Huntington's Tasmania in Burnie, Tasmania | Non-profit organisation

Huntington's Tasmania

Locality: Burnie, Tasmania

Phone: +61 3 6431 3403

Address: 11 Wilson Street 7320 Burnie, TAS, Australia

Website: http://www.huntingtonstasmania.org.au/

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25.01.2022 Take a moment to take a breath. And find some you time with Headspace.

24.01.2022 https://abcnews.go.com//living-huntingtons-disease-71603337#

24.01.2022 Earlier this week Roche announced that they would stop administering the treatments or placebos to patients in the GENERATION HD1 trial. Since this news was released Australian clinicians, state organisation leaders, and Huntington’s researchers have been meeting on teleconferences to discuss what this means for the Australian Huntington’s disease community. To read more please click on the link below. https://huntingtonstasmania.org.au/an-open-letter-to-the-a/

23.01.2022 Very good update

23.01.2022 As part of Mental Health Week 2020, families and friends of someone with mental ill health are invited to attend an annual forum hosted by Mental Health Familie...s and Friends Tasmania The speakers for the forum are: Leigh Delaney - President, MHFFTas Dr. Aaron Groves - Chief Psychiatrist Tasmania Alison Salisbury - Hocking Community Award 2019-2020 Adie Gibbons - Clinical Executive Director, State-wide Mental Health Services (North) Liz Everard - Hocking Research Grant recipient- Care Farms research Kate Shipway - Carer Representative Zoe Bok and Grace Phibbs Engagement Project Officer and Project Officer - MHFFTas To register: bit.ly/annualforumMHFTTas Care2Serve

23.01.2022 The latest from HDBuzz Changing jobs: converting other cell types into neurons FULL STORY: https://en.hdbuzz.net/287 #HuntingtonsDisease #LetsTalkAboutHD #HDSAFamily #PartOfTheFamily

22.01.2022 https://www.huntingtonsvic.org.au//taking-part-in-a-hd-cli

20.01.2022 https://facebook.com/events/s/dancing-at-the-vatican-online-/1169739926692785/?ti=as

20.01.2022 1 in 5 Australians are affected by mental illness annually, yet many don’t seek help because of stigma. There are many services you can reach out to including Huntington's Disease Tasmania. This World Mental Health Day October 10 the message is simple: Look after your mental health, Australia.... Lifeline 13 11 14 24 hours a day 7 days a week Lifeline Text 0477 13 11 14 6pm to midnight (AEDT) 7 nights a week Beyond Blue 1300 22 4636 www.beyondblue.org.au Butterfly Foundation National Helpline 1800 334 673 Carer Support 1800 242 636 or 1300 554 660 SANE Australia Help Centre 1800 187 263 www.sane.org Suicide Call Back Service 1300 659 467 Kids Helpline 1800 55 1800 www.kidshelpline.com.au MensLine Australia 1300 789 978 QLife 1800 184 527 Open Arms Veterans and Families Counselling 1800 011 046

19.01.2022 As the end of the financial year approach Huntington's Disease Tasmania would like to say a very big thank you to individuals and work places that have donated through the Good2Give platform over the past 12 months. Good2Give is a workplace giving platform, people can donate to their favourite charities directly from their pay, pre-tax. For more information please click on the link below. ... Good2Give #thankyou #donate #supporttasmanians #huntingtonsdiseasetasmania https://good2give.ngo/giving/donors/

18.01.2022 Understanding mental health if it be your own or supporting others can be lifesaving! To attend a 3 hour FREE session on Understanding mental health issues by Wellways, please contact David. (Details below) Open to anyone who would like to:... increase their understanding of mental health and mental illness increase their understanding of symptoms and helpful interventions When: Wednesday October 7th 10-12:30 PM Where: The Tamar Room, Launceston Albert Hall RSVP: David - [email protected] #mentalhealthawareness #understandmentalhealth #freesessions #healthissues #suicideprevention

