Lungitude Foundation in Melbourne, Victoria, Australia | Non-profit organisation

Lungitude Foundation

Locality: Melbourne, Victoria, Australia

Phone: +61 3 9525 2448

Address: PO Box 25132 3004 Melbourne, VIC, Australia

Website: http://www.lungitude.com.au

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• Non-profit organisation
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25.01.2022 While we may not be able to meet in person, we are excited to announce that our Annual Research Presentation will be virtual this year. We will share more about our terrific line up of speakers and how to register in coming weeks ... in the meantime please Save the Date!

24.01.2022 The Continuity of Care Collaboration (CCC) is a group of over 30 healthcare organisations with a common aim; to ensure Australians continue to access the care they need for chronic health conditions and new symptoms during the pandemic. At the time of the CCC launching they had identified that "laboratory testing had declined by 40% resulting in 60,000 patients not getting their regular pathology or diagnostic testing to manage or diagnose conditions, said John Crothers, Cha...ir of Pathology Awareness Australia and one of the founders of the CCC. This combined with a drop in people presenting for general practice appointments is an indicator that people are not seeking expert medical advice and maintaining their regular health routines. CCC includes organisations such as: Pathology Awareness Australia, Australian Diabetes Society, RACGP, National Rural Health Alliance, Australian Primary Health Nurses Association, Consumers Health Forum, Heart Foundation, Allied Health Professions Australia, Medicines Australia, Australian College of Rural and Remote Medicine (ACRRM), Prostate Cancer Foundation Australia, Patient Voice Initiative, Australian Patients Association, Jean Hailes Foundation, Royal College of Pathologists of Australasia The Alfred have done a great job encouraging patients to continue all of their testing but if you're in any doubt please speak to your relevant specialist instead of delaying or cancelling any upcoming appointments or tests. https://vimeo.com/456102427

23.01.2022 Two-year-old Justin Big Deuce Oliver from Charlotte in the US survives double lung transplant and more recently COVID-19 What a little fighter! https://www.wsoctv.com//2-year/5KNPVMQKFVHLXFC3MXGWAR3E2A/

20.01.2022 What goes on behind the scenes

20.01.2022 Heres some great information on the use of masks https://theconversation.com/which-face-mask-should-i-wear-1

17.01.2022 Intriguing story about a COVID-19 patient in the US who was the first to undergo a double lung transplant. https://illinoisnewsroom.org/covid-19-patient-who-received-

17.01.2022 The Lungitude Foundation annually celebrates #DonateLifeWeek with some wonderful patient and donor stories. The national awareness week (26 Jul - 2 Aug) is dedicated to promoting organ and tissue donation. While the majority of Australians believe its important to be an organ and tissue donor, only one in three are registered. If youre a registered donor or become a registered donor during DonateLife Week please also have a chat with your friends, family and colleagues and ...Continue reading

17.01.2022 One of our supporters, Sam Ira, who has had 2 lung transplants, was featured in The Sunday Herald Sun this weekend. An interesting article about the varying cost of medications. It may be worth comparing pharmacy prices (once travel restrictions are lifted more!). It's also a great idea to check with your outpatient hospital pharmacist as to which medications are cheaper to purchase through them, especially if they're able to organise in bulk or if you have additional government benefits available.

14.01.2022 In case useful, these are the only products that the TGA have so far legally approved as disinfectants against the COVID-19 virus. https://www.tga.gov.au/disinfectants-use-against-covid-19-a

13.01.2022 Shout out to the wonderful researchers who are funded by all of our Lungitude supporters

12.01.2022 Announcing the first video in our 'Patient & Caregiver Video Series' which is about Mental Health Stories. Check it out at https://www.lungitude.com.au/patient-resources/#videoseries1

11.01.2022 The Lungitude Foundation annually celebrates #DonateLifeWeek with some wonderful patient stories. The national awareness week (26 Jul - 2 Aug) is dedicated to promoting organ and tissue donation. While the majority of Australians believe its important to be an organ and tissue donor, only one in three are registered. If youre a registered donor or become a registered donor during DonateLife Week please also have a chat with your friends, family and colleagues and encourage ...them to sign up too. To learn more or to register please visit https://donatelife.gov.au/resources/donatelife-week Today's story is from Nicole and husband Ian. The photos are of .. Volunteering with their local triathlon club, which Ian is president of - taking the opportunity to spread the donate life message .. Celebrating last night in Melbourne after the kidney transplant before returning home .. Enjoying life with friends at a day on the green last year .. Rehab gym after lung transplant. Nic was born with cystic fibrosis a condition requiring 2 hours of physiotherapy, nebulisers and exercise a day, countless pills daily (20 plus a day), and regular hospital admissions. She met her husband of nearly 10 years, Ian, at uni and on holiday in 2017 their lives changed drastically when they both contracted influenza. Things escalated very quickly and Nic was placed on life support and assessed and listed for an emergency lung transplant. In the nick of time, lungs were made available by the selfless gift of a donor and their family in their darkest hour. After spending 4 months in ICU, 200+ days in hospital - and 12 months since the couple left home for their holiday - Nic was well enough to move home. Although she now had a wonderful new set of lungs, as a result of many factors she ended up with renal failure requiring dialysis 3 days a week. Here is the really special bit - after 20 months of dialysis, she was incredibly lucky to receive her second organ donation and have a kidney transplant. Ian was the donor. One thing this last 2 years has taught us, is you never know whats around the corner, so make the most of everyday - its an incredible gift to be alive. Nicole and Ian urge all of us. Take just one minute to register as an organ and tissue donor at https://donatelife.gov.au/ - and dont forget to discuss your wishes with your family, as ultimately they are the ones that make the generous decision. You can register your consent to become an organ and tissue donor at https://donatelife.gov.au/register-donor-today. This means that one day you could save the lives of many people. Currently there are approximately 1,600 Australians waiting for a life-changing transplant.

