develop noticeable muscle weakness by their 30's . Infantile FSHD can be very severe compared to the adult onset condition. #facts #fshd #musclesformuscles #squatchallenge #m4msquatchallenge #squats #fshdglobal #charity #cure #nonforprofit

19.01.2022 A message from Jamie Durie OAM, a long standing supporter and Patron of FSHD Global Research Foundation!! #musclesformuscles #m4msquatchallenge #squats

18.01.2022 The Squat Challenge has officially begun! Over the course of September we want to collectively achieve over 1 million squats ! Yes that is a big number but this represents the number of people worldwide who live with this debilitating disease, Facioscapulohumeral Muscular Dystrophy! Registrations will stay open for the remainder of the challenge which means you can register anytime during the month. ... Every squat and dollar counts. Join the fun, get involved, and help support our quest to find treatments and an ultimate cure for FSHD! #m4msquatchallenge #squats #musclesformuscles #challenge #squatchallenge #fitness #wellbeing #muscles #nonforprofit #charity

16.01.2022 With just over a week to go until our Muscles4Muscles Squat Challenge finishes, many of our participants are busy squatting and raising funds and donations to support our campaign. The purpose of this challenge is to build muscles for those who cant and raise awareness and funding to continue to fight for a cure and fast track treatments for our FSHD community. To our loyal community and supporters who are yet to participate in the challenge, we invite you to join this campa...ign by either registering to squat or by donating to this wonderful initiative. All donations generated from the Muscles for Muscles Squat Challenge will help support medical research and education into muscle wellness, muscle technology and an ultimate cure for FSHD. Thank you to our participants, our supporters and our sponsors for your continued generosity! https://fshdglobal.org/donate/

16.01.2022 There is only 1 more day to Double your Donation! We are close to reaching our target of $250,000, but we still need your help! Now is the time to make your tax deductible donation, with the end of financial year, closing tomorrow 30 June 2020. All donations, no matter how big or small, will support our Double your Donation campaign. Our Founder and Chairman, Bill Moss AO will match every dollar donated through the month of June, up to the value of $250,000. Our goal is to re...ach $500,000. We invite you to join this wonderful initiative and help us Double your Money!

15.01.2022 During the month of September 2020 every single participant in the Squat challenge became an ambassador for Muscles for Muscles and not only built muscles for t...hose who can't but also helped raise awareness around the world for FSHD. As a collective team we were able to raise over $45,000 dollars! 100% of all these tax deductible donations will now help support medical research and education into muscle wellness, muscle technology and an ultimate cure for FSHD. In addition to donations as a squatting community, we managed to smash out OVER 358,000 squats during the month of September. What an amazing effort by all. Thank you to all our teams and participants for participating in the Muscles for Muscles 2020 Squat Challenge! See you next year for our next big challenge - stay tuned!!!

15.01.2022 MUSCLES FOR MUSCLES SQUAT CHALLENGE. Registrations are open with some amazing prizes up for grabs. Give our page a follow at https://www.facebook.com/Muscles4Muscles/... Registrations can be completed via the link below: https://fshdglobal.org/muscles-4-muscles/register-now/ #musclesformuscles #m4msquatchallenge #squats #fshd

15.01.2022 Ellen Graham our amazing FSHD Global Ambassador is taking on a new challenge as an ambassador for Muscles for Muscles! You can support her and her team by clicking on the link below! We look forward to watching Ellen and her team complete The Squat Challenge this September. ... Well done Ellen!

14.01.2022 Thank you to the amazing team at Shine Bright ELC !

14.01.2022 Register today!!! The Muscles for Muscles Squat Challenge! #fshd #musclesformuscles #m4msquatchallenge #squats #nonforprofit

12.01.2022 Thank you to everyone who has participated so far in the Muscles for Muscles Squat Challenge! In the last 6 days we've raised almost $4,000 and completed over 2...5,000 squats! For those considering joining, you can register for Muscles for Muscles at any time during May, or support FSHD Global by sharing a post for awareness, or with a donation at https://fshdglobal.org/musclesformuscles #musclesformuscles #fshdglobal FSHD-Global Research Foundation

12.01.2022 FSHD Global Founder Mr Bill Moss AO is featured in today’s Sydney Morning Herald on the discrimination of the NDIS system for people living with disabilities over 65 years of age. Mr Moss recently sent a letter to the Prime Minister raising his concerns and questions which can found on the FSHD Global website (https://fshdglobal.org) https://www.smh.com.au//falling-off-the-magical-cliff-call

