Motor Neurone Disease Association of Victoria in Canterbury, Victoria | Community group

Motor Neurone Disease Association of Victoria

Locality: Canterbury, Victoria

Phone: +61 3 9830 2122

Address: 265 Canterbury Road 3126 Canterbury, Victoria, VIC, Australia

Website: http://www.mnd.org.au

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• Community group
• Non-profit organisation
• Charitable organisation
• Community organisation

25.01.2022 Challenge yourself to take on three mountain peaks on the MND Victoria Three Peaks Challenge! Join us in March 2021 as we climb some of Australia’s highest mountains to raise funds for those affected by motor neurone disease Spots are limited. Sign up now so you don’t miss out!... https://inspiredadventures.com.au/events/mndvic-3peaks-2021 If you have any questions or you’d like to discuss in more detail, please contact Steph at [email protected] or on 03 98302122 #MND3Peaks2021 #MND #ALS #NeverGiveUp #UntilTheresACureTheresCare

24.01.2022 Zooming with Dan is back with Mark who has been living with MND for 7 years and Ruby who is Mark's MND Advisor and Support Coordinator. Hear all about Mark's story and the importance of MND Victoria's services.

23.01.2022 Merry #Christmas to all our MND community, your families and friends This year has been a year like no other. And from our families to yours, we wish you all the best for the holiday season. We are especially thinking today of the people who are missing loved ones who have died from Motor Neurone Disease, and those who are currently living with the disease. We are so thankful to everyone who cares for people with MND ... Our office will be closed over Christmas and we will return on Monday the 4th of January. If you need someone to talk to over the Christmas / New Year period, please contact the following agency for assistance: The National GriefLine is available on (03) 9935 7400 or: 1300 845 745 (landline only) from 6 am to midnight AEST. Until there's a cure, there's care. #MND #ALS #NeverGiveUp

17.01.2022 Meet the stars of our 2020 Christmas Appeal. 2020 has been tough on so many levels. Imagine being diagnosed with motor neurone disease the day before Victoria was put into lockdown. That’s exactly how 2020 shaped up for Lance and his wife, Cecile. Lance and Cecile’s story is nothing short of mesmerising. ... The term ‘inspirational’ doesn’t do their relationship justice. Cecile, who was born blind, has been cared for and supporter unconditionally by Lance since the couple met 12 years ago. Now, both play a significant carer role for each other. You haven’t seen teamwork until you’ve met Lance and Cecile Please give generously to our 2020 Christmas Appeal so all Victorians living with MND, just like Lance, can continue receiving the best possible care, support and vital assistive equipment to enable them to live as well as possible for as long as possible. Follow the link to make a donation, hang a decoration on our tree and leave a message - https://www.mnd.org.au/campaign/1/dv-campaign Until there's a cure, there's care.

16.01.2022 A recent MND Australia article highlights the benefits of participating in research which can be a very positive, and meaningful, experience for both people living with MND and their carers. (Read the article here - bit.ly/2UWgOLo). For those who have been offered genetic testing, a new study is hoping to interview individuals with MND and their family members about their experience of being offered (and if relevant, undergoing) genetic testing for MND genes. Researchers ar...e also interested in suggestions for improving this experience for others in future. Interviews can be done by telephone, video conference, text or email. If you are interested in taking part or would like more information, please either complete the form here: https://redcap.link/qs0liv24 or contact Ashley Crook by email ([email protected]). This study is part of a PhD project and has been approved by the Human Research Ethics Committee, University of Technology Sydney (Approval no. ETH20-5122).

13.01.2022 The Young People’s Group was established in 2003 for people living with MND under the age of 50. Today, there are a number of Support Groups run by members of our community. These groups create a space where people can come together and support each other on their MND journeys Lobbying for Rilutek to be added to the Pharmaceutical Benefits Scheme (PBS) was also undertaken. In Australia today, both brands of riluzole (Rilutek and APO-Riluzole) are available for eligible people at a subsidised price on the PBS under an authority prescription. #MNDmilestoneMonday #milestoneMonday #MND #ALS #NeverGiveUp #SupportGroups

12.01.2022 MND Victoria would like to congratulate Neale Daniher for being awarded an Order of Australia. This is one of the nations highest honours and to say it’s very well deserved is an understatement! We would also like to congratulate Neale and the whole team at Fight MND for another phenomenal Big Freeze campaign. There is no doubt research in the MND space is moving forward at a rapid rate thanks to the work of Fight MND. MND Victoria has been providing the best possible care, s...upport and vital assistive equipment to all Victorians living with MND for 40 years. We will continue providing our critical services until the day we are no longer required. If you’d like to support MND Victoria’s work and the 470 Victorians currently living with MND, please visit - www.mnd.org.au/tax Until there’s a cure, there’s care. #MND #ALS #NeverGiveUp Photo Credit: Channel 9 News

