Mito Foundation in Surry Hills, New South Wales, Australia | Non-profit organisation

Mito Foundation

Locality: Surry Hills, New South Wales, Australia

Phone: +61 1300 977 180

Address: Unit 3, 21 Mary Street 2010 Surry Hills, NSW, Australia

Website: http://www.mito.org.au

Likes: 3364

Add/Update information

Reviews

Tags

• Non-profit organisation
• Charitable organisation
• Medical research centre

25.01.2022 The Mito Foundation is fortunate to be one of the 11 charities benefitting from the inaugural Australian Markets Trading Day for Charity. On Thursday 26th November, the ASX is donating all revenue from its cash equity markets trading to the ASX Refinitiv Charity Foundation and nabtrade. The ASX has been running since 1996 and has raised over $30 million for over 170 charities through its signature events and auctions. Since 2014, the ASX has been a long term supporter of th...e Mito Foundation. We greatly appreciate this contribution to help us continue to assist families living with mito and look forward to being part of this amazing event. Further information on the Markets Trading Day for Charity, including how you can get involved; http://www.asxrefinitivcharity.com.au/view_event/4 You can register for live streaming of the opening ceremony, beginning with a bell ringing in Exchange Square, Sydney; https://www2.asx.com.au///asx-refinitiv-charity-foundation *Time: 9:50am 10:30am (AEDT) Thursday, 26 November #CharityTradingDay #ASX #ASXRefinitiv #nabtrade #charity

23.01.2022 We want to thank Robyn Hennessy for her tremendous work. Recently, she visited a Tasmanian State MP Felix Ellis MP in Ulverstone, Tasmania and had a very positive discussion about mitochondrial donation. Felix is keen to assist by sharing this information with his colleagues and by securing meetings on the topic with other members of parliament. This is an inspiring example of how impactful one meeting can be. If you would like to speak with your member of parliament and... need assistance, you can find more information here: https://www.mito.org.au/mitochondria/contact-your-local-mp/

22.01.2022 Register for our Mito Connect Call Tuesday 27 October (12:00pm- 1:00pm AEDT) The topic is: "Hearing Loss Assistance rebates, equipment and more https://www.mito.org.au//mito-connect-call-hearing-loss-a/... Audiologist Tegan Keogh (Director & Principal Audiologist, Hear Check), will unpack the options available to community members, including: - Information about the NDIS and other funding schemes - The difference between the hearing aid industry and a professional audiology service - What hearing assistance is available e.g. cochlear options, assistive equipment - Practical tips for treating ear infections and accommodating further hearing loss Our Mito Connect Calls offer support on a variety of topics and provide a virtual space for members in the mito community to connect with each other. Please join us and see how powerful this support network can be. Register by emailing [email protected] or visiting https://www.mito.org.au//mito-connect-call-hearing-loss-a/ Now you can also watch some recent Mito Connect Calls and Information Days resources here; https://vimeo.com/user100181140 #mito #mitosupport #mitoconnectcall #mitofoundation #support #wellbeing

20.01.2022 TOMORROW! New South Wales, we have a Digital Mito Meet-up on Wednesday 25 November 11:00am- 2:00pm (AEDT) Led by mito community members, these regular Meet-ups help you build valuable relationships with others impacted by mito in your local community. You can share experiences, provide mutual support as well as enjoy the social connections. Your host is Melinda Macaulay.... Register here; https://www.mito.org.au//digital-new-south-wales-mito-mee/ See more

19.01.2022 National Carers Week is about recognising and celebrating the outstanding contribution unpaid carers make to our nation. There are over 2.65 million family and friend carers in Australia providing 36 million hours of care and support every week to a family member or friend. It has been a difficult time for all of us as COVID-19 continues to affect our daily lives, and we know it’s been especially hard for people with mito. We would like to recognise the sacrifices that carers make, and thank them sincerely for the support they offer the mito community. You make a huge difference to the lives of those affected by mito. To learn more, please visit the National Carers Week website. https://www.carersweek.com.au/