18.01.2022 Did you know 1:6 Tasmanian's are family carers?

18.01.2022 Hi HDYOers, As we come to the end of Friday we hope you all enjoy your weekend as much as you can at the moment! It's important to try and find time for #selfcare too #cureHD #cureJHD #rarediesease #hope #courage #brave #friendship #community #support #awareness #bekind #relax

17.01.2022 Are you a carer? Have your say.

16.01.2022 Scholarships for Young Australians worth up to $5,000 a year What is the scholarship program? Part 1: Scholarship The program provides scholarships up to $...5,000 a year, for around 400 young Australians to undertake an Approved Course of Study. Part 2: Internship The chosen recipients also complete a 20 day paid internship, for which they receive an additional $3,000. Eligibility: Aged 15 - 24 years old, or exited the Australian Defence Force in the last two years young Australians with a disability Indigenous young Australians Are not in full-time work or school at the time of applying Intend to apply for an eligible VET qualification at the Certificate III to Advanced Diploma level which will lead to an occupation in demand Live in Burnie, Tasmania To know more visit, https://www.busyatwork.com.au/scholarship-program-for-youn/ Alternatively contact The Busy Group: 13 28 79 / [email protected]. Care2Serve Commonwealth Scholarship Department of Education, Tasmania #youngcarers #carersinaus #thebusygroup

14.01.2022 Here is a sneak peak of merchandise that will be available for Huntington's awareness month (May) Zilla is loving her new bandana in HD colours

13.01.2022 Have you checked out HDYO LAND on HDYO's website yet? Its a great place to take kids for an educational and interactive game about Huntington's Disease (HD). He...ad to HDYO.org to check it out. On the website, you can find a range of information and resources for different stages and people in your life. #cureHD #cureJHD #unitethefight #youngpeoplematter #rarediesease #hope #Huntingtonsdisease #charity #nonprofit #international #courage #brave #changemakers #friendship #community #support #awareness #bekind #HDHero #interact #videogame #educate #HDYOland

12.01.2022 A message from Scott Morrison to our carers

11.01.2022 After a summer hiatus, the HD Insights Podcast is back! Download and listen to the latest episode featuring Dr. Dietrich Haubenberger, Medical Director at Neuro...crine Biosciences. https://link.chtbl.com/HDInsightsPod Catch up on all episodes and transcripts from your desktop - https://huntingtonstudygroup.org/hd-insights-podcast/

11.01.2022 Dear Caregiver! make sure you take time for yourself too. Your health, mind, sleep and body are also very important! We are also here for you if you ever need to talk or things get too much sometimes #cureHD #cureJHD #hope #community #support #bekind #HDHero

11.01.2022 REGISTER TODAY Ask The Scientist ANYTHING! Tuesday, September 8th at noon (ET) Drs. Ed Wild, Jeff Carroll, Rachel Harding & Sarah Hernandez will answer your que...stions live! REGISTER AT https://hdsa-org.zoom.us//regist/WN_dRM9-wPGQ3SUpJNJa16zQg #HuntingtonsDisease #LetsTalkAboutHD #HDSAFamily #PartOfTheFamily HDBuzz

10.01.2022 What a great opportunity! FREE ONLINE training sessions by Palliative Care Tasmania Click on the below for more details and to register! ... #carers #palliativecare #FreeOnlineTraining #huntingtonsdisease

09.01.2022 Come join us for Chair Yoga and Mobility with Natalie from Sacred Mountain Yoga. Click on the link below to register/join: tJUpcO6trzIvGNMCX6dcNGtTWp4a70BPcazf

08.01.2022 Do you Live in the Devonport/ Ulverstone area? This is a great opportunity for male cares to connect with other males in the area. #reachout #community #connect #malecarers #support

07.01.2022 I wonder if there are any bikers out there that may complete a Tassie tour to raise awareness and funds for Huntington's Disease Tasmanai..? All funds raises go to our Tasmanian HD sufferers and support for their families. #tagabikermate #raiseawareness #huntingtonsdiseaseawareness #huntingtonsdiseasetasmania

07.01.2022 Many relationships have their challenges, these young couples have shared how HD impacts their life and what it was like telling their partner about the hereditary disease. https://m.youtube.com/watch?v=xM48ao_sHVk

07.01.2022 Thank you Clare. Be sure to tune in on the 21st of July! https://guitargirlmag.com//country-music-star-clare-dunn-/

06.01.2022 Know of a carer aged between 12 and 25 years who are currently, or interested in continuing their education? Applications for the Young Carer Bursary open... 28 July! The Young Carer Bursary is a $3000 grant that allows young carers to continue or re-engage in study alongside their caring role. For more information, check out YoungCarersNetwork.com Alternatively, if you have any questions or need help with the application process feel free to give us a call on 6144 3729!

