Migraine & Headache Australia in Crows Nest, New South Wales, Australia | Community organisation

Migraine & Headache Australia

Locality: Crows Nest, New South Wales, Australia

Address: 37-43 Alexander St 2065 Crows Nest, NSW, Australia

Website: https://headacheaustralia.org.au/

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• Non-profit organisation
• Charitable organisation
• Community organisation
• Social service
• Charity organisation

25.01.2022 Today is the 1st day of Migraine & Headache Awareness Week. To kick off the week, join us tonight for a summary of the latest research and findings from around the world, live at 7:00 pm. Free registration closing soon: https://buff.ly/2QKrURt #migraine #headache

25.01.2022 Sophie Scott, the national ABC health reporter, will host a conversation about living with migraine with a patient panel including a nurse, ex-athlete, and author. Includes audience Q&A. Free registration ends soon: https://buff.ly/2QKrURt #migraine #headache

25.01.2022 We understand that many people in the community are frustrated by the time required for listing despite approval being recommended by the Pharmaceutical Benefits Advisory Committee (PBAC) over 12 months ago. Some patients and carers may not be fully aware of the processes in place required by all new listings to proceed even after a positive PBAC recommendation has occurred. That said, Migraine & Headache Australia is working collaboratively with government to help ensure that the voice of 5 million Australians is represented and heard by the policymakers. Listing this treatment is a nonpartisan issue:

24.01.2022 What questions do you about migraine or headache? During each of our live and online sessions for Migraine & Headache Awareness Week we will have open Q&A so you can get answers from the experts. Registration is free at: https://buff.ly/2QKrURt #migraine #headache

24.01.2022 Here's a short message from our CEO, Trevor Thompson. #headache #migraine #brainresearch #australianresearch

23.01.2022 You are always welcome to come and join us in the Headache Australia Support Group on Facebook.

23.01.2022 Interesting to see some of the treatment options available in the USA but not yet in Australia (such as Ditans). We hope to see them arrive soon!

22.01.2022 Great report using US-data from The Headache & Migraine Policy Forum showing the prevalence of comorbid conditions among those with chronic migraine. In Australia, the data might be slightly different but it paints a clear picture about the multiple challenges faced by this group.

21.01.2022 Our pets can be such a comfort when we feel unwell. They provide judgement free affection. They can help reduce our stress. Tell us how your pet helps you.

20.01.2022 The webinars from Headache Week 2020 are now up on the website for you to watch or see again. Top Australian specialists. http://ow.ly/BxG150CubCq

19.01.2022 Did you see Time magazine's best inventions of 2019? It featured this device which has just published some more positive research. It's not yet available in Australia, but fingers crossed it will arrive soon!

19.01.2022 Uncover other headache types including Cluster headache, New Daily Persistent Headache, Medication Overuse Headache, and more at 12 (noon) today. Includes audience Q&A with a headache specialist. Free registration ends soon: https://buff.ly/2QKrURt #migraine #headache

19.01.2022 At 6:00 pm tonight we have a headache specialist speaking live on the latest new treatments for migraine and headache. Includes audience Q&A. Free registration ends soon: https://buff.ly/2QKrURt #migraine #headache

18.01.2022 How many of these options have you tried?

18.01.2022 Migraine & Headache Awareness Week 2020 is coming soon in September. Stay tuned for details via social and make you sign up to our Newsletter to be the first to hear about our latest events, resources, news, research and treatment updates. Sign up at https://buff.ly/2RB4b94

17.01.2022 It's great to see more and more people normalising migraine. Have your say, do you think KK makes a good migraine advocate and ambassador? #migraine #advocacy

17.01.2022 When a tool or medicine that provides pain relief is unexpectedly taken away, it has a huge impact on the management of our disease. We want to share with you that eNeura, the maker of SpringTMS and sTMS mini, is no longer operating. This device had been released in the US. We understand that people in this community rely on these tools to help manage migraine disease. Read more about what this means for patients.https://buff.ly/2RJvfAO

