Muscular Dystrophy Queensland in Nundah, Queensland | Disability service

Muscular Dystrophy Queensland

Locality: Nundah, Queensland

Phone: +61 7 3243 9700

Address: 1149 Sandgate Rd, Nundah 4012 Nundah, QLD, Australia

Website: http://www.mdqld.org.au

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• Medical and health
• Non-profit organisation
• Charitable organisation
• Disability service

25.01.2022 Don't miss your chance to win $13,000! Get your tickets in our Lucky 13 Art Union today http://mdqld.org.au/lucky13/

25.01.2022 Have you got your supports in place for 2021? MDQ has a range of NDIS services available for the neuromuscular community. Not an NDIS participant? Talk to us about other funding options for our specialised Allied Health services.

25.01.2022 We're pleased to celebrate NAIDOC week this week, acknowledging the theme of this year which is Always Was, Always Will Be. While our head office in Nundah sits on the grounds of the Turrbul tribe, our team and community live and work all around Queensland. We honour all of our First Nations people and are proud to be part of one of the oldest continuing cultures on the planet. #NAIDOC2020

24.01.2022 We're so pleased to read about this new ramp at Sutton's beach in Redcliffe which will be ready next month - in plenty of time for summer! Great news for the locals and those who enjoy a day trip. ABC Brisbane have asked for suggestions for other locations so pop over to the post below and have your say!

24.01.2022 Our thanks goes to the Ford Burnett Foundation for their generous funding of our new Renault Kangoo. This little white van will enable our allied health team to visit our clients with a larger selection of equipment in their very own homes. For more information on how we can help you please give us a call on 1800 676 364.

23.01.2022 A story from our friends down south but one that we're sure will resonate with everyone in our community. We're here to help you chase those goals. Give us a call on 1800 676 364 or drop us a message and start on the road to your goals today!

22.01.2022 Today is International Day of Charity and to celebrate the Royal Australian Mint has released 25 million "Donation Dollars" into circulation to help boost the charitable sector. Keep an eye out for them amongst your change and consider which charity you might like to support with it. Every little bit counts! #donationdollar #charity

22.01.2022 How has this COVID-19 period affected you? Survey closes on Sunday 2 August so there is still time to share your experience.

22.01.2022 Day Two: 113kms down 1567kms to go - 1680kms - the equivalent distance from MDQ's Brisbane office to Cairns Esplanade. You can help Chris bring specialist services to regional Qld for people living with muscular dystrophy and similar conditions: Sponsor Chris to complete his kms Sign up to take on some of the 1567kms left to go... Share this post https://ridewalkrollwithchris.gofundraise.com.au/ See more

22.01.2022 While our usual Brisbane HOG ride didn't go to plan this year, the crew did get together for a social ride to raise funds for MDQ yesterday. Thanks so much to everyone who came along! It was a beautiful day for a ride - even if it was a little on the warm side!

21.01.2022 A survey worth completing.

21.01.2022 Today is R U Ok Day. This year more than ever we need to check in with each other and ask 'Are you ok?'. What happens when someone says they're not ok though? What do you do next? This helpful role play video from the team at R U Ok Day provides some hints and tips on what to say next if someone isn't ok. www.ruok.org.au/how-to-ask

20.01.2022 MDQ respects the new health directive released by the Queensland Government this morning. The health and safety of our clients and staff is always our highest priority. In response we will be making a few adjustments to services for the coming days. We have made a decision to cancel all face-to-face visits in the Greater Brisbane region for Monday 11 January. We will be in touch with anyone that this affects. Services will be provided online or by phone where possible. Our Su...nshine Coast physiotherapist will continue to provide services as usual and our plan management service will not be affected. Our office will be closed on Monday however all staff will be working. Please contact us via email or mobile phone if you need assistance. We are closely monitoring the situation and will keep you informed. You can read the directive here: https://www.qld.gov.au//current-/greater-brisbane-lockdown

20.01.2022 If youre looking for a reason to get out and about (in a socially distant appropriate way!) weve got something for you! Sadly we arent able to hold the Cairns Ride Walk Roll event this year But event founder Chris Wiles came up with a very impressive alternative! Chris has committed to riding the equivalent distance between the MDQ office in Brisbane and The Esplanade in Cairns from 8 August to 7 September. That's 1,680 kms over 30 days whatta guy!! Hes also aiming... to raise $10 per kilometre he rides. We thought wed help him out though and put a call out to see if others might be willing to save his legs and do some kms and fundraising for him. If youd like to join in and cover some kms (any way you like!), you can register for free here: https://ridewalkrollwithchris.gofundraise.com.au/cms/home

20.01.2022 ***Behind the scenes*** Some of the MDQ team and one of our wonderful clients are filming today to create videos and insight into what it is like to live with MD. These videos will appear on The Loop - Your Neuromuscular Resource Hub. Thanks to the team from Digital Black for working their magic and to the NDIS National Disability Insurance Scheme for funding this resource.

