Gaucher Association of Australia & New Zealand | Businesses

Gaucher Association of Australia & New Zealand

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• Non-profit organisation

22.01.2022 We hope everyone is keeping safe & well. Thinking of our Victorian members who are in lockdown. This might be a good distraction. I know many of you have home infusions. We know it's in October but if you would like to feature in the #IGD2020 campaign please let me know.

21.01.2022 Our love and thoughts are with Aubrey's family.

21.01.2022 We are really excited to announce some educational webinars. We know living down under that the times do not work that well but the event will be taped and we will share with you as soon as possible after the talk. If you are a night owl and want to watch live it will be 1am!

19.01.2022 Our amazing Gaucher families with their masks!

19.01.2022 Hi all, Please take a moment to vote for one of our GD families! We shared Scarlett May’s story last year. A wonderful family! Good luck

17.01.2022 Today is a year since 2 of our Gaucher babies - Lacey Ann & Aubrey - grew their angel wings. We send their families our love and know that we will remember them every year. https://www.facebook.com/GaucherANZ/videos/2386158561604109/

11.01.2022 Tomorrow is International Gaucher Awareness Day! For all our members with their masks don't forget to email me your photos!

10.01.2022 If you can’t join because of the time difference we will post the link for the video. https://facebook.com/events/s/gaucher-and-parkinsons-disease/310538670150656/?ti=icl

09.01.2022 Some interesting news!!! https://investors.avrobio.com//avrobio-announces-new-patie

07.01.2022 These are very worthwhile watching!

04.01.2022 Keep an eye out tomorrow! Jennie Gibson is starring on the International Association poster!!!

03.01.2022 This has popped a few times in different articles today. This drug is not on the LSDP for treatment in Australia. https://www.israelnationalnews.com/News/News.aspx/280878

02.01.2022 This year for Gaucher Awareness Day the focus is on home infusion. Jennie has given us permission to share her story. In keeping with our theme Together We Are Stronger we acknowledge that it’s the patients, family, health professionals and the community that keep us strong! #IGD2020 #RareButNotAlone #HomesNotHospitals I have been having home infusion for about fifteen years. This form of treatment enables me to travel, volunteer etc with very few restrictions. Whilst keeping my Gaucher’s disease under control. There is however a team of people behind the scenes that make this possible. Starting with Richard the nurse in Townsville that suggested that I could do this from home. My specialist and the life saving drugs people who ring to see where I require my next delivery to be sent to

02.01.2022 Tomorrow is International Gaucher Day! Keep an eye o out for our posts!