12.01.2022 Our loyal and long standing supporter of FSHD Global Research Foundation EHP Labs has come on board as a Partner for our Muscles4Muscles Squat Challenge. In support of our month long September Squat Challenge EHP Labs will be running a 24 hour online squat challenge starting tomorrow on the 14th of September. If you are not taking part in our monthly challenge you can support the Muscles for Muscles campaign by participating in the EHP Labs online challenge instead. ... The challenge is easy! You will need to complete 10 squats and post yourself doing this on your story tagging @ehplabs, @musclesformuscles and 3 friends to complete the next set of 10 squats. We are excited and extremely thankful to have EHP labs on as a partner for Muscles For Muscles and are looking forward to seeing everyones squats across the next 24 hours. You can also support this campaign by donating today clicking on the link below https://fshdglobal.org/donate/ #ehplabs #musclesformuscles #squatchallenge #m4msquatchallenge

11.01.2022 The FSHD Global Research Foundation is proud to launch their new initiative Muscles for Muscles. The aim of this campaign is to drive awareness, empathy and support towards finding treatments and a cure for FSHD muscular dystrophy. As a genetic disease, FSHD affects people of all ages, religion, sex and body type. It does not discriminate, and neither does this campaign! Muscles for Muscles encourages people of all fitness levels to partake in building their muscles for tho...se who simply cant. It also gives people living with this debilitating disease an opportunity to invite their friends and loved ones to compete on their behalf and raise awareness around the importance of having functional muscle and movement. This challenge is bigger than just fundraising, it is personal to the one million people and their families living with FSHD. They need your help to find treatments and a cure. Join the fun, get involved, and do something positive this year. 100% of all donations received from this campaign will directly support our quest to find treatments and an ultimate cure for FSHD. Be sure to give our social pages a follow and like to keep updated with the all details around the challenge! Registrations will open soon! WATCH THIS SPACE! https://www.facebook.com/Muscles4Muscles/

11.01.2022 Our recent Muscles for Muscles campaign saw participants from all walks of life - those living with FSHD, family and friends participating on behalf of someone living with FSHD, fitness gurus, corporates, athletes, ambassadors and our loyal and strong community. Our winning team, Brads Brigade had over 30 family and friends who participated in support of Brad, who lives with FSHD. This team raised over $3,300 and completed over 19,000 squats during the challenge. Brad has k...Continue reading

09.01.2022 REGISTRATION'S ARE NOW OPEN!!!! The Muscles for Muscles Squat Challenge is a month long campaign which will run throughout September 2020. The challenge can be completed individually or as a team. Set yourself a daily target / team target and get squatting. Be creative with your squats and share your squat style with us- we want to see how many different types of squats you can achieve, and how!... Over the course of September we want to collectively achieve over 1 million squats! Yes that is a big number but this represents the number of people worldwide who live with this debilitating disease, Facioscapulohumeral Muscular Dystrophy. Along the way well give you some squatting tips and youll also get a chance to raise much needed funds for FSHD Global Research Foundation with some awesome prizes up for grabs! Cant squat no problem! For many people living with FSHD, doing a squat is near impossible. Which is why this campaign is so important to raise awareness of the dramatic impact of this debilitating disease. Instead, you can create your own team and invite your family and friends to participate in the challenge and build muscles on your behalf. https://fshdglobal.org/muscles-4-muscles/register-now/ #musclesformuscles #m4msquatchallenge #fshdglobal #asstograss

09.01.2022 HAPPY WORLD FSHD DAY!! #fshd #fshdglobal #worldfshdday

09.01.2022 FSHD Global funding provides promise for a new treatment for FSHD in animal cells.

08.01.2022 Today is your final chance to sign up for our inaugural Muscles for Muscles Squat Challenge. Commencing tomorrow we dont want you to miss out on all the fun in building muscles for those who cant and raising awareness and funding for medical research into FSHD. As we move into a new season, now is the time to reset, recharge and set yourself some personal health goals, while making a difference to the 1 million people worldwide living with FSHD. #musclesformuscles #squats... #fshd #fshdglobal #m4msquatchallenge #challenge #charity #nonforproft #m4msquatchallenge

08.01.2022 https://www.facebook.com/Muscles4Muscles/

08.01.2022 1 WEEK TO GO! FSHD Global Research Foundation is giving you the opportunity to DOUBLE YOUR DONATION! Our Founder and Chairman, Bill Moss AO will match your donation and double your impact up to $250,000.... This provides FSHD Global with the opportunity to receive over $500,000 in tax deductible donations of which 100% will go directly towards funding world class medical research, awareness and education for one of the most common forms of muscular dystrophy. Help us make a difference and be sure to donate before June 30 to take advantage of this amazing campaign. https://fshdglobal.org/donate/

