HNEkidshealth in New Lambton, New South Wales, Australia | Medical research centre

HNEkidshealth

Locality: New Lambton, New South Wales, Australia

Phone: +61 2 4921 3000

Address: John Hunter Children's Hospital 2305 New Lambton, NSW, Australia

Website: http://www.hnekidshealth.nsw.gov.au/

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25.01.2022 When Caleb and his twin brother were in utero, they shared a placenta (twin to twin transfusion syndrome), where one twin usually gives away more blood than they receive, leading to a number of medical issues. For Caleb, at some point in utero he had a stroke, causing a brain injury, which led to the development of cerebral palsy and epilepsy. Epilepsy is a long-term brain condition where a person has repeated seizures. It affects about 3 in every 100 Australians.... Caleb takes medication to control his seizures, and is cared for by the Paediatric Neurology Team at the Children's Hospital in Newcastle. Now in year 10 at high school, Caleb hopes to one day be an artist.

25.01.2022 The Fairy Garden at the Children's Hospital in Newcastle has today reopened. Work was completed ahead of time thanks to GWH Build and their sub-contractors, ensuring families can enjoy the new space over the Christmas period and beyond. Some new features of the garden include wider paths that now allow bed access, a smoother surface for wheelchairs, more seating, a new undercover space, ground lights to illuminate the space in the evening and no more mossies!... We hope all our families enjoy the new space.

24.01.2022 It's been 10-months since the Newcastle Knights have been able to visit the kids at John Hunter Children's Hospital because of COVID-19. Today, 23 of the players put their hands up to visit the kids in hospital, kids like 5-year-old Ashton who is being treated at the Children's Hospital for T cell Lymphoblastic Lymphoma. As always, the players did a great job and left a trail of very happy kids.

22.01.2022 A classic Christmas holiday injury. Jessica fell off her skateboard when riding on the footpath, which led to a distal tibial fracture, which are close to or involve the ankle joint. The injury required surgery, an open reduction and internal fixation, which means surgeons needed to reposition her fractured bones and hold them in place.... Jessica was actually lucky though, she wasn't wearing a helmet and thankfully didn't land on her head. As your kids head out the door, please remind them to wear their protective equipment.

22.01.2022 21.76 litres of breast milk on its way to help mothers of premature babies. When Richelle's baby was born at 26 weeks gestation, she spent the next 13 weeks in the NICU at the Children's Hospital in Newcastle. During that time Richelle was producing such a large amount of breast milk it was able to collected and donated to the Red Cross Milk Bank. In Richelle's circumstance she fit the eligibility criteria to be a donor and the NICU assisted in collected and storing her breas...t milk, which was then sent to the Milk Bank, processed, tested and sent to another parent in need. Some mums don't produce milk straight away when their baby is born. Donated milk is an alternative way to provide a child all the goodness that comes from breast milk. Great work Richelle! To learn more about the Red Cross Milk Bank visit http://bit.ly/MilkBankAus.

21.01.2022 Put your hands together for Jye who is about to transition from his children's healthcare specialists to adult specialists. Now 18, Jye was diagnosed with a brain tumour when he was four years old. The tumour was surgically removed from his brain, which also required radiation treatment. During treatment Jye had a brain bleed, leading to a diagnosis of Dystonic Quadriplegia Acquired Brian Injury, meaning he has an involuntary movement disorder that affects the use of his arms... and legs, requiring a wheelchair. Jye has been under the care of the Children's Hospital's Oncology Service, the HNEkidshealth Paediatric Brain Injury Rehabilitation Team, Toxin Clinic, Children's Hospital Orthopaedic Service, Neurology and General Paediatrics. He also has support through NDIS, which includes physiotherapy, support workers and allied health therapists. For many years Jye has been unable to stand, but set a goal this year to stand up so he could help his mum care for him. Working together, his HNEkidshealth team and NDIS team devised a plan to make this happen. Jye's therapy and botox injections required a lot of determinations, but before 2020 had concluded, Jye was up and standing with the support of what is called a RaceRunner. Massive effort Jye, well done!

21.01.2022 17-year-old Alissa currently requires five injections of insulin a day for her Type 1 diabetes. She has been living with the autoimmune disease now for 10 years. When she was first diagnosed she would check her blood glucose levels using a finger prick meter before meals, before bed and overnight at least twice a week. Thanks to advancements in diabetes management, she now uses real-time continuous glucose monitoring, allowing her blood glucose to be measured 24/7, where she ...only needs to confirm levels with a finger prick before eating or when reading low or high levels. Managing Type 1 diabetes can be challenging, time consuming a stressful for children and young people. Today is World Diabetes Day and today around Australia there are around 126,000 Australians living with Type 1 diabetes, with over 400 of those aged under 18 seen by the Diabetes Team at the Children's Hospital in Newcastle.

