MND Australia in Canberra, Australian Capital Territory | Community organisation

MND Australia

Locality: Canberra, Australian Capital Territory

Phone: +61 2 8287 4980

Address: PO Box 117 2600 Canberra, ACT, Australia

Website: http://www.mndaustralia.org.au

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• Community group
• Non-profit organisation
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• Community organisation

25.01.2022 Congratulations to Professor Gilles Guillemin from Macquarie University Motor Neurone Disease Research Centre who became a Member in the Order of Australia (AM) for significant service to science education, motor neurone disease research and sport in this year’s Queen’s Birthday honours. #MNDResearch

23.01.2022 #NVW Thank you to all the wonderful volunteers who do so much to help the national network of MND Associations and people around Australia affected by MND! Every state offers different volunteering opportunities, so if you're interested in getting involved, reach out to your state's MND Association to learn more.

22.01.2022 #Research opportunity: If you are living with MND, or are a family member or someone with MND, and have been offered genetic testing for MND genes, researchers at University of Technology Sydney would like to interview you to hear your experience and suggestions. Read more information: https://redcap.link/qs0liv24 or contact Ashley Crook at [email protected] This research will help scientists to better understand how genetic testing is provided for people with MND, and how this experience can be improved. The information will be used to create guidelines specific to genetic testing and counselling for people with MND.

21.01.2022 Get ready Darwin - Walk to D'Feet MND is coming to you for the first time on 6 June!

20.01.2022 Do you have a family history of MND? Help researchers from Macquarie University learn more about the experience of MND genetic testing: https://redcap.link/3nzcq2rq

20.01.2022 Restricting access to government-funded disability supports based on the age of a person when they are diagnosed with a disability is discriminatory. Together with the Neurological Alliance Australia, read our position statement on Aged Care: https://bit.ly/2K4xChc

19.01.2022 Zooming with Dan tonight features Peter Chambers, who lives with MND. As mentioned below, Peter is dedicated to helping others with the disease - together with his wife Lisa, he's currently working with MND Australia on a project to develop health & wellbeing resources for people with MND. Head on over to Motor Neurone Disease Association of Victoria's Facebook page tonight at 8pm AEST to meet Peter.

15.01.2022 Today we're thinking of all the beautiful mothers living with MND, caring for someone with MND or have lost a loved one to MND. And our heart goes out to everyone who cannot be with their mother today. One day, through research, we will live in a world free from MND and there will be no more mothers lost

14.01.2022 #FridayFact Learn more about genetic MND : https://bit.ly/2HfNHPN

13.01.2022 Wonderful to see such a great turnout to Motor Neurone Disease NSW's Walk to D'Feet Illawarra on the weekend! #NeverGiveUp

13.01.2022 Once a month on a Friday, we're going to share a #FridayFact on MND. Help us spread awareness about MND or read more on our What is MND? page https://www.mndaust.asn.au/Get-informed/What-is-MND.aspx

12.01.2022 Applications are now open for MND Research Australia PhD top-up grants https://bit.ly/3oYdBZ8 The grant provides a $5,000 per annum stipend for 3 years for a PhD candidate in the field of MND research.

11.01.2022 State of Play is on TONIGHT at 7PM AEST How does the immune system play a role in MND? Register here: https://bit.ly/3pHML8R

10.01.2022 Congratulations to the team at Perron Institute for Neurological and Translational Science and Murdoch University - one step closer to finding treatments for MND

07.01.2022 Scottish scientists have discovered that boosting energy levels in mitochondria - the power supply to the motor neurons - could lead to new treatment pathways for MND. Although it is early days these exciting results are yet another important piece of the puzzle to finding effective treatments.

06.01.2022 Talking and planning for end of life can be upsetting and difficult. To help support discussion, we've developed a guide about end of life care and MND. The Guide provides friendly and practical information about how to plan ahead, managing emotions, dealing with MND symptoms, remaining comfortable as the disease progresses & connecting to services and support. Read more about how and when to use the Guide in our latest blog post: https://bit.ly/3papsnu... Printed copies of the Guide are available through the State MND Associations or you can download it here: https://bit.ly/3p7msbL Thank you to our friends at the MND Association in the UK for their help in developing the Guide.

02.01.2022 Today is International Nurses Day! We'd like to thank all the wonderful nurses who work so hard to support people living with MND #IND2021

02.01.2022 Thank you for supporting people living with MND and research for a cure. Find out how to run a Facebook fundraiser here: https://www.facebook.com/fundraisers/