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24.01.2022 Today (after weeks of rescheduling ) we finally met up with another little leukaemia warrior and her lovely Mumma. Little Zara was only just 2 when she was diagnosed with AML. It was so nice to see these little girls running around in the gardens together today, enjoying the sunshine and outdoors just as little ones should always be able to.... Thanks for hanging out with us today Zara! #childhoodcancerawarenessmonth . . . ... Purchase Harper Brave Merch http://harperbrave.thetshirtmill.com.au/ Donate to Sydney Children's Hospital Randwick https://www.fundraiseforsydneykids.org.au/ Donate to Harper's Appeal with the Children's Cancer Institute https://donate.ccia.org.au/campaign/140/crisis ... . . . #thisisharpersstory #harperbrave #harperstrong #lifeaftercancer #motherhoodunplugged #candidchildhood #momentsoverposes #leukaemiafoundation #leukaemiafoundationaustralia #leukaemia #acutelymphoblasticleukaemia #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #startadiscussion #talkaboutit #awareness #sydneychildrenshospital #childrenscancerinstitute #sydneykids #campquality #starlightfoundation #ronaldmcdonaldhouse #redkitecharity #childrenscancercouncil #thekidscancerproject #gogoldforkids #vscocam #instagram
23.01.2022 Big sister Harper just taking little sister Addie for a drive This afternoon's trip was to Aldi because someone really wanted some bananas This was a very smart purchase by Harper actually since her potassium was a touch on the lower side this week. Her clinic appointment actually went very well and we're happy to have another month behind us and one month closer to our blood tests being every second month ... P.S Thanks for letting us park inside ALDI Australia . . . #harperbrave #harperstrong #thisisharpersstory #acutelymphoblasticleukaemia #all #leukaemia #areweoutofthewoodsyet
22.01.2022 I draw childhood cancer. Paediatric Oncology alphabet this month in honour of Childhood Cancer Awareness Month.
21.01.2022 A - Z by I draw childhood cancer.
20.01.2022 Mummy + Harper for 'Team Clinic' today. Blood results are excellent which is exactly what we want to hear Back before Harper was diagnosed, she was in the highest percentile for her height and weight.... You can watch it on her graph how since treatment started her height has levelled out and she now sits in the lower percentile, it's a little bit sad but we're hoping she's in those group of kids that catch up. We just need to work on broadening her diet a bit, while it's tricky navigating that with a child under "normal" circumstances, we're dealing with one whose little bod has endured so many chemicals, it's a bit of a seperate headache. While lifestyle factors obviously contribute, Harper is more prone to other blood disorders including diabetes so we just really want to get on-top of a good diet and have her trying more things Anyways, another month off and let's get home and relax #childhoodcancerawarenessmonth . . . ... Purchase Harper Brave Merch http://harperbrave.thetshirtmill.com.au/ Donate to Sydney Children's Hospital Randwick https://www.fundraiseforsydneykids.org.au/ Donate to Harper's Appeal with the Children's Cancer Institute https://donate.ccia.org.au/campaign/140/crisis ... . . . #thisisharpersstory #harperbrave #harperstrong #lifeaftercancer #motherhoodunplugged #candidchildhood #momentsoverposes #leukaemiafoundation #leukaemiafoundationaustralia #leukaemia #acutelymphoblasticleukaemia #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #startadiscussion #talkaboutit #awareness #sydneychildrenshospital #childrenscancerinstitute #sydneykids #campquality #starlightfoundation #ronaldmcdonaldhouse #redkitecharity #childrenscancercouncil #thekidscancerproject #gogoldforkids #vscocam #instagram
18.01.2022 beach day . . . #harperbrave #harperstrong #thisisharpersstory #acutelymphoblasticleukaemia #all #leukaemia
