Huntington's WA in Nedlands, Western Australia | Charitable organisation

Huntington's WA

Locality: Nedlands, Western Australia

Phone: +61 8 6457 7599

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• Non-profit organisation
• Charitable organisation

25.01.2022 If you are on our mailing list and havent receive our annual survey email, please check your junk mail! Or simply follow the link below to give us your feedback http://ow.ly/EPkz50B3adz

25.01.2022 Its week 2 of school holidays and if youre running out of ideas or activities, check out the link below for a list of free, or cheap options for the whole family http://ow.ly/QDPP50AtAmH

24.01.2022 Starting the week off right with some Monday Mindfulness! Take a moment to observe your breath

24.01.2022 Sometimes a listening ear and someone who understands is just what you need #huntingtonswa

23.01.2022 If you missed the Australian premier of Dancing at the Vatican, never fear! "An inspiring and uplifting tale of bringing Huntingtons disease out of the shadows and into the light" In May 2017 Pope Francis hosted the worlds largest gathering of the Huntingtons community .The journey to the Vatican and the audience with Pope Francis was filmed and the resulting documentary Dancing at the Vatican will be screened once again on Friday August 14 2020.... Dont miss out on your tickets! Follow the link for purchase, proceeds will be shared between HD state association and HDYO http://ow.ly/BIK350ArsQT

23.01.2022 Starting your week off right with some mindful inspiration

20.01.2022 Bringing you a little Monday mindfulness

20.01.2022 Looking for some motivation to increase fitness? Exercise Right is powered by ESSA to help Aussies to live more active lives and get the right advice for their individual needs, regardless of age or ability! Check out their free new ebook https://exerciseright.com.au/

20.01.2022 Looking for something to do this weekend? For options all about town, including art, music, markets and many more click Lets hope the weather cooperates! http://ow.ly/nczx50AzGdx #huntingtonswa #winterinperth #perthisok #urbanlistperth

20.01.2022 Headed into the weekend like...

19.01.2022 As we get closer to our Annual General Meeting, a little reminder about HWA membership. Head to our website to renew or sign up!! http://ow.ly/ntgs50AnDXh

19.01.2022 Pour yourself a cuppa and sit down to enjoy another quarterly HWA eNews! Check out what the community and team have been up to as we get out and about again! http://ow.ly/VJ5t50AnDnP

18.01.2022 We want to send a very big thank you to @lotterywest for their ongoing generous support of us here at Huntingtons WA! We are proud to announce we are one of the recipients of the #lotterywest COVID-19 Relief Fund and this allows us to keep supporting our wonderful community!

16.01.2022 20 Year Anniversary of Huntingtons Awareness Ride! In August 2000 Tracey and Damon left Perth to begin their 6 month motorcycle ride around Australia, covering over 31,000 km to raise awareness for HD! Follow the link to learn more about this epic feat. https://www.huntingtonswa.org.au//20-year-anniversary-of-/

15.01.2022 If you missed the Australian premier of Dancing at the Vatican, never fear! Secure your tickets now to next months online screening! "An inspiring and uplifting tale of bringing Huntingtons disease out of the shadows and into the light" In May 2017 Pope Francis hosted the worlds largest gathering of the Huntingtons community .The journey to the Vatican and the audience with Pope Francis was filmed and the resulting documentary Dancing at the Vatican will be screened onc...e again on Friday August 14 2020. Dont miss out on your tickets! Follow the link for purchase, proceeds will be shared between HD state association and HDYO http://ow.ly/BIK350ArsQT

15.01.2022 Always embrace your uniqueness

15.01.2022 Winter is well and truly here So time for some dinner inspo to keep you cosy on these chilly nights! For quick and yummy meals check out this soup collection http://ow.ly/POuV50AiqZ8 Make the meal swallow friendly by choosing a blended soup!

