Jeans for Genes Australia in Westmead, New South Wales | Non-profit organisation

Jeans for Genes Australia

Locality: Westmead, New South Wales

Phone: +61 2 8865 2800

Address: 214 Hawkesbury Road 2145 Westmead, NSW, Australia

Website: http://www.jeansforgenes.org.au/

Likes: 56951

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• Non-profit organisation
• Charitable organisation
• Community organisation

23.01.2022 When Ruby was a face of Jeans for Genes in 2018 she was very petite and struggled to gain weight but now as she turns 9 she’s become a champion runner and her mum Bec is so inspired that she is going to do Ks for Kids! All the money raised by counting your steps in May goes to research at CMRI. Learn more here at https://www.ksforkids.org.au/

23.01.2022 What do you buy for the child who has everything this Christmas? A CMRI Scientist Teddy Bear! Not only is he gorgeous, cuddly and a great way to inspire kids to love science but all the money raised from this purchase goes back into our labs. Shop here: https://shop.cmri.org.au/

22.01.2022 A family with two children who are losing their hearing and their vision are appealing to everyone to invest in medical research this Christmas. Full story here: bit.ly/future-without-usher

22.01.2022 It’s the first week of the Great Cycle Challenge but it’s not too late to hop on your bike and raise money for CMRI’s cancer research. We want to find better treatments and cures for children like Sophie who was diagnosed with leukaemia earlier this year. Here's Sophie's story: https://www.cmri.org.au//Great-Cycle-Challenge-changing-li

21.01.2022 Happy Easter from Lachie and all the kids in our Jeans for Genes family! We hope the Easter Bunny is good to you all.

20.01.2022 Looking for some great Aussie Christmas cards to share with friends and family you can't see in person this year? Shop online and support research at the same time! https://hellosunday.com/collec/cmri-charity-christmas-cards Vevoke has been a supporter of CMRI since 2015 and has raised over $46,000 by donating 10% of the wholesale price per pack sold. There are 10 beautifully presented cards & envelopes per pack . Here's just a few of the choices...

19.01.2022 There were many times that Charlize’s parents doubted she would ever be healthy enough to attend preschool, and now she has graduated ready to start big school in 2021! Congratulations Charlize, from the whole CMRI and Jeans for Genes family.

19.01.2022 It’s that time of year that kids absolutely love, putting up the Christmas tree, but this image really captures just how living with genetic disease is a 24-hour job for families. Here Charlie is using his nebulizer as part of his daily treatment for cystic fibrosis.

18.01.2022 The gorgeous Mollyjane has just turned 11 and her birthday wish was to fundraise for CMRI! Isn’t she just incredible? If you’d like to support her wish and win some incredible raffle prizes, from a weekend away to a day spa package, click here to find out more: https://www.raffletix.com.au/mjbirthdaywish

18.01.2022 The Great Cycle Challenge is a major fundraising event for CMRI’s incredible cancer research! Find out all about what goes on in the lab in this podcast chat between Great Cycle Challenge rider Gavin McGahey and CMRI scientist Dr Sam Rogers. It is a great listen if you are interested in the long and complex journey of a cancer researcher: https://apple.co/2TP6C6y

17.01.2022 This is the smile of a little boy visiting Big School for the first time! We are so excited to see one of our faces of Jeans for Genes, Lachlan, checking out the school he will attend in 2021. We can’t wait to see that smiling face taking on kindy (and the world) next year.

17.01.2022 The Easter Bunny has lined up some great gift ideas at the Jeans for Genes shop! We have teddy bears, t-shirts and fun science kits as great Easter present ideas. For more information visit https://shop.cmri.org.au/

16.01.2022 CMRI scientist, Jane Sun, has signed up to do Ks for Kids herself and urged the public to get behind Australian research. Find out more about Ks for Kids by clicking the link here: https://www.ksforkids.org.au/

16.01.2022 Remember Remembrance Day

16.01.2022 If you need something to get you through the week just turn up the sound and enjoy the awesome giggles from Quinn (one of the faces of Jeans for Genes from 2018) when his little sister Harlow reads to him. Living with genetic disease is tough on the whole family, but there’s nothing better than seeing the simplicity of sibling bonding. Love your work Harlow!