18.01.2022 September - Childhood Cancer Awareness Month . . . 26th Sep 2018... "Today's events . Through this round of treatment our weeks have started on a Wednesday with a blood test in the morning followed by chemo injections (ara-c/fever chemo)through to Saturday. The progress of which was always dependant on Harpers blood counts. Thankfully we've made it through 3 weeks of an intensive chemo without a setback, but we've always been anxious of it waiting around the corner for us. And so today, Harpers blood test this morning showed that her counts were too low to continue with chemo for this week and also meant we weren't able to do her scheduled lumber puncture/bone marrow/intrathecal chemo today. Her counts are low because of the intensity of her chemo just gobbling up pretty much every cell, or so it feels like. Also because of all-over low counts she is currently receiving a blood transfusion, with a platelet transfusion to follow before we go. So for now, Harpers treatment gets put on hold for a week as all chemo ceases, even the oral chemo she has at "Home", so that her body can build up again ready for chemo to start attacking it again next week. It's sucky, but to be honest I'm just grateful that we've made it through this tough round fairly unscathed and also this break is right in time for the long weekend so I have everything crossed that we'll be allowed back to our real home to spend a couple of days in our own house with Penny + Daddy! Harper is doing super well otherwise, she has so much energy and more determined than ever to walk on her own Doctors are so impressed with how well she looks and how bright her little spirit is." This was such a long day, so much so that we were moved onto another ward for our transfusion to continue as C2N had to close for the day. We were out the door the same time the nurses finished their day shift, caught an uber back to our place in Randwick and plonked ourselves on the bed. Grateful for *today* is an understatement. #childhoodcancerawarenessmonth . . . ... Purchase Harper Brave Merch http://harperbrave.thetshirtmill.com.au/ Donate to Sydney Children's Hospital Randwick https://www.fundraiseforsydneykids.org.au/ Donate to Harper's Appeal with the Children's Cancer Institute https://donate.ccia.org.au/campaign/140/crisis ... . . . #thisisharpersstory #harperbrave #harperstrong #lifeaftercancer #motherhoodunplugged #candidchildhood #momentsoverposes #leukaemiafoundation #leukaemiafoundationaustralia #leukaemia #acutelymphoblasticleukaemia #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #startadiscussion #talkaboutit #awareness #sydneychildrenshospital #childrenscancerinstitute #sydneykids #campquality #starlightfoundation #ronaldmcdonaldhouse #redkitecharity #childrenscancercouncil #thekidscancerproject #gogoldforkids #vscocam #instagram
18.01.2022 September - Childhood Cancer Awareness Month . . . 29th Sep 2018... 2018: Home for the weekend 2020: Home #childhoodcancerawarenessmonth . . . ... Purchase Harper Brave Merch http://harperbrave.thetshirtmill.com.au/ Donate to Sydney Children's Hospital Randwick https://www.fundraiseforsydneykids.org.au/ Donate to Harper's Appeal with the Children's Cancer Institute https://donate.ccia.org.au/campaign/140/crisis ... . . . #thisisharpersstory #harperbrave #harperstrong #lifeaftercancer #motherhoodunplugged #candidchildhood #momentsoverposes #leukaemiafoundation #leukaemiafoundationaustralia #leukaemia #acutelymphoblasticleukaemia #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #startadiscussion #talkaboutit #awareness #sydneychildrenshospital #childrenscancerinstitute #sydneykids #campquality #starlightfoundation #ronaldmcdonaldhouse #redkitecharity #childrenscancercouncil #thekidscancerproject #gogoldforkids #vscocam #instagram
17.01.2022 September - Childhood Cancer Awareness Month . . . 21st Sep 2018... Still living in Randwick but had a sleepover at Aunty Rach's to look forward to Love this video of Harper reading to one of her little hospital dollies, Alice. #childhoodcancerawarenessmonth . . . ... Purchase Harper Brave Merch http://harperbrave.thetshirtmill.com.au/ Donate to Sydney Children's Hospital Randwick https://www.fundraiseforsydneykids.org.au/ Donate to Harper's Appeal with the Children's Cancer Institute https://donate.ccia.org.au/campaign/140/crisis ... . . . #thisisharpersstory #harperbrave #harperstrong #lifeaftercancer #motherhoodunplugged #candidchildhood #momentsoverposes #leukaemiafoundation #leukaemiafoundationaustralia #leukaemia #acutelymphoblasticleukaemia #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #startadiscussion #talkaboutit #awareness #sydneychildrenshospital #childrenscancerinstitute #sydneykids #campquality #starlightfoundation #ronaldmcdonaldhouse #redkitecharity #childrenscancercouncil #thekidscancerproject #gogoldforkids #vscocam #instagram
