HOPE for Skye: Sanfilippo Children's Foundation | Non-profit organisation

HOPE for Skye: Sanfilippo Children's Foundation

Phone: +61 1800 664 878

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24.01.2022 Holding hands with mummy and daddy ... we are on this journey together and I know they love me soooo much and I love them too ... oh and my brother Luke ... Share a photo of you holding your mummy or daddy's hand, or another person you love to raise awareness of this condition that me and my Sanfilippo friends suffer from. #WorldSanfilippoDay #HandsOfHope

20.01.2022 I am sending out my thoughts to everyone out there impacted by the current situation. Particularly my fellow Sanfilippo sufferers, I hope you're getting as much love as I am in isolation ... #hopeforskye

19.01.2022 Want to raise research dollars for this special cause? Check out the 'Fundraising Tips n Tricks' section of our website. It's resource rich and jam-packed with ...ideas, downloadable posters to print and suggested social media graphics to post. Go to: https://www.sanfilippo.org.au/get-in/fundraising-tips-tools Don't forget to email [email protected] and tell us about your fundraiser! We'd love your support in the fight against this heartbreaking form of childhood dementia. #childhooddementia #fundraising #helpingsickkids

17.01.2022 Having a great day out with mum, dad and my big brother Luke.

16.01.2022 SOMETIMES HOPE IS ALL WE HAVE... please Share our 'Ode to Hope' far and wide, and donate at: www.sanfilippo.org.au/ode-to-hope or by clicking on link in Bio. Hope is what sustains many of us in the Sanfilippo community. This heartfelt video is of parents expressing the HOPE they have for their children and for the strides being made in Sanfilippo research. Please join us ... Hope that YOU can be the difference. Make a difference: www.sanfilippo.org.au/ode-to-hope #sharethehope #odetohope #hopeyoucanmakethedifference

16.01.2022 No holding me back! I just want to have fun #hopeforskye big thanks to Very Special Kids for organising the day #veryspecialkids #adventureparkgeelong #sanfilippochildrensfoundation

16.01.2022 Mummy, Daddy and mmmmmeeeeeeeee #hopeforskye

12.01.2022 Have you done our #spreadthehope challenge? THANK YOU to these awesome peeps for getting onboard. You can too :) Don't wait for a nomination. Join our challenge by posting a photo with the word HOPE or a video catching/throwing a sign and let’s see how far we can make it spread. Simply paste the message below into a post with your photo or video: ----------------------------------------------------- We are sharing the message of HOPE for childen with the childhood dementia,... Sanfilippo with three easy steps: DONATE NOMINATE ELIMINATE! I will DONATE $10 to fund research into a cure I NOMINATE (tag 5 others to do it) I am sharing hope to ELIMINATE Sanfilippo! Please give now to share hope: https://www.facebook.com/donate/572781100337371/ See more

10.01.2022 STARS FOR SANFILIPPO... Do you know Oliver and the McCoombes family? Become a 'Star for Sanfilippo' and donate a small amount each month to Skye's campaign. It doesn't have to be much (even small monthly micro donations can collectively make a big impact!) Setting up a regular monthly donation is easy and you will join a group of people our Stars for Sanfilippo who are providing ongoing funds to drive research. A monthly gift helps us plan our research roadmap into the fu...ture and gives us confidence to commit funds to the most promising projects that we hope will translate into treatments for children with Sanfilippo. HERE'S HOW: To ensure your monthly donation goes to Skye's campaign, navigate to www.hopeforskye.com.au. Be sure to click on the purple MONTHLY button (not the 'Just once' button), complete form and commit to supporting HOPE FOR SKYE each month! #hopeforskye #starsforsanfilippo #childhooddementia #medicalresearch See more

10.01.2022 Thank you to my great friends, Teghan and Bree for supporting me and the other Sanfilippo sufferers in this world. Love u guys! https://www.sanfilippo.org.au//teghanhender/steps-for-skye

09.01.2022 TODAY is #GivingTuesday or as we like to say: #GivingToYouseDay. This global day of giving is fueled by the power of social media and the generosity of people like YOU! DONATE to the Sanfilippo Children's Foundation TODAY and we will also GIVE back to you! Anyone who donates $50 or more today will get to choose a Sanfilippo-branded running shirt, running visor or running socks as our gift to you! Get involved in this global day of giving and give back to the people and causes... that need it most! Donate at https://www.sanfilippo.org.au/donations #GivingTuesday #GivingToYouseDay #GivingTuesdayAus #socialamediaforsocialgood #givingback

06.01.2022 ART UNION RAFFLE ... You too will jump for joy when you've heard you've not only helped children battling the childhood dementia, Sanfilippo, but you've WON a brand new LEXUS (valued at $45,631). One of our awesome supporters could be driving away just by supporting the Sanfilippo Children's Foundation in the ASX Refinitiv Charity Foundation Art Union raffle. Tickets are: x 1 ($20), x 3 ($50), x 8 ($100) & x 50 ($500) Support the SCF: https://www.asxrcfau.com/console/raf...flepages/15 1st prize: Lexus CT200h ($45,631) 2nd prize: 3 x night Murray River Cruise ($2,900) 3rd prize: Raymond Weil Men's Watch ($1,995) (Tix slaes close COB 6th March. Prizes drawn 2pm on 12th March 2020.) #winacar #competition #childrenscharity #childhooddementia #medicalresearch #sanfilippochildrensfoundation #giveaway #givingbackfeelsgood See more

06.01.2022 Me and the girls celebrating my 2nd birthday .... my real birthday is Christmas day ... so I need another one

04.01.2022 SOMETIMES HOPE IS ALL WE HAVE... Please share our 'Ode to Hope' far and wide and DONATE at: www.sanfilippo.org.au/ode-to-hope Watch and share this heartfelt video of parents from our community expressing the HOPE they have for their children and for the strides being made in Sanfilippo research. #sharethehope #odetohope... #hopeyoucanmakethedifference See more