18.01.2022 TOMORROW! Our Digital Victoria Mito Meet-up (formerly Support Group) is on Thursday 22 October at 6:00pm (AEDT). Led by mito community members, these regular Meet-ups help you build valuable relationships with others impacted by mito in Victoria so you can share experiences, provide mutual support as well as enjoy the social connections. Your hosts Jacqueline Freeman and Matthew Barker will lead a discussion on this month’s topic: Mental Health.... Meet your host: Matthew Barker I am a young person with mito helping to lead our group. I have lived with symptoms of mito for 4 years now. I will be supporting, moderating and guiding this group. To read more his story and register for the Mito Meet-up; https://www.mito.org.au//digital-victoria-mito-meet-up-oc/

15.01.2022 Have you registered for the Mito Information Day in Melbourne on Saturday 22 May? For those located nearby please join us in person at 9:30am (AEST). And for those unable to get there, you can also attend online! Please see below the start time for your state: - WA: 8:00am - SA or NT: 9:30am... - ACT, NSW, QLD, TAS or VIC: 10:00am We have a line-up of exceptional speakers on the day: Dr Joy Lee will walk through the common symptoms children impacted by mito experience and how to manage them Dr Christine Wools will provide a presentation on gastrointestinal symptoms in mito Daniella Hock will give an important update on her research to improve the genetic diagnosis rate of people impacted by mito, which helps lead to improved health support These topics are highly requested from the community so please register to make sure you don’t miss out. We will also have a Mito Meet-up after lunch break! https://www.mito.org.au//melbourne-mito-information-day-2/ Travel grants are available to those who need assistance in getting to the Information Day. Click here to apply: https://www.mito.org.au/mito-information-day-travel-grants/

14.01.2022 On Wednesday 2 December, we have two Meet-ups; Digital Queensland Mito Meet-up at 12:00pm (AEST) https://www.mito.org.au//digital-queensland-mito-meet-up-/... Led by mito community members, these regular Meet-ups help you build valuable relationships with others impacted by mito in your local community. You can share experiences, provide mutual support as well as enjoy the social connections. Parents of Mito Meet-up at 7:30pm (AEDT) https://www.mito.org.au/e/parents-of-mito-meet-up-december/ This dedicated Mito Parents Meet-up provides a space to connect directly with other parents of children with mito. Please see below the start time for your state: NSW, VIC, ACT or TAS: 7:30pm SA: 7:00pm QLD: 6:30pm NT: 6:00pm WA: 4:30pm Meet your hosts: Preeti Raghwani I have a background in physiotherapy and NDIS which puts me in good stead to support others through my own experiences. I was first introduced to the mito community after my beautiful little girl Ziya was diagnosed with mito. Sadly, we lost Ziya in September 2019. Mia Bell I was living in the UK when I was diagnosed with mito. I work part-time and have two primary school aged children. There is an extensive family history of mito, and I have shared my story in aid of raising awareness of mito and in support of mito donation.

14.01.2022 TOMORROW! Saturday 15 May we have two Mito Meet-ups! Digital Mito Tasmania Meet-up at 10:30am (AEST) Take advantage of the opportunity to connect with others impacted by mito in your local community. Shelley Beverley is your host. Read her story and register for the Mito Meet-up here;... https://www.mito.org.au//digital-tasmania-mito-meet-up-ma/ Mito Parents Meet-up This dedicated Mito Parents Meet-up provides a space to connect directly with other parents of children with mito. The topic is Planning for the future. Please see below the start time for your state: NSW, VIC, QLD, ACT or TAS: 4:30pm SA or NT: 4:00pm WA: 2:30pm Preeti Raghwani and Mia Bell are your hosts. Be sure to join the dedicated Facebook group to connect with other mito parents. Read their stories and register for the Mito Meet-up here; https://www.mito.org.au/event/mito-parents-meet-up-may/

