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ME/CFS/FM Support Association QLD Inc | Other



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ME/CFS/FM Support Association QLD Inc

Phone: +61 7 4632 8173



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25.01.2022 https://m.facebook.com/story.php?story_fbid=10158676351279111&id=73831909110



20.01.2022 , , - Stanley recently presented a summary of his PhD w...ork in the Griffith Health Group 3MT competition. He was in the exceptional company of 22 other entrants from disciplines including Medicine, Psychology, Medical Science, Physiotherapy, Exercise Science and Dentistry. This year has had the most entrants to date and Stanley is very proud to have presented the work of NCNED and raise awareness for ME/CFS. The title of Stanley’s entry is ‘Body Out of Order’. Stanley uses the analogy of an out of order arcade machine to describe the many intricacies of ME/CFS. These include misconceptions of the illness, natural killer (NK) cell dysfunction being a stable feature of ME/CFS, and the novel identification of TRPM3 dysfunction in the NK cells of ME/CFS patients by NCNED researchers. Stanley uses these notions as a platform to explain the significance of his research in TRPM7, a related channel, in advancing our understanding of ME/CFS and improving patient outcomes. Stanley will progress to final at Griffith University in September to hopefully go onto the Asia-Pacific Final 3MT. NCNED researchers would like to thank everyone who supports our research and the patients that enable advancements in ME/CFS research through their participation. In particular, NCNED would like to thank the Stafford Fox Medical Research Foundation, Mr Douglas Stutt, the Mason Foundation, the McCusker Charitable Foundation, Mr Adrian Flack, Mr and Mrs Ian and Talei Stewart, the Alison Hunter Memorial Foundation, the Buxton Foundation, the Henty Community, the Blake Beckett Foundation, Change for ME Charity, QLD ME/CFS/FM Support Association QLD Inc, the ACT ME/CFS Society, and ME/CFS and Lyme Association of WA Inc. Best wishes, Sonya, Don and the NCNED Team

19.01.2022 https://www.facebook.com/275549965935687/posts/1650875651736438/

19.01.2022 Just a little sea change to help you through the day



17.01.2022 https://m.facebook.com/story.php?story_fbid=170900207938034&id=106326304395425

15.01.2022 https://9now.nine.com.au//racing/ckgih3lam000f0hpae3b7jgwk

14.01.2022 /. NCNED wish to thank the ME/CFS patients and healthy volunteers... that continue to support and participate in our research into the characterisation of ion channel dysfunction in ME/CFS. Naltrexone is the first therapeutic we are assessing for biological efficacy and hope to commence a clinical trial next year. Importantly, NCNED is also undertaking further investigations into other potential therapies very soon. We hope to commence these in vitro studies in October. NCNED greatly appreciate the contributions of past and present participants and hopes to engage more ME/CFS patients and healthy volunteers to further our research. NCNED researchers would like to sincerely thank everyone for their patience, understanding, and above all, your enduring support in this collective endeavour. In particular, NCNED would like to thank the Stafford Fox Medical Research Foundation, Mr Douglas Stutt, the Mason Foundation, the McCusker Charitable Foundation, Mr Adrian Flack, Mr and Mrs Ian and Talei Stewart, the Alison Hunter Memorial Foundation, the Buxton Foundation, the Henty Community, the Blake Beckett Foundation, Change for ME Charity, QLD ME/CFS/FM Support Association QLD Inc, the ACT ME/CFS Society, and ME/CFS and Lyme Association of WA Inc. Best wishes, Sonya, Don and the NCNED Team



10.01.2022 https://www.facebook.com/715819791912965/posts/1779654042196196/

09.01.2022 With FM/CFS and many other illnesses, we need all the strength we have just to get through the day.

08.01.2022 https://www.facebook.com/111905763774120/posts/168446478120048/

08.01.2022 Recently Dr. Kiran Thapaliya and NCNED researchers published an important neuroimaging paper in Neuroimage: Clinical journal. This paper caught attention in the... ME/CFS community. As a result of this, Dr. Kiran Thapaliya was interviewed by @MyalgicEAustralia (ME Australia) and was featured in Meet the Scientists profile. To read his full interview, please click on the link below. https://meaustralia.net//meet-the-scientists-dr-kiran-tha/ NCNED researchers would like to sincerely thank the Stafford Fox Medical Research Foundation, Mr Douglas Stutt, the Mason Foundation, the McCusker Charitable Foundation, Mr Adrian Flack, Mr and Mrs Ian and Talei Stewart, the Alison Hunter Memorial Foundation, the Buxton Foundation, the Henty Community, the Blake Beckett Foundation, Change for ME Charity, QLD ME/CFS/FM Support Association QLD Inc, the ACT ME/CFS Society, and ME/CFS and Lyme Association of WA Inc. Best wishes, Sonya, Don and the NCNED team

08.01.2022 https://m.facebook.com//a.3320079335703/3089397647831302/



06.01.2022 With all that is goin on on top of what our individual lives have to deal with I came to realize .... It’s ok to not be ok sometimes as long as you do what you need to do to bounce back more invigorated!

03.01.2022 Due to Covid 19.... The ME/CFS/FM Support Group Meetings are cancelled to further notice. Sufferers can still Ring, Email and Facebook Message the Association and we will get back to you at as soon as we can. Take Care. Rhonda.

03.01.2022 NCNED researcher Dr. Leighton Barnden was invited to present his findings on ME/CFS at The Centre for Advanced Imaging, The University of Queensland on 20 Octob...er, 2020. His talk discussed the detection of brain dysfunction in Chronic Fatigue Syndrome using multimodal brain MRI and is accessible by clicking on the link below: https://youtu.be/0H5UJQSa0l0

02.01.2022 NCNED needs more participants for current NCNED is continuing to undertake research in the area of calcium receptors, ...signalling and pharmaceutical intervention. We need more healthy volunteers as well as ME/CFS sufferers aged between 18-60 years old, non-smoking and not currently taking medication. Please note . Participants will be asked to complete an online medical history questionnaire and to donate up to 85ml of blood. Collections can be done at designated collection centres or home visits if required. For their time, participants will receive a $5 Coles voucher and enter the draw to win a $50, $75 or $100 Coles voucher drawn half-yearly. If you are interested in participating, could you please email [email protected] or call (07) 56789283 for further information.

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