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Mark Hughes Foundation

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23.01.2022 Meet the Crawley family - our 2021 Beanie for Brain Cancer Ambassadors We all had a tough year in 2020 - isolation, restrictions, no travel, missing relatives and friends, home schooling - but some had a worse year than others. Much worse. Take a few minutes to meet the Crawley family - you’ll be glad you did. You won’t meet a nicer bunch of humans. A very normal, tight knit family living a very normal life that takes a big U turn. This is an inspirational family, built f...rom quiet strength, humility and humanity and the glue that keeps it all together love. The words "inspirational" and journey are far too overused and watered down these days - but this Journey" gives you a taste of the reality that most brain cancer patients live through. And this family truly is inspirational - though they would be the last to think so. Read their story here: https://markhughesfoundation.com.au//2021-beanie-for-brain See more

23.01.2022 Thank you to Drayton's Family Wines who have generously donated some amazing wines valued at $1700 . Don’t miss out on your chance to win a $20,000 worth of prizes in our MHF Magic Christmas Raffle! T&Cs apply, NSW Residents Only https://www.rafflelink.com.au/mhfmagicchristmas

22.01.2022 Help support family and friends of someone with Brain Cancer Researchers at the The University of Newcastle, Australia are developing an online program to support families and friends of people with a Brain Cancer diagnosis. They would like to hear about your experiences and how best to support you. https://breathingspace.community/mark-hughes-foundation-com

21.01.2022 Sending a BIG SHOUTOUT of THANKS to Newcastle Junior Rugby League who have donated over $15000 in the last three years, donating $1 from every registration to MHF. Big thanks to Jody Watsford who makes this donation in honour of great mate Andrew Bates. #MarkHughesFoundation #MHF #TacklingBrainCancer

21.01.2022 $1.5MILLION FUNDED: Medical researchers from around Australia, along with people impacted by brain cancer, will benefit from the research grants announced by the Mark Hughes Foundation at the Hunter Medical Research Institute (HMRI) Annual Awards Night. #TacklingBrainCancer #MHF #MarkHughesFoundation #BrainCancerResearch

20.01.2022 Flinders University’s Dr Cedric Bardy, has successfully obtained three years’ funding for a new brain cancer research project Glioblastoma: Determining how the molecular microenvironment of the human brain influences cancer progression and treatment efficacy. The project, which has now commenced, has received more than $574,000 through the Mark Hughes Foundation, an Australian Brain Cancer Mission Funding Partner. Flinders University SAHMRI

20.01.2022 The Survivorship Diary is a FREE resource for brain cancer patients and their families and is designed to manage all of the information collected throughout their diagnosis and treatment. The Survivorship Diary project was led by Cassandra Bennett (patient) and is proudly printed and distributed by the Peace of Mind Foundation. MHF are extremely proud to be a part of such an amazing initiative, our many thanks go to Cass, Peace of Mind Foundation and all those involved i...n this great project. To find out more or order your free copy head to: https://www.survivorshipdiary.com/ To read Cass' story: https://www.survivorshipdiary.com/cass-story-1

19.01.2022 Mark & Jonno will be selling our MHF Christmas Raffle tickets TODAY (Thur 26/11/20) at @westfieldkotara The Fren family are longtime supporters of MHF and we are so excited they have voluntered to help us sell tickets for our Christmas Fundraiser. Drop in to Kotara today and purchase yours! @thefrenfamily @travelguides #MarkHughesFoundation #MHF #TacklingBrainCancer #MHFBeanie

18.01.2022 This year you can send a loved one an ecard by donating to the Mark Hughes Foundation. You can also choose to dedicate a Gingerbread in memory of a loved one. Be sure to choose Mark Hughes Foundation as your nominated charity. https://givingseason2020.gofundraise.com.au/... #TackingBrainCancer #MHF #MarkHughesFoundation #MHFBeanie #BrainCancer

17.01.2022 Thank you to Harvey Norman Commercial who have generously donated a Breville Coffee Machine valued at $1000 Don’t miss out on your chance to win in our MHF Magic Christmas Raffle. T&Cs apply. NSW Residents Only. https://www.rafflelink.com.au/mhfmagicchristmas