13.01.2022 The Mito Foundation Scientific and Medical Advisory Panel is comprised of world class researchers and clinicians in the field of mitochondrial disease. The role of the panel is to advise the Mito Foundation Board on how best to apply funds raised, and assess the merits of various applications for Mito Foundation grants. https://www.mito.org.au/smap/ Today, we would like to shine the spotlight on Dr Doug Lingard AM.... Doug is the Mito Foundation Chairman, a member of the Mito Foundation Nominations Committee and a founding director of the Mito Foundation. Doug and his wife Margie established the foundation 11 years ago after their daughter Rose was diagnosed with mitochondrial disease, and found there was nowhere to turn for help. Doug is a Radiologist & Nuclear Physician who has been active in both public and private medicine in Australia for over 30 years. He is a cofounder of the largest Diagnostic Imaging practice in Australia, Pittwater Radiology & Medical Imaging Australasia Ltd. Doug has been awarded a Member (AM) of the Order of Australia in last year's Queen's Birthday Honours List. Thank you Doug for lending your time and expertise to drive our quest for improved diagnosis, treatments and ultimately cures.

13.01.2022 We are truly grateful for your support of Light Up for Mito during World Mitochondrial Disease Week in September. All across the world, we had a staggering 17...3 monuments light up to raise awareness of mito. This is an important global awareness raising activity which relies on the support of mito community members, so THANK YOU! Next year’s Light Up for Mito is on Sunday 19 September 2021. We are looking forward to making it happen with your help. We are pleased to share that Australia already has 2 confirmed monuments signed up for 2021! (Photo: Telstra Tower) As part of your process of thanking those that took part this year, see if you can secure their participation early for 2021. As monuments are confirmed, please let us know via this form; https://mitochondrialdiseaseweek.org/register-an-event/ Not sure how to write the letter to secure the monument? We've got you covered! You can download our templates here; https://mitochondrialdiseaseweek.org/resources/ #wmdw #mitochondrialdisease #mito #mitoawarenessweek #mitoawareness #lightupformito

13.01.2022 TOMORROW! Register for our Wellbeing Mito Connect Call Wednesday 14 October (2:00pm- 3:00pm AEDT) The topic is: "Mental Health: How to ask for support?" https://www.mito.org.au//wellbeing-mito-connect-call-ment/... To mark Mental Health Month, we are offering a Mito Connect Call dedicated to your mental health and wellbeing. Shelley Beverley (MCAP member and psychologist), will guide this important conversation on mental health and how to ask for support. In particular, the call will cover; - Tips on what you can say when asking for support - Figuring out what you're feeling, what you need, and how you can ask for it - Discussion: What if the support is not helpful? Our Mito Connect Calls offer support on a variety of topics and provide a virtual space for members in the mito community to connect with each other. Please join us and see how powerful this support network can be. Register by emailing [email protected] or visiting https://www.mito.org.au/.../wellbeing-mito-connect-call.../ Now you can also watch some recent Mito Connect Calls and Information Days resources here; https://vimeo.com/user100181140 #mito #mitosupport #mitoconnectcall #mitofoundation #support #wellbeing

13.01.2022 Mito community members! We have a number of events coming up next week to keep you connected and informed; the Digital Mito Information Day and the Digital Mito Meet-ups. We hope you can join us. Saturday 22 May: Digital Mito Information Day at: - WA: 8:00am - SA or NT: 9:30am... - ACT, NSW, QLD, TAS or VIC: 10:00am We have a line-up of exceptional speakers on the day, including: - Dr Joy Lee who will walk through the common symptoms children impacted by mito experience and how to manage them - Dr Christine Wools who will provide a presentation on gastrointestinal symptoms in mito. This is a highly requested topic so please register to make sure you don’t miss out. - Daniella Hock who will give an important update on her research to improve the genetic diagnosis rate of people impacted by mito, which helps lead to improved health support https://www.mito.org.au//melbourne-mito-information-day-2/ Tuesday 18 May: Digital Mito Victoria Meet-up at 12:00pm (AEST) The Digital Mito Meet-ups are led by mito community members and offer you the opportunity to connect with others impacted by mito in your local community. Matthew Barker is your host. Read his story and register for the Mito Meet-up here; https://www.mito.org.au//digital-victoria-mito-meet-up-ma/ Saturday 22 May: Digital Mito South Australia Meet-up at 2:30pm (ACST) Melanie Pfeiler is your host. Read her story and register for the Mito Meet-up here; https://www.mito.org.au//digital-south-australia-mito-mee/