17.01.2022 September - Childhood Cancer Awareness Month . . . 18th Sep 2018... Last day off before Ara-C injections recommence. #childhoodcancerawarenessmonth . . . ... Purchase Harper Brave Merch http://harperbrave.thetshirtmill.com.au/ Donate to Sydney Children's Hospital Randwick https://www.fundraiseforsydneykids.org.au/ Donate to Harper's Appeal with the Children's Cancer Institute https://donate.ccia.org.au/campaign/140/crisis ... . . . #thisisharpersstory #harperbrave #harperstrong #lifeaftercancer #motherhoodunplugged #candidchildhood #momentsoverposes #leukaemiafoundation #leukaemiafoundationaustralia #leukaemia #acutelymphoblasticleukaemia #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #startadiscussion #talkaboutit #awareness #sydneychildrenshospital #childrenscancerinstitute #sydneykids #campquality #starlightfoundation #ronaldmcdonaldhouse #redkitecharity #childrenscancercouncil #thekidscancerproject #gogoldforkids #vscocam #instagram
16.01.2022 Today *No Penny's were harmed during this pickup
16.01.2022 Childhood Cancer Awareness Month Sharing again to honour the last day of this month https://m.youtube.com/watch?feature=youtu.be&v=hh-OHlKNIHY
16.01.2022 Just a heads up that this is not a happy share. If you ever wonder why we preach about Childhood Cancer. Why we share so many stories.... Why we're constantly asking for more funds. Why we're asking for better cures, for MORE cures. Why we're always posting about the same sad stuff. If you're wondering if I'll ever "let it go", I won't. And this is the reason why. A parent from one of our international Childhood Leukaemia Facebook groups shared this with us all tonight, and with her permission I'm sharing it to raise awareness. Harper has also had Vincristine, however at Harper's age of diagnosis she fell into the Childhood version of ALL, heartbreakingly the survival rate for Infantile ALL is not as promising. We HAVE to do better for our kids Ellis #childhoodcancerawarenessmonth . . . ... Purchase Harper Brave Merch http://harperbrave.thetshirtmill.com.au/ Donate to Sydney Children's Hospital Randwick https://www.fundraiseforsydneykids.org.au/ Donate to Harper's Appeal with the Children's Cancer Institute https://donate.ccia.org.au/campaign/140/crisis ... . . . #thisisharpersstory #harperbrave #harperstrong #lifeaftercancer #motherhoodunplugged #candidchildhood #momentsoverposes #leukaemiafoundation #leukaemiafoundationaustralia #leukaemia #acutelymphoblasticleukaemia #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #startadiscussion #talkaboutit #awareness #sydneychildrenshospital #childrenscancerinstitute #sydneykids #campquality #starlightfoundation #ronaldmcdonaldhouse #redkitecharity #childrenscancercouncil #thekidscancerproject #gogoldforkids #vscocam #instagram
16.01.2022 What's this you ask? Dirt on a plate? No Childhood Cancer Awareness Month post today?... Yes and no. Our day started with a very unhappy blood test in preparation for clinic tomorrow. Despite me trying to put a positive spin on it and pack a "blood test handbag" for Harper that included a couple of chocolates, a Frozen bandaid and her face mask for the Doctors Of course it was a lovely day weather-wise and we were busy organising, cleaning and packing to head into Aunty Rach's for our sleepover before clinic, but thennn..... Harper was naturally refusing to have dinner, I followed her into her room to have a chat and Addie decided it was the perfect time to fall out of her booster seat at the dining table, unfortunately Daddy wasn't quite quick enough to catch her. We ended up taking Addie outside to distract her in the garden with pretty flowers, because she loves that However back inside at