Motor Neurone Disease NSW in Gladesville, New South Wales, Australia | Non-profit organisation

Motor Neurone Disease NSW

Locality: Gladesville, New South Wales, Australia

Phone: +61 2 8877 0999

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• Medical and health
• Non-profit organisation
• Charitable organisation
• Disability service

24.01.2022 The Australian Bureau of Statistics has established that 1.2 million Australians have a communication disability, and this includes people living with MND who experience difficulties with their speech. Tomorrow marks the end of Speech Pathology Week 2020 which had a theme this year of communicating with confidence. To find out more about speech pathology and communication supports, head to our blog post here: https://www.mndnsw.asn.au//1495-communicating-with-confide

24.01.2022 The next ACT Support Group is at 10:30am on Tuesday 15 September! Grab a cuppa and join MND Advisor Sue for an online get together. Further details here: https://www.mndnsw.asn.au/all-events/living-with-mnd.html

23.01.2022 Its all about mask fashion these days and with our new face masks you can look awesome, keep yourself and others safe while at the same time supporting (and raising awareness for) a good cause. Have we convinced you yet? Head to our shop to order yours today: Free shipping included https://www.online.mndnsw.asn.au/products/face-mask

22.01.2022 The second State of Play webinar series is on December 1st. You can register now to hear the latest from experts - just click on the link below!

22.01.2022 Fathers Day is a week away. To honour Dads whove been touched by MND in some way, were encouraging people to plant a virtual cornflower and help build on our conflower field of hope. https://cornflowerblueday.com.au/

21.01.2022 Our Carers Kitchen Table Conversations are an opportunity for carers to share some time with other MND carers as we talk about our day to day lives. These conversations will run monthly online and are an opportunity to share and connect. The next Kitchen Table will be Thursday 24th June at 10.30am and will run again at 7pm. For more information and to register, please see our events page here: https://mndnsw.asn.au/all-events.html

21.01.2022 Have some fun and lace up your walking shoes with these Walk to dFeet shoelaces! Knot (see what we did there ) only will you look super snazzy but youll be helping to spread the word about plus free shipping. https://www.online.mndnsw.asn.au/collecti/walk-to-dfeet-mnd

21.01.2022 My brother Les passed away 13th Feb 2007 age 42. He battled this horrible disease for 2 years however did not give up his smile, sense of humour and never gave up. MND is such a cruel disease and hope there will be a cure soon. Not a day goes pass not thinking of him. He was survived by 3 beautiful girlsGizalla Black

20.01.2022 We need your help! The Minister for the NDIS Stuart Robert is rushing through huge changes to NDIS assessments. But hes doing it without talking to people with MND or other disabilities and their families first. Can you take the time to ask him six simple questions about what the changes actually mean for everyone? https://everyaustraliancounts.com.au/questions-for-minist/

20.01.2022 Thanks so much to Tayla for going Booze Free for MND in July and smashing her fundraising target! Incredible effort

20.01.2022 A huge thank you to SCIS Property Group whove taken on the challenge to run or walk 100km during September. One of their staff members lost his dad to MND and now his colleagues are helping to raise awareness and funds for us in his honour. Amazing effort guys! Check out their fundraising page (and maybe even give them a cheeky donation) here: https://www.mycause.com.au//scis-group-challenge-to-dfeet-

20.01.2022 With everything thats been going on lately and the added isolation people with MND and their loved ones may be feeling, RUOK? Day seems even more of an important reminder than ever. Its never too late to reach out and ask for help. Nor is it hard to ask someone you care for RUOK? #RUOK #MND #ALS

20.01.2022 Our next online information session is being held on Wednesday December 2! These sessions are for people who have received a recent MND diagnosis and their families. They will include an overview of MND and how MND NSW can support you and your family. For more information, or to sign up for a session, please see: https://www.mndnsw.asn.au/all-events/living-with-mnd.html