16.01.2022 Pangela St Christmas Wonderland Take the kids for a drive and see the amazing Christmas lights 8pm-10pm every night at 23 Pangela St, Buttaba. Donations made to MHF - with already an amazing$1230 raised so far! Thank you, what a great fundraising idea! https://hostyourown.markhughesfoundation.com.au//JacintaMo Pangela St Christmas Wonderland

16.01.2022 Greg Gibson is riding 2500km around NSW raising funds for MHF. Originally planned as a trip from Perth to Newcastle - COVID restrictions meant Greg had to change plans. We are so proud of everyone who is thinking outside the box for fundraising ideas under these different circumstances. You are amazing! Greg's MHF Everyday Hero Go Fund Me page has raised over $2500 so far. If you would like to support Greg or see our other fundraisers head to our fundraising page: https://...everydayhero.com.au/event/MHF-Fundraising/top_ten #MarkHughesFoundation #MHF #MHFBeanie #BrainCancer #TacklingBrainCancer

16.01.2022 Every year we produce a special video to play at our MHF Magic Ball which celebrates the year that has been. It’s a highlight of the night and we are always very proud to reflect on the achievements of our supporters, staff and researchers. We have never shared these publicly before, but after the year that has been we have decided to share with you all last year’s video, produced by our good friend Mark Rothfield. Let’s all Rise Up together and look forward to 2021!... If you would like to donate, please visit www.markhughesfoundation.com.au

16.01.2022 Thank you to our wonderful supporters Lowes Australia who have once again joined our MHF Beanie for Brain Cancer campaign to help sell beanies. You will find our MHF Beanies available for sale from June 1st at all Lowes Australia Stores. Find your nearest stockist here: https://beanie.markhughesfoundation.com.au/how-can-i-help// Remember: White beanies have been delayed. We apologise for any inconvenience and are doing our best to get them in store as soon as possible. ON SALE FROM 1st JUNE 2021

16.01.2022 You may remember Casey from our IGTV "The Average Brain Cancer Patient". Casey, 30, shared her story with being diagnosed with Glioblastoma. We are deeply saddened to hear that Casey is now under palliative care. Casey shared a wish with her family and friends to raise $10,000 for the Mark Hughes Foundation. They have created "Casey's Wish" through our MHF Everyday Hero fundraising platform and have currently raised an amazing $8,682.17 in just 5 weeks. WOW! If you would like to donate please head to: https://mhf-fundraising.everydayhero.com/au/casey-s-wish Thank you Casey! Sending our love to you and your family. #MarkHughesFoundation #TacklingBrainCancer #MHF #MHFBeanie #BrainCancer #BrainCancerFundraiser

14.01.2022 During the month of September we are asking our wonderful supporters to consider setting up a regular $5 tax deductable donation to the Mark Hughes Foundation. Last year the Hon Greg Hunt (Minister for Health) announced the inaugural Annual Childhood Brain Cancer Awareness Day on September 29th. This day aims to raise public awareness of the impact of childhood brain cancer on patients, family and carers and to focus on the importance of childhood brain cancer-related rese...arch. You can help by donating here: https://app.etapestry.com//MarkHughesF/highfivedonate.html Thank you to Lisa, Greg and Miley for participating in our video to highlight childhood brain cancer.

14.01.2022 Would you like to connect with others who have supported someone with Brain Cancer? Researchers at the University of Newcastle are providing access to the clinically moderated Breathing Space app, which offers connection with others in an online community. They are also interested in your experiences, as a friend or family member of a person with Brain Cancer, and how best to support you. To find out more click here: https://breathingspace.community/mark-hughes-foundation-com

14.01.2022 "Over the years Dad went up and down in terms of his health but always kept doing what he could to provide for the family". John Shotton was diagnosed with brain cancer in February 1991. He underwent 13 surgeries in the first 12months of diagnosis. Thank you to John's son Ian Shotton who share his story with us including the good times and John's love of rugby league! Read John's story here: https://markhughesfoundation.com.au/stories/john-shotton/

13.01.2022 Great news today from Dr Back and Dr Wheeler at Royal North Shore Hospital today. Marks scan was all clear and we don’t need to return for 5 months! There is definitely a smile under that mask haha. Thanks to everyone for your well wishes and prayers, it really means a lot. Kiz and Mark