21.01.2022 The Fairy Garden at the Children’s Hospital in Newcastle is having a makeover. Thanks to the team at GWH Build and their sub-contractors, this massive undertaking is being done at no cost to the Children’s Hospital. The refurbishment is now well underway, with the aim of having the new and improved Fairy Garden open again to patients and families by mid-December.

21.01.2022 Radio presenters by morning, superheroes after breakfast. Nick (Thor), Jess (Wonder Woman) and Ducko (Spiderman) from Hit106.9 Newcastle joined the Hunter Heroes for a very special visit to the Children's Hospital in Newcastle. The smiles say it all.

19.01.2022 It's day 100 in hospital for baby Kayden and ever so close to heading home. Born very premature at 25 weeks gestation in July, Kayden's time in the NICU at the Children's Hospital in Newcastle has been a rollercoaster for him and his parents Rebecca and Jordan. Being born so early can often lead to many medical challenges. Kayden's challenges have included a pulmonary haemorrhage (bleeding from the lung), sepsis (body's response to infection), necrotising enterocolitis (where... a portion of the bowel tissue dies) and lung disease (premature babies are at a higher risk as their lungs aren't yet fully developed. If the above wasn't enough for this little fighter, he has been ventilated, needed CPAP (Continuous Positive Airway Pressure), high flow oxygen and low flow oxygen. Soon the family will be heading closer to home in Tamworth and are looking forward to be out of hospital and spending Christmas together as a family in their own home.

19.01.2022 Getting your licence, car or motorbike is super exciting. So exciting, the first thing you want to do is go for a ride or a drive, which is exactly what 17-year-old Cameron did when he got his motorbike licence a few months ago. Cameron was only heading up the street and didn't think he needed his normal protective gear for the short trip. Soon after jumping on his bike he was t-boned by a car, which due to having canvas shoes on, led to a degloving of the skin on his foot an...d extensive damage to his toes. He has since required seven surgeries, which included amputation of four toes, muscle flap grafts and skin grafts, before beginning a lengthy rehabilitation process. When you first get your licence, be excited, it's a great achievement, but never forget to put your safety and the safety of your friends and other road users first.

18.01.2022 Have you been wondering how the Children's Hospital's Fairy Garden makeover is going? The team at GWH Build and their sub-contractors have been working very hard over the past month and we are now only weeks from completion. Check out the video to see how it has come along from start to now.... Our next update will be a brand new Fairy Garden open for the kids and families!

17.01.2022 Sometimes you are a born supporter Little Ari at only three days of age was expected to watch his first Newcastle Knights game at home, however, after being born with severe respiratory distress he was admitted to the NICU at the Children's Hospital in Newcastle. Ari required breathing assistance from CPAP for a few days, along with treatment for jaundice.... He is now off CPAP and hoping to be home in time to watch the Knights play the Tigers next week.

17.01.2022 Merry Christmas Today many children will wake or spend their first Christmas in hospital. It can be a difficult time for families, being in a situation they didn't plan for or expect. 31-week-old Levi is spending his first Christmas in the Neonatal Intensive Care Unit at the Children's Hospital in Newcastle, with his parents right by his side.... Levi was born very premature at 26 weeks and had a tough first few weeks. Thankfully, he has now turned a corner and is stable, requiring continuous positive airway pressure. We made sure though that Santa was told about all the kids in hospital and that he made a special visit overnight.

16.01.2022 Wish Tylah a happy third birthday! Three years ago Tylah was born with the birth defect called gastrochisis, where the intestines are outside the abdominal cavity. Tylah was only a few hours old when she had the first of many surgeries and six months in the NICU at the Children's Hospital in Newcastle.... Treatment for the birth defect included a staged reduction of her intestines, which means (see picture) the intestines are placed in what's called a silo and gradually reduced into the abdominal cavity. Once all her intestines where back in place, the opening was then closed. Tylah had a complex case and was exclusively tube fed for over two years. Today, you wouldn't know Tylah faced such a difficult start to life, she is a happy, healthy and thriving toddler. Happy birthday Tylah

16.01.2022 10-year-old Lachlan hasn't seen this photo of himself before, which was taken by the Cleft Palate Team at the Children's Hospital in Newcastle. Lachlan was diagnosed with a cleft antenatally by ultrasound and following birth was found to have a bilateral cleft lip and palate, meaning the cleft was on both sides. After birth, Lachlan required a special cleft palate bottle and teat to feed, before having surgery at four-months-of-age to repair his lip and at 10-months-of-age to... repair his palate. Since that time Lachlan has been a patient of the Cleft Palate Multidisciplinary Team at the Children's Hospital, which included speech therapy from 18-months-of-age to use his lips and tongue to produce sound. He then required further operations at four years of age and was able to catch up and reach most of his speech milestones by age six. At nearly 11, Lachlan is now moving into the orthodontic phase of his treatment, which requires a plate in the roof of his mouth and braces on his front teeth. When his jaw gets bigger and adult teeth come through, he will need braces again on those teeth. As you can see from that big smile, Lachlan takes it all in his stride and is a great advocate for kids with cleft palates.