20.01.2022 Have you checked out the new videos on The Loop - Your Neuromuscular Resource Hub yet? You might recognise a few faces. Please share these videos with your friends and family!

19.01.2022 If you were the very kind person who popped into the Tomra Recycling Centre at West End over the weekend and donated your Containers for Change to us - THANK YOU! Did you know that you can donate the change from your recycled cans and bottles to MDQ? It's really simple and most recycling centres will let you do it on the spot or via your account. To find out more email [email protected] or call us on 3243 9700.

19.01.2022 If you haven't checked out the fashion from Christina Stephens we highly recommend you do! And Tracey, we love seeing you involved in this campaign!

19.01.2022 We're so disappointed to announce that we have made the difficult decision to cancel the Muscular Dystrophy & Brisbane HOG Charity RIDE for 2020 All registered participants have been contacted with additional information. We hope that the event will be able to go ahead in May 2021. Keep an eye on our socials and web page for further information.

19.01.2022 We'd love our community to get behind this family and sign their petition for Queensland to improve the speed of diagnosis by including screening for SMA in the newborn heel prick test. Oakley’s SMA Adventures Spinal Muscular Atrophy Australia Inc.

18.01.2022 Get Connected! Grab a cuppa and join us on Zoom for afternoon tea on Thursday 3rd December 1:30pm - 2:30pm. If you want to join in, please contact us and we will send you a zoom link.

17.01.2022 We are very pleased to welcome Janine Anderson to our team! Janine is an experience physiotherapist and will be providing services for the Sunshine Coast and Gympie. Contact MDQ if you would like to make an appointment.

15.01.2022 Dreamworld in the news again. Perhaps this headline should read "disability advocate and former paralympian" rather than "women in a wheelchair... "

15.01.2022 Today is International Day of People with Disability and this year's theme is Building Back Better: toward a disability-inclusive, accessible and sustainable post COVID-19 World. We are so pleased to be part of this wonderful community and encourage everyone to 'see the ability in disability'.

15.01.2022 Our latest supporter newsletter is out now! We love sharing stories of the difference our supporters make to the lives of those in our community. And we love sharing stories of the lengths our supporters go to, to raise funds. Grab a cuppa, take a break and have a read here: https://bit.ly/2QpXrI0

15.01.2022 Today is World Duchenne Awareness Day. On this day we raise awareness for Duchenne and Becker muscular dystrophy around the globe. The theme of this year's awareness day is 'Duchenne and the brain'. Did you know that the same protein that is missing in the muscle causing muscle breakdown, is also missing in the brain resulting in additional complications for those with the condition. In raising awareness this year we hope for early and appropriate testing, more research and better care on this aspect of the disease. [SOURCE: www.worldudchenneday.org]

15.01.2022 In light of the uncertainty of the COVID-19 situation in SEQ, we have made a decision to postpone our planned physiotherapy trip to Cairns. While none of our staff are affected and cases are still very low, the welfare of our clients is always our number one priority. We will closely monitor the situation and reschedule when we are confident that everything is back under control.

14.01.2022 Look who's coming back... Tien is returning to MDQ from Monday, July 27 as a Support Coordinator and we are very happy to welcome her back to the MDQ family! In 2014, Tien took the opportunity to adventure from London to Mongolia. Since then she has worked in the travel industry and has traveled extensively through Asia, the Middle East and North America. Tien is excited to return to MDQ and cannot wait to be back in the community assisting our clients.

13.01.2022 Best wishes for the festive season from the MDQ team!

13.01.2022 Do you know someone who might be looking for their next role and interested in leading our peak body Muscular Dystrophy Foundation Australia? This wonderful role, providing a national voice to state based organisations like us, is a flexible one and can be based anywhere in Australia. Please share with your networks. More information here: https://www.seek.com.au/job/50972958

12.01.2022 We were delighted to host Assistant Minister to the Deputy Premier and Health, Nikki Boyd MP, at our office in Nundah recently. We discussed the positive outcomes of the Queensland Health funding we are grateful to receive and also some of the challenges our clients face in gaining access to the care they need under their NDIS funding. Having the opportunity to meet with the Assistant Minister is so important to our organisation and we look forward to a continued relationship.

