The John Hunter Children's Hospital Kids Club | Community organisation

The John Hunter Children's Hospital Kids Club

Phone: +61 409 873 787

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25.01.2022 Rory and his two-year-old twin Colten made the journey from Gunnedah for Audiology testing and an Ear, Nose and Throat review at the Children's Hospital. Rory a...nd his brother Colten were born premature and have a history of Otitis Media (middle ear infection), for which they received grommets for in January. Here Rory is having Visual Reinforcement Orientation Audiometry (VROA). VROA is a behavioural hearing test for children aged 7 months to 3 years. Sounds used during this test get gradually lower to see if the child can hear the softest sounds of speech, as they turn to the sound they are given a visual reward. To learn more about ear problems in children visit http://bit.ly/earproblemsinchildren or to watch a VROA assessment click https://youtu.be/BB8dnQbFnTo.

22.01.2022 50c to be donated by local Coles supermarkets directly to JHCH for every jar sold of this pasta sauce. This photo was taken at Waratah Village.

22.01.2022 This survey closes any day. Please complete one per person and nominate The John Hunter Children's Hospital Kids Club to receive the donation. Thank You.

22.01.2022 It's been a month now since Vinnie was born and admitted to the NICU at the Children's Hospital in Newcastle. Vinnie was born with a rare birth defect called Oe...sophageal Atresia. Instead of forming a tube between his mouth and stomach, his oesophagus has grown into two separate segments that don't connect. At present the closed pouch requires suctioning every 15 minutes to protect his airway. Soon Vinnie will have surgery to join the disconnected the upper and lower oesophageal segments. Until that time Vinnie is fed through a gastrostomy, which is an opening formed from the abdominal wall though to the stomach, making feeding possible. He still has a little way to go at the Children's Hospital, but the aim is for him to be home for Christmas. To learn more about Oesophageal Atresia visit http://bit.ly/OesophagealAtresia.

21.01.2022 Unfortunately we didn’t make it over the line last time. New round of voting ends December 30. Please vote weekly.

20.01.2022 If your child is sick, keep them at home. For children under 5 years, if they have symptoms like a runny nose, fever, cough or sore throat, call your GP. In an... emergency, please call 000 or go to your closest emergency department. For more information: https://www.nsw.gov.au/covid-19/symptoms-and-testing

19.01.2022 Help John Hunter Children's Hospital Kids Club share in $145,000 when you vote this weekend! This weekend only - Friday 27th to midnight Sunday 29th November - we'll DOUBLE your votes when you vote for John Hunter Children's Hospital Kids Club It's a great way to make sure they're one of the #130 Charities to share in our $145,000 grants round.... THIS WEEKEND ONLY Vote for John Hunter Children's Hospital Kids Club for free and they'll get 2 Votes VOTE NOW www.mygivingcircle.org

19.01.2022 Baby Derrick's mum has rarely left his side since he was born at 25 weeks gestation. With mum's comforting hand resting on her son, he is being cared for in the... NICU at the Children's Hospital in Newcastle. Derrick and his family are from Coonabarabran, but was born early on 2 November at Tamworth Hospital, before being transported by the Newborn and paediatric Emergency Transport Service to the JHCH NICU. Currently, Derrick is on CPAP (Continuous Positive Airway Pressure) in intensive care. Born at 860 grams, he is now weighing 949 grams and is doing well. Derrick's still has a long way to go and will spend his first Christmas in the NICU, with his parents and the great NICU staff caring for him.

17.01.2022 Thankfully it looks much worse than it is. 6-year-old Annabelle had a slip on the balance bars at school and landed on her face. She was taken to the Children's... Hospital in Newcastle with a suspected fracture. The good news is there was no fracture, however as you can see the fall resulted in severe bruising. Sometimes accidents like Annabelle's occur, however moving into the school holidays we will see a lot more kids out and about in the warm weather on play equipment. While it's great to see kids active and outside, we encourage parents where possible to guide young children over play equipment and make sure if they are on skateboards, scooters or bikes, they are wearing protective equipment. We will give you an update in a few weeks on Annabelle as her injury heals.