10.01.2022 Labour of love Our very own Janette crafted these beautiful Christmas angels for our volunteers. Over 140 were handmade as a token of our appreciation to each and every one of our volunteers. MND Victoria could not do the work we do throughout the year without their dedication to help provide people living with MND with the care and support they need to live better for longer. Share your angels hanging up in the comment section

10.01.2022 Want to challenge yourself while supporting an incredible cause? It's as easy as climbing 1, 2, 3! Join the MND Victoria Three Peaks Challenge in 2021! Next March, we are heading to the Victorian Alps on an incredible trekking adventure. You could be spending three challenging days tackling Mt Stirling, Mt Feathertop and Mt Bogong, each view from the top as impressive as the last. Best of all, every step you take will make a difference to the lives of those affected by mo...tor neurone disease Spots are limited. Want to find out how you can save your place on this once-in-a-lifetime trip? Follow the link below for more details https://inspiredadventures.com.au/events/mndvic-3peaks-2021 If you have any questions or you’d like to discuss in more detail, please contact Steph at [email protected] or on 03 98302122 #MND3Peaks2021 #MND #ALS #NeverGiveUp #UntilTheresACureTheresCare

10.01.2022 We are #hiring! MND Advisor and Support Coordinator Role - 6 12 month Maternity Leave Cover We are looking for a health professional to join our small but supportive team to cover for an Advisor who will on 6 months maternity leave. Opportunity for a further 6 months of part-time work. You will be based in our Canterbury office with some home working possible and cover the Southern Metro areas of Melbourne.... Are you: Committed to delivering the best possible support and advocacy for people living with a disability? Keen to use your broad knowledge and experience of the disability and aged care sectors? A dedicated health professional looking for a challenge? MND Victoria provides information, advice and support services for people living with motor neurone disease (MND) in Victoria. We have a fabulous team of 15 MND Advisors & Support Coordinators who work with people across the state. We are seeking an experienced health professional to work with people with MND to: provide advice and support to people living with MND, their families, carers and colleagues provide support coordination for NDIS participants plan, refer and negotiate services with and for people living with MND represent the needs of people with MND with NDIA, Disability Services, My Aged Care, service providers and funded agencies This is a full-time position, but we will consider applicants who can work 0.8FTE. Excellent salary, work motor vehicle and salary packaging available. For inquiries and a position description, contact Jo Whitehouse [email protected] or 0402 183 140.

10.01.2022 Thank you to our MND Victoria volunteers who have continued to support the work of the organisation in a variety of ways this year With the easing of COVID-19 restrictions in Melbourne, we look forward welcoming back the return of numerous volunteers roles. MND Victoria volunteers are amazing!

07.01.2022 Tonight's the night! Dan will be interviewing Mark and Ruby. Mark was diagnosed with MND in April 2015 and has been utilising our MND Advisor/Support Coordinator Service ever since. Ruby is one of our amazing MND Advisors & Support Coordinators who provides care and support to a number of people living with MND.

07.01.2022 We couldn’t be more appreciative of the incredible support we received for our Walk to D’Feet MND: Tour of Victoria Our amazing community banded together to raise an incredible $268,540 from over 3990 supporters, making this year our most successful Walk to D'Feet MND yet!! All of us at MND Victoria are so thankful for the support shown to all 450 Victorians currently living with MND. While we couldn't all Walk as one big group this year, we were humbled to see the co...mmitment and passion from our MND community right across the state (and country!) Here's to the 2021 Walk to D'Feet MND being even bigger and better! #MNDTourVic #MNDWalk #MND #ALS #NeverGiveUp #UntilTheresACureTheresCare

06.01.2022 Imagine being diagnosed with Motor Neurone Disease the day before Victoria was put into lockdown back in March. That’s exactly how 2020 started for Lance and his wife, Cecile. Their story of unconditional love is inspirational Cecile, who was born blind, has been cared for and supported by Lance since the couple met 12 years ago. They now both play a significant carer role for each other. Please give generously to our 2020 Christmas Appeal so Victorians living with MND..., just like Lance, can continue receiving the best possible care, support and vital assistive equipment to enable them to live as well as possible for as long as possible. Follow the link to make a donation, hang a decoration on our tree and leave a message - https://www.mnd.org.au/campa/donate/1/christmas-appeal-2020 Until there's a cure, there's care. #MND #ALS #NeverGiveUp

06.01.2022 Summer Foundation is an organisation working towards changes that stop young people from being forced to live in nursing homes and ensuring they have age-appropriate options. Often the care needs associated with living with MND means people have to make difficult decisions about their housing and care. Summer Foundation is working towards creating change so people have options to meet their housing needs. If you are interested in learning more about housing options to suppor...t people living with a disability you can join Summer Foundation for a Workshop on the 24th, 25th, 26th or 27th of November to learn about: Housing and support under the NDIS Different types of places you could live Different ways of paying for where you live Specialist Disability Accommodation Tips for searching for housing Home ownership and independent living options Summer Foundation NDIS Housing Options online workshop is being run by people with disability, for people with disability and families. And it’s free! Register via https://www.housinghub.org.au//ndis-housing-options-worksh Or Phone Summer Foundation on 1300 61 64 63 to find out more. Until there's a cure, there's care. #MND #ALS #NeverGiveUp