16.01.2022 Fred has had a tough few days, with a condition many parents with young children know all too well. The one-year-old has a case of the very contagious hand, foot and mouth disease. One of the most recognisable signs of hand, foot and mouth are the small red dots in the mouth, on the palms and soles of feet that blister and later become ulcers. It can be painful for small children, which can cause distress for both the child and parents caring for them.... Hand, foot and mouth is a very common illness and is thankfully not usually serious, but may be a tough few days for the child and parents. Children may also have a low fever, sore throat, tiredness and may not eat or drink much for a day or two. Paracetamol will relieve fever and discomfort. So what are the red flags you need to watch out for? Dehydration is the biggest concern for Paediatricians. If your child has decreased their fluid intake by 50% and have 50% less wet nappies, you should get your child checked by a medical professional. Remember. Don't send your child back to daycare or school until their blisters have dried, rash is clear and their fever has settled. Until this time your child remains infectious. To learn more about hand, foot and mouth disease check out http://bit.ly/hand_foot_mouth_facts.

15.01.2022 Born at 26 weeks gestation in 2015 and weighing only 490 grams, Lucas is one of the thousands of births who are born preterm each year. Today is World Prematurity Day, with 1 in 10 babies worldwide born preterm each year. Now 5-years-old, Lucas spent 119 days in the NICU at the Children's Hospital in Newcastle. Like many babies born very premature, Lucas' parents experienced the ups and downs of life in NICU.... Today, Lucas is an energetic, happy and social 5-year-old, who loves music, reading, cars, the beach and hanging out with his friends. Was your child a premmie baby? On World Prematurity Day we would love for you to share your story. #WorldPrematurityDay

14.01.2022 Medical Wings first flight to Moree. John Hunter Children's Hospital Paediatric Cardiologist, Dr Jascha Kehr and Paediatric Clinical Nurse Consultant, Helen Stevens, were the first team to use the new Medical Wings service through Little Wings. The specialist team travels to Moree to see children with congenital and acquired heart disease. There is a cluster of children and young people with rheumatic fever and rheumatic heart disease (RHD) in that area, primarily affecting A...boriginal children. RHD as a consequence of acute rheumatic fever (ARF) is a very serious disease which can lead to permanent damage of one or more of the heart valves. It is a chronic condition that requires regular monitoring and sometimes open heart surgery. Having the JHCH team fly to Moree through Medical Wings means the clinic can be undertaken in one day, with Dr Kehr and CNC Helen back at work in the hospital the next day. Previously this would have meant one to two days on the road away from the hospital. It also means the kids needing this service don't need to travel over 500km to see the cardiology team at the Children's Hospital. Thanks to Little Wings and the Newcastle Permanent Charitable Foundation, many of our other services are preparing to book in flights to attend clinics in regional and rural NSW.

10.01.2022 Meet newborn baby Kayce and proud mum Sheena. Kayce and his family are from Moree and are Kamilaroi people, however he was born this week in Newcastle after being antenatally diagnosed on ultrasound with a cleft lip or palate. After birth he was found to have an incomplete cleft lip, which means the gap in his lip ends before reaching his nose.... Kayce will have surgery for a lip repair at 3-4 months of age, which will leave a subtle lip scar. He will then continue to see the Cleft Palate Team at the Children’s Hospital in Newcastle every 1-2 years. Of around 500 children and young people seen by the Children’s Hospital’s Cleft Palate Service, 13% identify as Aboriginal, with the overall prevalence of cleft lip and palate higher among Aboriginal infants. Baby Kayce was not only born during NAIDOC Week and is helping raise awareness of his culture, but it is also coincidentally Cleft Lip and Palate Awareness Week. #NAIDOC2020

08.01.2022 Another day, another pre-Christmas stack 13-year-old Harrison took a heavy fall at a local skate park, which resulted in a distal fibula fracture. Harrison had to wait a number of days for the swelling to go down so he could have surgery, which required internal fixation to hold his bones together.... As you can see, the heavy fall resulted in a broken leg, but his head remained untouched. Harrison was wearing a helmet. Heavy falls such as this without a helmet can result in a brain injury, which could take months, years or even result in a permanent disability. Please remember to remind your kids to wear their protective equipment when they head out for a ride, scoot or skate.