16.01.2022 The fingertips, backs of the thumbs and in between the fingers are the most commonly missed areas when washing hands. Handwashing is one of the best defences ag...ainst COVID-19. Make sure you use soap and water, wash for at least 20 seconds and dry completely. Use alcohol-based sanitiser if washing with soap and water isn’t convenient. Learn more: https://www.health.gov.au//good-hygiene-for-coronavirus-co See more

15.01.2022 Make sure you have your four-year-old’s eyesight checked before they start school because this is an important time to detect and treat any potential problems a...ffecting their vision, some of which could impact their school performance and development. Because children rarely complain of eye problems and often don’t realise they can’t see properly, the only way to tell if your child has a vision problem is to have their eyesight tested. It’s vital to have your 4-year-old child’s eyesight tested to detect potential problems so they can receive appropriate diagnosis and if required treatment. The earlier that a vision problem is detected, the better the chance of successful early intervention, preventing future vision problems or even permanent sight loss. Your child’s vision can be tested for free by the NSW Health Statewide Eyesight Preschooler Screening program better known as StEPS. StEPS screeners visit preschools and early childhood education centres. Your child can also have their vision tested at a local catchup StEPS clinic, at a NSW Health Child and Family Health service or with your GP. Visit health.nsw.gov.au/StEPS to find out where you can get your child’s vision checked.

14.01.2022 Your teeth love it when you brush twice a day with fluoride toothpaste. A healthy mouth is important for your overall health and well-being. Today is World Cavi...ty Free Future Day. Commit to improving your oral health. Find out more: https://www.health.nsw.gov.au//preventi/Pages/default.aspx #WCFFDay

12.01.2022 Two proud new parents right here. At 35.5 weeks, Sian and Mitchell didn't expect baby Carter to arrive so quickly. When Sian went into labour, Carter arrived 52... minutes later. While a quick labour sounds like the better option, giving birth so quickly was what also led Carter to an admission in the NICU at the Children's Hospital in Newcastle. His quick birth meant enough of the fluid in his lungs wasn't squeezed out during labour, resulting in respiratory distress. Carter required breathing assistance through continuous positive airway pressure (CPAP) for three days, before being monitored and learning how to feed. Today, nine days later, Sian, Mitchell and Carter will head home

12.01.2022 New round of voting ends JUNE 30, 2021. Please vote weekly.

11.01.2022 Did you know the Kids Club has gifted over 3 MILLION dollars in goods and equipment to the Children's Hospital since the group began in 1993?!

10.01.2022 Since 2015, Little Wings have provided flights to 173 families from regional and rural areas who have children requiring treatment or an appointment at the Chil...dren's Hospital in Newcastle. Today, thanks to a grant from the Newcastle Permanent Charitable Foundation, Little Wings and John Hunter Children's Hospital will extend that partnership to trial a new program called Medical Wings. Medical Wings will allow our Paediatric Speciality Teams to fly with Little Wings to regional and rural communities to provide outpatient clinics. General Manager of Children, Young People and Families Service, Jason Simpson who is here testing out the Little Wings aircraft said the new program benefits both families and our speciality services. "This will mean many families will be able to have their specialist appointment in or near their home town, saving time and money," Mr Simpson said. "It also means many of our speciality services will be able to provide clinics and return to the Children's Hospital on the same day, eliminating time consuming road travel," he said.

10.01.2022 20 years cancer free! Michael was just 22-months-of-age when he was diagnosed with Acute Myeloid Leukaemia (AML). Moving into the year 2000, the cure rate for A...ML, which less frequently occurs in children, was 40-50%. AML is a cancer of the white blood cells called myeloid cells. While treatment for AML doesn't last as long as other childhood cancers, the treatment is more intensive during the shorter treatment period, with Michael and his family requiring treatment from the Children's Cancer Service at the Children's Hospital in Newcastle for six months. As treatment for AML is more intense, there is a higher likelihood of experiencing late effects of treatment, which is why Michael continues to see Dr Frank Alvaro 20 years later at the Late Effects Clinic. Today, the cure rate for AML is 60-70%. John Hunter Children's Hospital is currently a part of an international study to determine if a new agent given for treatment improves cure rates if it is delivered in different ways. To learn more about childhood cancers visit http://bit.ly/JHCH_Cancer_Service.

10.01.2022 You can get a tax deductible receipt when you donate 20 or more recyclables at Wickham, Kotara, Swansea and Singleton and support our fundraising efforts at the same time.