13.01.2022 As a part of an independent review of palliative care services in WA, researchers at the Perron Institute are currently seeking the views of patients with a life-limiting illness, as well as their family members, friends and carers. Anyone who falls into one of the following categories is asked to complete a consumer survey to provide patient and carer perspectives on palliative care: This review led by Professor Samar Aoun will look at patient experiences and preferences w...hen receiving palliative care, as well as the perspectives of their families, friends and carers. It will also explore the needs of those who were unable to access palliative care. The findings from the survey will be discussed with service providers in consultation forums across the State to develop recommendations for enhancements in palliative care models in Western Australia. The survey provides a vital opportunity for the consumer voice to be heard and we ask that you share this link within your own networks. The closing date for this survey has recently been extended to Sunday 16 August. For more information or to undertake the survey please go to https://perroninstitute.org/consumer-perspectives-of-pallia. See more

13.01.2022 It's NAIDOC Week! Celebrations are being held to celebrate the history, culture and achievements of Aboriginal and Torres Strait Islander peoples. To learn more about activities around Perth check out the FB page below http://ow.ly/qa2U50ChjOK

12.01.2022 Our friends at HDYO are hosting a Virtual Young Person Support Group, focusing on the topic of Care giving. Follow their page and keep an eye on ours for more info!

12.01.2022 Have you heard?! Our mates over at HDYO are offering 24/7 online support for young people

11.01.2022 Save the date! This year has been challenging in many ways but it hasn’t stopped Huntington’s WA continuing to provide support to our community. #GivingTuesdayAUS #huntingtonswa #huntingtonsawareness

10.01.2022 If you need another good reason to purchase an entertainment book and support HWA, look no further!!! https://www.entertainment.com.au/orderbooks/831y12

09.01.2022 Some Monday mindfulness for you this morning

09.01.2022 Not long now till giving Tuesday! This year has been challenging in many ways but it hasn’t stopped Huntington’s WA continuing to provide support to our community. #GivingTuesdayAUS #huntingtonswa #huntingtonsawareness

06.01.2022 Its that time of year again! To show your support to HWA please head to our website to renew or sign up!!!! http://ow.ly/ntgs50AnDXh

06.01.2022 If youre looking for something rewarding to do this weekend check out this collaboration, a ocean and beach clean up on Sunday for Plastic Free July!!! Follow the link for event details http://ow.ly/9IKE50ADLwG

04.01.2022 Dont miss out!!! This is your last chance to be part of an online viewing for the uplifting and inspiring documentary, Dancing at the Vatican! Follow the link for ticket purchase http://ow.ly/BIK350ArsQT

04.01.2022 MASSIVE thanks the Francis family and friends, who hiked for 5 days on the Bibbulmun track to raise money for Huntington's WA! This incredible effort raised over $6000!! The original article was published on Page 50 in the Post Newspapers, November 7, 2020 http://ow.ly/Kldj50Chknb

04.01.2022 More cool stuff happening over at HDYO, with games nights, hang outs and yoga!!! Check them out @HDYOFeed to keep up to date with all the virtual activities on offer!

04.01.2022 Good morning! Enjoy this cool cat and its crafty owner

03.01.2022 When you had a long week but are still excited its the weekend

02.01.2022 Good Morning Just a little Monday Mindfulness reminder

02.01.2022 Our sincerest gratitude to the wonderful team @sunburntfilms who so kindly filmed and produced this short promotional film for us for FREE! And thank you to Andrew to allowing us to share in his daily life. Check out the clip https://vimeo.com/474941205 and let us know what you think!

02.01.2022 Its a chilly Wednesday evening...so heres a couple of kittens on a beach to warm your heart

02.01.2022 Calling all gamers! HDYO is running a Call of Duty Warzone Tournament the weekend of Aug 28-30 as part of their staying connected program. Join in for a weekend of fun as you try to get your team of young people impacted by HD to the top of the leaderboard! For details visit the link below and register your interest http://ow.ly/SJu850B4bbI

02.01.2022 Good morning #huntingtonswa #mindfulness

01.01.2022 Our friends over at HDYO are hosting another virtual Parent Support Group!!! Its an opportunity to connect with other parents who are impacted by Huntingtons disease. July 30, 2020 @ 730pm EST To register: http://ow.ly/SE0Z50AM1wQ/regi/tJ0kdu2qrD8rG9BKXd_27z7mWT1RC9ejA9kK

01.01.2022 We are seeking your input on our programs and services! Your opinions are important to us, please take a few moments to share your thoughts by following the link below https://www.surveymonkey.com/r/HWA2020

01.01.2022 Its August 1st and in honor of it being Aussie horses birthday today, please enjoy this miniature foal being adorable

01.01.2022 Anybody else have itchy feet? Dreaming of a little getaway in our beautiful state? Check out this handy guide to some road trip adventures in WA! http://ow.ly/8Yd550AW5tt