the dining table, Harper was adding just a touch of pepper to her dinner And so that's a wrap on parenting today folks *dusts hands* Now we're enjoying one too many chocolate freckles and some home-reno shows on the couch at Aunty Rach's So what's the Childhood Cancer Awareness Month part of this? Only 9 more monthly blood tests to go before they become every 6 weeks ...for a year...and then they become every 8 weeks ...for a year #childhoodcancerawarenessmonth . . . ... Purchase Harper Brave Merch http://harperbrave.thetshirtmill.com.au/ Donate to Sydney Children's Hospital Randwick https://www.fundraiseforsydneykids.org.au/ Donate to Harper's Appeal with the Children's Cancer Institute https://donate.ccia.org.au/campaign/140/crisis ... . . . #thisisharpersstory #harperbrave #harperstrong #lifeaftercancer #motherhoodunplugged #candidchildhood #momentsoverposes #leukaemiafoundation #leukaemiafoundationaustralia #leukaemia #acutelymphoblasticleukaemia #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #startadiscussion #talkaboutit #awareness #sydneychildrenshospital #childrenscancerinstitute #sydneykids #campquality #starlightfoundation #ronaldmcdonaldhouse #redkitecharity #childrenscancercouncil #thekidscancerproject #gogoldforkids #vscocam #instagram
14.01.2022 I may or may not have got into trouble for this pic (she wanted to take one tomorrow ) but I just couldn't risk missing our hairstyle today It actually nearly made me emotional doing her hair today, she wanted THREE ponytails and boy was she excited to have them My little cutie pie, your hair looked beautiful ... . . . #harperbrave #harperstrong #thisisharpersstory #acutelymphoblasticleukaemia #all #leukaemia #areweoutofthewoodsyet See more
14.01.2022 September - Childhood Cancer Awareness Month . . . 20th Sep 2018... More Music Matt Magic today as Harper's new port was being accessed for the first time. If you'd like to help support Child Life + Music Therapy, to ensure that they can continue bringing so much joy to sick kids, please feel free to contact them on their office number below Child Life + Music Therapy +6193821531 #childhoodcancerawarenessmonth . . . ... Purchase Harper Brave Merch http://harperbrave.thetshirtmill.com.au/ Donate to Sydney Children's Hospital Randwick https://www.fundraiseforsydneykids.org.au/ Donate to Harper's Appeal with the Children's Cancer Institute https://donate.ccia.org.au/campaign/140/crisis ... . . . #thisisharpersstory #harperbrave #harperstrong #lifeaftercancer #motherhoodunplugged #candidchildhood #momentsoverposes #leukaemiafoundation #leukaemiafoundationaustralia #leukaemia #acutelymphoblasticleukaemia #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #startadiscussion #talkaboutit #awareness #sydneychildrenshospital #childrenscancerinstitute #sydneykids #campquality #starlightfoundation #ronaldmcdonaldhouse #redkitecharity #childrenscancercouncil #thekidscancerproject #gogoldforkids #vscocam #instagram
13.01.2022 September - Childhood Cancer Awareness Month . . ....Continue reading
13.01.2022 September - Childhood Cancer Awareness Month . . . 19th Sep 2018...Continue reading
13.01.2022 Post blood test Woolies haul We loaded up on some "flamingo's" (these are actually pink Up & Go's and I've no idea how she's come to name them after a flamingo ) and also some cookies because #ofcoursecookies and of course Elsa had to come with us to help as she also had to have a blood test this morning too #poorelsa All systems go for clinic tomorrow ... . . . #thisisharpersstory #harperbrave #harperstrong #lifeaftercancer #motherhoodunplugged #candidchildhood #momentsoverposes #leukaemiafoundation #leukaemiafoundationaustralia #leukaemia #acutelymphoblasticleukaemia #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #startadiscussion #talkaboutit #awareness #sydneychildrenshospital #childrenscancerinstitute #sydneykids #campquality #starlightfoundation #ronaldmcdonaldhouse #redkitecharity #childrenscancercouncil #thekidscancerproject #instagram #areweoutofthewoodsyet See more
