Miracle Babies Foundation in Darwin, Northern Territory | Non-profit organisation

Miracle Babies Foundation

Locality: Darwin, Northern Territory

Phone: +61 1300 622 243

Address: 4 Henbury Ave, Wanguri Darwin, NT, Australia

Website: http://www.miraclebabies.org.au

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• Non-profit organisation
• Community organisation

25.01.2022 Hi all the June playgroup will be held next Thursday 13 June at C3 Church Malak from 9am. We hope you can join us Best wishes Natalie

24.01.2022 Hi families -sorry tomorrow’s NurtureTime has been rescheduled to next Thursday 10 Dec. Apologies for any inconvenience. Hope you can join us next week.

23.01.2022 Fundraising BBQ at RDH on 19 March to support the amazing Deb Ribbons London marathon campaign. All money goes to the Miracle Babies Foundation - https://give.everydayhero.com//miracle-marathon-baby-nt-da

21.01.2022 ***IMPORTANT update regarding our NurtureGroups*** The health and safety of our miracle babies and their families is our priority and to continue to deliver our vision during this health risk in the safest ways possible. With great disappointment, Miracle Babies have made the decision to suspend all NurtureGroups Australia wide for the next fortnight with a view of reassessing circumstances each fortnight. Families needing support over this time, please register on the link... below to our NurtureTime Online sessions and connect with other families across Australia. We will however continue to offer support for miracle families in the following ways: NurtureLine 1300 622 243 (1300 MBABIES) will remain available and accessible 24 hours 7 days a week. In light of most Neonatal Intensive Care Units being closed to only parental visitors, we will be offering several weekly NurtureTime Online sessions. Our NurtureProgram teams will be conducting these live sessions for all families nationally to connect and be supported during these difficult times. If you are a NICU or SCN family and wish to register, please do so here: https://miraclebabies.org.au//register-for-nurturetime-on/ Continue to wash hands (with water, soap and for 20 seconds), avoid large gatherings, self-isolate as much as possible and follow the guidelines of your local state health departments.Stay safe, take care and reach out if you need. #miraclebabies #prematurebabies #sicknewborns #NICU #SCN #selfisolate #washhands #NurtureGroup #NurtureTime #NurtureLine

21.01.2022 Playgroup is on this Thursday and joins the Mimik-ga Families as First Teachers program at the old Henbury School. Date: Thursday 3 September Start: 9.30-10.30am venue: 4 Henbury Ave Wanguri... For registration purposes, please message me if you and your little one will be attending. thanks Natalie - Miracle Babies support officer, NT

21.01.2022 hi families the last playgroup for this year will be held this Thursday and joins the Mimik-ga Families as First Teachers program at the old Henbury School. Date: Thursday 10 November Start: 9.30-10.30am venue: 4 Henbury Ave Wanguri For registration purposes, please message me if you and your little one will be attending. ... thanks Natalie - Miracle Babies support officer, NT See more

20.01.2022 ***SURVEY, Can you help?*** The aim of this study, called COHESION, is to develop a Core Outcome Set for use in research studies of treatments for neonatal encephalopathy. Neonatal encephalopathy is a condition that can occur in newborn infants when they have had a lack of oxygen, and this can cause complications with the infants brain. Neonatal encephalopathy is one of the leading causes of brain injury in newborn infants.... How do I know if I can take part in this study? You can take part in this study if you are over 18 years of age and are a parent or other family member who care, or have cared for, an infant who has been diagnosed with and received treatment for neonatal encephalopathy. What will I have to do? If you are interested in taking part in this study, please email us at [email protected] and we can send you on a Participant Information Leaflet that gives more detail on this study. If you agree to take part in this study, we would like to ask you some questions. This is called a research interview. The interview will be done via a video call, using a video conferencing software called Zoom. The interview will take place at a day and time that suits you. CLICK HERE to find out more: http://nbci.ie/cohesion-interviews/ *This study has received ethical approval from: National University of Ireland, Galway Research Ethics Committee (Ethics Code:19-Apr-14). #survey #research #neonatalencephalopathy #miraclebabies #prematurebabies #sicknewborns #COHESION #NationalUniversityofIreland #GalwayResearchEthicsCommittee

