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23.01.2022 Camp Twinkletoes is on next month, 17 April. If you would like more information visit: https://www.arthritisnsw.org.au//camps-f/camp-twinkletoes/

21.01.2022 Community Fundraiser Enjoy a concert from Chris (Ka Long) Au, Concert Pianist, while raising funds for Arthritis NSW! After being diagnosed with Juvenile Rhe...umatoid Arthritis at the age of 15, the inflammation in the joints all over Chris's body forced him to stop playing piano for about a year until, thanks to the care of Dr. Jeffrey Chaitow, he was able to start playing again. During his time in Sydney, he would like share his music with you via charity concerts. The program will vary with each concert, details are as follows. Plus see a video of Chris in action - he's amazing! When: 20 February or 6 March, 2pm - 4pm Where: St Andrews Uniting Church, South Turramurra Tickets: Via Donation of an amount of your choosing on the link below, proceeds to Arthritis NSW. (Limit of 30 tickets available per concert) Grab a friend or loved one and enjoy an afternoon of listening pleasure! Learn more & book here: https://chrisaupiano.com/concerts-and-engagements/

20.01.2022 Up until I was about 14 years old, I believed I was invincible. On top of my studies at Baulkham Hills High School, I was heavily involved in sports, music, Du...ke of Edinburgh, laser tag, and other fun activities..." Chris Ka Long Au, now a concert pianist, shares his juvenile arthritis journey with us

17.01.2022 It's World Young Rheumatic Diseases Day - WORD Day! Juvenile idiopathic arthritis, or JIA, refers to all types of arthritis that affect children under 16 years ...of age. In Australia, there are over 6000 children and young people living with some form of arthritis, causing symptoms such as joint pain and swelling, joint stiffness, fatigue, skin rashes, fever, and generally feeling unwell. Paediatric rheumatic diseases are often misdiagnosed or overlooked, even though there are many treatment options available. Find out more at https://wordday.org/ ANSW resources https://www.arthritisnsw.org.au/children-&-arthritis/ #WORDDay2021 #kidsgetarthritistoo Photo credit: ICAN Irish Children's Arthritis Network

15.01.2022 Juvenile Arthritis Online Symposium, see details below.

13.01.2022 It's one week until WORD DAY, 18 March This day, WORLD YOUNG RHEUMATIC DISEASES DAY, raises awareness and knowledge to help first and foremost in early dia...gnosis of young rheumatic diseases. Learn more here: https://wordday.org/about-word-day/ In Australia about 6000 children are affected by arthritis (JIA) making it as common as Type 1 diabetes in children under 16 years of age. Another 4,000 children are affected by other rheumatic conditions (conditions which affect the joints, bones, cartilage, tendons, ligaments and muscles). Awareness and early diagnosis are important so that these children get the treatment they need.

12.01.2022 Condition Focus: Christmas gifts for kids with JIA When first diagnosed or going through a flare, a handmade gift made with love can be very comforting. Here's some ideas from Elizabeth who has lived through struggles with the condition herself.

12.01.2022 Congrats Sophia!

10.01.2022 Date announced for Camp Twinkletoes! Date: Saturday, April 17 2021 Location: Sydney (venue to be advised)... Interested? Visit the link below and complete our an expression of interest form. Camp Twinkletoes is an annual event designed to help families caring for young children with juvenile arthritis. The program has four essential elements: Education for parents - talks by health professionals such as paediatric rheumatologist, clinical psychologist and paediatric nurse For the child with juvenile arthritis - age appropriate mix of self management strategies and fun activities Opportunity for whole family bonding Experience-sharing between families For a family with a newly diagnosed child, the future is uncertain. Camp Twinkletoes supports families to adapt to this uncertainty and build the mental strength to care for their children in the most positive way possible. https://www.arthritisnsw.org.au//camps-f/camp-twinkletoes/

10.01.2022 Did you see A Current Affair last night? It included a story about juvenile arthritis... yes kids get arthritis too and they are in much need of medical servic...es that are currently lacking for the 6000 children in Australia with the condition. Australia, and in particular NSW, has below international standards (and other juvenile conditions) of specialist services available to them. Watch the story below. Thanks to JAFA https://www.jafa.org.au/ for campaigning for our JIA kids. There is a lot of pain associated with the condition for these kids, they deserve better government funding for faster diagnosis and effective treatment.

09.01.2022 For our JIA families... The Juvenile Arthritis Foundation Australia (JAFA) Online Symposium, Advances in Treatment & Research, Uveitis and Pain Management....watch it on the link below.

08.01.2022 Merry Christmas to our Arthritis NSW community, we hope you have a lovely time with family and friends!

04.01.2022 If your child is dealing with pain that accompanies juvenile idiopathic arthritis (JIA), you can feel helpless as a parent. This articles provides some techniques on what you can do to help.