Hope for Jane: Sanfilippo Children's Foundation | Charity organisation

Hope for Jane: Sanfilippo Children's Foundation

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25.01.2022 Best friends forever

20.01.2022 In case you missed last weekend's 'Border Mail', here's Jane and mum on the front page! Did you see the beautiful photos in 'The Weekender' magazine inside? We will treasure these photos for ever. You can read the article via the pdf link below https://d29z5evoj27as.cloudfront.net/244afc37550631cbb8c7c4

17.01.2022 Sister bonding back in Autumn

09.01.2022 WORLD SANFILIPPO DAY IS COMING... The countdown is on for 16 November. This international awareness day aims to spread awareness and spark conversations globally about Sanfilippo Syndrome. World Sanfilippo Day honours children around the world living with Sanfilippo today, and those who have passed away. It's a day to share info or simply tell someone about this heartbreaking form of childhood dementia. You can show your support by:... Sharing a pic on social media in the lead up to and/or on the day Adding the Word Sanfilippo Day frame to your FB profile photo Changing your Facebook Cover photo to the World Sanfilippo Day logo Participating in the "Hands of Hope", with hashtag #HandsOfHope & #WorldSanfilippoDay DOWNLOAD logos, facebook frames and other resources here: https://drive.google.com//1D-ZfivUWhTMRtsqTyGZXCJQkwUHyQn3S

02.01.2022 A PICTURE PAINTS 1000 WORDS... We've nominated this photographic gem of Jill and Jane Kohne Hope for Jane: Sanfilippo Children's Foundation for the EURORDIS Bl...ack Pearl Photo Awards. YOU TOO can nominate a photo of your child and share your rare disease journey with an international audience. Entries close 31 Jan 2021. Go to: https://blackpearl.eurordis.org/photo-award/ The award is open to all nationalities, ages and rare diseases. Public online voting will open on 11 Feb and close on 24 Feb 2021. We'll REMIND YOU when to get voting (This stunning image was taken by Albury-Wodonga photographer, Sarah McFarlane from @documenting-motherhood)