12.01.2022 ~ MHF Supporter Event ~ Sportsman Luncheon at The Burwood Inn 6 August, 12-4pm. See details and contact details to book your ticket! #MarkHughesFoundation #MHF #TacklingBrainCancer #MHFSupporterEvent

12.01.2022 Help support family and friends of someone with brain cancer Researchers at the The University of Newcastle, Australia are developing an online program to support families and friends of people with a Brain Cancer diagnosis. They would like to hear about your experiences and how best to support them. Click on this link to share your story: https://breathingspace.community/mark-hughes-foundation-com

10.01.2022 September is International Childhood Cancer Awareness Month It is estimated that, on average, about 750 children aged 0-14 are diagnosed with cancer each year in Australia. Tumours of the central nervous system (mainly brain tumours) account for the largest number of cancer deaths for children in Australia. (info from Australian Childhood Cancer Registry) We go Gold in September to raise awareness for their fight ... #MarkHughesFoundation #MHF #TacklingBrainCancer #BrainCancer #ChildhoodCancer #ChildhoodCancerAwareness #MHFBeanie

10.01.2022 Tanisha Cowin was diagnosed with Grade Four Glioblastoma in January 2018. "In October 2018, I finished treatment and two days later, married the love of my life. In March 2020, we welcomed our beautiful little girl into this world." You can read Tanisha's story on our website: https://markhughesfoundation.com.au/stories/tanisha-cowin/

10.01.2022 In conjunction with the Mark Hughes Foundation, researchers at the University of Newcastle are developing an 24/7 online program to help meet the needs of families and friends supporting a loved one. We need your help. Click here to help us. https://redcap.hmri.org.au/surveys/?s=Y3DM8KLMPE

10.01.2022 Have you got your tickets yet? One week to go before Christmas Raffle Draw - Prizes valued at over $20,000 - One Winner Takes All!

10.01.2022 First shipment of MHF Beanies has arrived at Beanie Headquarters! Sooooo excited! #MarkHughesFoundation #MHFBeanie #TacklingBrainCancer #MHF #BrainCancer

09.01.2022 Happy Father’s Day! Kirralee and I are both so lucky to have been able to visit our dads today, we had such a great day. Whilst this day is joyous for many we understand that it is difficult for many too. Our thoughts go out to those who did not get the opportunity to see loved ones - many who have lost their dad or child due to Brain Cancer. This would have had a huge impact today. We hope you manage to recall the many good times you shared together ... #MarkHughesFoundation #MHF #MHFBeanie #TacklingBrainCancer #FathersDay2020

08.01.2022 UPDATE! Thank you to the NRL - National Rugby League for dedicating Round 15 as the Beanie for Brain Cancer Round Save the Dates for 2021. More info to follow in the New Year

08.01.2022 HIGH 5 for Brain Cancer September is International Childhood Cancer Awareness Month Consider setting up a regular or (one off) $5 tax deductable donation to the Mark Hughes Foundation. ... Funds raised from this campaign will go directly towards a paediatric Brain Cancer Research project. For the cost of a small coffee you could play a small part in making a big difference giving children diagnosed with brain cancer and their families hope for the future. Donate here: https://app.etapestry.com//MarkHughesF/highfivedonate.html #MarkHughesFoundation #MHF #TacklingBrainCancer #BrainCancer #BrainCancerFundraiser

07.01.2022 Loving the pimped up wheels Casey We received this pic from Mel (owner of Port Macquarie Disability & Nursing Services) who are the providers now caring for Casey Miller under palliative care. Casey wanted to share this picture with you all.. what do you think of her pimped up wheels? You may remember Casey from featuring in our brain cancer patient videos or from her awesome MHF fundraising efforts. ... All the MHF Team are sending you our love Casey! We love your fun, selfless and inspiring personality... thank you for being you! #MarkHughesFoundation #MHF #BrainCancer #TacklingBrainCancer #MHFBeanie

07.01.2022 Update from Mark: Mark has finally caught up with technology and has created his own insta account haha. For those who might be interested in seeing what he gets up to outside of the MHF please follow him at @markhughes_2020 Whilst being a 100% volunteer for MHF Mark is also very passionate about his health and fitness. He is very excited about a new venture now involved with @airlockertraining_newcastle @airlockertraining_kotara @airlockertraining_bondi