06.01.2022 Look at me now You would never know it looking at her now, but five years ago Annabelle was born with with her intestines on the outside of her body. Her parents were told she had the birth defect following a scan 12 weeks before she born at 33 weeks gestation.... Annabelle would spend the next three months in the NICU at the Children's Hospital in Newcastle where she would have multiple surgeries, require breathing support, be intubated and have a whole lot of other tests her parents became very familiar with in a short space of time. While the memories of that time are forever with her parents, the great news is, Annabelle is now a happy, healthy little girl who is very excited to be starting her first day of big school next year!

06.01.2022 As we start NAIDOC Week 2020, baby Geordi is preparing to head home this week to Port Macquarie. Did you know that 15% of the children and young people admitted to the Children's Hospital in Newcastle identify as Aboriginal or Torres Strait Islander? Geordi was born very premature at 26 weeks back in August and has been at the Children's Hospital in Newcastle for nearly three months.... Coincidentally, Geordi and his NICU nurse Tarni are both Worimi people. The Worimi people extend from Port Stephens to the Lower Mid-North Coast and out as far west as Gloucester. #NAIDOC2020

06.01.2022 Jasper was born with two extremely rare conditions, Costello Syndrome and SCN1A Epilepsy. Having a child with a complex medical condition is both challenging and rewarding for the parents and siblings who show such unconditional love for their special boy or girl. Jasper's mum Sas recently talked about her experience on the Talking in Common podcast, from her pregnancy through to caring for Jasper today.... Sas talks about the difficulties, the challenges and the great medical care they continue to receive from the Children's Hospital in Newcastle. Listen to Sas' story - http://bit.ly/SasLyon-parentingababywithcomplexmedicalneeds.

05.01.2022 All aboard for the final leg of the journey. Courtney and her husband Bernie, with twins Archie and Oscar are heading home to Tamworth on the Air Ambulance. The boys have just spent 10 days in the NICU at the Children's Hospital in Newcastle after being born premature at 31 weeks when Courtney experienced pregnancy complications. ... Courtney experienced twin-twin syndrome (when identical twins share a placenta but receive an unequal blood supply, resulting in the two babies growing at different rates), polyhydramnios (excessive amniotic fluid in the amniotic sac) and hypertension of pregnancy. Thankfully the boys early entry to the world was without complications and after just over a week have flown back closer to home where the remainder of their hospital stay will be in the Special Care Unit at Tamworth Hospital.

04.01.2022 Baby Derrick's mum has rarely left his side since he was born at 25 weeks gestation. With mum's comforting hand resting on her son, he is being cared for in the NICU at the Children's Hospital in Newcastle. Derrick and his family are from Coonabarabran, but was born early on 2 November at Tamworth Hospital, before being transported by the Newborn and paediatric Emergency Transport Service to the JHCH NICU.... Currently, Derrick is on CPAP (Continuous Positive Airway Pressure) in intensive care. Born at 860 grams, he is now weighing 949 grams and is doing well. Derrick's still has a long way to go and will spend his first Christmas in the NICU, with his parents and the great NICU staff caring for him.

04.01.2022 NICU will be forever in their hearts, but home is where the heart is. After 65 days in the NICU at the Children's Hospital in Newcastle, baby Noah today went home with mum and dad, back home where his older brother and two sisters were waiting for him. At 22 weeks gestation, Jessie (Noah's mum) had a preterm rupture of membranes. Noah and his twin brother Mason were born at 29 weeks, however due to the ruptured membranes their lungs didn't develop properly, putting them at ri...sk of respiratory complications. Sadly, a day after birth, Mason became critically unwell and passed away. Noah was also extremely unwell and required extensive medical care early in his life, however his condition gradually improved, with the first 65 days of his life spent in NICU. Noah will continue on low flow oxygen at home and will have lots of follow up care from the team at the Children's Hospital.

01.01.2022 These two little rabbits were due to arrive today, Easter Sunday. However, they had other ideas and were born premature at 25 weeks gestation, two days after Christmas 2020. Oaki and Miley are coming up to 100 days in the NICU at the Children's Hospital in Newcastle and are counting down the days until they can head home. Like Oaki and Miley there will be many kids in hospital today who won't be able to wake up and run around their yard searching for the trail of chocolate le...ft by the Easter Bunny. Thankfully, the Children's Hospital has the Easter Bunny's phone number and made sure a stop was made to all the kids in hospital who are able to have Easter Eggs.