Motor Neurone Disease Association of Tasmania in Sandy Bay, Tasmania, Australia | Non-profit organisation

Motor Neurone Disease Association of Tasmania

Locality: Sandy Bay, Tasmania, Australia

Phone: +61 1800 806 632

Address: PO Box 379 7006 Sandy Bay, TAS, Australia

Website: http://www.mndatas.asn.au

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• Non-profit organisation
• Community organisation

25.01.2022 Happy Fathers Day to all the wonderful dads and grandfathers out there! Our thoughts are with all the dads living with MND, or those who are caring for someone with MND. Were also thinking of everyone who has lost their dad to MND, as well as dads who have lost a loved one to MND Please feel free to leave a special comment below for a dad who has been impacted by MND.

25.01.2022 Today is Global ALS/MND Awareness Day. 21 June is a solstice , it represents our hope for a turning point in the search for causes, better care, treatments an...d ultimately a cure Over 420,000 people worldwide live with ALS/MND a disease that affects people in every country of the globe It does not discriminate on the basis of race, ethnicity, socioeconomic status or region. One day, through research, we will live in a world free from MND. #ALSMNDWithoutBorders See more

24.01.2022 Join us on Tuesday, 1st of December, for the second webinar of our State of Play series! Register here: https://zoom.us//r/2216031583231/WN_ylYjNGwQQuCLvj5...cR3LtTQ Meet Dr David Berlowitz whose team is examining the causes and treatments of sleep and breathing disorders in neuromuscular disease (Institute for Breathing and Sleep, VIC). Meet Camille Paynter whose study examines the ways in which MND patients and their carers engage with healthcare decision-making.

23.01.2022 Highlighting the incredible work OT's play with Sarah, Mimi and Jimmy

23.01.2022 We're delighted to announce the appointment of our new CEO, David Ali. David brings very relevant and diverse skills and experiences to the role including over ...20 years involvement with the MND community on both a national and international level. We look forward to welcoming David as CEO in March 2021. Read more > https://bit.ly/39cAvqt We'd also like to thank our wonderful outgoing CEO, Carol Birks, who has been part of the national network of MND Associations since 2000, including 14 years as CEO of MND Australia. Her invaluable contribution and commitment to improving the lives of people impacted by MND has made the world a better place. We wish her well in her 'transition to retirement'.

23.01.2022 Calling all Health Professionals

22.01.2022 MND Victoria thanks all our volunteers for supporting the organisation and people living with MND. https://youtu.be/mObGX4cJ3mk

22.01.2022 Look at Australia Move for MND AM4MND Big shout out to all fundraisers and donors around the nation! You are truly amazing #togetherwecan #nevergiveup #mnd #caretocure #fundraising

21.01.2022 Together #MND #ALS #Nevergiveup

21.01.2022 Who doesn't love a free upgrade!! Get yours now by following the link below Thank you for helping us to help others #TogetherWeCan... https://au.entdigital.net/orderbooks/24004m3

19.01.2022 Happy Mothers Day to all the mothers. Our special thoughts are with the mothers living with MND, those caring for someone with MND, and for everyone who has lost their beautiful mother. May they live on forever in our hearts

19.01.2022 #MNDWeek21 People with MND don't have time to sit on a waiting list for a My Aged Care package. We need to put pressure on the federal Government to implement a... key recommendation from the Royal Commission - to urgently clear the home care package waiting list. Find out how you can help here: https://bit.ly/2SA5Xpl #StillWaiting See more

19.01.2022 Tune in @ 7pm on Thursdays

18.01.2022 #ScienceWeek For National Science Week wed like to give a big shout out to all the past and present Australian MND scientists Through the generosity of... the Australian MND community, MND Research Australia has been supporting researchers since 1987. It is only through scientific research that we will one day have a cure for MND See more

17.01.2022 Its National Volunteer week and we would like to say a HUGE thank you to all of our volunteers past and present. It is the work that you do that allows us to provide the care that is needed to those affected by MND in Tasmania #volunteers # caretocure #nevergiveup #thankyou

17.01.2022 Thank you to our wonderful donors and supporters who allow us to invest in high quality Australian MND research to #EndMND Learn more about the recipients and the MND research projects: https://bit.ly/2UUsez7

17.01.2022 Powerful and moving stories of people living with #MND featured in the SA Weekend Magazine, including insights into the striking difference in care between the ...#NDIS (for ppl under 65 yrs) and My Aged Care (for ppl aged 65+). The big issue is the haves, and have-nots, says Dr Peter Allcroft, a neurologist from Adelaide. If youre under 65 the NDIS does a great job.....but if you are 65 and one day you are in My Aged Care and while you might be approved for a Level Four package, which means you need a lot of care, you might die waiting for it. It deserves a class action to say, this is discrimination.