15.01.2022 Naomi was one of the faces of Jeans for Genes last year, and she's come so far. Look at the delight and pride in Naomi’s face as she learned to say her sister’s name with the help of technology! We love getting updates on the progress made by our special friends who live with genetic diseases. Every day is a new day when it comes to overcoming challenges! https://www.jeansforgenes.org.au/naomi

14.01.2022 Advocacy is an extremely powerful gift, so when we come across people using their influence to educate and inspire others - we are so grateful. A big thank you to The Duchess of York Sarah Ferguson for sending this heartfelt message to the faces of this year’s Jeans for Genes campaign. It brought tears to many eyes and was greatly appreciated by the families.

13.01.2022 You don’t need to head to the Easter Show this year to get a fantastic bag of fun to keep the kids entertained! Our Future Scientist Show Bag is still in stock and has a heap of educational items to stimulate the kids during the school holidays. Click here to find out more https://shop.cmri.org.au/products/future-scientist-kit

13.01.2022 Our good friend Kush is turning 8 and his parents always like to take the opportunity to spread the word about his rare disease, FoxG1 and also to raise money for vital research. If you’d like to show your support head to his public party in Sydney on Sunday, 21st February. Details here: https://www.facebook.com/events/815490492333188/

12.01.2022 First day of kindy is usually nerve-wracking for kids and parents. But not for one of our faces of Jeans for Genes, Charlie, who walked away, arms raised in the air, ready to take on the world! Love your attitude Charlie, it will take you far!

12.01.2022 A CMRI scientist has made a discovery, featured in Nature, that upends 20 years of thinking about stem cells. Associate Professor Tony Cesare said it was the most unexpected result of my career’’. Full story here: https://www.cmrijeansforgenes.org.au//nature-papers-unexpe

11.01.2022 CMRI researchers working in cancer, gene therapy and neurodegeneration have received Ideas Grants for innovative projects. We're so proud of them and what a great way to end the year! Read more here: https://www.cmrijeansforgenes.org.au//cmri-scientists-win-

11.01.2022 Kids like the gorgeous Charlie could benefit from gene therapy research thanks to a generous grant from the Cure4 Cystic Fibrosis Foundation. Read more about the incredible work it will make possible: https://www.cmri.org.au//Hope-offered-by-Cure4-Cystic-Fibr

10.01.2022 Aydan is stepping up for his baby sister, Angelina! And he's getting his whole family involved. Learn more at https://www.ksforkids.org.au/

10.01.2022 February is Noonan Syndrome Awareness Month one of the thousands of rare diseases children face in Australia. One little boy, who supports Jeans for Genes, is Riley. It has impacted many of his vital organs which has resulted in him having four operations in the first six months of his life. He did not walk until he was two and still doesn’t talk. ... Mum Wendy would like to spread the word about this condition. I have always supported Jeans for Genes but never thought I would be personally involved with rare disease’’. To find out more visit: https://noonansyndrome.com.au/

10.01.2022 This week is Tube Feeding Awareness Week. Some of our faces of Jeans for Genes like Iluka, Henry, Rosie, Max and thousands of children around Australia are kept alive by this incredible device. While research continues into their rare genetic diseases, tube feeding keeps them healthy and strong along the way. Learn more here: https://www.feedingtubeawarenessweek.org/

09.01.2022 The latest exciting developments in our cancer project, ProCan, were shared with collaborators last week. CMRI Director and ProCan co-founder Professor Roger Reddel said their gamble’’ to find a new way to personalise cancer treatment was starting to pay off. Read more here: https://www.cmri.org.au//ProCan-collaborators-told-of-gamb

08.01.2022 A scientist who was inspired to become a cancer researcher after losing her mother to the disease as young girl, has made an exciting discovery about cancer cells. Read more here: https://bit.ly/36o1C01

06.01.2022 Swimming 5km may sound hard, but when Marika Mulvey is in the water all she will be focused on is the memory of her baby girl who died as a result of a rare genetic disorder. I will be raising money for Children’s Medical Research Institute by participating in a 5km swim that I will complete in honour of my darling Daisy on her due date the 6th February 2021. To read the full story and to donate, go to: https://myj4gfundraiser.raisely.com/marika-mulvey

04.01.2022 CMRI is pleased to be a founding partner of the Luminesce Alliance (http://www.luminesce.org.au/about/) which aims to accelerate paediatric research and translation of treatments and cures into the clinic. Hear from our talented scientists about how this alliance is helping to advance their vital work: https://youtu.be/V2d2dKqJu2I

03.01.2022 Happy New Year - welcome 2021!

01.01.2022 Merry Christmas from some very special kids and all of us at CMRI!