12.01.2022 As Greater Brisbane has gone into a 3 day lockdown, our staff are working from home for the period of the lockdown. Face-to-face appointments from our allied health team have been put on hold until after Easter. Support Coordination and Plan Management services will continue as usual on line or by phone. You can call the mobile number of the person you need to speak to and we are still able to answer and re-direct calls made to our office number (07) 3243 9700 The health and safety of our clients and staff is always our highest priority and we appreciate your understanding during these difficult times. Stay safe and we will see you soon.

11.01.2022 Chris Wiles is riding 1680kms to raise funds for people with muscular dystrophy this month. Hi rides took him to some pretty epic sights this weekend. Did you do any kms for Chris this weekend? If not you might like to drop a donation on his page: https://bit.ly/3gfhUud Or there's still time to sign up and virtually Ride Walk or Roll yourself - sign up here today! https://bit.ly/3gfhUud

10.01.2022 We were wrapped when Jack (who is 12 and has SMA) and his sister Claire told us about their new business, selling 'burrito snugglies'. We were even more wrapped (pun intended!) when they told us they were donating 10% from the profits of their new business to three charities, of which MDQ are one. And you will be too once you grab one of these cosy snugglies. Check them out Snugglies

09.01.2022 Are you OK? Yesterday social media was flooded with this important question for R U OK? Day but its also important to remember to connect with friends and loved ones throughout the year as well. So many people have been feeling isolated this year and we want to change that. MDQs Get Connected program is reaching out to the neuromuscular community across Queensland and a calendar of events will be released next week. If you want connect, please contact us on 3243 9700 or email [email protected]

09.01.2022 MDQ is closely monitoring the latest cluster of COVID-19 cases in south-east Qld. Our staff are following strict infection control procedures but it is also vitally important that you let us know before an appointment if you or a member of your household is sick, or has had any recent contact with someone who is. The NDIA have now made allowances for those living in affected areas of Qld to access PPE. If you require PPE for your personal use whilst receiving supports, you can now access funding from consumables in your Plan. Providers who provide your Daily Activity supports will also be able to claim for PPE. More information about this can be found on the NDIS website https://www.ndis.gov.au/coronavirus/latest-advice-ndis

09.01.2022 MDQ's Lead Physio demonstrates our long awaited MOTOmed which is now available in our Client Centre thanks to a grant from the Lord Mayor's Charitable Trust. This movement therapy device allows active or passive movement of the arms or legs that can even be accessed from your wheelchair. If you want to find out more about using the MOTOmed, please get in touch.

09.01.2022 What has been your experience living with a neuromuscular condition during COVID-19? We want to know! Our group of state-based Australian organisations dedicated to people with muscular dystrophy and similar conditions are working together to understand your experience during COVID-19. We've put together this survey to find out more about your experience. The results will assist us to provide strengthened advocacy to federal, state and local government agencies for people living with a neuromuscular condition.

08.01.2022 Please join us in sending a huge thanks and good luck to Cassie and Dan. They were both meant to be running the Gold Coast Marathon this weekend however a global pandemic and illness has put them both to the test. Despite the challenges Cassie has stuck to her training plan and will be running her own marathon in Townsville this weekend with a few friends along the way as Dan cheers her on. They've also raised more than a whopping $2500 to support Queenslanders with MD in memory of Cassie's brother Luke who had MD and passed away 10 years ago. Cassie you've got this - we can't wait to hear the 'race report'!

08.01.2022 You've heard about our new online community The Loop - Your Neuromuscular Resource Hub and now the app is here! Details on how to download are below so that you can always have this handy resource at your fingertips!

07.01.2022 Today we send a huge thank you to everyone at Albany Hills State School for 'going green for MD'. 11 year old twins, Mikayla and Juandre, led the charge on the fundraising day in honour of their younger cousin, Zander, who has recently been diagnosed with Duchenne muscular dystrophy. The school raised $1154 for the Queensland muscular dystrophy community and also built awareness of the condition through class activities. You're all incredibly awesome - thank you!

07.01.2022 The Myotonic Dystrophy Foundation is hosting a Virtual Conference, taking place September 25th & 26th! This event has been designed as an educational and community-building event specifically for individuals and families living with myotonic dystrophy.

