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Goldie's Voice

Phone: +61 433 663 087



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24.01.2022 Our Queen Love you Nan #ninetyone .5 Aka Great Grandma to Goldie ... #goldie #rettsyndrome #3generations #greatgrandma #lovelove #wishmymumwasheretomake4generations #inthenextlife4ofusforlonger



23.01.2022 Outing with #empowerability best support worker (s)! #ndiscoresupport Meal prep that is easy but oh soooo time consuming (considering). 16 slices of #Helgas- toasted... #kitchenaidcookprocessor blended to crumbs -forever thanks Miss Sarah! 650grams #begapeanutbutter 2 litres of boiled #sydneywater, slowly added Divided into portions just right for her! #21meals One of her faves! Love you Goldie, From Mum Whats your day like?

21.01.2022 Thursday news! Our little cherub lost her first front tooth! #goldie #rettsyndrome #toothfairytime #justturnedeight #whosnowtheprettiestofthemall #jokes

18.01.2022 I just love this happy face so much! Havent had time to look at the photos on the camera so have watched this phone recording 10 times. Just have to share it Love, love! What a beaut day for a loved lil' Princess.... Thanks to all who celebrate this messenger from above. She is cherished Ps, thanks Miss Poppins on Insta for your balloon creativity #goldie #rettsyndrome #happybirthday #misspoppins #family #8thbirthday #love #



14.01.2022 Happy Australia Day! Vegemite, lamingtons, pies, beers, thong throwing or cricket? Nope. Brown snakes!... #goldie #rettsyndrome #cousins #australiaday #handinhand #craft #brownsnakes

12.01.2022 He is #1 with Goldie Girl. I really want to take a shower. She wants a drink. A few considerations: She often drops the bottle-her hands dont work.... If she manages to hold the bottle -she is highly likely to vomit if you dont constrain her left arm straight after (hand to mouth). Lots of cough, gag, choke, affect. The feelings of passing such a job to a kid, kills me. He is a fabulous! Love him & her relationship. Forever n ever!! Everything is super hard & some days, I just dont want to to be me!! Hate Rett Syndrome Adore Master E & lucky for Golds she has 3 big bro's punching for her See more

08.01.2022 Prince once asked, "could you be....the most beautiful girl in the world?" Well yes, yes you can, in my world #goldie #rettsyndrome... #varietyrocksforall #familytime #music #varietythechildrenscharitynsw event #gavinlittlephotography #mygirl #benice #princess



07.01.2022 Every.single.breath.... We HATE Rett Syndrome.... We think of the positives. We stay optimistic but the obvious fact is: it took away so much. The challenge is so lop sided....im gonna back her all the way anyway #worstdisorderever !!!... #goldie #rettsyndrome

06.01.2022 Click on: The Whirl Pool. Cousin Love.... #goldie #rettsyndrome #cousins #cousinlove #ragingwaterssydney

04.01.2022 Golds serenaded by #hilifehorns Sydney Street Entertainers Played The Wiggles for the little beauty. #goldie #rettsyndrome #hilifehorns

03.01.2022 Time for all people to enjoy a safe, green, open space to gather and play. April 5th to 16th between 8am and 5pm. Be mindful the school toilets are closed. Get out of the house, relax somewhat and make memories. Happy holidays!... #goldie #rettsyndrome #nswdepartmentofeducation #playspace #allinclusiveplayspace #safeplay https://m.facebook.com/story.php?story_fbid=4532602976758747&id=118142061538216

01.01.2022 First day of the season where i could pay attention to other family members fully whilst out. This lady with her care & heart for Goldie (& other children like Goldie), is heaven sent. Thank you for being you K! #goldie #rettsyndrome #empowerability #ndiscoresupport #grateful #thesmile #ragingwaterssydney #funinthesun



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