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Genetic Cures Australia
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18.01.2022 So there’s #BlackFriday and #CyberMonday but then there’s #GivingTuesday... a global day of giving to support the causes you care most about. This year consider giving the Gift of Vision as we get closer to unlocking the code of how to cure inherited blindness through genetic therapies .... All donations are tax deductible and we thank you all for your ongoing support .
18.01.2022 'Rare As One' Chan-Zuckerberg Initiative awards Usher 1F Collaborative US$450,000 Grant "Grant from The Chan Zuckerberg Initiative Will Accelerate Progress in the Fight against the Leading Cause of Inherited Deaf-Blindness" ... Genetic Cures Australia is delighted to announce that our partners in research for Usher Syndrome Type 1F, The Usher 1F Collaborative (Boston MA), a non-profit 501(c)(3) organization dedicated to finding a cure for Usher syndromethe leading cause of inherited deaf-blindnesshas received a US$450,000, two-year grant from the Chan Zuckerberg Initiative (CZI), a philanthropy founded in 2015 by Dr. Priscilla Chan and Mark Zuckerberg. The Usher 1F Collaborative is one of 30 patient-led organizations to receive a CZI grant, which is part of CZI’s Rare As One Project aimed at supporting the work of patient communities to accelerate research and drive progress in the fight against rare diseases. The CZI grant is unique in that it will enable the Usher 1F Collaborative and Genetic Cures Australia to build capacity for the long term while also providing valuable training and community mentorship. Specifically, the grant will make it possible for the Collaborative organisation to hire professional staff, increase awareness about the disease among the global research community, and raise funds to support one of its pressing research priorities a study of the natural history of Usher 1F. A natural history study of any rare disease is a vital tool in taking scientific research from the laboratory to the clinic and therefore the grant will move us significantly further down our road towards an effective treatment for Usher syndrome No one is more committed to finding cures for rare disease than the patients and families of those affected by these disorders. said Priscilla Chan , Co-Founder and Co-CEO of CZI. We are proud to support patient led organisations such as they pursue the diagnoses, information, and treatment options in partnership with researchers and clinicians. View the full list of Rare As One Project grantees and their inspiring patient leaders here - https://chanzuckerberg.com//programs-r/rareasone/network/ For more information about Genetic Cures Australia and the Usher 1F Collaborative, please visit our websites here:- www.geneticcures.com.au www.usher1f.org
15.01.2022 This was unveiled in Canberra this week . We are thrilled by the announcement from the Honourable Greg Hunt MP Minister for Health . The Federal Government will provide $3.3M to implement a National Strategic Action Plan for Rare Diseases. It will increase awareness and promote earlier, more accurate diagnosis and treatment for those in Australia suffering a rare disease
15.01.2022 Another amazing Foundation that support genetic treatments and diagnosis . Keep up the amazing work Mission Massimo Foundation
12.01.2022 Continued refinement and developments in CRISPR technology
05.01.2022 FFB ANNOUNCES NO-COST GENETIC TESTING FOR THOSE WITH INHERITED RETINAL DISEASE Blueprint Genetics, InformedDNA and the Foundation Fighting Blindness have announced that beginning in October 2019, a new open-access program will be launched, offering patients with inherited retinal disease (IRD) no-cost genetic testing and genetic counseling in the United States. The program will streamline clinical workflow by providing the highest possible diagnostic yield, enabling faster and more straightforward follow-ups to patients.
02.01.2022 400 Mill people globally are affected by rare genetic disease . Ina quest for more treatment options, patients with rare diseases and their families see serve recognition for helping push the frontiers of molecular and cellular bio medicine This was the opening statement from Federal MP Tim Wilson in Parliament this week to honour #rarediseaseday2020 Tim understands how important the families and patients are in the progression to find treatments for rare diseases and we c...an’t thank him enough for being our collective voice to Government https://youtu.be/AnB6hsKakJQ