11.01.2022 New South Wales, we have a Digital Mito Meet-up on Wednesday 25 November 11:00am- 2:00pm (AEDT). Led by mito community members, these regular Meet-ups help you build valuable relationships with others impacted by mito in your local community. You can share experiences, provide mutual support as well as enjoy the social connections. Register here;... https://www.mito.org.au//digital-new-south-wales-mito-mee/ See more

11.01.2022 Mito Information Days are held throughout the year in major cities (where possible) and live-streamed via Zoom to allow people with mito and their carers to access vital information from wherever they are. These events provide a unique opportunity to hear from and ask questions of leading mito researchers, medical professionals and other experts while giving attendees a space to meet and network with other mito community members. There is great benefit to meeting the spe...akers and other attendees in person, so we offer travel grants to help people travel to a Mito Information Day if their situation makes it difficult. Please consider applying so you can attend one of our upcoming Mito Information Days in person. https://www.mito.org.au/mito-information-day-travel-grants/

11.01.2022 Will you Munch for Mito on GivingTuesday 1st December? Together, we can raise awareness and contribute what we can to help cure mito. You will receive FREE Off The Eaten Path Snacks to share with friends! Off the Eaten Path Pea & Pinto Bean Sticks are made with pinto beans, peas, and white beans. You'll discover a tasty new take on real legumes! No event is too small. Picnics are an easy, fun and COVID safe way to get involved. And perfect for a gathering with friends, f...amily, work mates or even at school. Bring a hamper and use the wide range of resources and games to have fun while raising awareness of mito. Plus - Any host that raises over $150 will receive a book "Beryl the Ninja Chicken" by the Captain of the Mito Movement, 10 year old Noah Barlow. - The host that raises the most will receive a hamper of munchable treats, including more Off the Eaten Path goodies! Get behind the Global Generosity Movement and the Mito Movement with one simple event! Register here (FREE); https://fundraise.mito.org.au/event/munch #GivingTuesday #OfftheEatenPath

10.01.2022 United Mitochondrial Disease Foundation offers a monthly 'Ask the Mito Doc' webcast series to keep mito patients and families connected to the mitochondrial medical community. Each month, they will highlight a specific topic with a short presentation and allow 20-30 minutes for question and answer time with the clinicians. This is a great online resource that we can access from Australia.The webcasts are worth listening to live, as you can ask a question, but If you can't a...ttend at the scheduled time, just register and you will be sent a link to the recording after the event. Next month's topic is "Keeping the Mitochondria Healthy for the Body and the Mind" on Wednesday 11 November at 3:30 pm Pacific/5:30 pm Central/6:30 pm EDT (Thursday 12 November at 10:30am AEDT) Mark Tarnopolsky will discuss the science behind exercise and healthy mitochondria. Erin Hatcher will do a session on practical application for exercising at home. Register here; https://www.umdf.org/event/2020nov-ask-mito-doc-webcast/ You can find other events on their calendar also, such as 'Teen and Young Adult Virtual Happy Hour' on every Friday. https://www.umdf.org/events/month/2020-11/

09.01.2022 During World Mitochondrial Disease Week, Jason Brown held a virtual 'Bake Off' Munch for Mito with colleagues at a QBE Insurance Australia team meeting from Singapore, Australia, the United States, Bermuda and the UK involved in sharing their baking skills over an online, COVID Safe gathering! The reach of this global organisation and Jason's passion not only raised awareness of mito but also $1,248, which is being matched by the QBE Foundation! Although Jason does no...t have a personal connection to mito, he attended one of Mito Foundation's fundraising events several years ago and was touched by what he witnessed. So when he received an email regarding World Mitochondrial Disease Week, he wanted to do what he could to help. Thank you so much Jason and the QBE team for raising awareness and funds to support Aussie families living with mito. We're all hungry for treatments and cures for mito. Munch for Mito is our opportunity to raise the awareness and funds needed to create change. Raise a glass while you raise awareness and together let's find a cure - one bite at a time. Let your imagination run wild and hold whatever event you like, in person or virtually. Register your party here; https://fundraise.mito.org.au/event/munch