17.01.2022 Thankyou to Teva Pharma for supporting some of our migraine community through the Ajovy Patient Familiarization Program. We heard news from Teva about the program this week. "As part of our ongoing commitment to the migraine community, Teva Pharma Australia Pty Ltd. has proudly supported Australian migraine patients through the AJOVY PFP since October 2019. The purpose of Teva’s PFP was to enable doctors to gain real world experience and evaluate the suitability of AJOVY for ...their migraine patients. Having achieved this purpose, the program will now close at the end of 2020. Enrolled PFP patients received AJOVY delivered direct to their home or nominated address, at no cost, and had access to free nurse injection training during the PFP. We have informed enrolled patients and their treating doctors about the program closure. Patients should book a follow up appointment with their treating doctor to discuss what this change means to them. Teva understands the importance of the availability of migraine treatments, whether through the Pharmaceutical Benefits Scheme (PBS) or private prescription. Our discussions with the Department of Health regarding PBS listing continue, and we remain committed to securing access to AJOVY via the PBS as soon as possible."

15.01.2022 Botox is available on the PBS for qualifying patients with chronic migraine. It is administered by a neurologist trained in Botox use. Treatment is every 12 weeks, and it may take 2-3 rounds of treatment to see if it is going to be effective for you. You can still use other preventative and abortive medications if necessary whilst on botox treatment. Have you tried botox for chronic migraine? How did you go? There is an article on our website for further information http://ow.ly/Knat50CuiU1

15.01.2022 Discover how COVID has affected Australians living with migraine and headache disorders in today's live webinar with Dr. Bronwyn Jenkins. Includes audience Q&A. Free registration ends soon: https://buff.ly/2QKrURt #migraine #headache

13.01.2022 Cluster headache is one of the most debilitating and painful headache disorders; as always our educational materials aim to increase awareness and de-stigmatize and so this infographic serves to provide a "101" on cluster headache.

13.01.2022 Migraine and headache can cost us time away from life. What has been the cost of having a headache disorder for you? Missed career opportunities? Have you missed out on some of the special times with family and friends? Time for your favourite hobby?

13.01.2022 The University of Newcastle is calling for volunteers for a study of menstrual migraine. Read more here: https://headacheaustralia.org.au//RESFORMM-Headache-Austra If you have any questions or want to participate please contact the researchers directly.

13.01.2022 Even a world no.1 can get migraine. Great to see migraine getting coverage in People magazine. It deserves more attention and support.

13.01.2022 We have an upcoming advocacy opportunity for someone who lives in North Sydney to join several members of the Migraine & Headache Australia team in a local visit to the Federal MP to discuss migraine. We would love to hear from anyone living in that area with migraine to contact us https://buff.ly/3fbNGXX

12.01.2022 Well now, here is some interesting research about paediatric migraine. The results are changing thoughts about management of migraine in children. #childrenwithmigraine http://ow.ly/aQi450CgfEr

12.01.2022 Today is June 21, #ShadesForMigraine Show you care by wearing a pair! Take a photo in your sunglasses and dont forget to get your friends, family and co-workers in on the fun. Post your photo on social media with the hashtag #ShadesForMigraine and encourage others to take part!

12.01.2022 The migraine hangover. Yuck! Medically called postdrome phase. You may feel fatigued and find it difficult to concentrate. You might still feel sensitive in some ways. How do you feel when the headache passes? What are your tips for a gentle recovery day?

12.01.2022 Has COVID-19 affected your migraine condition for better or worse? Let us know in this short poll here: https://www.surveymonkey.com/r/K7YZPPD

12.01.2022 Tension headache is the most common type of headache. Pain and tightness may be in the scalp, neck and shoulders. Some people with migraine also get tension headache. Posture, stress, anxiety and fatigue are some of the triggers. Treatment can include relaxation and breathing exercises, heat packs, OTC simple analgesics, massage and psychological approaches. More on our website. How's your posture now?