07.01.2022 Will you join Team MDQ? Entries are open and strictly capped this year. Get in quick!!!

07.01.2022 Have you signed up to do some kms yet? Chris Wiles, founder of our Cairns Ride Walk Roll event, is going solo this year - but you can still help him! Next Saturday he'll do the first of 30 daily 54km rides to raise awareness of and funds for people with muscular dystrophy. You can give him a hand by signing up to Ride Walk or Roll here: https://bit.ly/3gfhUud Chris - we think you're a legend!

06.01.2022 Today we drew the winner of our Art Union 98. One lucky supporter is now $13,000 richer! We send a huge thanks to everyone who bought tickets and especially our long time regular supporters.

06.01.2022 Our client Tristram is at it again! Today he co-hosted ABC RN Life Matters in honour of International Day of People with Disability. Have a listen to the recording links in the post below.

06.01.2022 Our friends from Muscular Dystrophy NSW are hosting a FREE online Neuromuscular Information and Research Day this Saturday afternoon (17 October). For more information and to register click on the link below.

05.01.2022 The past few months have been a roller-coaster of emotions for many people. If you are struggling to cope, let someone know. Beyond Blue has a range of resources that may be able to help you.

05.01.2022 We've postponed our draw till the end of April as our office in Brisbane is in lockdown. Silver lining, you've got extra time to get your entry in!

05.01.2022 We have some exciting news! Muscular Dystrophy Queensland is working with the Producers of Australias newest travel and adventure TV series to find cast members! We're looking for passionate people to undertake a life-changing 6-day journey in the first quarter of 2021 and star on national TV! At the same time they'll be raising awareness and funds for people with muscular dystrophy. If this sounds like you, then apply now at www.AdventureAllStars.tv ... If this isn't for you please help us spread the word and share this with your friends, family, work colleagues and social media pals! This ground-breaking filming & fundraising project is proudly produced by Charity TV Global.

05.01.2022 The new Lucky 13 Art Union is open now. Get your ticket to be in the running to win $13,000 today! http://mdqld.org.au/lucky13/

05.01.2022 A free SMA Update Webinar will be hosted tomorrow, 25 June from 5.30pm - 6.30pm by Dr Les Roberts and Dr Lauren Sanders. Full details on the discussion and a booking link to are included in the post from our friends at Muscular Dystrophy NSW

05.01.2022 Our CEO, Helene Frayne, was the first of MDQ's staff to roll up her sleeve for a COVID-19 vaccination this afternoon... and it didn't hurt at all!

04.01.2022 Our new Kangoo had its first big outing today... Lynne and Isabella dropping off a new power chair to Kalbar! Thanks to the Ford Burnett Foundation for their generous funding of our Kangoo making this all possible.

04.01.2022 We're grateful to the Lord Mayor's Charitable Trust for coordinating a recent donation of automatic hand sanitising stations to local charities. Ours has pride of place in our reception area and our GM - Business and Development, Penny, was only too pleased to demonstrate how simple it is to keep our hands germ free! Thank you LMCT and IQR Group

04.01.2022 Get in the Loop! Check out all of the new content going up on the Loop website and facebook page - so many great stories from people who know what its like to live with a neuromuscular condition. Maybe you'd like to share your story too?

03.01.2022 Here's your chance to help shape the future of the NDIS. Sign up to their Participant First Engagement Initiative and be a voice for your community.

02.01.2022 If you've considered a move to live more independently then this article by our client Tristram might give you a few hints and tips. Our team is also here to help. If you have any questions on making a move get in touch with the team on 1800 676 364.

01.01.2022 ***Calling all budding TV Stars*** Are you ready for the adventure of a lifetime? We've partnered with Charity TV Global to give you the chance to embark on an epic all expenses paid 6-day journey - and appear on TV! Be quick - casting is closing soon! To find out more, register your interest at www.adventureallstars.tv

01.01.2022 MDQ's Client Centre is open! Our Allied Heatlh professionals can design individual programs to support your movement and flexibilty. If you are looking for a health professional who understands the unique challenges of living with a neuromuscular conditon, please contact us on 3243 9700 or email [email protected] to discuss the best options for you.

01.01.2022 We are honoured to have been one of the 10 charities that the late John Watts, founder of Sirron Holding Group, held close to his heart. John significantly contributed to MDQ over many, many years, helping our community live the lives they choose. We look forward to a continued relationship with Sirron Holdings Group and being part of John's lasting legacy.

01.01.2022 Have you heard about the Trailblazer Challenge? Paralympian, Dylan Alcott is championing this 'hackathon' which is running throughout the month of September to bring support, awareness and solutions to everyday challenges faced by the adult SMA community. What the video below and get involved!