06.01.2022 Episode 3 of Zooming with Dan is almost here! Be sure to head to MND Victoria's Facebook page for the interview this Tuesday with Mark Richardson and Ruby Nunan-Jackson Mark was diagnosed with MND in April 2015 and has been utilising our MND Advisor & Support Coordinator Service ever since. Ruby is one of our MND Advisors & Support Coordinators and provides care and support to a number of people living with MND. Join us this Tuesday (June 15) at 8:00pm AEST, where Dan wil...l be interviewing Mark and Ruby about the importance of MND Victoria's Advisor & Support Coordinator Service. Until there's a cure, there's care. #MND #ALS #NeverGiveUp

06.01.2022 People often mention to us they would like more information on research in the MND field. MND Research Australia has put together a series of upcoming webinars on just that. No scientific background is required! Topics include: Step into the Lab... Tuesday, November 24 at 7 PM What can mice models and stem-cells teach us about MND? Improving Care Tuesday, December 1 at 7 PM Novel Therapies and Healthcare Decision-Making Measuring Progression Tuesday, December 8 at 7 PM How is the progression of MND measured? Pathways to Treatment Tuesday, December 15 at 7 PM What do brain activity and metabolism have to do with MND? For more information and to register, please visit MND Australia's webpage https://www.mndaust.asn.au//gr/2020-Research-Seminars.aspx #MND #ALS #NeverGiveUp

06.01.2022 Vale Pat Quinn. Pat Quinn played a significant role in fundraising for and raising awareness of MND/ALS, particularly through the Ice Bucket Challenge. We would like to acknowledge his contribution and dedication. For the history of the Ice Bucket Challenge, visit here: https://bit.ly/3pRbyqz... Until there's a cure, there's care. #MND #ALS #NeverGiveUp

04.01.2022 Graham is 1 of 470 Victorians living with MND right now. He depends on us, and we depend on you. Your donation will ensure we can continue providing vital equipment and care to every Victorian living with MND, like Graham. Please give to www.mnd.org.au/tax today.... Until there's a cure, there's care. #MND #ALS #NeverGiveUs

04.01.2022 It's time to mask up in style! Our face masks are now on sale Each mask is three-ply and reusable. Get 1 for $10.00 or 3 for $20.00 - that's 3 for the price of 2! Get yours today by visiting bit.ly/NeverGiveUpMNDStore or phoning 03 9830 2122.... The purchase of each mask directly supports the 450 Victorians currently living with MND Until there's a cure, there's care. #MND #ALS #NeverGiveUp

03.01.2022 Today is #GivingTuesday - a day where countries all around the world come together to recognise the contributions made by all not-for-profit organisations. It celebrates and enhances generosity in our communities. At MND Victoria, we are proud to be supporting over 450 Victorians currently living with MND to help them live as well as possible for as long as possible If you would like to donate and put a decoration on our Christmas Gum Tree , please visit ... https://www.mnd.org.au/campa/donate/1/christmas-appeal-2020 Until there's a cure, there's care. #MND #ALS #NeverGiveUp

02.01.2022 2021 will be the year to challenge yourself, so why not sign up for our Three Peaks Challenge in March! Not only will you climb Mt Stirling, Mt Feathertop and Mt Bogong and be rewarded with spectacular views, but every step you take will also make a difference to the lives of those affected by motor neurone disease So what are you waiting for? Sign up now so you don’t miss out!... https://inspiredadventures.com.au/events/mndvic-3peaks-2021 If you have any questions or you’d like to discuss in more detail, please contact Steph at [email protected] or on 03 98302122 #MND3Peaks2021 #MND #ALS #NeverGiveUp #UntilTheresACureTheresCare

01.01.2022 MND Victoria delivered 3,002 items of equipment to 394 people living with MND last year Approximately 70% of MND Victoria's funds were raised by contributions from the community last financial year. This generosity assisted our ongoing purchase of new equipment to ensure people with MND receive high-quality assistive technology. Our team are incredibly proud to provide the help needed for people living with MND to stay as safe, independent and as engaged with their commu...nity for as long as possible. Until there's a cure, there's care. #MND #ALS #NeverGiveUp

01.01.2022 Who doesn't love a sale! MND Victoria Face Masks 1 for $10.00 or 3 for $20.00 - that's 3 for the price of 2! ... Each mask is three-ply, reusable and each one sold directly supports the 450 Victorians currently living with MND Get yours today by visiting bit.ly/NeverGiveUpMNDStore or phoning 03 9830 2122 Until there's a cure, there's care. #MND #ALS #NeverGiveUp

01.01.2022 We are on the lookout for someone passionate about community and promoting health to join our team. If you, or someone you know is community focused with excellent communication skills, this is a fantastic role within MND Victoria's Education and Client Support team. More details and how to apply on our Career page - https://www.mnd.org.au/page/98/careers Contact Jo at [email protected] for any further information.