19.01.2022 CAN YOU HELP? *WIN for your NurtureGroup* Its been a very challenging start to the year and with major fundraising initiatives postponed or cancelled for 2020, Tuesday 19th May will be more important than ever for Miracle Babies and all of our families. We have just 24 hours to raise $100K to help ensure that our support services can continue and reach as many families with a premature or sick newborn like your own across 2020 and into next year. On this day, ALL donations ...will be quadrupled, with thanks to our Matching Donors. We would love if you could help us reach our goal by sharing on social, via email, texts etc. In return for your support, the team that raises the most will WIN a special celebratory, post-iso get together (when safe to do so). Like you, we are looking forward to finally being able to see each other again! We have 24 hours only, all donations can be made ON TUESDAY 19th MAY directly via your team link below. You can start sharing from now though and ask people to save the date! https://www.charidy.com/miraclebabies/NurtureGroupDarwin Thank you! Your support will go a long way for all of our families right now.

19.01.2022 Deba fundraising page for Miracle Babies.... https://give.everydayhero.com//miracle-marathon-baby-nt-da

19.01.2022 We are live! Quadruple your donation and have 4 x the impact! https://www.charidy.com/miraclebabies

19.01.2022 Hi everyone - Fridays NICU afternoon tea will now will held at the Royal Darwin Hospital Auditorium (ground floor). Pls bring along a plate of food to share and rsvp [email protected]

19.01.2022 The amazing Deb Ribbon, RDH clinic nurse manager, Special Care Nursery. Check out what shes doing in April 2020 to raise money for Miracle Babies! https://m.facebook.com/story.php?story_fbid=173591383730959&id=202953729743607&_rdr

17.01.2022 Fundraising raffle for Deb Ribbons London marathon campaign! Tickets are $5 each. Pls contact Deb via [email protected] or leave a message here to get your ticket. Tickets on sale until 8 April. https://give.everydayhero.com//miracle-marathon-baby-nt-da

17.01.2022 NICU staff at RDH will be hosting a reunion for ex NICU families to celebrate World Prem Day. Families are welcome to bring a pic of their little one during their time in NICU and share their story. RSVP [email protected]

16.01.2022 Hi all. Our monthly playgroup is on this Thursday and joins the Mimik-ga Families as First Teachers program at the old Henbury School. Date: Thursday 6 November Start: 9.30-10.30am venue: 4 Henbury Ave Wanguri... For registration purposes, please message me if you and your little one will be attending. thanks Natalie - Miracle Babies support officer, NT

14.01.2022 FEEDBACK ABOUT YOUR EXPERIENCE WITH THE NT PUBLIC HEALTH SYSTEM IN THE WAKE OF THE CORONA VIRUS Hello Families, I am a parent of Miracle Babies born premature and a community representative on the Top End Health Advisory Committee. The purpose of the committee is to understand and use community feedback and engagement to shape the delivery of public health services in the Territory. The Top End Health Advisory Committee will be meeting this week and one of the key topics wi...ll be the Covid 19 pandemic, the public health response and the impact on the NT community. I would be grateful to hear from your family about your experience with the public health system in the wake of the pandemic. For example, feedback around levels of anxiety, levels of support for restrictions, level of confidence in health services, compliance with restrictions etc. Please do not hesitate to email me at [email protected] More info about the committee is available here https://health.nt.gov.au/committ/health-advisory-committees

14.01.2022 Quick reminder our monthly playgroup is on tomorrow from 9am at the C3 Chruch Malak in the cafe area (main auditorium building)!