09.01.2022 Today is the ASX Trading Day for Charity, the ASX is donating all revenue from its cash equity markets trading to the ASX Refinitiv Charity Foundation. This initiative is also supported by nabtrade who will donate a full day’s brokerage revenue to the ASX Refinitiv Charity Foundation. The Mito Foundation is fortunate to be one of the charities benefitting from the inaugural Australian Markets Trading Day. We greatly appreciate this contribution to help us continue to assist ...families living with mito. Our CEO Sean Murray will be attending the opening ceremony of the beginning with a bell ringing in Exchange Square, Sydney (9:50am 10:30am AEDT), which will be live-streamed. https://publish.viostream.com/app/s-dyg31ay. #CharityTradingDay #ASX #ASXRefinitiv #nabtrade #charity

09.01.2022 TOMORROW Tasmania, we have a Mito Meet-upin person! On Saturday 14 November 11:00am- 2:00pm (AEDT) Address: Elizabeth Town Bakery Café, 5783 Bass Hwy, Elizabeth Town Led by mito community members, these regular Meet-ups help you build valuable relationships with others impacted by mito in your local community. You can share experiences, provide mutual support as well as enjoy the social connections. ... Over the past few months, the Meet-ups have been held virtually via Zoom but we now have the chance to meet in person! All COVID safe guidelines will be strictly followed to allow you to enjoy a safe Meet-up led by your host Shelley Beverley (MCAP member and psychologist) I would like for our Tassie support group to be a place where we can share our journeys, wherever we are! For us to feel that it is a safe and non-judgemental place to join, regardless of whether we want to verbally share or not. Connecting with each other allows us to ask questions we are not comfortable asking others and talking about anything and everything that mito impacts. I am hoping it is a space where we can feel positive to catch up and enjoy the time together. To read more her story and register for the Mito Meet-up; https://www.mito.org.au/eve/tasmania-mito-meet-up-november/

08.01.2022 Our Digital Victoria Mito Meet-up (formerly Support Group) is on Thursday 22 October at 6:00pm (AEDT). Led by mito community members, these regular Meet-ups help you build valuable relationships with others impacted by mito in Victoria so you can share experiences, provide mutual support as well as enjoy the social connections. Your hosts Jacqueline Freeman and Matthew Barker will lead a discussion on this month’s topic: Mental Health.... Meet your host: Matthew Barker I am a young person with mito helping to lead our group. I have lived with symptoms of mito for 4 years now. I will be supporting, moderating and guiding this group. To read more his story and register for the Mito Meet-up; https://www.mito.org.au//digital-victoria-mito-meet-up-oc/

06.01.2022 We are seeing some very positive media coverage on the topic of mitochondrial donation in the lead-up to the conscience vote on the Mitochondrial Donation Law Reform (Maeve’s Law) Bill 2021 in the coming months. Last night SBS News featured a segment on mitochondrial donation. A special thank you to Elizabeth Tierney for so bravely sharing her story about her baby Cooper, who sadly passed away at just 6 months old. Her story has helped to highlight the real impact of mito and... reinforce the need for legislative change. Also, thank you to David Thorburn for doing such a fantastic job of explaining and advocating for mitochondrial donation. We thank all of the mito community, general public and the medical and research community who have contributed to the public consultation process and shared their views. https://www.mito.org.au/mitochondrial-donation/

06.01.2022 South Australia, we have a Digital Mito Meet-up on Saturday 5 December 2:30pm- 3:30pm (ACDT) Led by mito community members, these regular Meet-ups help you build valuable relationships with others impacted by mito in your local community. You can share experiences, provide mutual support as well as enjoy the social connections. Meet your host: Melanie Pfeiler ... I have been involved with the Mito group for the last 3 years and started helping out with the mito meet-up around 12 months ago and then took over as the Adelaide lead this year. Having a background in Audit and Risk, I also help with the Mito Foundation Risk Committee. To read more her story and register for the Mito Meet-up; https://www.mito.org.au//digital-south-australia-mito-mee/