05.01.2022 VIRTUAL SUPPORT available 24 hours a day, 7 days a week!! How to connect: 1. Open Skype and sign in. 2. search for HDYO - [email protected] - and click.... 3. Say hi! Do not hesitate to reach out. There’s not problem too big, or too small. #skype #connect #checkin #chat #listen ##support #share #cureHD #cureJHD #unitethefight #youngpeoplematter #rarediesease #hope #Huntingtonsdisease #charity #nonprofit #international #courage #brave #changemakers #friendship #community #support #awareness #bekind #hangout

04.01.2022 Congratulations to our 2020 Elected Board Members Chair - Pam Cummings Vice Chair - Alek Long Secretary - Wendy Weeks ... Treasurer - Bek McLean Public Officer - Paige Dale See more

03.01.2022 Anyone with HD knows it’s true.

03.01.2022 BREAKING NEWS The debate is finally over: Voluntary Assisted Dying is now law in TASMANIA ... Tasmania - today, we have ALL won! Today, both the proponents, and opponents of voluntary assisted dying laws will have their individual choices respected to decide how, where, when and with whom they end their life, following a terminal diagnosis. This result is the legacy of all of our loved ones, that died without this compassionate end of life choice. But, the pain and trauma experienced by each of them, has not been in vain. The stories of their courageous battles have helped change the invisible face of terminal suffering and the concerning dark conversations that have gone on needlessly in the absence of this law. Our loved ones have helped pave the way to allow us this profound freedom of choice - the absolute reassurance that we will never have to suffer intolerably, following a terminal diagnosis. Thank you to our MP’s for choosing not to turn your back on people like our Mum who need our help. Thank you for listening to the majority of your constituents and voting accordingly. And of course, thank you to all the organisations involved in not just this debate, but the previous three attempts. A huuuge thank you and congratulations to Mike Gaffney and Bonnie, who have been instrumental in getting it to this point. You have made history! You should be so proud! Thank you endlessly to every supporter who has raised their voices, donated their time or services, offered advice, sent MP emails, proudly erected signs, shared personal experiences, written to the media, distributed flyers, displayed bumper stickers, donated money, AND kept the VAD conversation alive. You have ALL filled our hearts with so much love and light. For us, this journey has been so much more than VOLUNTARY ASSISTED DYING. I think our Mum knew we needed you all this last year to help us through the hardest experience of our lives We cannot change the past. But we have changed the future. Mum, you are the spark that lit our fire. Where there is a will, there is a way.

02.01.2022 https://www.news-medical.net//Study-finds-evidence-of-gut-

01.01.2022 The Australian Government’s National Youth Taskforce is developing a National Youth Policy Framework. The framework will outline the Australian Government’s com...mitment to young people and the policies and programs that will help improve their lives. To assist young Australians aged 18 to 30 to provide direct input on the Framework and help shape its development an online survey https://healthau.au1.qualtrics.com//form/SV_4TRU5F3Da6lfkzj has been developed. The survey provides a meaningful opportunity to contribute to the government priorities, policies and programs that young Australians. The survey will be open until Monday 12 October 2020. While the survey is open to those aged 18 and over, younger people can still take part. They encourage those who are aged 15 to 17 years to email [email protected] to discuss how they can get involved. Care2Serve #nationalyouthprogram #youth #youngcarers #surveytohelp #YouthTaskForce #CarerSupport #carers #careraus

01.01.2022 Tasmanian youth, it is your time to shine!