07.01.2022 Hi FSHD-Global family! My name is Tony and I have FSH muscular dystrophy. My wife, Jenny, and I have started a Youtube channel centered around life as an inter...abled couple. We're going to cover a lot of topics from finding love, daily living, getting through the tough times, tips, tricks, and so much more! We sure would love for you to stop by and check our channel out! Many thanks and have a great day! Our very best wishes, Jenny and Tony www.youtube.com/channel/UCbgOtKl7OwbR-dWm8F7OUGA

07.01.2022 FSHD Global Research Foundation are in the process of creating the FSHD Medical Education Portal. The purpose of this Portal is to educate individuals and families that are affected by FSHD on the latest global research news that we consider relevant to finding a cure for FSHD, to provide education on the changes in medical research and how you or your family can access this. The Portal also provides a mechanism by which you can show your desire to participate in future clini...cal trials and be aware of the prerequisite steps required to be accepted. As part of this new exciting Medical Education Portal we will have a dedicated section of the portal providing a list of Professional Services and Assistance. We would like to call out to our community to share any professional healthcare services you use that others may be able to benefit from GLOBALLY! If you are happy to share please feel free to directly message or email us at [email protected] FSHD Global will reach out to these Healthcare services for permission first prior to displaying their information on our Medical Education Portal.

02.01.2022 The FSHD Global Research Team are looking for people that have FSHD that live within the Reid area of Sydney to participate in a short survey. The Reid area covers an area from the Parramatta River in the north, Drummoyne and Rodd Point in the east, Silverwater, Auburn (part) and Lidcombe (part) in the west and Strathfield, Burwood and Croydon in the south. The main suburbs include Abbotsford, Auburn (part), Burwood, Cabarita, Chiswick, Concord, Croydon, Drummoyne, Five Dock, Homebush, Lidcombe (part), Mortlake, Newington, Rodd Point, Russell Lea, Silverwater, Strathfield, Sydney Olympic Park and Wareemba. If you have FSHD and live within any of the areas above and are interested in taking part in our survey please contact us via email at [email protected] or via a private message.

02.01.2022 Today is International Day of Charity Today is a chance to honour FSHD Global Research Foundation and Australias other 50,000 + charities but also to recognise that many of us have been doing it tough due to the effects of COVID-19. We would like to thank each and everyone one of our supporters for standing by our side during this challenging year. ... The support from you all continues to help us stay light, provide hope to our community and fulfil our mission in finding treatments and cure for FSHD. #internationaldayofcharity #australiancharities #fshd #fshdglobal #nonforprofit

02.01.2022 Have you done your 10 squats today? Support those living with FSHD and help us build muscles for those who can't today! #musclesformuscles #m4msquatchallenge #fshd #musculardystrophy #24hourchallenge

02.01.2022 Let's build muscles for those who can't...together! Register yourself or team today! https://fshdglobal.org/muscles-4-muscles/... #m4msquatchallenge #fshd #musclesformuscles

01.01.2022 Thank you to all of our amazing supporters who contributed to our recent Double your Donation matching campaign. Your generosity and unwavering support during these challenging times, fuelled our campaign to make it a success. You helped us raise more than $514,000 including Mr Bill Moss AO matching funds of $250,000. This Foundation is led by an incredible man. On behalf of our community living with FSHD, we would like to acknowledge and thank our Founder and Chairman, Mr Bi...ll Moss AOs for his generous $250,000 donation which became the catalyst for this campaign. Your support has enabled FSHD Global to continue to advance critical research in drug discovery, clinical trial readiness, muscle wellness and muscle technology, which will help assist the one million people living with FSHD, globally. For this we thank you.

01.01.2022 With only 3 days to go until our Muscles for Muscles Squat Challenge finishes now is your final opportunity to make a real difference for children and adults living with FSHD. If you have yet to participate in the challenge - there is still time to do so by making a 100% tax deductible donation which supports the FSHD Global Research Foundation in their ongoing mission to fund medical research and education into muscle wellness, muscles technology and an ultimate cure for F...SHD. https://fshdglobal.org/donate/ #donations #fshdglobal #medicalresearch #fshd #musclesformuscles #m4msquatchallenge

01.01.2022 Still Walking is available to purchase with all profits from this book going to FSHD Global Research Foundation. Bill Moss AO is a committed philanthropist, passionate campaigner for disability rights, and the Founder of a global medical and scientific research Foundation bringing hope to FSHD and other dystrophy sufferers around the world. Purchase your copy today via the link below.... http://www.stillwalking.com.au/