06.01.2022 Our Digital New South Wales Mito Meet-up (formerly Support Group) is on Wednesday 28 October at 11:00am (AEDT). Led by mito community members, these regular Meet-ups help you build valuable relationships with others impacted by mito in NSW so you can share experiences, provide mutual support as well as enjoy the social connections. To register for the Mito Meet-up;... https://www.mito.org.au//digital-new-south-wales-mito-mee/ See more

05.01.2022 The Mito Community Advisory Panel (MCAP) was established to strengthen communication between the Mito Foundation and the mito community. The MCAP remains active in its commitment to representing the needs of the mito community, creating opportunities for communication and feedback, and actively supporting community-based activities. https://www.mito.org.au/mito-community-advisory-panel/ Today, we would like to shine the spotlight on Haydn Quirk.... Haydn and his wife Anne have two children Lani, 20 and Damon, 19 and live in Langwarrin, approximately 50kms from Melbourne’s CBD. Haydn is the Metering Contract Manager for South East Water and volunteers on the Langwarrin Junior Football Club committee. Their daughter, Lani was diagnosed with mito and has chronic progressive external ophthalmoplegia (CPEO). She wants to be a primary school teacher. Thank you Haydn for continuing to give your time to help the mito community and make a difference! Photo: Haydn, Anne, Lani, Pam (MCAP), and Penelope (Mito Foundation) at the Mito Foundation10th Anniversary Dinner in Sydney, 2019

05.01.2022 Our Digital South Australia Mito Meet-up (formerly Support Group) is on this Saturday 24 October at 2:30pm (ACDT). Led by mito community members, these regular Meet-ups help you build valuable relationships with others impacted by mito in Victoria so you can share experiences, provide mutual support as well as enjoy the social connections. Meet your host: Melanie Pfeiler ... I have been involved with the Mito group for the last 3 years and started helping out with the mito meet-up around 12 months ago and then took over as the Adelaide lead this year. Having a background in Audit and Risk, I also help with the Mito Foundation Risk Committee. To read more her story and register for the Mito Meet-up; https://www.mito.org.au//digital-south-australia-mito-mee/

05.01.2022 We want to thank Shelley for her fantastic work. Shelley met up with Senator Catryna Bilyk to talk about mitochondrial donation. Catryna said she learnt so much from Shelley about the devastating impacts of mitochondrial disease on Shelley and her family, what mitochondrial donation involves and why it is so important to women like her. Thank you Shelley for continuing to give your time to help change the future for the mito community! ... This is an amazing example of how impactful one meeting can be. If you would like to speak with your local MPs and Senators about the importance of mitochondrial donation, please call us on 1300 977 180 for some help. Right now, meetings like this are so important to help keep the topic high on the political agenda. More information: https://www.mito.org.au/mitochondria/contact-your-local-mp/

04.01.2022 Applications close on Friday 16 October for the Mito Foundation Quarterly Grants Round. The Mito Foundation is committed to supporting research that will improve diagnosis, treatments, and ultimately find cures for mito. Our grants offer exciting opportunities for researchers and medical professionals in the field of mitochondrial medicine. Applications are now open for:... - Incubator Grants - PhD Top-up Scholarships - Research Equipment Grants https://www.mito.org.au/research-and-medical-funding/

02.01.2022 On Giving Tuesday, 1 December, join the world in celebrating the power of generosity to make positive change in the lives of others. By holding a Munch for Mito, you’ll drive this generosity within your community by giving your friends, family or work mates an opportunity to raise awareness and contribute what they can to help cure mito. https://fundraise.mito.org.au/event/munch Extra bonus; All confirmed events will receive a pack with Off The Eaten Path Snacks to shar...e with friends, along with resources to create a fun-filled event. Any host that raises over $150 will receive a book "Beryl the Ninja Chicken" by the Captain of the Mito Movement, 10 year old Noah Barlow. The host that raises the most will receive a hamper of munchable treats, including more Off the Eaten Path goodies! Get behind the Global Generosity Movement and the Mito Movement with one simple event! #GivingTuesday #OfftheEatenPath