14.01.2022 Hello Miracle families - a quick reminder that our monthly NurtureGroup is on this Thursday. Details below.

13.01.2022 Dear NurtureGroup Families, We hope you are all keeping safe and well during the pandemic and looking forward to overcoming these challenging times very soon. Our NurtureGroups remain on hold, however we are closely monitoring our service areas over the coming weeks as restrictions start to ease. We would greatly appreciate your comments below regarding your thoughts around attending NurtureGroup for your family. We are working hard to review and structure delivery of servi...ces to safely support families within the limitations caused by COVID-19. Please know that we are doing all we can in supporting families during this time and planning for a return to our usual face to face services at some point in the future. We have introduced NurtureTime Online for families to connect and be supported during isolation and have now increased these to 2 sessions per day. You can register for any of the sessions at https://www.miraclebabies.org.au//register-for-nurturetim/ Our NurtureLine, 24 hour family support helpline remains available for families or you can email [email protected] Wishing you all love, health and happiness From the Miracle Babies Team

12.01.2022 ***WE NEED YOUR HELP*** Thank you to those who have already helped us rally support to change Australias current legislation around parental leave and extend ...paid parental leave for parents of premature and sick newborns in NICU or Special Care. We are seeking as many signatures as possible on our Petition (EN1167) - Improve parental leave for families of premature and sick newborns. Please sign and share (petition closes 25th December 2019): https://www.aph.gov.au/petition_list?id=EN1167 We want to see meaningful consultation about the issue in order to implement improved parental leave support for families of premature and sick newborns. #improvepaidparentalleave #miraclebabies #prematurebabies #sicknewborns #supportingfamilies #NICU #SCN

12.01.2022 Wow! We are blown away. Our 24 Hour Quadruple Giving Day managed to raise more than $115K and more than $29K came from our NurtureGroup families! We are so inspired and overwhelmed by your support and want to send a HUGE thank you to everybody who helped. Congratulations also to Nepean NurtureGroup who were the highest fundraisers, raising $4,492! Thank you all again!

10.01.2022 NurtureTime Online has a few sessions available this week. If you are a NICU/SCN family and need some extra emotional support, pop online to register: https://m...iraclebabies.org.au//register-for-nurturetime-on/ A huge thank you to Redsbaby who are proud supporters of this weeks NurtureTime Online session. If you would like information on how you can support this service, please PM us. #miraclebabies #NurtureTime #support #prematurebabies #sicknewborns #miraclefamily #community #NICU #SCN #redsbaby #sponsor

10.01.2022 Hi all our next monthly playgroup will be held this Thursday from 9am at the lovely Family as First Teachers venue.

10.01.2022 Proud Ambassador and Miracle Mum, Deb Knight, has a special message... 1 day to go. Its your chance to make a HUGE difference to families of premature and sick... newborns around Australia, join us tomorrow: www.charidy.com/miraclebabies #QUADRUPLEdonation #24hrsonly #Tuesday14thMay #debknight #ambassador #miraclebabies #prematurebabies #sicknewborns See more

10.01.2022 Hello families our monthly playgroup is on again this Thursday at C3 Chruch from 9am. Come down and join us for coffee and some morning team. Our playgroup is a great chance for NICU families to hang out and chat.

10.01.2022 Hi families Our first NurtureGroup for 2021 will be held this Thursday and once again joins the Mimik-ga Centre Families as First Teachers program. Details below: Start: 9.30 -10.30am Venue: 4 Henbury Ave, Wanguri ... Pls message to register. See more

09.01.2022 Hi all first playgroup for 2020 will be held tomorrow at 4 Henbury Ave and merged with the Families as First Teachers playgroup. New details listed below.

08.01.2022 ***RESEARCH SURVEY*** Are you the parent of a preterm baby born between 32 and 36 weeks gestation? Researchers at Lifeblood Milk and the South Australian Heal...th and Medical Research Institute want to learn about opinions on using donor human milk for preterm babies born between 32 and 36 weeks gestation when their mum is having difficulty producing enough breastmilk. If you would like to share your opinion, you are invited to participate in a short, anonymous online survey: https://redcrossblood.au1.qualtrics.com//SV_eCAT5eNIJ1GSvdP. This study has been approved by the Australian Red Cross Lifeblood Human Research Ethics Committee (Reference Number: Klein 10012020).