06.01.2022 Thank you to our wonderful supporters IGA who have once again joined our MHF Beanie for Brain Cancer campaign to help sell beanies. You will find our MHF Beanies available for sale from June 1st at participating IGA Stores in NSW/ACT/QLD. Find your nearest stockist here: http://ow.ly/Or3250EUjBj Remember: White beanies have been delayed. We apologise for any inconvenience and are doing our best to get them in store as soon as possible. ON SALE FROM 1st JUNE 2021

05.01.2022 MHF recently awarded $1.578MILLION in funding for eight Innovation Research Grants. Congratulations to Professor Hui Gan from the Olivia Newton-John Cancer Wellness & Research Centre for receiving a grant for his research project for therapeutic targeting of the tumour microenvironment in glioblastoma.

04.01.2022 Our favourite 'Travel Guides' - The Fren Family - are heading to Westfield Kotara to help us sell our Magic Christmas Raffle tix. Come and see them Thursday 26/11/20 9am to 5pm and purchase yours! You could WIN over $20,000 in prizes T&Cs apply, NSW Residents only.

04.01.2022 RAFFLE PRIZES NEEDED We need your help to stock up our MHF Christmas Raffle. It's a great way to support MHF! No prize is too small, we can use them to put together a great hamper pack!... Please contact Sharyn if you are able to assist: [email protected] #MarkHughesFoundation #MHFBeanie #TacklingBrainCancer #MHF #BrainCancer See more

03.01.2022 Unfortunately the shipment of our white beanies has been delayed and they will not be available on June 1st. We will have only very limited numbers of the adult blue and toddlers available via our website or at participating Lowes Australia and IGA stores from June 1st. But more stock is coming! We expect a delay of around 1 week on the white beanies, but will keep you updated on their arrival! ALL Beanies will be available for NRL - National Rugby League Round 15 - Beanie for Brain Cancer Round on June 17th - 21st. We hope to see you at the game! #MarkHughesFoundation #MHF #MHFBeanie #TacklingBrainCancer #BrainCancer

03.01.2022 We have received such an outpouring of support and well wishes for our amazing MHF Beanie for Brain Cancer Ambassadors - The Crawley Family. Have you read their story yet? ..... "As Jason (43) turned the car into the street where his workplace was, something changed. He suddenly lost the ability to speak. The words wouldn’t come out and he felt the muscles in one side of his face drop. He knew straight away something was not right and his instinct was to stop driving. He pul...led the car over immediately into the driveway of his work and put the car in park. He remembers nothing from this point. His two sons, Jackson (11) and Jacob (8) then witnessed their dad have a seizure for the first time in their young lives and had enough foresight to Facetime their mum to say something had happened to dad and show her through FaceTime. Jillian recalls seeing Jason unresponsive and the boys reporting his arms were flapping involuntarily and something was coming out of his mouth. As Jillian rang triple 0 on another phone she relayed the information she gathered from what she could see and what the boys passed on to her and took directions from the emergency worker whilst the ambulance was in transit. She was instructed to ask her two young sons if their dad was breathing, if the handbrake was on and instructed them to turn the car engine off - which was still running..... " Jackson and Jacob have been awarded a citation for courage from NSW Ambulance for their swift action on this day. You can continue reading their story here... https://markhughesfoundation.com.au//2021-beanie-for-brain

01.01.2022 May is Brain Cancer Awareness Month ALARMING STATISTICS REVEAL: On average, approximately 1970 brain cancers are diagnosed each year in Australia; that is roughly 1 person diagnosed with brain cancer every 5 hours. In 2016, there were 1,771 new cases of brain cancer diagnosed in Australia. In 2020, it is estimated that 1,879 new cases of brain cancer will be diagnosed in Australia. In 2018, there were 1,410 deaths from brain cancer in Australia. In 2020, it i...s estimated that there will be 1,518 deaths. Brain cancer has a very high mortality rate and survival rates have hardly changed for 30 years. Brain cancer is the most complex cancer yet it is the most under-studied. Brain cancer costs more per patient than any other cancer because of its highly debilitating, affects people in their prime and often means family members cannot work if they become carers Brain cancer receives less than 5% of federal government cancer research funding. #MarkHughesFoundation #MHFBeanie #TacklingBrainCancer #BrainCancer #BrainCancerAwareness #GoGreyInMay