12.01.2022 Wanted to be all pink and also have a crown like Elsa for dancing today She's been asking me since she woke up this morning when we can leave for "ballet preschool", so so heartwarming to see her being able to enjoy these things . .... . #harperbrave #harperstrong #thisisharpersstory #acutelymphoblasticleukaemia #all #leukaemia #areweoutofthewoodsyet See more
12.01.2022 Bottoms up! It's our last dose of Septrim (Bactrim) ever! Harper has been on this antibiotic since her treatment started.... It feels a little strange to now see this come to an end as well. But that's okay, another milestone reached is fine with us *Yes, she has learnt to like drinking pink antibiotics but can I get her to lick a carrot?! Oh gosh no, don't be crazy #childhoodcancerawarenessmonth . . . ... Purchase Harper Brave Merch http://harperbrave.thetshirtmill.com.au/ Donate to Sydney Children's Hospital Randwick https://www.fundraiseforsydneykids.org.au/ Donate to Harper's Appeal with the Children's Cancer Institute https://donate.ccia.org.au/campaign/140/crisis ... . . . #thisisharpersstory #harperbrave #harperstrong #lifeaftercancer #motherhoodunplugged #candidchildhood #momentsoverposes #leukaemiafoundation #leukaemiafoundationaustralia #leukaemia #acutelymphoblasticleukaemia #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #startadiscussion #talkaboutit #awareness #sydneychildrenshospital #childrenscancerinstitute #sydneykids #campquality #starlightfoundation #ronaldmcdonaldhouse #redkitecharity #childrenscancercouncil #thekidscancerproject #gogoldforkids #vscocam #instagram
12.01.2022 2018 / today #childhoodcancerawarenessmonth ... . . . ... Purchase Harper Brave Merch http://harperbrave.thetshirtmill.com.au/ Donate to Sydney Children's Hospital Randwick https://www.fundraiseforsydneykids.org.au/ Donate to Harper's Appeal with the Children's Cancer Institute https://donate.ccia.org.au/campaign/140/crisis ... . . . #thisisharpersstory #harperbrave #harperstrong #lifeaftercancer #motherhoodunplugged #candidchildhood #momentsoverposes #leukaemiafoundation #leukaemiafoundationaustralia #leukaemia #acutelymphoblasticleukaemia #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #startadiscussion #talkaboutit #awareness #sydneychildrenshospital #childrenscancerinstitute #sydneykids #campquality #starlightfoundation #ronaldmcdonaldhouse #redkitecharity #childrenscancercouncil #thekidscancerproject #gogoldforkids #vscocam #instagram
12.01.2022 Please read this story . .... . #acutemyeloidleukaemia #westmead https://www.gofundme.com/f/taylors-family-need-your-help
09.01.2022 September - Childhood Cancer Awareness Month . . . 27th Sep 2018... Out for the day and I was getting Harper out of her carseat and realised the dressing/patch had come off of her old port site. I quickly called our CNC to avoid having to go in through emergency and we were able to head straight up to C2N, where the surgeon was able to come up and organise the redressing. Today we went out as a family of four, saw some of our family and enjoyed being outside #childhoodcancerawarenessmonth . . . ... Purchase Harper Brave Merch http://harperbrave.thetshirtmill.com.au/ Donate to Sydney Children's Hospital Randwick https://www.fundraiseforsydneykids.org.au/ Donate to Harper's Appeal with the Children's Cancer Institute https://donate.ccia.org.au/campaign/140/crisis ... . . . #thisisharpersstory #harperbrave #harperstrong #lifeaftercancer #motherhoodunplugged #candidchildhood #momentsoverposes #leukaemiafoundation #leukaemiafoundationaustralia #leukaemia #acutelymphoblasticleukaemia #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #startadiscussion #talkaboutit #awareness #sydneychildrenshospital #childrenscancerinstitute #sydneykids #campquality #starlightfoundation #ronaldmcdonaldhouse #redkitecharity #childrenscancercouncil #thekidscancerproject #gogoldforkids #vscocam #instagram
08.01.2022 https://m.youtube.com/watch?feature=share&v=ftg3JHF1St8
06.01.2022 Merry Christmas 2019/2020 We hope that wherever you are and whatever your Christmas might look like today that you've found some sparkle, some joy and comfort and something yummy to eat . .... . #harperbrave #harperstrong #thisisharpersstory #acutelymphoblasticleukaemia #all #leukaemia #areweoutofthewoodsyet See more