11.01.2022 One area of interest is the long-term impact of COVID-19 on the body. The following article outlines some of the symptoms being experienced by patients long after theyve stopped being contagious. Time will tell but great there is research being done on the possible impacts. https://www.abc.net.au//georgia-thought-her-coron/12444716

10.01.2022 We have been keen to provide more support for patients and caregivers who may be dealing with stress, which can occur despite the circumstances we currently find ourselves in. Our new booklets have just been launched and are a great resource that you can read online or download for printing. We encourage you to share them widely with anyone who may benefit.... How to Cope with Stress Booklet Patients https://www.lungitude.com.au/patient-resources/ How to Cope with Stress Booklet Caregivers https://www.lungitude.com.au/carer-resources/

09.01.2022 For those of you following the potential longer-term impacts of COVID as we are, this is an interesting read from The Alfred. https://www.alfredhealth.org.au/ne/covid-attacks-the-brain/

09.01.2022 Heres a neat little trick if you wear glasses or sunglasses when outside. Just as long as your mask still fits firmly.

08.01.2022 So many wonderful staff working hard to care for all the unwell patients. On a side note ... I was in The Alfred for some annual outpatient scans this week and felt very safe. The staff were terrific and took lots of care to ensure everything was handled well.

08.01.2022 From today, visitors will no longer be accepted at any of our hospitals - except on compassionate grounds. We know this will be tough for a lot of people, but i...t's essential that we protect our staff and our vulnerable patients. With the high level of community transmission, we're also seeing longer wait times at our COVID-19 screening clinic, so we ask that you please be patient and work with our staff. There are a lot of changes taking place at the moment, and we thank you for working with us as we do everything we can to stop the spread of COVID-19. It hasn't been an easy week, as Janet Weir-Phyland, Executive Director of Nursing Services, explains. For more information about visitor changes, go to https://bit.ly/2ZAWJxa See more

08.01.2022 Its of course best to ask R U OK more regularly than on one specific day ... however its always a great reminder. The image were sharing also helps you to take the conversation deeper as needed While patients come to mind ... please check in with caregivers, family and friends too. Often they can be putting on a brave face for the sake of their loved one, and they usually need support as well. This is why weve recently launched our new Patient and Caregiver Booklets,... and our Mental Health Stories video. These resources and more information is available within our Patient and Caregiver section of our website https://www.lungitude.com.au/patients-and-carers/

07.01.2022 A wonderful post about a little boy called Jack who helped others during and after his passing. What a lovely gesture for his family to share such a moving story to raise awareness of organ donation.

06.01.2022 A further insight into one of the specialists who helped with the first COVID-19 double lung transplant in the US. Great to read that the patient is recovering well too. https://health.usnews.com//her-patient-got-the-first-covid

06.01.2022 Reviving damaged lungs for transplantation is not yet at clinical stages however is one method being explored to increase the availability of donor lungs. https://www.nytimes.com//heal/organ-transplants-lungs.html

04.01.2022 Chennai hospital conducts Covid-19 positive lung transplant. Interesting comment about fibrosis in post covid-19 lungs. https://www.edexlive.com//chennai-hospital-performs-asias-

02.01.2022 Border restrictions have caused concerns for some patients, including Sean Rice whose story we shared recently in our DonateLife Week stories. There are options for exemptions so make sure to liaise with your specialists who can help with the documentation you may need. https://www.news.com.au///214a7cdb61a9e792b832ea41778a0073

01.01.2022 This week we interviewed Katharine Terkuile, one of our Lungitude Board members. Katharine shared a little about her background, why she joined Lungitude and some further information about our upcoming 'Virtual' Research Presentation on 8 October. Did you know that we have a Lungitude YouTube channel? Subscribe to be the first to see the latest videos ... https://www.youtube.com/watch?v=feee3YkNZf0 See more

01.01.2022 Gorgeous story about little Imogen who was a baby in the UK when she had a bilateral (double) lung transplant. https://www.theargus.co.uk//18705898.brighton-girl-younge/