19.01.2022 This is my Dad, he fought his battle for four years and eventually passed away in 2011. I miss him everyday. This awful disease not only took my dad but has taken many members of my beautiful family. Each day we live in fear of who is next. Please help spread awareness to hopefully one day find a cure for this heartbreaking diseaseBrooke Anderson

19.01.2022 Theres only 6 Sundays until our Virtual Walk to dFeet! These mini walks mean youll be able to walk in your own area with close family and friends at the same time as the rest of the MND community! Well keep in touch via social media so we can all walk together, apart. You can register now at https://virtual.walktodfeet.org.au #walktodfeet2020 #neverwalkalone #mnd #als #walktodfeetmnd

19.01.2022 Our next online information session is being held in the morning of Wednesday 2nd September! These sessions are for people who have received a recent MND diagnosis. They will include an overview of MND and how MND NSW can support you and your family. For more information, or to sign up for a session, please see: https://www.mndnsw.asn.au/all-events/living-with-mnd.html

18.01.2022 Is running more your style than Walking? You can register now and start fundraising for MND NSW in the Virtual City to Surf now and get motivated to get off the Covid couch to get training https://city2surf.com.au/virtual-run

18.01.2022 Looking for another Fathers Day idea??? The (now digital) Entertainment Book is just the ticket! Hell get vouchers for awesome experiences and delicious dining options (also now delivering to home). Not only that but the proceeds go to a good cause (us *wink wink*). https://www.entertainment.com.au/orderbooks/203976j

16.01.2022 It's heartbreaking to think of a 19-year-old being faced with an MND diagnosis. But that's what happened to Elliot. It started with his simple need to take the elevator over climbing a flight of stairs, or clumsily falling over. ... But Elliot's condition progressed rapidly and without warning. He bravely fought on for 8 months before losing his battle at just 19 years of age. Read Elliot's story here: https://mndnsw.asn.au//255-june-2/1557-elliot-s-story.html Elliot's story is an important example of why we do what we do - and why we've been there for people facing MND for the past 40 years. Thanks to your support, we'll continue to be there for as long as people like Elliot need us. #MND #ALS #support #MNDNSW40 #40years #winterappeal #MNDjourney #mndstory

16.01.2022 For everyone in the ACT! Grilld Woden has chosen us as one of their community groups theyre supporting for the whole of this month! All you have to do, is go and buy a delicious (and healthy) burger and youll get a token to put into the jar of your choice (make sure you choose MND NSW ). Then at the end of the month, money is split between the three charitieswith first place taking away the chunk of funds meaning we definitely need your help getting as many tokens as we can in our jar! Its the perfect excuse for take away which is just the ticket in these current times were living in. https://www.grilld.com.au//australian-capit/canberra/woden

16.01.2022 Are you caring for someone with MND? Would you like the opportunity to connect with others for discussion and peer support? Our next online group for carers will be Wednesday 23 September at 10.30am. This is a great opportunity to make yourself a cuppa and to take some time to connect with others to share your experiences. For further information: https://www.mndnsw.asn.au/all-events/living-with-mnd.html

16.01.2022 Despite everything going on, we didnt want you to miss out on Walk to dFeet MND and so weve launched a virtual Walk! What this means is you can create your own walk along a favourite route or track and well all walk together around NSW and the ACT on Sunday 18th October, sharing our experiences online so we can connect as a community. Registration is now open! https://virtual.walktodfeet.org.au/ #walktodfeet2020 #neverwalkalone

15.01.2022 Fathers Day is just over a week away and this year were using our Cornflower Blue platform to honour father figures who have some way been touched by MND. By planting a virtual cornflower in our field of blooms youll be helping to raise awareness of the needs of people living with MND and their families. This Fathers Day our virtual cornflower field to act as a beacon of hopeacknowledging the MND community, people living with MND today and carers as well as to remember those who are no longer with us. https://cornflowerblueday.com.au/