08.01.2022 hi families our last monthly playgroup for this year will be held this Thursday and joins the Mimik-ga Families as First Teachers program at the old Henbury School. Date: Thursday 6 November Start: 9.30-10.30am venue: 4 Henbury Ave Wanguri For registration purposes, please message me if you and your little one will be attending. ... thanks Natalie - Miracle Babies support officer, NT See more

07.01.2022 Hello families - our first monthly playgroup for term 3 will be held this Thursday at C3 Church Malak from 9am. Our playgroup is a free and support playgroup for families who have experienced the birth of a premature or sick newborn. We welcome all NICU and SCN families Pls get in touch with me (Nat - coordinator) if you have any questions.

07.01.2022 Australian Singer Songwriter & Miracle Babies Ambassador, Danielle Matthews, sings a special nursery rhyme exclusively for our miracles. Click here to watch with your miracle baby: https://youtu.be/rvTYQtmI-ZU

05.01.2022 Our monthly NurtureGroup is on this Thursday from 9.30am-10.30am. Hope you and your little ones can join us!

04.01.2022 NurtureTime Online has sessions available this week. If you are a NICU/SCN family and need some extra emotional support, pop online to register: https://miracle...babies.org.au//register-for-nurturetime-on/ A huge thank you to Club Menangle Trackside who are proud supporters of this weeks NurtureTime Online session. If you would like information on how you can support this service, please PM us. #miraclebabies #NurtureTime #support #prematurebabies #sicknewborns #miraclefamily #community #NICU #SCN #clubmenangle #sponsor

04.01.2022 Hi all quick reminder that monthly playgroup will be on this Thur 14 June at C3 Church Malak from 9am. Hope you can join us!

04.01.2022 hi Miracle families - our monthly playgroup will finally restart this Thursday and join the Mimik-ga Families as First Teachers program at the old Henbury School . Date: Thursday 13 August Start: 9.30-10.30am venue: 4 Henbury Ave Wanguri... For registration purposes, please message me if you and your little one will be attending. thanks Natalie (support officer)

04.01.2022 ***SURVEY, Can you help?*** The aim of this study, called ‘COHESION’, is to develop a Core Outcome Set for use in research studies of treatments for neonatal encephalopathy. Neonatal encephalopathy is a condition that can occur in newborn infants when they have had a lack of oxygen, and this can cause complications with the infant’s brain. Neonatal encephalopathy is one of the leading causes of brain injury in newborn infants.... How do I know if I can take part in this study? You can take part in this study if you are over 18 years of age and are a parent or other family member who care, or have cared for, an infant who has been diagnosed with and received treatment for neonatal encephalopathy. What will I have to do? If you are interested in taking part in this study, please email us at [email protected] and we can send you on a Participant Information Leaflet that gives more detail on this study. If you agree to take part in this study, we would like to ask you some questions. This is called a research interview. The interview will be done via a video call, using a video conferencing software called Zoom. The interview will take place at a day and time that suits you. CLICK HERE to find out more: http://nbci.ie/cohesion-interviews/ *This study has received ethical approval from: National University of Ireland, Galway Research Ethics Committee (Ethics Code:19-Apr-14). #survey #research #neonatalencephalopathy #miraclebabies #prematurebabies #sicknewborns #COHESION #NationalUniversityofIreland #GalwayResearchEthicsCommittee

03.01.2022 Hello Miracle Families, If you would like to volunteer please feel free to join our new volunteering page Volunteering at Miracle Babies. Thank you.

02.01.2022 Sorry families - Today’s NurtureGroup won’t be on today (as I am a little unwell). It will be postponed to next Thursday. However the FaFT session is still on today if families would like to participate. Sorry for any inconvenience.

01.01.2022 Hi everyone! Our last playgroup for 2019 will be held this Thur from 9.30am at C3 church Malak cafe/auditorium. Come down some caffeine, play and chat. I am learning how to make coffee using the real espresso machine that day so I welcome any families who would like to taste test for me

01.01.2022 Hi all - our monthly playgroup is on this Thursday It will be held in the sparks room at C4 Church Malak. Hope you can join us.