Haemophilia Foundation Victoria | Non-profit organisation

Haemophilia Foundation Victoria

Phone: +61 3 9555 7595

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25.01.2022 Just giving a special SHOUT OUT to all our regional and rural members! We are usually out and about travelling to all corners of Victoria to try and get to meet as many of our community as possible. This year things are a bit different but please know that we are still thinking about you and trying to find ways for us all to connect. We have an online ladies night this Saturday and have a Mens and Youth night also in the pipelines so keep checking our website for all the details! www.hfv.org.au

25.01.2022 The powerful movie BOMBARDIER BLOOD is now available to purchase or rent. HFA had brought the rights to premiere the movie in Australia but unfortunately had ...to canx due to COVID. Even more exciting, Chris Bombardier is going to join the HFA community for a live chat on Friday 4 September to talk about the experience and answer questions! More details to follow, but in the meantime purchase the movie, watch it and note your questions and feedback. Parents, great movie for kids and teens!! ~~~~~~~~~~ Chris Bombardier has never let severe hemophilia stop him from climbing some of the world’s tallest mountains. https://www.bombardierblood.com/buy-or-rent See more

24.01.2022 The Department of Health and Human Services have a new Call-to-Test service that will enable some of our most vulnerable to get tested for coronavirus (COVID-19) at home with a qualified health clinician. The service will provide access for people who cannot leave home due to injury, mobility or other eligible reasons. See if you meet the eligibility criteria here: https://www.dhhs.vic.gov.au/call-to-test-covid-19

24.01.2022 Check out the first video in a new series from HFV and the Alfred Haemophilia Treatment Centre Team aimed to help patients manage their health during COVID-19. Jane Portnoy, one of their social workers, kicks off the series by sharing some of her thoughts about how to help manage your mental health during these challenging times. Next week, Abi Polus will be sharing her thoughts from a physios perspective! You can find the series, which will grow over the next few weeks, by clicking on our website https://www.hfv.org.au//digital-storie/htc-covid-19-series

22.01.2022 "Sharron’s father Glenn has haemophilia, so she has always known and lived with haemophilia. When she was a child it was thought that only boys had haemophilia, so it was a surprise to her parents when Sharron was diagnosed with mild haemophilia A." #BDAW2020 https://tinyurl.com/y2avsys4

22.01.2022 We're less than two weeks away from kicking off the most important week of the year. Bleeding Disorders Awareness Week is 11-17 October 2020 and this year we're asking you to Go Red for Bleeding Disorders + fundraise. It's easy and fun to get involved, here's how you can get involved https://tinyurl.com/yyla5lyd

19.01.2022 Last chance to book in! Just click on the link below. www.trybooking.com/bjpan Hope you can join the fun with other ladies from our HFV community!

16.01.2022 The symptoms of hepatitis C are not always obvious. Have you asked your doctor for a hepatitis test? Hep C can be cured. Treatment is simple.... Find out more on our World Hepatitis Day page. https://tinyurl.com/BD-WHepD2020 #LetsTalkHep

16.01.2022 Here's a great opportunity to help with some important research...click on the link below for more info!

16.01.2022 Are you hosting a virtual or in person event this week to Go Red for Bleeding Disorders? Share your photos with the hashtag #BDAW2020

15.01.2022 R U OK? Today is national R U OK? Day. Take the time to check in with your friends and family and learn what to say after you have asked 'R U OK?' Here is a link to help guide you with what to say and help support the people in your life. https://irp-cdn.multiscreensite.com//RUOKDay2020_GuidetoSu

14.01.2022 If you are an HFV member and find you are struggling during these particularly challenging times, HFV may be able to assist. We have a Live Well program than can assist with small financial funding with costs that are associated with your bleeding disorder. If you are unsure whether your request will be suitable just run it by [email protected] first with a quick email.

14.01.2022 We've got a couple of new videos to share with you from the Alfred HTC team about managing your bleeding disorder during covid! Kara and Penny chat about managing bleeds and making sure you have enough product at home. Also, Megan talks about new treatments and accessing potential trials. There will be more next week so remember to keep checking back to our website for updates! https://www.hfv.org.au//digital-storie/htc-covid-19-series

13.01.2022 Talking about hepatitis can be hard for many people. Start the conversation. Find out more on our World Hepatitis Day page. ... https://tinyurl.com/BD-WHepD2020 #LetsTalkHep See more

11.01.2022 You’ve been cured of hep C! How is your liver going? Ask your doctor if you still need regular liver health checks. Find out more on our World Hepatitis Day page. https://tinyurl.com/BD-WHepD2020... #LetsTalkHep See more

10.01.2022 Join us tonight for a zoom live with Chris Bombardier for a live chat! He will talk about the experience and answer questions! Chris has never let severe haemophilia stop him from climbing some of the world’s tallest mountains. Suitable for children. You can purchase the doco at https://play.google.com/st/movies/details/Bombardier_Blood #BDAW2020

10.01.2022 Find out how thousands of Australians are now living free of hepatitis C. Hep C can be cured. Treatment is simple. Start the conversation.... Find out more on our World Hepatitis Day page. https://tinyurl.com/BD-WHepD2020 #LetsTalkHep

10.01.2022 Haemophilia affects over 2800 people in Australia, and without effective treatment can be life threatening. Share this to get the facts out there and raise awareness this Bleeding Disorders Awareness Week. FAQ's https://tinyurl.com/y32mgggt #BDAW2020

09.01.2022 Haemophilia affects females too. Share this to get the facts out there and raise awareness this Bleeding Disorders Awareness Week. Want more information on women and bleeding disorders https://tinyurl.com/wlbb4fw #BDAW2020

07.01.2022 World Hepatitis Day is coming up on 28 July 2020. On World Hepatitis Day by talking to our friends, family or a doctor we can work towards the goal of hepatitis elimination by 2030. Find out more on our World Hepatitis Day page https://tinyurl.com/BD-WHepD2020 #LetsTalkHep

03.01.2022 We know for many of us these will be challenging times. Please reach out to us if you'd like to connect with other members of our foundation. We have those with bleeding disorders, mothers, fathers, grandparents and siblings all happy to connect with you. It could just be an email, text massage or phone chat. Just send us an email at [email protected] and we can connect you up. Stay safe.

03.01.2022 You could be at risk for hepatitis C if you had a blood product before 1993. Or if you have shared equipment that could allow blood into your blood stream, eg injecting equipment, non-sterile tattooing, medical care overseas. Know your status. Get tested for HCV. Find out more on our World Hepatitis Day page. ... https://tinyurl.com/BD-WHepD2020 #LetsTalkHep See more

01.01.2022 Wonderful news for our bleeding disorders community!!! Thank you to everyone involved in the process to make this treatment, emicizumab (Hemlibra) available to our community. Make sure you read all the details by clicking on HFA's link below.

01.01.2022 There are many women that may have a family history of a bleeding disorders and are unsure whether they carry the gene. Could this be someone in your family? We have access to some great resources that can help people navigate through the process of finding out if they are a carrier and what it means for them. Here is a comprehensive resource that discusses those topics and other information for women with bleeding disorders. www.haemophilia.org.au//women-with-bleeding-di/young-women For more information email [email protected] or go to resources on our website www.hfv.org.au