11.01.2022 Recently published in the journal of Headache, here's what a trained advocate and migraine specialist says is needed to make a real difference for migraine https://buff.ly/2EBDtHF #migraine #advocacy

11.01.2022 At 12 noon today we have a live webinar with the Deputy Chair of the Pharmaceutical Benefits Advisory Committee to provide an update on the New Migraine Treatment Submission & Process. Includes audience Q&A. Free registration ends soon: https://buff.ly/2QKrURt #migraine #headache

11.01.2022 Do you wake up refreshed or tired in the morning? #migraine #sleep (Fact Source: My Migraine Voice Study, 2018.)

11.01.2022 Have you seen the all-star line up of headache specialists and experts featuring this year at Migraine & Headache Awareness Week? Live webinars start Monday 14th Sept. Make sure you register to attend at https://buff.ly/2QKrURt

11.01.2022 In January 2020 a strategic document was submitted to the Australian Treasury Department for consideration in the budgetary planning for the next financial cycle. The purpose of this document is to alert Federal policymakers and funding decision-makers to the cost of chronic migraine in Australia. Read this submission to understand why action on migraine is important and urgent https://buff.ly/2XfquCa

10.01.2022 A new website has been made available by our friends in the USA for employers and employees for migraine at work.

09.01.2022 Migraine is more than just a headache, it's a hereditary neurological disease that affects people both physically and mentally. In addition to the pain of migraine attacks, the disease negatively affects patients’ ability to work, social relationships with family and friends, and ability to provide basic self-care and to undertake normal life activities. Source: Institute for Patient Access #migraine

08.01.2022 Migraine is a neurological disease that can affect all 5 senses.

07.01.2022 These two Australian researchers are working on the genetics of migraine and collaborating internationally to help find answers.

07.01.2022 It's important to realize that chronic migraine that is out of control is depressing. That's a human response to a difficult situation. But if you have depression you're at a higher risk of suicidal ideation... make sure you know where to seek help. Help is only a phone call away (Lifeline) 13 11 14

07.01.2022 You aren't alone. 4.9 million Australians experience migraine.

06.01.2022 Migraine & Headache Awareness Week is coming up Sept 14th-18th. Register now to attend live online seminars with headache specialists. See the website for topics, speakers and more! Registration is free when you sign up today at: https://buff.ly/2QKrURt #migraine #headache

05.01.2022 [From our friends in the USA] The @SocietyForWomensHealthResearch has created two free, expert-vetted Migraine Patient Toolkits to help women optimize their diagnosis, treatment, and lifestyle to live well with migraine. Please note some of the information around access may or may not apply in Australia. The first toolkit is designed to assist you with navigating the health care and insurance systems and the second toolkit emphasizes strategies beyond medical care that can improve your overall #wellness. Download the toolkits:

04.01.2022 A student from Charles Sturt University needs help with some research investigating trends in migraine in an Australian population. Can you help? For more details: https://headacheaustralia.org.au//Kelly-Participant-Recrui

03.01.2022 We are looking forward to this! Have you registered yet?

02.01.2022 Positive news for those migraine who still haven't found a treatment that helps prevent attacks. A new gepant treatment, Atogepant, has progressed another stage closer to release. #migraine

02.01.2022 We have been asked by the University of Newcastle Clinical Nutrition Research Centre for some help with research. Please contact the researcher directly. Women from across Australia (aged between 18 to 50) who suffer from menstrual migraine are invited to participate in a clinical trial to investigate whether a nutritional supplement (resveratrol) can prevent menstrual migraine. Participation for this clinical trial will be online and by mail. You will not be required to atte...nd the research centre. Participants who are eligible for the trial will be sent supplement capsules to take daily for six menstrual cycles. For further information, including eligibility, please contact Ms Jemima Dzator at the University of Newcastle by emailing [email protected] or phoning (02) 4921 8616. Read more: https://headacheaustralia.org.au//University-of-Newcastle-

01.01.2022 We have just updated our Cluster Headache article on our website. https://headacheaustralia.org.au/headache/cluster-headache/