16.01.2022 Congratulations Neale Daniher #TogetherWeCan

16.01.2022 Together we can make Aged Care fair

16.01.2022 Good news! MND research is continuing to advance and gain momentum despite the upheaval of COVID-19. Isabella Lambert-Smith, a researcher from the University ...of Wollongong, shares her experience of how the MND research community are coming together like never before to gain a clearer understanding of this terrible disease: https://bit.ly/mndresearch See more

15.01.2022 Today is our AGM and we thought it would be a good opportunity to celebrate and thank our wonderful MND Australia board! All directors are volunteers but brin...g with them a wealth of talent and skills to help drive our organisation. Many of our board also serve on a state MND association's board, and all are committed to help improve the lives of people living with MND. Learn more about our board: https://bit.ly/3kvJZzj See more

15.01.2022 Palliative care plays a vital role in living with MND. Quality palliative care from diagnoses ensures people live as well as possible for as long as possible. A... palliative approach supports the physical, emotional and spiritual needs of a person living with MND and their family #NPCW2020 #morethanyouthink Palliative Care Australia

14.01.2022 Don't for get the first webinar is this Thursday at 3pm. We hope you can join us #TogetherWeCan

14.01.2022 Thank you to all the federal MPs and Senators who wore our blue cornflower at Parliament House this week in the lead up to Global ALS/MND Awareness Day. Heres a few that we spotted #ALSMNDWithoutBorders

12.01.2022 This trial initially came about from the Ice Bucket Challenge funding #togetherwecan #nevergiveup https://www.mndaust.asn.au//Results-from-stage-2-trial-of-

12.01.2022 Lets try this again! Zooming with Dan will return this week and feature Beck Mason, one of our incredible, long-term fundraisers. Tune in at 7:00 pm this Thursday to learn more Until theres a cure, theres care. #MND #ALS #NeverGiveUp

11.01.2022 After experiencing some technical difficulties last week we are looking forward to hearing from Dan, Emma and Ben tonight. #nevergiveup

11.01.2022 I am wearing this cornflower in parliament today to raise awareness of MND ahead of Global MND Awareness Day on Sunday. MND is a rapidly progressive, terminal n...eurological disease. Two Australians die each day from MND and another two are diagnosed. The cornflower, because of its hardy nature is a symbol of hope for a world free from MND. MND Australia #ALSMNDWithoutBorders

11.01.2022 Up until 13 September we will receive an additional $10 for every single city membership purchased and an extra $20 for every multi city and multi plus membership. With all the savings on offer it has to be a win win Use the link below to get your membership today and help us to help others! #togetherwecan... https://www.entertainment.com.au/orderbooks/24004m3 See more

10.01.2022 Please take action to make change. With your help we can help people living with MND live better for longer #togetherwecan

09.01.2022 Thank you to all involved in making this possible #togetherwecan

09.01.2022 Here are some ways to join the global fight and show your support for Australians living with MND #nevergiveup

09.01.2022 Did you know that every state has its own MND association? Our national fundraiser, Australia Moves for MND, is helping to support all 2100 Australians living ...with MND. Check out this feedback from our friends in South Australia! Donate to #AM4MND here www.am4mnd.org.au/events/6/vic-moves-for-mnd

09.01.2022 Please support MND Tasmania this MND Week by purchasing a virtual cornflower by following the link below Feel free to share with all your friends and colleagues #togetherwecan #mndweek2021

08.01.2022 Tune in tomorrow night at 7pm to hear from Emma who is one of our local Advisors

08.01.2022 WOW Feeling extremely grateful that we have such loyal supporters!! Shane Ling and crew, thank you so much for your continued support. It is only through the generosity of others that we can provide the much needed MND Advisor Service to those Tasmanians living with MND and we appreciate your help in doing this year after year. #TogetherWeCan #nevergiveup

07.01.2022 Tune in tomorrow @ 11am

07.01.2022 https://www.youtube.com/watch In loving memory of Kirk Dicker

07.01.2022 Pop this one in the diary too!!

06.01.2022 Its Episode 10 of Zooming with Dan! This week, Dan will be joined by Michelle and John Caliste. Their son, Robbie, was only 34 years old when he was diagnosed... with MND Tune in at 7:00 pm AEST this Thursday to hear more of their story. Until theres a cure, theres care. #MND #ALS #NeverGiveUp

05.01.2022 Join us at 7:00pm AEST tonight to hear from Michelle and John Caliste. Their son, Robbie, was only 34 years old when he was diagnosed with MND Until theres a cure, theres care. #MND #ALS #NeverGiveUp

05.01.2022 ***VIRTUAL SUPERBALL*** All monies raised go to MNDRA to fund some of Australias best and brightest research scientist in a bid to find a cure for this insidious disease. Date: Saturday, 15th August 2020 Dress: Dress how you want to From Black Tie to PJs!!!... Cost: $100 per person. ($100 will be fully tax deductible as a donation to MND) Venue: Your Place & Online Time: Music streaming from 6.30pm, live broadcast from 7.15pm 8-00pm sharp For further information email [email protected] and we can send you all the details

04.01.2022 This should not happen!!

04.01.2022 MND Victoria has recently undertaken a survey of current Tasmanian clients to obtain feedback on the services it provides in conjunction with MND Tasmania. Resp...onses were overwhelmingly positive, particularly in regard to the support provided by our two Tasmanian MND Advisors, Jenny and Emma. Many clients expressed their appreciation of the high quality care and support they receive and conveyed how grateful their families are too. See more

03.01.2022 #MNDWeek21 MND is a rapidly progressing and terminal disease. People living with MND need fast access to high level My Aged Care packages. We need the federal ...Government to urgently implement one of the key recommendations from the Royal Commission - to allocate home care packages within 1 month at the level people are approved for. Find out how you can help here: https://bit.ly/2SA5Xpl

01.01.2022 Tony is still WAITING for his My Age Care home care package. Join the campaign to Make Aged Care Fair for people with MND: https://bit.ly/2SA5Xpl #MNDWeek2020 #MACF