05.01.2022 This is such SUCH wonderful, wonderful news What an amazing way to step into 2021.
05.01.2022 September - Childhood Cancer Awareness Month . . . 25th Sep 2018... Still living in Randwick, Robbie + Pa visit, new clothes and a park date. Today, we visited some friends, had a sleep in the car, got into jammies, excited to put our hair in a pony tail "on-top of my head" and watching Rapunzel #childhoodcancerawarenessmonth . . . ... Purchase Harper Brave Merch http://harperbrave.thetshirtmill.com.au/ Donate to Sydney Children's Hospital Randwick https://www.fundraiseforsydneykids.org.au/ Donate to Harper's Appeal with the Children's Cancer Institute https://donate.ccia.org.au/campaign/140/crisis ... . . . #thisisharpersstory #harperbrave #harperstrong #lifeaftercancer #motherhoodunplugged #candidchildhood #momentsoverposes #leukaemiafoundation #leukaemiafoundationaustralia #leukaemia #acutelymphoblasticleukaemia #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #startadiscussion #talkaboutit #awareness #sydneychildrenshospital #childrenscancerinstitute #sydneykids #campquality #starlightfoundation #ronaldmcdonaldhouse #redkitecharity #childrenscancercouncil #thekidscancerproject #gogoldforkids #vscocam #instagram
04.01.2022 Happy Tuesday . .... . #harperbrave #harperstrong #thisisharpersstory #acutelymphoblasticleukaemia #all #leukaemia #areweoutofthewoodsyet See more
04.01.2022 Thankyou for your support Starlight Children's Foundation Australia https://starlight.org.au/about-us/our-stories/harper
01.01.2022 Please, please, plleeaassse donate if you are able! O+ and A+ we need you!
01.01.2022 "Levi’s death was a breath-thieving, soul-shifting, mind-altering missile to the heart. It played like a trauma loop in my head the first three months after he died, robbing me of sleep and rational thought. It’s what I return to when I watch a movie and have to sit through someone’s end - wretched, prolonged, complete. It follows me to the shops, waits for me well into the night. It’s with me when I work and when I walk, when I drive and when I talk. It’s in the empty co...rners of my house and the warm embrace of my friends. It is my laughter and my tears, my anger and my fun. I was writing this blog (click on the link below to read the rest) to mark Childhood Cancer Awareness Month, when I stumbled across another DIPG advocate, Angel Myers, who affirmed some of the thoughts I’ve expressed here. There are two intertwined parts of my grief living without Levi, and living with his death. The living without Levi is the everything and nothing element; he’s everywhere and nowhere. Levi’s death also reverberates throughout my life. It’s in all things, in all kinds of ways, in all of my days. Because of it, I have purpose. Because of it, I have pain. And yes, there is beauty in both of them. Awareness = funding = research = cure #dipg #levisproject" See more
01.01.2022 Camp Quality I knew of this lovely organisation prior to Harper's diagnosis, however after her diagnosis we didn't take up on their programs because we thought Harper would be too little for their activities. However, being post treatment and during these times we're all in, Harper's social life has been very limited as she is unable to return to daycare and obviously our family + friends are all trying to be careful.... We really don't want her to miss out on interaction with other kids and so I thought I'd reach out to Camp Quality - surely if there's a safe place for Harper to hangout it's in their programs I was blown away to know that Camp Quality will continue to have services available to us until Addie is 13 years old - that's amazing! I know that as Harper grows there are probably going to be things that she doesn't want to talk about with me, so knowing that she can go on family fun days and camps with Addie and other kids and siblings like her and Ads makes me feel so happy I can so see that there will be friends that she will make through these programs that will end up being her best friends because they can share what they've been through, and are going through, together. And Addie can meet some other cancer siblings too I'm so grateful for Camp Quality that THIS month I'll be walking 100km in an effort to raise funds so that they continue to offer these amazing support services. If you're unable to donate, please feel free to message me and help me get my km up! I'd love a walking buddy/someone to tell me to stop leaning against a tree panting when I've walked 100m Thanks for listening https://fundraise.campquality.org.au//big-walk-for-little-