07.01.2022 Physiotherapy plays a very important role in the care of children and young people with Cystic Fibrosis (CF). Children's Hospital Physio Olivia is here with 9-y...ear-old CF patient Harrison in the Children's Hospital's gym. Exercise is very important for kids with CF as it helps clear secretions from their lungs. While Harrison is in for his CF 'tune up", he will visit the gym each afternoon, along with undertake advanced clearance techniques which block the small airways. CF tune ups also include having intravenous antibiotics, specifically to treat certain bacteria that grow in the lungs of children living with CF.

06.01.2022 It's been nearly two years since you first met Dawn as a tiny little baby. We first met Dawn just after she had been diagnosed with the extremely rare condition... called intestinal aganglionosis, which means she has no nerves in her intestines that are required to push food and liquid through. Dawn was back at the Children's Hospital in Newcastle recently for surgery to have a line put in, but today she is the face of Home Parenteral Nutrition (HPN) for HPN Awareness Week. HPN is food that is delivered directly into the bloodstream, which Dawn requires because of her condition. The food Dawn requires comes in light protected fluid bags, which is designed specifically for Dawn to ensure she receives her individual caloric requirements, which contain electrolytes, fats, proteins, vitamins and minerals.

05.01.2022 Not ok. Not at all funny. These are the hands of 15-year-old Chris who was using hand sanitiser at school when a fellow student used a lighter to ignite the san...itiser as a joke. This "joke" resulted in Chris receiving second degree burns. Layers of his skin were removed in hospital, both hands were wrapped in protective wound dressings and he required twice weekly follow-up at the Children's Hospital Burns Clinic. Long term he will require physiotherapy to ensure his fingers don't have limited range of movement, which may impact his ability to hold certain objects, close his hands, hold a pen and use his fine motor skills. Burns such as this can also have more severe outcomes. Due to COVID-19, hand sanitiser is now more than ever before an everyday part of our lives and has important hand hygiene benefits. However, it needs to be used responsibly. For advice on caring for burns, check out our burns advice fact sheet https://bit.ly/Burns_Care.

03.01.2022 Once a child has surgery to have grommets, it's important that their hearing is tested and ears checked regularly post-surgery. 6-year-old Angus had surgery to ...have grommets in January this year due to a recurrent history of ear disease and is back at the Audiology Service at the Children's Hospital in Newcastle to have his hearing assessed. His assessments were done through Tympanometry and Play Audiometry (pictured here). Play Audiometry tests children's hearing using a range of frequencies. Each time Angus hears a sound he drops one of the game pieces into place. The aim is to find the softest sound he can hear. Angus was found to have one grommet still working and the other had fallen out. He will again be assessed in six months to monitor his hearing and middle ears. To learn more about glue ear and grommets visit http://bit.ly/GlueEarandGrommets.

02.01.2022 Please vote weekly for us.

01.01.2022 We have been gifted a magnificent decorated fruit cake to raffle for Mother's Day. Tickets will be available at our shopping centre stalls at Jesmond Central on Wednesday 21/4, and Wallsend Village on Friday 23/4. We will also be selling tickets at the Newcastle Harness Racing Club on the next three Friday nights (23/4, 30/4 & 7/5), with the raffle drawn on Friday 7th May 2021. ... Special thanks to Mary and Marlene from the Cake Decorators' Guild of NSW - Newcastle Branch Inc. who baked and decorated the cake. Sorry no online ticket sales available.

01.01.2022 10-year-old Lachlan hasn't seen this photo of himself before, which was taken by the Cleft Palate Team at the Children's Hospital in Newcastle. Lachlan was diag...nosed with a cleft antenatally by ultrasound and following birth was found to have a bilateral cleft lip and palate, meaning the cleft was on both sides. After birth, Lachlan required a special cleft palate bottle and teat to feed, before having surgery at four-months-of-age to repair his lip and at 10-months-of-age to repair his palate. Since that time Lachlan has been a patient of the Cleft Palate Multidisciplinary Team at the Children's Hospital, which included speech therapy from 18-months-of-age to use his lips and tongue to produce sound. He then required further operations at four years of age and was able to catch up and reach most of his speech milestones by age six. At nearly 11, Lachlan is now moving into the orthodontic phase of his treatment, which requires a plate in the roof of his mouth and braces on his front teeth. When his jaw gets bigger and adult teeth come through, he will need braces again on those teeth. As you can see from that big smile, Lachlan takes it all in his stride and is a great advocate for kids with cleft palates.