14.01.2022 Were super excited to be sending out fun packs to our Virtual Walk to dFeet team leaders! Heres a sneak peak of the MND NSW team packing up the goodies And if you havent registered yet, theres still plenty of time! Just head here to get started: https://virtual.walktodfeet.org.au/

14.01.2022 We'd like to say a big THANKYOU to all those who organised and attended Dale's Day in Taylors Arm recently. Over $8,000 was raised from raffle tickets and donations from the event, which will be a big help for supporting people living with MND. The cricket day saw a nailbiter match with Newcastle taking the win on the second last ball from Taylors Arm. Aside from the cricket match, there was plenty of fun and festivities with pinatas, a Finska competition, and a dress-up box... and games for the kids. And the day wasn't complete without a good feed - a pig on the spit, beef and some delicious homemade soups and salads were also donated for the event. #dalesday #cricket #thankyou #MND

14.01.2022 Did you know we have support groups near you? Take a look at our upcoming events here and sign up to attend: https://mndnsw.asn.au/all-events.html #MND #ALS #support

12.01.2022 Fathers Day is only three sleeps away! Weve been overwhelmed by the support from everyone who has planted a virtual cornflower in honour of their dads no matter how they were touched by MNDwhether they were a carer, a family member or close friend of someone with MND or indeed are facing or faced MND themselves. You can still plant a virtual cornflower for the father figure in your life by heading to https://cornflowerblueday.com.au

11.01.2022 A massive shout out to Tom Hennessy who took on 100km of running for the whole of August. He used our new fundraising challenge platform which you can use to create your own event or support him here: https://mndchallenge.com.au/page/TomHennessey

10.01.2022 Have you organised your team for the Virtual Walk to dFeet? Its super easy if you havent. Step 1: Get your team together (family/friends/pooches) Step 2: Head to https://virtual.walktodfeet.org.au/ to register now! Step 3: Get excited when you check the mail waiting for your teams fun pack full of goodies to help you on your walk! Step 4: Map out your 5km route in your local area ... Step 5: Join us for our Livestreamed kick off to the Walk at 10am 18th October right here! Step 6: tag us in your stories and posts and use the hashtag #walktodfeetmnd and #neverwalkalone so we can all walk together from wherever we are in NSW and ACT! Register Now! https://virtual.walktodfeet.org.au/ See more

10.01.2022 Whats a Virtual Walk? Even though we cant be together this year, we still want everyone to have fun, doing a Walk. Thats why we have created the Virtual Walk or Mini-Walks. A Virtual WALK is a mini Walk that you can do at home with family and friends whilst observing all the Covid restrictions. It s an online fundraising platform that allows people to register and hold their own WALK in their chosen area while still raising money to support people living with MND. Youre ...in control of where your Walk goes and who Walks with you. Its as easy as Walking around the block. And so that we still have that feeling of participation and community, we are holding all the mini walks on the same day. Sunday October 18. We will have an official start at 10am live on facebook. Weve also got a great new T-shirt and the team leaders will receive a fun box filled with lots of goodies for the day of your Walk. Organise your Mini-Walk in your area and register today: https://virtual.walktodfeet.org.au/ See more

10.01.2022 These tights are made for walking and theyre the perfect accessory for our Virtual Walk to dFeet! https://www.online.mndnsw.asn.au//pr/black-exercise-tights

07.01.2022 We were very sad to hear that Pat Quinn, who helped raise millions worldwide to fight MND., by promoting the Ice Bucket Challenge has died .

