Heart and Lung Transplant Trust (Victoria) Inc in Melbourne, Victoria, Australia | Community organisation

Heart and Lung Transplant Trust (Victoria) Inc

Locality: Melbourne, Victoria, Australia

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• Non-profit organisation
• Charitable organisation
• Community organisation

25.01.2022 Great opportunity to share your thoughts for improvement: Have you, a family member or significant other had a patient experience at Alfred Health during the pandemic ? Alfred Health's Patient Experience Survey (PES) now includes five extra questions to help us understand our patients experience during the pandemic.... Our volunteers are unable to conduct the survey with patients, carers or family members at present, so we would like to encourage our patients, carers and family members to complete a survey themselves. If you would like to tell us about your experience during the pandemic click this link: alfredhealth.org.au/survey

22.01.2022 Meet Nic Barnes. Nic grew up with Cystic Fibrosis and in July 2017 while holidaying with her husband Ian, her life changed forever. During a holiday to Port Douglas, one day they were walking an hour on the beach, the next they were bed ridden and unable to walk 10m. After rushing to the Alfred, Nic and Ian were diagnosed with Influenza A. Luckily for Ian he was fit and otherwise healthy, so after a couple of weeks he bounced back to full health. For Nic however, it was a di...fferent story. Nic has generously shared her transplant story in the latest edition of the Circulator. Over the next few years Nic had a double lung transplant, learnt to walk again after being bed-bound for a long time, and in underwent a kidney transplant. Did we mention Ian donated his kidney for the transplant?! Right through her journey Nic was supported by Ian, her family and friends and the amazing team at the Alfred and you can read all about it in the 100th edition of the Circulator. https://www.hlttv.org.au/newsle/quarter-2-2020-issue-no-100 Thanks for sharing your story Nic

22.01.2022 A great short-read for #DonateLifeWeek from the team at The Alfred. Keep an eye out for some more heartwarming stories from transplant recipients as the week continues.

14.01.2022 It's been a pretty full on couple of days for people living in Victoria. There's a lot of change and uncertainty in the world right now. And for our members, we know this is adding to what is already a stressful time when you're on your transplant journey. Looking after our mental wellbeing during these stressful time is so important. So to help, we spoke with Karen Linehan, Health Psychologist at The Alfred about what strategies of self-care she recommends.... Stay safe everyone https://www.hlttv.org.au//tips-to-help-manage-anxiety-in-u

11.01.2022 It's #DonateLife Week! A chance to raise awareness of organ donation and encourage everyone to register as an organ donor. Here are some things you can do to help the 1,600 Australian’s currently on the wait-list for a life-saving transplant: - If you want to be a donor make sure you register and tell your family; it only takes a minute at donatelife.gov.au - Already registered? Talk to your family and friends. And encourage them to register too. - Are you an organ donor recipient, and know someone who is? Share your story on social media to spread the life-changing stories of organ donation

10.01.2022 We had our quarterly Committee meeting tonight - great discussion with some fabulous people! With our Committee meetings all online at the moment, it's never been easier to join the volunteer HLTTV team! If you're interested, send us a direct message or pop a comment below and we'll be in touch.

09.01.2022 We're delighted to share the Spring edition of the HLTTV’s Circulator with you. It’s wonderful to feel some hope after some very long, hard months here in Melbourne, and this edition of the Circulator features many stories of hope, determination and resilience from those on the transplant journey. We were particularly moved by the love, faith and hope shared by Michelle Richter in ‘A mother’s love’. Just beautiful.... Other highlights include: - A feature on the Ventricular Assist Device program at the Alfred - Stories written and shared by our generous readers - A celebration of long-term transplant anniversaries - A spotlight on physical and mental health with stories on osteoporosis, skin care and advice on building and maintaining your resilience after an organ transplant - And so much more. You can download the full edition here https://www.hlttv.org.au/newsle/quarter-3-2020-issue-no-101

07.01.2022 We're excited to share the 100th edition of The Circulator! It’s a brilliant edition that has been produced with the current times in mind. Download it now - https://www.hlttv.org.au/newsle/quarter-2-2020-issue-no-100... We’ve included uplifting stories of transplant recipients celebrating their second chance at life. These are the happy stories we truly need to share, now more than ever. There’s also practical stories to help you navigate the world we find ourselves in, including accessing medications from remote locations, the Safety Net Scheme, and tips for managing anxiety. We really hope you find this edition equal part heart-warming and practical. I’d especially like to thank our members who have shared their personal stories, and our ever-fabulous editor Graeme Klemm for creating another brilliant edition.

07.01.2022 The HLTTV AGM is coming up in Tuesday 11 November, and it would be wonderful to have a few more ‘hands on deck.' We’d love to have a few more ordinary committee members join the team, particularly if you’re interested in providing peer support. All positions become available at the AGM, so if you fancy yourself as President, or even better, Vice-President get in touch with our brilliant Secretary, Maarit ([email protected]).... This year's meeting will be held online via Zoom, so you can join from the convenience of your home office or comfort of your couch. 2021 is going to be a big year! You can find all the details here - https://www.hlttv.org.au/eve/2020-hlttv-committee-meeting-4

05.01.2022 As #DonateLife weeks comes to a close, here's one more story about how life-changing organ donation can be. Petra has a truly amazing story, and we're proud to say she's also our fabulous Membership Officer!

05.01.2022 Daniel Paynter was kind enough to share his heart-warming transplant story for the 100th edition of The Circulator. In his own words, Daniel writes I was a young, fit, carefree, and thought ‘I am invincible.’ Then it all changed. I experienced ECMO, danced with VAD life for a short time, received my gift, met a beautiful young woman, fell in love, and recently got married. Read Daniel’s full story on page 4-5 of the latest Circulator - https://www.hlttv.org.au/newsle/quarter-2-2020-issue-no-100

01.01.2022 This year's Lung Transplant Research Presentation, hosted by the Lungitude Foundation, will be online - so you can hear from world-class lung transplantation researchers and specialists from the comfort of your home! Check out all the details below.