07.01.2022 Whats in the box??? As part of our Virtual Walk to dFeet MND were sending all our team leaders a Fun Pack the contents of which well be revealing very soon! You can register for the Walk now and be part of the event by taking a walk in your neighbourhood or on your favourite walking track at the same time as the rest of our amazing fundraisers on 18th October. #walktodfeet2020 #neverwalkalone https://virtual.walktodfeet.org.au/

06.01.2022 Want to take doing dishes to the next level with a tea towel featuring YOUR design! Enter our Tea Towel Design competition NOW and you could be the winner taking home an awesome MND NSW merch pack, which includes a tea towel with your very own design on it! Find out more here: https://mndnsw.asn.au//1555-tea-towel-design-competition.h... #teatowel #drinkteaforMND #doingdishes #designer #designcomp #enternow #winner #MND #ALS

05.01.2022 The nights are still chilly (especially lately with the wind coming off the snow!) the perfect time for eating alfresco while snuggling up into our cozy hoodies! https://www.online.mndnsw.asn.au/collections/clothing

05.01.2022 We want to give a shout out to Ted Butler who is raising money to cut his hair in honour of his good mate and surfing buddy, Steve. My challenge in this fundraiser is that at the end of 8 weeks from commencement I will have my hair cut SHORT!!! he said. I realise that this is a very small gesture but its my way of drawing attention to the serious indiscriminate affect that Motor Neurone Disease can have on a persons life. You can check out his fundraising page and support him here: https://personalchallenge.gofundraise.com.au/p/Ted-63452661

05.01.2022 Have you organised your stocking fillers yet? We’ve got heaps of amazing gift ideas in our online shop, that will also help raise funds and awareness for people with MND. Just make sure to order yours before 16th December so Santa gets them to you on time. https://www.online.mndnsw.asn.au/collections/gifts

03.01.2022 Happy Fathers Day to all the dads, grandfathers and father figures in our MND community and to those who live on in our hearts and memories.

03.01.2022 Who doesnt love burgers (and healthy ones at that!)? Visit Grilld in Woden during the month of September to support MND NSW by participating in their Local Matters Donation Program. With every burger ordered, a Local Matters token is handed over to you drop into the jar of your choice (please choose us!) and becomes a meaningful donation to support people with MND and their families. So to sum up: basically you get to indulge in a healthy burger for a good cause whats not to love about that! Check out the link here to find out more about Grilld Woden. https://www.grilld.com.au//australian-capit/canberra/woden

02.01.2022 One day, motor neurone disease will take everything from Sharon. Until then please help her make the most of life. Sharon has already lost the ability to walk, to cook, and spends most of her day in a wheelchair. As MND progresses so quickly access to the right equipment without delay helps Sharon and other members with MND retain their independence for longer. https://donate.mndnsw.asn.au/donate/christmas

02.01.2022 At the moment, families and friends are physically divided which is why we wanted to bring everyone together with the Virtual Walk to dFeet. And recently we heard this amazing story from our supporter Hannah about how her family were walking together, apart. Hannahs dad was diagnosed with MND and lives with Hannahs step mum in NSWwhat now seems a world away from where Hannah and the rest of her family are living in Tassie. Because they cant be with each other due to Covid19 restrictions, theyve decided to register for the Virtual Walk so they can walk together and raise awareness about MNDeven if they are forced to be in different locations. Heres Hannahs boxer Gypsy modelling her bandanna for the walk . If you havent joined the Virtual Walk to dFeet you can now by heading to: https://virtual.walktodfeet.org.au

02.01.2022 Are you still looking for a last minute gift to blow Dad away tomorrow on Fathers Day? Dont leave him underwhelmed with yet another pair of socks. This year give a gift that will live on by dedicating a virtual cornflower in his honour to be planted in our virtual cornflower field of hope. https://cornflowerblueday.com.au

01.01.2022 The next Illawarra Online Support Group is this week! The get-together is on Wednesday 16th September at 10am. This is an online group meeting for people who would usually attend events in the Illawarra with our MND advisor Ana. To see more information about this event, and other events that MND NSW are running over the next few weeks, please see our website https://www.mndnsw.asn.au/all-events/living-with-mnd.html

01.01.2022 Our Walk to dFeet fun packs are on their way to team leaders! Wed love to see your pics and videos when you open them so DM us or email them to [email protected] so we can share them with the community and stay connected And if you still havent registered for our Virtual Walk to dFeet? Well what are you waiting for? https://virtual.walktodfeet.org.au/